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Experiences with
Fludarabine, cyclophosphamide and rituximab (FCR)
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FCR versus BR in frontline CLL - Dr Sharman's comments on the upcoming German CLL10 ASH paper
Read more at: http://www.cll-nhl.com/2013/11/
fcr
-versus-br-in-front-line-cll.html Hopefully BR or even better BR+? will soon be available for those of us where
FCR
is perhaps not the better choice due to our age or other factors such as renal function and medical comorbidities. Neil
Read more at: http://www.cll-nhl.com/2013/11/
fcr
-versus-br-in-front-line-cll.html Hopefully BR or even better BR+? will soon be available for those of us where
FCR
is perhaps not the better choice due to our age or other factors such as renal function and medical comorbidities. Neil
AussieNeil
Partner
in
CLL Support
11 years ago
FCR Round One Down - 5 to go....
On my final visit to my consultant before giving the go-ahead for
FCR
, my spleen was so enlarged as to reduce my lung capacity on the left side - I literally couldn't get enough breath in, and felt as if my chest was being constantly squeezed.
On my final visit to my consultant before giving the go-ahead for
FCR
, my spleen was so enlarged as to reduce my lung capacity on the left side - I literally couldn't get enough breath in, and felt as if my chest was being constantly squeezed.
jibs60
in
CLL Support
11 years ago
Does anyone have any reliable information about ZANDOPA?
I have been on Sinemet for six years - 800 mg currently - and now that the s/e are severely impacting on my life I am keen to find a way of reducing it. In particular, the dyskinesias are getting much worse. I can't be prescribed a dopamine agonist because of ICD previously. I have received a 200g
I have been on Sinemet for six years - 800 mg currently - and now that the s/e are severely impacting on my life I am keen to find a way of reducing it. In particular, the dyskinesias are getting much worse. I can't be prescribed a dopamine agonist because of ICD previously. I have received a 200g
batwing7
in
Cure Parkinson's
11 years ago
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Has anyone had experience with cyclosporin A? My husband has pure red cell aplasia along w/cll & fcr is being suspended for cyclosporin.
LAinNYC
in
CLL Support
11 years ago
Autoimmune haemolytic anaemia - AIHA
In July I began
FCR
- the plan was for a cycle of six treatments. Following my second treatment, my haemoglobin level fell, necessitating a blood transfusion. I had my third treatment a week later than originally scheduled.
In July I began
FCR
- the plan was for a cycle of six treatments. Following my second treatment, my haemoglobin level fell, necessitating a blood transfusion. I had my third treatment a week later than originally scheduled.
School3
in
CLL Support
11 years ago
Who is Getting the IGHV (formerly known as IgVH) Mutational Status Tests in UK?
As IGHV mutational status is acknowledged to be a good indicator of likely response to
FCR
treatment, including potential clonal evolution, I'd quite like to have the test done now as I approach treatment.
As IGHV mutational status is acknowledged to be a good indicator of likely response to
FCR
treatment, including potential clonal evolution, I'd quite like to have the test done now as I approach treatment.
jibs60
in
CLL Support
11 years ago
Making Peace with FCR in the Squeezed Middle: Response to another very hopeful video from Steven Rosen
Alternatively , I could get
FCR
now whilst I still stand some chance of getting a durable remission (given that there's a 50% chance that's what I'd end up with anyway).
Alternatively , I could get
FCR
now whilst I still stand some chance of getting a durable remission (given that there's a 50% chance that's what I'd end up with anyway).
jibs60
in
CLL Support
11 years ago
I am nearly 6 months after FCR. My WBC and ALC are just below specification.
Would a FISH test (it's on my blood form) be accurate considering the low number of leukemic cells or lymphocytes?
Would a FISH test (it's on my blood form) be accurate considering the low number of leukemic cells or lymphocytes?
keepfit123
in
CLL Support
11 years ago
Extended Release Medications
I have read some posts where Extended Release medication forms such as Sinemet CR and Stalevo are being cut in half. These medications are meant to be swallowed whole as cutting them (or chewing them) defeats the purpose of the dose.....a gradual slow release of the active medication so that large "spikes
I have read some posts where Extended Release medication forms such as Sinemet CR and Stalevo are being cut in half. These medications are meant to be swallowed whole as cutting them (or chewing them) defeats the purpose of the dose.....a gradual slow release of the active medication so that large "spikes
ozepook47
in
Cure Parkinson's
11 years ago
Is Long-Term CLL Remission with FCR a Cure?
William Wierda of MD Anderson discusses the recent data releases at ASH this year Offering some interesting thoughts about some of those still in remission after 9 years post
FCR
. http://www.patientpower.info/video/is-long-term-cll-remission-with-
fcr
-a-cure?
William Wierda of MD Anderson discusses the recent data releases at ASH this year Offering some interesting thoughts about some of those still in remission after 9 years post
FCR
. http://www.patientpower.info/video/is-long-term-cll-remission-with-
fcr
-a-cure?
HAIRBEAR_UK
Administrator
in
CLL Support
11 years ago
Unusual and unpleasant Acyclovir (Zovirax) side effect mainly occurs in people with renal failure
cmpid=NLC|NSNS|2013-1010-GLOBAL&utm_medium=NLC What an unpleasant side effect for a prophylactic commonly recommended for patients receiving fludarabine (in
FCR
) and patients who have a higher risk of infection. Neil Picture: Who's the imposter?
cmpid=NLC|NSNS|2013-1010-GLOBAL&utm_medium=NLC What an unpleasant side effect for a prophylactic commonly recommended for patients receiving fludarabine (in
FCR
) and patients who have a higher risk of infection. Neil Picture: Who's the imposter?
AussieNeil
Partner
in
CLL Support
11 years ago
Any alternative Pneumonia vaccines?
Hi I was diagnosed with CLL in 2007 and had
FCR
in 2010/11, having only 5 of the six treatments. Prior to this I had been diagnosed with Psoriatic Arthritis in the hands which has spread to the knees and feet. The treatment for this is currently subcutaneous methotrexate (20mls) per week.
Hi I was diagnosed with CLL in 2007 and had
FCR
in 2010/11, having only 5 of the six treatments. Prior to this I had been diagnosed with Psoriatic Arthritis in the hands which has spread to the knees and feet. The treatment for this is currently subcutaneous methotrexate (20mls) per week.
Mick491
in
CLL Support
11 years ago
Anyone know if CLL 10 trial (FCR v Ibrutinib+R) is open for recruitment anywhere in UK?
Saw my consultant today and, unsurprisingly (given my recently enlarged spleen and neck nodes, and a downturn in my HB and platelets), he is suggesting that it is chemo time for me. He wants to start me in early November, after my current chest infection has settled, and he's had time to run cytogenetics
Saw my consultant today and, unsurprisingly (given my recently enlarged spleen and neck nodes, and a downturn in my HB and platelets), he is suggesting that it is chemo time for me. He wants to start me in early November, after my current chest infection has settled, and he's had time to run cytogenetics
jibs60
in
CLL Support
11 years ago
More help / info please SLL
What sort of questions do I need to ask ,before my treatment starts, regarding the need for
FCR
so suddenly.
What sort of questions do I need to ask ,before my treatment starts, regarding the need for
FCR
so suddenly.
sparkio
in
CLL Support
11 years ago
Patient Power are now posting videos taken at this week's IWCLL meeting in Cologne
Neil Kay from Mayo Clinic at http://www.patientpower.info/video/refining-cll-diagnostic-and-treatment-approaches Coming soon: David Porter on CARS, Tom Kipps on monoclonal antibodies, Bill Weirda on
FCR
longterm data, Jeff Sharman on a novel drug update and much much more.
Neil Kay from Mayo Clinic at http://www.patientpower.info/video/refining-cll-diagnostic-and-treatment-approaches Coming soon: David Porter on CARS, Tom Kipps on monoclonal antibodies, Bill Weirda on
FCR
longterm data, Jeff Sharman on a novel drug update and much much more.
AussieNeil
Partner
in
CLL Support
11 years ago
Life after FCR.
(So far I have had no symptoms other than lymph node swellings and a rising blood count - no fatigue or night sweats) I know that everyone's experience with
FCR
is different but one thing that seems clear is that after
FCR
the immune system is less strong certainly for the short term and often for the
(So far I have had no symptoms other than lymph node swellings and a rising blood count - no fatigue or night sweats) I know that everyone's experience with
FCR
is different but one thing that seems clear is that after
FCR
the immune system is less strong certainly for the short term and often for the
Markdce
in
CLL Support
11 years ago
Prediction of poor outcome in CLL patients following first-line treatment with FCR
New data from the German CLL8 trial a few years ago looks at factors that make patients at high risk to fail and progress early after treatment with
FCR
... Full study... http://www.nature.com/leu/journal/v27/n9/pdf/leu2013190a.pdf
New data from the German CLL8 trial a few years ago looks at factors that make patients at high risk to fail and progress early after treatment with
FCR
... Full study... http://www.nature.com/leu/journal/v27/n9/pdf/leu2013190a.pdf
Cllcanada
Top Poster CURE Hero
in
CLL Support
11 years ago
My husband's 2nd round of fcr was delayed again due to low hemoglobin but other blood values are within range. What could be causing this?
LAinNYC
in
CLL Support
11 years ago
just diagnosed
To then be told that I had other lumps beneath my diaphragm and that I will start
FCR
chemotherapy next week has really frightened me. I, like a lot of others out there no doubt, have no idea what`s coming.
To then be told that I had other lumps beneath my diaphragm and that I will start
FCR
chemotherapy next week has really frightened me. I, like a lot of others out there no doubt, have no idea what`s coming.
sparkio
in
CLL Support
11 years ago
Has anybody experienced or read about the problems of recurrent infections following FCR in spite of all blood test results being normal?
Having gone through the pain of
FCR
from August to December last year, I am now in remission with normal blood test results. However, I have suffered from recurrent infections, some more debilitating than others, since March.
Having gone through the pain of
FCR
from August to December last year, I am now in remission with normal blood test results. However, I have suffered from recurrent infections, some more debilitating than others, since March.
Bisto
CLLSA
in
CLL Support
11 years ago
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