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Experiences with
Fludarabine, cyclophosphamide and rituximab (FCR)
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platelet levels still dropping
My OH had his first
FCR
treatment 5 weeks ago. Was due for another to start last Tuesday, but platelet levels low (72), so delayed a week until another test and hopefully pick up in levels; however, have just got results, even lower now (68), so probably another week's delay. Is this standard?
My OH had his first
FCR
treatment 5 weeks ago. Was due for another to start last Tuesday, but platelet levels low (72), so delayed a week until another test and hopefully pick up in levels; however, have just got results, even lower now (68), so probably another week's delay. Is this standard?
shoppingtrolley
in
CLL Support
7 years ago
Impact of chemo on orthopedic healing process?
My hematologist seems to think that having
FCR
treatment whilst this is ongoing would not be a problem but I am not so sure. I would think that the blunt instrument of
FCR
chemo would inevitably also affect the very specialist blood cells required for the fusion healing process.
My hematologist seems to think that having
FCR
treatment whilst this is ongoing would not be a problem but I am not so sure. I would think that the blunt instrument of
FCR
chemo would inevitably also affect the very specialist blood cells required for the fusion healing process.
Redlion
in
CLL Support
7 years ago
Treatment Tradeoffs. Very good Video. Debate: Is it appropriate to treat patients with CLL earlier in the era of novel agents? Dr. Furman
v=AN3yUS8ZuKc
FCR
vs. Ibruvica Side effects
v=AN3yUS8ZuKc
FCR
vs. Ibruvica Side effects
Hoffy
in
CLL Support
7 years ago
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2nd session
I started my 2nd session
FCR
on Wednesday. No reaction this time with Rituximab! Only side effects so far are fatigue and nausea which unpleasant but manageable. Onwards and upwards. Best wishes to everyone out there x
I started my 2nd session
FCR
on Wednesday. No reaction this time with Rituximab! Only side effects so far are fatigue and nausea which unpleasant but manageable. Onwards and upwards. Best wishes to everyone out there x
sallyplest
in
CLL Support
7 years ago
Treatment choices and work or not to work
The two options they have given me are
FCR
and a trial which is Rituximub with Ibrutinib. I would be grateful for any thoughts or information on which one would be better for me. The other thing that is worrying me is whether I am going to be able to work.
The two options they have given me are
FCR
and a trial which is Rituximub with Ibrutinib. I would be grateful for any thoughts or information on which one would be better for me. The other thing that is worrying me is whether I am going to be able to work.
Eebie1234
in
CLL Support
7 years ago
Delayed 2nd FCR 🙄
Well I was mentally prepared for my 2nd
FCR
on May 8th but not physically it seems. I had my blood tests today and my WBC was down from 149 to 1.9, fantastic! But my neutrophils are also 1 so I can't have it. I'd be really grateful for some neutrophils info as I'm fairly ignorant in this area.
Well I was mentally prepared for my 2nd
FCR
on May 8th but not physically it seems. I had my blood tests today and my WBC was down from 149 to 1.9, fantastic! But my neutrophils are also 1 so I can't have it. I'd be really grateful for some neutrophils info as I'm fairly ignorant in this area.
sallyplest
in
CLL Support
7 years ago
6 months post FCR and let me introduce Brewster to you all!
It's hard to believe that 6 months have past by since Chemo... some days I feel nearly normal🤓 And don't give too much thought to CLL but other days it can be the burden that you carry around – On those days it feels as if i am on an isolated island, all by myself , trying to predict how long remission
It's hard to believe that 6 months have past by since Chemo... some days I feel nearly normal🤓 And don't give too much thought to CLL but other days it can be the burden that you carry around – On those days it feels as if i am on an isolated island, all by myself , trying to predict how long remission
Bethan49
in
CLL Support
7 years ago
Azilect withdrawal
I was on Azilect for five years with a tyramine free diet no side effects. New Neurologist took me off it saying the trials had not shown good results I had been coping well with Stalevo x 5 times a day until an extremely stressful yr due to death threats by my daughter's estranged husband on my
I was on Azilect for five years with a tyramine free diet no side effects. New Neurologist took me off it saying the trials had not shown good results I had been coping well with Stalevo x 5 times a day until an extremely stressful yr due to death threats by my daughter's estranged husband on my
Maxkas
in
Cure Parkinson's
7 years ago
FCR...the "gold standard" for CLL
Byrd will give me
FCR
outpatient. I start Wed. May 3. I cant sleep or do much of anything. I am anxious but relieved to finally start treatment. I am trisomy 12 simple karotype mutated.
Byrd will give me
FCR
outpatient. I start Wed. May 3. I cant sleep or do much of anything. I am anxious but relieved to finally start treatment. I am trisomy 12 simple karotype mutated.
queencalabrese
in
CLL Support
7 years ago
Sleepless night
I understand with
FCR
that rituximab is the infusion which literally marks in advance the bad cells that the chemo needs to kill. So after my 1st session and follow up blood test my count is 149 to 1.9, brilliant but my neutrophils are 1.
I understand with
FCR
that rituximab is the infusion which literally marks in advance the bad cells that the chemo needs to kill. So after my 1st session and follow up blood test my count is 149 to 1.9, brilliant but my neutrophils are 1.
sallyplest
in
CLL Support
7 years ago
Treatment starts tomorrow.
Most figures have remained fairly stable, but platelet levels consistently around 80 for last 9 months, so
FCR
starting tomorrow. As he is pretty fit, we are hoping that 4 lots of treatment will be enough, but will obviously take it as it comes.
Most figures have remained fairly stable, but platelet levels consistently around 80 for last 9 months, so
FCR
starting tomorrow. As he is pretty fit, we are hoping that 4 lots of treatment will be enough, but will obviously take it as it comes.
shoppingtrolley
in
CLL Support
7 years ago
Fludarabine, cyclophosphamide, and rituximab as first-line treatment for CLL
The current study compared the effectiveness of
FCR
to FC alone. 817 patients were randomly assigned to
FCR
treatment or FC treatment. None of the patients had been treated previously. Average PFS was longer in the
FCR
group (51.8 months) than the FC group (32.8 months).
The current study compared the effectiveness of
FCR
to FC alone. 817 patients were randomly assigned to
FCR
treatment or FC treatment. None of the patients had been treated previously. Average PFS was longer in the
FCR
group (51.8 months) than the FC group (32.8 months).
wmay13241
in
CLL Support
7 years ago
Digestion
Hi, as I have recently posted I have just finished first session/week of
FCR
. I find this site extremely helpful and like having a friend who you can turn to for advice. I'm abit of an ignoramus as regards medication, I take what I'm told when I'm told.
Hi, as I have recently posted I have just finished first session/week of
FCR
. I find this site extremely helpful and like having a friend who you can turn to for advice. I'm abit of an ignoramus as regards medication, I take what I'm told when I'm told.
sallyplest
in
CLL Support
7 years ago
Ibrutinib stopped - What treatment next ?
Had two rounds of
FCR
which was stopped due to my bone marrow being wrecked. Managed to get on to Ibrutinib as a named patient via Dr Anna Schuh in Oxford. Now under the care of my local haematology consultant in Hereford.
Had two rounds of
FCR
which was stopped due to my bone marrow being wrecked. Managed to get on to Ibrutinib as a named patient via Dr Anna Schuh in Oxford. Now under the care of my local haematology consultant in Hereford.
Haileybury
in
CLL Support
7 years ago
Flair Trial - FCR first dose
Hi all Arrived hospital Monday morning 8.45am for first infusion of rituximab but pharmacy had lost my prescription, so after waiting 3hrs sent home to return Tuesday. Yesterday started first infusion 17ml for first half hr then increased to 35ml coped fine until increased to 48ml and had reaction.
Hi all Arrived hospital Monday morning 8.45am for first infusion of rituximab but pharmacy had lost my prescription, so after waiting 3hrs sent home to return Tuesday. Yesterday started first infusion 17ml for first half hr then increased to 35ml coped fine until increased to 48ml and had reaction.
sallyplest
in
CLL Support
7 years ago
FCR lite for relapsed SLL
Hope body will respond well for
FCR
-lite.
Hope body will respond well for
FCR
-lite.
mag1309
in
CLL Support
7 years ago
Chronic sinusitis following FCR?
A year later he had
FCR
with great results but the remission lasted only 3 1/2 years. For the last year and a half he has had chronic sinusitis and for the last several months it has been serious. He is scheduled to start Ibrutinib as soon as this has cleared up.
A year later he had
FCR
with great results but the remission lasted only 3 1/2 years. For the last year and a half he has had chronic sinusitis and for the last several months it has been serious. He is scheduled to start Ibrutinib as soon as this has cleared up.
Jls123
in
CLL Support
7 years ago
FCR, IBRUTINIB, VENETOCLAX what next...Stem Cell or CAR-T
Happy Easter everyone! So on this journey since Dec. 2010 and we can't seem to hit that remission "sweet spot" that we read about in the stats or trials - is it us or just the reality of how everyone's battle is unique in the world of CLL? We started V at the end of Feb. 2017 (as I posted our experience
Happy Easter everyone! So on this journey since Dec. 2010 and we can't seem to hit that remission "sweet spot" that we read about in the stats or trials - is it us or just the reality of how everyone's battle is unique in the world of CLL? We started V at the end of Feb. 2017 (as I posted our experience
NMMP
in
CLL Support
7 years ago
FCR and Bladder irritation
Hello All, I just thought I would pose a quick question to ask if these symptoms I have are common place or unrelated to
FCR
. I have just finished my 6th (and last) cycle of
FCR
just over a week ago. This last weekend I have started to need to go to toilet (pee) more often.
Hello All, I just thought I would pose a quick question to ask if these symptoms I have are common place or unrelated to
FCR
. I have just finished my 6th (and last) cycle of
FCR
just over a week ago. This last weekend I have started to need to go to toilet (pee) more often.
Rich316
in
CLL Support
7 years ago
Post FCR - stopping Aciclovir
I finished
FCR
just over 3 months ago. I actually only had 5 sessions as I had responded so well. For the first 6 weeks or so, I was on cloud nine, but then all my muscles started aching. I felt like an old woman when getting out of bed in the morning, or getting up from a chair.
I finished
FCR
just over 3 months ago. I actually only had 5 sessions as I had responded so well. For the first 6 weeks or so, I was on cloud nine, but then all my muscles started aching. I felt like an old woman when getting out of bed in the morning, or getting up from a chair.
Grannajan
in
CLL Support
7 years ago
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