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Experiences with
Fludarabine, cyclophosphamide and rituximab (FCR)
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My two year on ibrutinib check up
Because I am 13q mutated
fcr
was always in the discussion with me. My doctor, Dr Keating, was a founder of
fcr
therapy. But
fcr
came off the table with my hemolytic anemia which contraindicates any fludarabine based treatment. So two years ago I took my first three capsules of ibrutinib.
Because I am 13q mutated
fcr
was always in the discussion with me. My doctor, Dr Keating, was a founder of
fcr
therapy. But
fcr
came off the table with my hemolytic anemia which contraindicates any fludarabine based treatment. So two years ago I took my first three capsules of ibrutinib.
cajunjeff
in
CLL Support
5 years ago
Cll suport
Treated 7x
fcr
15 month ago. I have advised ibrutinib. Any one tll me his experince about ibrutinib. Any one tell me about avilibility.
Treated 7x
fcr
15 month ago. I have advised ibrutinib. Any one tll me his experince about ibrutinib. Any one tell me about avilibility.
Dpt517
in
CLL Support
5 years ago
P
I'm supposed to start taking sinemet CR 50mg but need to know how will affect me...
I'm supposed to start taking sinemet CR 50mg but need to know how will affect me...
Hidden
in
Cure Parkinson's
4 years ago
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What is the difference between non fdg avid node and fdg avid node?
In my latest PET non fdg avid nodes were found after 4 cycle of
FCR
. What is the difference between nod fdg avid and fdg avid nodes.?
In my latest PET non fdg avid nodes were found after 4 cycle of
FCR
. What is the difference between nod fdg avid and fdg avid nodes.?
Supratim
in
CLL Support
5 years ago
Mutated and unmutated cll for dummies
We know that on average people with unmutated cll will not do as well with chemotherapy treatments like
fcr
. So there is an argument mutation testing is important not just as a prognostic marker, but also to help inform our treatment choices for those considering chemo.
We know that on average people with unmutated cll will not do as well with chemotherapy treatments like
fcr
. So there is an argument mutation testing is important not just as a prognostic marker, but also to help inform our treatment choices for those considering chemo.
cajunjeff
in
CLL Support
5 years ago
List of PD Supplements and medications
I am doing a little research project on the most used supplements, vitamins and medications that may be useful for PD. At the moment for vitamins/supplements I have Vitamin B1 Mannitol Vitamin D(+ K) Curcumin CoQ10 N-acetylcysteine Lithium Orotate Celery Seed Extract PQQ For standard medications I have
I am doing a little research project on the most used supplements, vitamins and medications that may be useful for PD. At the moment for vitamins/supplements I have Vitamin B1 Mannitol Vitamin D(+ K) Curcumin CoQ10 N-acetylcysteine Lithium Orotate Celery Seed Extract PQQ For standard medications I have
alexask
in
Cure Parkinson's
4 years ago
Lymph nodes after 6 rounds of FCR
Hi, My friend completed 6 rounds of
FCR
last month. Still i can see small small lymph nodes near neck, shoulder. But I am seeing that lymph node has increased in size little bit compared last month. Is this common? Anybody faced same like this. Please please help me to get more info on this.
Hi, My friend completed 6 rounds of
FCR
last month. Still i can see small small lymph nodes near neck, shoulder. But I am seeing that lymph node has increased in size little bit compared last month. Is this common? Anybody faced same like this. Please please help me to get more info on this.
pbaddi
in
CLL Support
5 years ago
Any post FCR warriors struggling with the cold?
I finished
FCR
a year ago and in the past couple of months or so have begun to feel more like the old me and less tired. However, in this weather in the UK (8 degrees now, but was below freezing the last few days) I feel miserably cold.
I finished
FCR
a year ago and in the past couple of months or so have begun to feel more like the old me and less tired. However, in this weather in the UK (8 degrees now, but was below freezing the last few days) I feel miserably cold.
Mandy56
in
CLL Support
5 years ago
Sinemet CR and IR
6 times per day.I Ingest Sinemet CR + IR (either 1/2 or 1 25-100 IR). I would like to ingest only CR at 6 pm and 10 pm and 2 am. Is there away to do that with only CR? Half of a CR added?
6 times per day.I Ingest Sinemet CR + IR (either 1/2 or 1 25-100 IR). I would like to ingest only CR at 6 pm and 10 pm and 2 am. Is there away to do that with only CR? Half of a CR added?
aspergerian
in
Cure Parkinson's
5 years ago
So far so good.
I posted about 6 months ago that 1 round of
FCR
nearly killed me. My Hemoglobin dropped to 45 and I needed many transfusions. They decided to abandon treatment and was put back on watch and wait. After my appointment today, all bloods are still in normal range.
I posted about 6 months ago that 1 round of
FCR
nearly killed me. My Hemoglobin dropped to 45 and I needed many transfusions. They decided to abandon treatment and was put back on watch and wait. After my appointment today, all bloods are still in normal range.
Racing1961
in
CLL Support
5 years ago
EHA 2019: Dr. Maloney on CAR-T and Dr. Davids of Chemo-Immunotherapy combinations
Davids of DFCI done at EHA 2019, he talks about adding ibrutinib to
FCR
to improve outcomes. See https://cllsociety.org/2019/11/eha-2019-dr-matthew-davids-on-combination-therapies-with-chemotherapy-th/ Stay strong. We are all in this together Brian CLLSociety.org
Davids of DFCI done at EHA 2019, he talks about adding ibrutinib to
FCR
to improve outcomes. See https://cllsociety.org/2019/11/eha-2019-dr-matthew-davids-on-combination-therapies-with-chemotherapy-th/ Stay strong. We are all in this together Brian CLLSociety.org
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
Acute ankle pain
I am a year post
FCR
chemo for CLL. Suddenly started with acute ankle pain bilaterally in my ankles and feet. After 3 weeks of anti inflammatory medication and pain killers, the symptoms remain the same. Struggle to walk even short distances, where as I normally walk with no problems at all.
I am a year post
FCR
chemo for CLL. Suddenly started with acute ankle pain bilaterally in my ankles and feet. After 3 weeks of anti inflammatory medication and pain killers, the symptoms remain the same. Struggle to walk even short distances, where as I normally walk with no problems at all.
Kingfisher20
in
CLL Support
5 years ago
CLL remission
My spouse is in remission after doing 6 rounds of
FCR
for his CLL. His last round was in August. Since late September he has been getting small lumps under his skin . They seem to only affect his face neck and chest. They are somewhat red and inflamed.
My spouse is in remission after doing 6 rounds of
FCR
for his CLL. His last round was in August. Since late September he has been getting small lumps under his skin . They seem to only affect his face neck and chest. They are somewhat red and inflamed.
DDInc65
in
CLL Support
5 years ago
Ibrutinib and pneumonia
Depleted immune status continues after
FCR
6 yrs ago. Had pneumonia for 10 mos and continue to have debilitating episodes of extreme fatigue, chills and sweats that are only addressed with heavy duty moxyfloxacin. Welcome any thoughts
Depleted immune status continues after
FCR
6 yrs ago. Had pneumonia for 10 mos and continue to have debilitating episodes of extreme fatigue, chills and sweats that are only addressed with heavy duty moxyfloxacin. Welcome any thoughts
irish828
in
CLL Support
5 years ago
Fludarabine: rare side effect of destroying ability for red blood cell production in myself. But also unwell with fevers.
With no improvement in this time a bone marrow biopsy now indicates that the loss of rbc production has most likely been caused by
FCR
(in particular Fludarabine). I completed 4 cycles in June 2018 with a good result.
With no improvement in this time a bone marrow biopsy now indicates that the loss of rbc production has most likely been caused by
FCR
(in particular Fludarabine). I completed 4 cycles in June 2018 with a good result.
Jotame
in
CLL Support
5 years ago
Dr Michael Keating's Story - Taking CLL Therapies From Bedside to Community
A fascinating overview of one of the giants in CLL research, who provided many of us with the first treatment capable of prolonging life expectancy (
FCR
) and for about 60% of those who are mutated IgHV, effectively a cure.
A fascinating overview of one of the giants in CLL research, who provided many of us with the first treatment capable of prolonging life expectancy (
FCR
) and for about 60% of those who are mutated IgHV, effectively a cure.
AussieNeil
Partner
in
CLL Support
5 years ago
Looking for advice on travel insurance
I’m 6 years post
FCR
I’m 6 years post
FCR
Billys60
in
CLL Support
5 years ago
Travel insurance
I am 6 years since
FCR
treatment and to date still doing well not near further treatment ( fingers crossed) my daughter lives in South Africa I’m in Scotland and looking to visit her next year. Does anyone have advice on travel insurance best options who does the best at best rate etc.
I am 6 years since
FCR
treatment and to date still doing well not near further treatment ( fingers crossed) my daughter lives in South Africa I’m in Scotland and looking to visit her next year. Does anyone have advice on travel insurance best options who does the best at best rate etc.
Billys60
in
CLL Support
5 years ago
New Review Article about Venetoclax
And yet we don't seem to talk about it quite as much on here as Ibrutinib and
FCR
. Just this month a very helpful and quite detailed review article has been released. It is well worth a look whether you are in watch and wait, remission, or coming up for treatment.
And yet we don't seem to talk about it quite as much on here as Ibrutinib and
FCR
. Just this month a very helpful and quite detailed review article has been released. It is well worth a look whether you are in watch and wait, remission, or coming up for treatment.
AdrianUK
in
CLL Support
5 years ago
Flowers and FCR
Well, it's the evening before I start
FCR
and a friend has sent me cut flowers. There is conflicting info on line, some sights say no flowers or plants in the house at all and others say just not in the bedroom. Any thoughts?
Well, it's the evening before I start
FCR
and a friend has sent me cut flowers. There is conflicting info on line, some sights say no flowers or plants in the house at all and others say just not in the bedroom. Any thoughts?
Root65
in
CLL Support
5 years ago
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