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ITP and shingles
If you've had ITP, can you take acyclovir? As having been given these for shingles, but knowing that they lower your immune system,? Cheers
If you've had ITP, can you take acyclovir? As having been given these for shingles, but knowing that they lower your immune system,? Cheers
Mazmeadows
in
CLL Support
5 years ago
Shingles antivirals vs infections and reduced immunity
First, happy new year (if this is new year for you :-) As well as being in watch and wait with my CLL, I am recovering from shingles (which i’ve never before had) during a period where I am also successfully (so far) coming off treatment for autoimmune haemolytic anaemia with a low maintenance dose
First, happy new year (if this is new year for you :-) As well as being in watch and wait with my CLL, I am recovering from shingles (which i’ve never before had) during a period where I am also successfully (so far) coming off treatment for autoimmune haemolytic anaemia with a low maintenance dose
deveritt
in
CLL Support
5 years ago
Recent Encephalitis - now recovering and looking for hope.
I have just finished my 2 weeks treatment of Acyclovir for Viral Encephalitis caused by the Herpes Zoster virus. Had CT, LP and MRI. Brain MRI was grossly abnormal and showed lesions. I lost 3 days when I was taken into A&E - Cannot remember any of it. It feels like it happened to someone else, not
I have just finished my 2 weeks treatment of Acyclovir for Viral Encephalitis caused by the Herpes Zoster virus. Had CT, LP and MRI. Brain MRI was grossly abnormal and showed lesions. I lost 3 days when I was taken into A&E - Cannot remember any of it. It feels like it happened to someone else, not
RainbowBrie
in
Headway
5 years ago
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Shingles and CKD
I was prescribed
Famciclovir
in a low dose. You need to start this medication within 72 hours of on set. If you think you have shingles get to a doctor and make sure you get the right medication. The reason I am posting this is to make people aware.
I was prescribed
Famciclovir
in a low dose. You need to start this medication within 72 hours of on set. If you think you have shingles get to a doctor and make sure you get the right medication. The reason I am posting this is to make people aware.
Bassetmommer
NKF Ambassador
in
Kidney Disease
5 years ago
Plagued by herpes
I’ve been plagued by frequent recurrent cold sores unless I stay on acyclovir prophylaxis and now I think it’s moved from my lip to my nose and eyes. Anyone else experience this or have any words of wisdom for me??
I’ve been plagued by frequent recurrent cold sores unless I stay on acyclovir prophylaxis and now I think it’s moved from my lip to my nose and eyes. Anyone else experience this or have any words of wisdom for me??
aksundell
in
Pernicious Anaemia Society
5 years ago
Medication Interaction?
Help! I need to take antiviral medication long term and I need to take it three times a day. I asked my doctor if I can take acyclovir along with thyroid meds and he said YES. When I asked the pharmacist, they said NO. What should I do? Please help!
Help! I need to take antiviral medication long term and I need to take it three times a day. I asked my doctor if I can take acyclovir along with thyroid meds and he said YES. When I asked the pharmacist, they said NO. What should I do? Please help!
Fmljkl
in
Thyroid UK
5 years ago
Help with Sore Throat for CLL Patient
I am taking Ibriutinib 420mg for cll and allopurinol and acyclovir to protect my body. I am on cycle 3. I am experiencing a sore throat and don’t know what to take. I know no mouth wash with alcohol. Will wait for nurse to help me tomorrow. Any suggestions? Thanks
I am taking Ibriutinib 420mg for cll and allopurinol and acyclovir to protect my body. I am on cycle 3. I am experiencing a sore throat and don’t know what to take. I know no mouth wash with alcohol. Will wait for nurse to help me tomorrow. Any suggestions? Thanks
120940
in
CLL Support
5 years ago
Stem cell transplant for Myelofibrosis
After 12 years with PV and then 2 years with MF I explained in a letter to my consultant that were the decision to have a transplant entirely mine it is what I would wish for. I'd been on Jakavi for a year and it had ceased to help. I then went onto the Pacritinib trial which curtailed night sweats
After 12 years with PV and then 2 years with MF I explained in a letter to my consultant that were the decision to have a transplant entirely mine it is what I would wish for. I'd been on Jakavi for a year and it had ceased to help. I then went onto the Pacritinib trial which curtailed night sweats
Dodders
in
MPN Voice
5 years ago
need help
Hello everyone! I return to this blog as one of my last resorts. 7 months ago I had unprotected oral sex. All STIs tests are negative. All the candida tests I did so far (at least 6) are negative. Pharyngeal exudates and nasal exudates came back negative. Blood tests are normal. After more than half
Hello everyone! I return to this blog as one of my last resorts. 7 months ago I had unprotected oral sex. All STIs tests are negative. All the candida tests I did so far (at least 6) are negative. Pharyngeal exudates and nasal exudates came back negative. Blood tests are normal. After more than half
Marian85
in
Men's Health Forum
5 years ago
coated tongue negative tests
Hello everyone! I return to this blog as one of my last resorts. 7 months ago I had unprotected oral sex. All STIs tests are negative. All the candida tests I did so far (at least 6) are negative. Pharyngeal exudates and nasal exudates came back negative. Blood tests are normal. After more than half
Hello everyone! I return to this blog as one of my last resorts. 7 months ago I had unprotected oral sex. All STIs tests are negative. All the candida tests I did so far (at least 6) are negative. Pharyngeal exudates and nasal exudates came back negative. Blood tests are normal. After more than half
Marian85
in
BASHH
5 years ago
negative tests with symptoms
Hello everyone! I return to this blog as one of my last resorts. 7 months ago I had unprotected oral sex. All STIs tests are negative. All the candida tests I did so far (at least 6) are negative. Pharyngeal exudates and nasal exudates came back negative. Blood tests are normal. After more than half
Hello everyone! I return to this blog as one of my last resorts. 7 months ago I had unprotected oral sex. All STIs tests are negative. All the candida tests I did so far (at least 6) are negative. Pharyngeal exudates and nasal exudates came back negative. Blood tests are normal. After more than half
Marian85
in
Sexual Health Matters
5 years ago
Anyone know a super effective drug to prevent my mouth sore dilemma ? HELP !!!
Hi I am 8 mo into I and V trial for relapsed CLLers Good news so far...nodes down to normal and blood normal except Neutrophils slightly lower but only slightly BMB scheduled for January Oncologist says it won’t be in there either I am very grateful for that. My problem is I seem to have most
Hi I am 8 mo into I and V trial for relapsed CLLers Good news so far...nodes down to normal and blood normal except Neutrophils slightly lower but only slightly BMB scheduled for January Oncologist says it won’t be in there either I am very grateful for that. My problem is I seem to have most
Catnap7
in
CLL Support
5 years ago
Second bout of VM?
I contracted viral meningitis caused by HSV 2 in April 2019. Luckily was only in hospital a couple of days and was able to go home once they got the headaches and pain under control. I was sent home and instructed to take almost 3 grams of Acyclovir for 10 days. After the 10 days my primary care dr
I contracted viral meningitis caused by HSV 2 in April 2019. Luckily was only in hospital a couple of days and was able to go home once they got the headaches and pain under control. I was sent home and instructed to take almost 3 grams of Acyclovir for 10 days. After the 10 days my primary care dr
jaz_1226
in
Meningitis Now
5 years ago
Shingles always a concern with CLL
One of the things I learned is that with CLL shingles is always a concern. Shingles are usually painful little blisters that occur in a dermatomal pattern (one side) of your body. They have been described as looking like “dew drops on rose petals” or vesicles on a red base. Anyway my shingles may have
One of the things I learned is that with CLL shingles is always a concern. Shingles are usually painful little blisters that occur in a dermatomal pattern (one side) of your body. They have been described as looking like “dew drops on rose petals” or vesicles on a red base. Anyway my shingles may have
LovecuresCLL
in
CLL Support
5 years ago
Someone asked about Low Dose Naltrexone.
I thought I would post this on main site so that people can read. I have an unusual journey. I have been on LDN for about 2 weeks now. I am not sure if it has helped but I think that perhaps it is along with the other things I am trying. I developed disabling PMR in late March of this year (2019).
I thought I would post this on main site so that people can read. I have an unusual journey. I have been on LDN for about 2 weeks now. I am not sure if it has helped but I think that perhaps it is along with the other things I am trying. I developed disabling PMR in late March of this year (2019).
lemarie1
in
PMRGCAuk
5 years ago
Herpes & IVF - help!
Hello lovely ladies, An ex-boyfriend gave me herpes 15 years ago. I still shudder to think about it. The outbreaks have lessened over the years, but now I am doing IVF I am getting constant outbreaks - before egg collection and transfer. This is incredibly stressful. As if IVF wasn't hard enough..
Hello lovely ladies, An ex-boyfriend gave me herpes 15 years ago. I still shudder to think about it. The outbreaks have lessened over the years, but now I am doing IVF I am getting constant outbreaks - before egg collection and transfer. This is incredibly stressful. As if IVF wasn't hard enough..
Love1983
in
Fertility Network UK
5 years ago
Ibrutinib / Venetoclax journey
So, a quick update from me. Went for a checkup yesterday (Friday). Consultant pleased with status, Lymphocytes have reached the lofty heights of 1.1. The reading has moved around the 0.7-1.0 since start of treatment. This was only a ‘normal’ checkup. Back in July for my checkup in the research dept
So, a quick update from me. Went for a checkup yesterday (Friday). Consultant pleased with status, Lymphocytes have reached the lofty heights of 1.1. The reading has moved around the 0.7-1.0 since start of treatment. This was only a ‘normal’ checkup. Back in July for my checkup in the research dept
Oleboyredw-uk
in
CLL Support
5 years ago
60mg Pred and outbreak of Herpes Simplex
Herpes simplex break out on buttocks after starting 60mg pred for GCA I have had PMR or over a year but wanted to do it ‘my way’. Ibuprofen 200mg twice daily. In March 2019 had 4 episodes of Curtain drawn across one eye for a few minutes. That converted me to the followers of pred. Most amazing experience
Herpes simplex break out on buttocks after starting 60mg pred for GCA I have had PMR or over a year but wanted to do it ‘my way’. Ibuprofen 200mg twice daily. In March 2019 had 4 episodes of Curtain drawn across one eye for a few minutes. That converted me to the followers of pred. Most amazing experience
Umufu
in
PMRGCAuk
5 years ago
6 months on ibrutinib
Hello 6 month on Ibrutinib . Good results (WCC is 9800 from 350.000 at the peack ,all other labs improving ) Very few side effects although ...my BP is raising from 11/7 to 13/7 in the last 2 month s and some days 14 ( although i have had a rough week at work which could influence it I am also on
Hello 6 month on Ibrutinib . Good results (WCC is 9800 from 350.000 at the peack ,all other labs improving ) Very few side effects although ...my BP is raising from 11/7 to 13/7 in the last 2 month s and some days 14 ( although i have had a rough week at work which could influence it I am also on
antonb
in
CLL Support
5 years ago
Symptoms after oral sex
Hi everyone! I have been struggling with this for 10 weeks after I had unprotected oral sex. I tested negative for absolutely every STI, including Hep. A, B and C. The candida test is also negative. No HIV. My END doctor already said she did everything possible and that from her point of view it is
Hi everyone! I have been struggling with this for 10 weeks after I had unprotected oral sex. I tested negative for absolutely every STI, including Hep. A, B and C. The candida test is also negative. No HIV. My END doctor already said she did everything possible and that from her point of view it is
Marian85
in
BASHH
5 years ago
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