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Help deciding about Transplant
I was diagnosed with Primary MF aged 49, 6 years ago. I am well managed on Ruxolitinib 30 mg daily, Aspirin and Acyclovir. My consuhas recently referred me to a transplant construct discuss a possible transplant. I am trying make my decision, which I am finding so difficult. As I am well controlled
I was diagnosed with Primary MF aged 49, 6 years ago. I am well managed on Ruxolitinib 30 mg daily, Aspirin and Acyclovir. My consuhas recently referred me to a transplant construct discuss a possible transplant. I am trying make my decision, which I am finding so difficult. As I am well controlled
Cazbolac
in
MPN Voice
4 years ago
Is it arthritis? Is it COVID19? Is it shingles? Can I run?
Ok, I haven't been able to run for a while. It started with some pain in my knees and hip, after that I tried again and when I was about to run for the 3rd time I caught a cold, very tired for 3 days, a weird sensitivity under the armpits and a dry wheezy cough. On Thursday I had the COVID test and
Ok, I haven't been able to run for a while. It started with some pain in my knees and hip, after that I tried again and when I was about to run for the 3rd time I caught a cold, very tired for 3 days, a weird sensitivity under the armpits and a dry wheezy cough. On Thursday I had the COVID test and
StarkeyGo
Graduate
in
Couch to 5K
4 years ago
Shingles and vaccinations
Sorry folks.... this is a long post !! The Shingles vaccine used in the UK is Zostavax, available to over 70s as a single dose. It contains weakened (attenuated) virus and as such, can cause problems (i.e. infection) for people with weakened immune systems (for example, due to medication
Sorry folks.... this is a long post !! The Shingles vaccine used in the UK is Zostavax, available to over 70s as a single dose. It contains weakened (attenuated) virus and as such, can cause problems (i.e. infection) for people with weakened immune systems (for example, due to medication
Suzita76
in
PMRGCAuk
4 years ago
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U.K Herpes treatment specialist. MHRA approved blood test. HSV2 Herpes of Sinus
Please help!. I am 99.9% sure i have HSV2 (Genital Herpes) of septum/sinus, airway, throat etc, yet can not access reliable test to prove it. I am becoming depressed and desperate. Microbiology rejected my G.P request for antibody test (wasted my blood taken/sent). Only test i am offered is swab test
Please help!. I am 99.9% sure i have HSV2 (Genital Herpes) of septum/sinus, airway, throat etc, yet can not access reliable test to prove it. I am becoming depressed and desperate. Microbiology rejected my G.P request for antibody test (wasted my blood taken/sent). Only test i am offered is swab test
Theresa7
in
Sexual Health Matters
4 years ago
Reliable U.K HSV2 blood test MHRA ?!
Please help!. I am 99.9% sure i have HSV2 (Genital Herpes) of septum/sinus, airway, throat etc, yet can not access reliable test to prove it. I am becoming depressed and desperate. Microbiology rejected my G.P request for antibody test (wasted my blood taken/sent). Only test i am offered is swab test
Please help!. I am 99.9% sure i have HSV2 (Genital Herpes) of septum/sinus, airway, throat etc, yet can not access reliable test to prove it. I am becoming depressed and desperate. Microbiology rejected my G.P request for antibody test (wasted my blood taken/sent). Only test i am offered is swab test
Theresa7
in
BASHH
4 years ago
Shingles
Two weeks ago was diagnosed with shingles, now I,m kicking on a bit so I suppose it could be expected. Doctor prescribed a course of aciclovir. Pain unbearable so now been put on pregabalin which at first seem ok. Worried that I could be the 1 in 4 that gets PHN.. Anybody suffered with this...
Two weeks ago was diagnosed with shingles, now I,m kicking on a bit so I suppose it could be expected. Doctor prescribed a course of aciclovir. Pain unbearable so now been put on pregabalin which at first seem ok. Worried that I could be the 1 in 4 that gets PHN.. Anybody suffered with this...
Blueboy1946
in
Pain Concern
4 years ago
Hello! My father is a CKD patient and unfortunately just had Herpes(eyelid & scalp). Acyclovir was prescribed. Is it safe for him?
The dermatologist prescribed the meds and asked to further check with the Nephrologist. However, if my dad only uses the cream, would it work?
The dermatologist prescribed the meds and asked to further check with the Nephrologist. However, if my dad only uses the cream, would it work?
PEARL2478
in
Kidney Transplant Patient Support
4 years ago
Neck pain?
I am a PMR sufferer who weaned off Prednisone 3 weeks ago, after a slow march down from 40 mg. Two weeks ago I awoke with left-sided facial paralysis, diagnosed as unrelated Bell’s palsy. It’s not serious, and goes away in a few months for 85% of its victims. Treatment is high dose Acyclovir (anti-viral
I am a PMR sufferer who weaned off Prednisone 3 weeks ago, after a slow march down from 40 mg. Two weeks ago I awoke with left-sided facial paralysis, diagnosed as unrelated Bell’s palsy. It’s not serious, and goes away in a few months for 85% of its victims. Treatment is high dose Acyclovir (anti-viral
RiverKings
in
PMRGCAuk
4 years ago
Can taking Bactrim make you neutropenic?
My husband has been on Ibrutinib for 2 years now, and has taking Bactrim and Acyclovir along with it. Up until four months ago, his numbers have been in the more normal range. He feels well, and had a good CT scan in June. But in the last month his WBC, neutrophils and platelets have fallen drastically
My husband has been on Ibrutinib for 2 years now, and has taking Bactrim and Acyclovir along with it. Up until four months ago, his numbers have been in the more normal range. He feels well, and had a good CT scan in June. But in the last month his WBC, neutrophils and platelets have fallen drastically
kathymac52
in
CLL Support
4 years ago
Shingles
I have had an attack of shingles on my thorax, treated with acyclovir. It started 2 weeks ago. The spots have all cleared, although the skin is quite tender still. But I feel really tired and unwell, which I wasn’t expecting 2 weeks on. I keep wondering if this is only the CLL or whether I should start
I have had an attack of shingles on my thorax, treated with acyclovir. It started 2 weeks ago. The spots have all cleared, although the skin is quite tender still. But I feel really tired and unwell, which I wasn’t expecting 2 weeks on. I keep wondering if this is only the CLL or whether I should start
Thinkimjob
in
CLL Support
4 years ago
Stopping Ibrutinib?
Husband has been on Ibrutinib for 2 years and numbers were good until about 4 months when his WBC and Neutrophils dropped dramatically. WBC is now 2.2 and neutrophils are .8. Doctor suspended his meds for a week because he is concerned about COVID-19. I am worried that the CLL will roar back. He will
Husband has been on Ibrutinib for 2 years and numbers were good until about 4 months when his WBC and Neutrophils dropped dramatically. WBC is now 2.2 and neutrophils are .8. Doctor suspended his meds for a week because he is concerned about COVID-19. I am worried that the CLL will roar back. He will
kathymac52
in
CLL Support
4 years ago
Remission, Day 4: Online Dating Question
I'm leaving this post unlocked. I don't know if people from other communities in HealthUnlocked can see and reply, but if you can, please do from the perspective of your own chronic illness or disease. The Dana-Farber AVO trial ended for me this week. MRD-, partial response (a single lymph node was
I'm leaving this post unlocked. I don't know if people from other communities in HealthUnlocked can see and reply, but if you can, please do from the perspective of your own chronic illness or disease. The Dana-Farber AVO trial ended for me this week. MRD-, partial response (a single lymph node was
Lily_Pad_Master
in
CLL Support
4 years ago
Starting Acalabrutinib
Due to start Acalabrutinib on Friday. Has anyone any advice as to whether to take it with food or away from food? Also, there are other drugs that I'm supposed to take too - Aciclovir, Allopurinol, Co-TrimOxazole. What puzzles me is, if there are any side-effects, how to the docs know which drug is
Due to start Acalabrutinib on Friday. Has anyone any advice as to whether to take it with food or away from food? Also, there are other drugs that I'm supposed to take too - Aciclovir, Allopurinol, Co-TrimOxazole. What puzzles me is, if there are any side-effects, how to the docs know which drug is
bmredsea
in
Positive Wellbeing During Self-Isolation
4 years ago
Post Viral Fatigue Syndrome
I was DX with VM in June of 2019 & again in August 2019. With test results, my dr could not determine if my numbers were still coming down or starting to climb back up. So he started a second round of the IV antiviral Acyclovir. I have been having Severe health issues ever since my first DX (I.e.;
I was DX with VM in June of 2019 & again in August 2019. With test results, my dr could not determine if my numbers were still coming down or starting to climb back up. So he started a second round of the IV antiviral Acyclovir. I have been having Severe health issues ever since my first DX (I.e.;
Hidden
in
Meningitis Now
4 years ago
Acyclovir and kidney transplant
A few weeks ago I had shingles. I was put on acyclovir 800mg 5x a day. Then, from different doctors, they kept telling me that's a high dose for a kidney transplant patient as it can damage it. I spoke to my nephrologist and he didnt seem concerned at all and told me to take them as prescribed by my
A few weeks ago I had shingles. I was put on acyclovir 800mg 5x a day. Then, from different doctors, they kept telling me that's a high dose for a kidney transplant patient as it can damage it. I spoke to my nephrologist and he didnt seem concerned at all and told me to take them as prescribed by my
Dna4christ
in
Kidney Transplant
4 years ago
Acyclovir, shingles, kidney transplant
A few weeks ago I had shingles. I was put on acyclovir 800mg 5x a day. Then, from different doctors, they kept telling me that's a high dose for a kidney transplant patient as it can damage it. I spoke to my nephrologist and he didnt seem concerned at all and told me to take them as prescribed by my
A few weeks ago I had shingles. I was put on acyclovir 800mg 5x a day. Then, from different doctors, they kept telling me that's a high dose for a kidney transplant patient as it can damage it. I spoke to my nephrologist and he didnt seem concerned at all and told me to take them as prescribed by my
Dna4christ
in
Kidney Transplant Patient Support
4 years ago
CLL & the Corona virus
I have been on the FLAIR drug trials for five years, taking Ibrutinib, plus Co-Trimoxazole and Aciclovir. My blood cancer has gone into remission, but there are still enough bad cells for me to continue on the drugs. Recently I developed a dry cough and inflamed vocal cords. The GP put me on penicillin
I have been on the FLAIR drug trials for five years, taking Ibrutinib, plus Co-Trimoxazole and Aciclovir. My blood cancer has gone into remission, but there are still enough bad cells for me to continue on the drugs. Recently I developed a dry cough and inflamed vocal cords. The GP put me on penicillin
hazelmark
in
CLL Support
4 years ago
Aciclovir 800mg
Recently been taking aciclovir 800mg tablets to help with my shingles . Have it on the back of my torso and after 3 days of medication the back of my head starting to itch? Any help???
Recently been taking aciclovir 800mg tablets to help with my shingles . Have it on the back of my torso and after 3 days of medication the back of my head starting to itch? Any help???
ra18722
in
Kidney Disease
5 years ago
Alternative diagnosis that I want to throw out the window
I had encephalitis in December 2019. I can safely say I was the sickest I have ever been. There are 3 days I still cannot remember much about. I had confusion, slurred speech, headache, light sensitivity, noise sensitivity and nausea. Oh and I couldn't walk for falling over. I had 2 weeks of IV acyclovir
I had encephalitis in December 2019. I can safely say I was the sickest I have ever been. There are 3 days I still cannot remember much about. I had confusion, slurred speech, headache, light sensitivity, noise sensitivity and nausea. Oh and I couldn't walk for falling over. I had 2 weeks of IV acyclovir
RainbowBrie
in
Headway
5 years ago
Tapering again.
Hello to all you lovely people who have helped me over the last week. Things have now progressed further and this morning I noticed a rash where the pain had been. A visit to the doctor confirmed my suspicion of shingles. So I think I did have a PMR flare but I now also have shingles. Life is such fun
Hello to all you lovely people who have helped me over the last week. Things have now progressed further and this morning I noticed a rash where the pain had been. A visit to the doctor confirmed my suspicion of shingles. So I think I did have a PMR flare but I now also have shingles. Life is such fun
Seraphina56
in
PMRGCAuk
5 years ago
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