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Experiences with
Fludarabine, cyclophosphamide and rituximab (FCR)
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Choices, choices!! FCR or Trial...?
Or the shorter
FCR
? How have others come to decide which path to tip toe down? (I'm definitely not rushing to get on either, tbh, and I know many of you will groan, but I'd wanted to do this holistically and have been really improving my diet, lifestyle etc) Any thoughts appreciated.
Or the shorter
FCR
? How have others come to decide which path to tip toe down? (I'm definitely not rushing to get on either, tbh, and I know many of you will groan, but I'd wanted to do this holistically and have been really improving my diet, lifestyle etc) Any thoughts appreciated.
AnjiP
in
CLL Support
7 years ago
High fever as side effect of Ibrutinib ?
I had 6 cycles of
FCR
5 years ago which gave me 5 years of a nice remission. For the last 2 years I am on monthly IVIG because of frequent pneumonias. Helped really good. Now my CLL has returned . 4 months ago a low grade fever started , about 37.5C .
I had 6 cycles of
FCR
5 years ago which gave me 5 years of a nice remission. For the last 2 years I am on monthly IVIG because of frequent pneumonias. Helped really good. Now my CLL has returned . 4 months ago a low grade fever started , about 37.5C .
GIDI
in
CLL Support
7 years ago
Vacation
I am a year and a half post
FCR
, and it has worked despite the fact that I am unmutated. I do tend to get infections a great deal, and IVIG helps tremendously. Here is my question. We are heading to Idaho for the lakes and mountains. I worry about infections obtained from lake swimming.
I am a year and a half post
FCR
, and it has worked despite the fact that I am unmutated. I do tend to get infections a great deal, and IVIG helps tremendously. Here is my question. We are heading to Idaho for the lakes and mountains. I worry about infections obtained from lake swimming.
beanlake14
in
CLL Support
7 years ago
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06/28/2017 stop ibrutinib and started venetoclax
My husband, Bill, 55, was diagnosed CLL on Nov 2014,
FCR
chemotherapy 2016, failed, then Ibrutinib until 2017/06, took Venetoclax 2017/07
My husband, Bill, 55, was diagnosed CLL on Nov 2014,
FCR
chemotherapy 2016, failed, then Ibrutinib until 2017/06, took Venetoclax 2017/07
wwd-bill
in
CLL Support
7 years ago
Hot feet!
I'm on my 4th session
FCR
. I consider myself lucky has I have only really suffered with terrible nausea. However, I now have started to suffer with bad leg pains and neck pains, also the soles of my heat keep going really hot????
I'm on my 4th session
FCR
. I consider myself lucky has I have only really suffered with terrible nausea. However, I now have started to suffer with bad leg pains and neck pains, also the soles of my heat keep going really hot????
sallyplest
in
CLL Support
7 years ago
Travel insurance
The one off trip I planned for has now morphed into several short European trips once
FCR
over! I am very cautious and take extreme care with bugs. Good luck fellow travellers!
The one off trip I planned for has now morphed into several short European trips once
FCR
over! I am very cautious and take extreme care with bugs. Good luck fellow travellers!
abikaasa
in
CLL Support
7 years ago
Lymph node pain in neck
Since starting
FCR
my lymph nodes were back to normal size as far as I could tell so I feel abit deflated. As anyone had similar experience please?
Since starting
FCR
my lymph nodes were back to normal size as far as I could tell so I feel abit deflated. As anyone had similar experience please?
sallyplest
in
CLL Support
7 years ago
Anyone else w/ CLL getting rashes? I need your feedback
I'm wondering how many people with CLL is getting rashes on their shins of their legs, whether their treatment was with
FCR
or inbru? I've been in remission for almost 10 years now and have been battling this rash for almost all of it.
I'm wondering how many people with CLL is getting rashes on their shins of their legs, whether their treatment was with
FCR
or inbru? I've been in remission for almost 10 years now and have been battling this rash for almost all of it.
Loulou46
in
CLL Support
7 years ago
Does Tinnitus drive you crazy? Or it it just me?
I may have had CLL for that period too (CLL diagnosed following pre-op assessment for prostate problem in Jan 2015 then 6 cycles
FCR
and 18 months remission) When I took medical advice (2004?) it was accompanied with dizziness and bouts of vertigo and fatigue.
I may have had CLL for that period too (CLL diagnosed following pre-op assessment for prostate problem in Jan 2015 then 6 cycles
FCR
and 18 months remission) When I took medical advice (2004?) it was accompanied with dizziness and bouts of vertigo and fatigue.
thelutondodger
in
CLL Support
7 years ago
CLL 11q del, CD38+ unmutated and my bumpy ride during the FCR treatment.
After a reminder today of a member, I simply steal the time in my hectical life to finally write some, as promised earlier, about my treatment with
FCR
. Part One: After a lot of researching, I finally felt that
FCR
was the right path in the treatment of my CLL.
After a reminder today of a member, I simply steal the time in my hectical life to finally write some, as promised earlier, about my treatment with
FCR
. Part One: After a lot of researching, I finally felt that
FCR
was the right path in the treatment of my CLL.
RemusTh
in
CLL Support
7 years ago
Post FCR
Two months after
FCR
. Dr. said my numbers should grow as the weeks progress. Started therapy due to low platelets, not high WBC. My whites are .09 and platlets 47. The lowest ever. There was a mention of left shift. Don't know what's going.
Two months after
FCR
. Dr. said my numbers should grow as the weeks progress. Started therapy due to low platelets, not high WBC. My whites are .09 and platlets 47. The lowest ever. There was a mention of left shift. Don't know what's going.
Rprdoom
in
CLL Support
7 years ago
This time last year my FCR journey began ... what a year! We can do it!
A year ago today I began a chemo therapy journey to treat my leaukemia; a process that I faced blind, having no idea of what to expect or what the future might hold. There were ups and downs along the way but the positives far out weigh the negatives. So many walked along side me on my journey - many
A year ago today I began a chemo therapy journey to treat my leaukemia; a process that I faced blind, having no idea of what to expect or what the future might hold. There were ups and downs along the way but the positives far out weigh the negatives. So many walked along side me on my journey - many
Bethan49
in
Leukaemia Support
7 years ago
Allopurinol
Hi everyone I've just started my third session of
FCR
and haven't been prescribed my gout medication, Allopurinol this time. My nurse says I only take for the first two sessions. I'm sure I read some people take this all the way through and after. Unless I'm thinking of something else.
Hi everyone I've just started my third session of
FCR
and haven't been prescribed my gout medication, Allopurinol this time. My nurse says I only take for the first two sessions. I'm sure I read some people take this all the way through and after. Unless I'm thinking of something else.
sallyplest
in
CLL Support
7 years ago
Continuation of antivirals post treatment
Hi everyone, I completed round 6 of
FCR
in March. I've been building myself up and was beginning to feel somewhat normal again when 10 days ago I got shingles. Can I ask anyone out there who's had
FCR
how long you took antivirals for after treatment ended? I was told to stop after 2 months.
Hi everyone, I completed round 6 of
FCR
in March. I've been building myself up and was beginning to feel somewhat normal again when 10 days ago I got shingles. Can I ask anyone out there who's had
FCR
how long you took antivirals for after treatment ended? I was told to stop after 2 months.
Kenn123
in
CLL Support
7 years ago
I've just reviewed treatments and am more confused!
After a lot of reading, this is how I sum up the current state for my mutated 13g del state: -
FCR
is - as I understand - not advised as I'm aged 65 and had recent pneumonia - Ibrutinib has side-effects but is available in the UK (I think?)
After a lot of reading, this is how I sum up the current state for my mutated 13g del state: -
FCR
is - as I understand - not advised as I'm aged 65 and had recent pneumonia - Ibrutinib has side-effects but is available in the UK (I think?)
deveritt
in
CLL Support
7 years ago
UTI
I am due to start my third
FCR
on Thursday but have been to Walk in Centre today and had some antibiotics for a UTI. Could this delay my chemo?
I am due to start my third
FCR
on Thursday but have been to Walk in Centre today and had some antibiotics for a UTI. Could this delay my chemo?
sallyplest
in
CLL Support
7 years ago
Shingles post FCR
I finished
FCR
about 9 weeks ago and was beginning to feel better and thinking about a return date for work when the dreaded shingles struck. I'd just stopped taking the antiviral meds about three weeks before.
I finished
FCR
about 9 weeks ago and was beginning to feel better and thinking about a return date for work when the dreaded shingles struck. I'd just stopped taking the antiviral meds about three weeks before.
Kenn123
in
CLL Support
7 years ago
Any connection between HRT and CLL ?
Hi all, I was diagnosed in 2015 ,treated with
FCR
in nov2016, all went well considering how it affects some people, I came through well. So... just wondering if anyone has any opinions on whether starting hrt for menopause, it would exacerbate cll?
Hi all, I was diagnosed in 2015 ,treated with
FCR
in nov2016, all went well considering how it affects some people, I came through well. So... just wondering if anyone has any opinions on whether starting hrt for menopause, it would exacerbate cll?
Megellen
in
CLL Support
7 years ago
Another week's delay
My other half started
FCR
7 weeks ago, first course went without hiccup. Platelet levels initially spiked, but now steadily dropping (82 before treatment, then weekly readings of 73, 99, 103, 76, 67 and now 63). Lymphocytes way down (now 1.36 against 35.9 before treatment).
My other half started
FCR
7 weeks ago, first course went without hiccup. Platelet levels initially spiked, but now steadily dropping (82 before treatment, then weekly readings of 73, 99, 103, 76, 67 and now 63). Lymphocytes way down (now 1.36 against 35.9 before treatment).
shoppingtrolley
in
CLL Support
7 years ago
Food Intolerance
My husband seems to have developed an intolerance to fish and crustaceans in the couple of years following his
FCR
chemotherapy. I was wondering if anyone else has had this sort of problem.
My husband seems to have developed an intolerance to fish and crustaceans in the couple of years following his
FCR
chemotherapy. I was wondering if anyone else has had this sort of problem.
teragramb
in
CLL Support
7 years ago
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