I was diagnosed with CLL in June 2007. I had 5 doses of FCR in 2010/11 with success. Despite being told all my bloods are within the 'normal' range, 3 out of the last 4 years I have been admitted to hospital and treated with IV antibiotics for pneumonia and temps of 40.5
I originally received the pneumococcal vaccine in 2005 because I had been put on subcutaneous methotrexate for severe arthritis. (I am aware methotrexate in itself compromises my immune system and I have monthly blood tests because of this). However, from the information on this site the goal posts in relation to pneumonia vaccines appear to have changed. When I received the vaccine I was told it was for life and the current information now says you need it every 5 years. It appears many GPs are not aware of this.
I have a very understanding GP because as well as the CLL, I was disabled with spinal injuries as a fire-fighter, then 4 pneumonias, a heart attack (with surgery leading to another pneumonia) last year, in July this year I had a 14 day admission with salmonella, campylobacter and kidney failure. So despite the normality of my bloods my immune system is definitely compromised. Because of my history with pneumonia I am terrified of this winter.
I have approached my GP and explained about the information available on this site and the various pneumonia alternative vaccines. He listened to what I have said and has kindly done an immunoglobulin test which I am awaiting results. If that comes back ok I am hoping to convince him to give me another pneumococcal vaccine and soon.
Is there anyone on this site that can point me in the direction of authorative guidance for GPs relating to giving this vaccine to immune compromised patients.