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Struggling to get a diagnosis.
Hello, I have been suffering with what I believe are all symptoms of lupus, apart from a face rash and organ damage, for around 4 years. My blood results showed positive for HLAB27 & ANA ELISA with a low titre rheumatoid factor. I also suffer with psoriasis, hair loss, extreme debilitating fatigue
Hello, I have been suffering with what I believe are all symptoms of lupus, apart from a face rash and organ damage, for around 4 years. My blood results showed positive for HLAB27 & ANA ELISA with a low titre rheumatoid factor. I also suffer with psoriasis, hair loss, extreme debilitating fatigue
Ryane96
in
LUPUS UK
2 years ago
I have my 5th shot todayš¤š»
Hey everyone. I have my 5th shot due today. I dont feel much difference but because I'm not working (just started 4 weeks off sick) I do feel marginally more capable of day to day activities. I'm also not as angry as I was last week.....āŗļø But the tiredness is endless. I can have so much sleep and night
Hey everyone. I have my 5th shot due today. I dont feel much difference but because I'm not working (just started 4 weeks off sick) I do feel marginally more capable of day to day activities. I'm also not as angry as I was last week.....āŗļø But the tiredness is endless. I can have so much sleep and night
Peppermints
in
Pernicious Anaemia Society
2 years ago
Autoimmune gastritis Vs AMAG/PA
https://pernicious-anaemia-society.org/b12deficiencyandperniciousanaemia/ This first article describes one cause of B12 deficiency (other than PA) as gastritis that is 'where the patient produces antibodies that destroy either the Parietal Cells or Intrinsic Factor or both.' So is this very much different
https://pernicious-anaemia-society.org/b12deficiencyandperniciousanaemia/ This first article describes one cause of B12 deficiency (other than PA) as gastritis that is 'where the patient produces antibodies that destroy either the Parietal Cells or Intrinsic Factor or both.' So is this very much different
myownscientist
in
Pernicious Anaemia Society
2 years ago
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Newly diagnosed possible Autoimmune gastritis and B12 deficiency
I've recently started B12 injections under the care of a private doctor. He gave my first injection and I'm doing self injections at home (1mg hydroxocobalamin). My B12 was at 292 so a little above the NHS range but clearly deficient. I initially saw him to arrange an iron infusion for iron deficiency
I've recently started B12 injections under the care of a private doctor. He gave my first injection and I'm doing self injections at home (1mg hydroxocobalamin). My B12 was at 292 so a little above the NHS range but clearly deficient. I initially saw him to arrange an iron infusion for iron deficiency
myownscientist
in
Pernicious Anaemia Society
2 years ago
Confused, again
So had bloods repeated on NHS. All except 4 came back, on my GP no reference ranges. Got print outs and have been checking every day for missing results. Just now found 2 more on my GP. , had been waiting on T3 vit D and IFA and TTG (coeliac). One says intrinsic factor ab screen test but no
So had bloods repeated on NHS. All except 4 came back, on my GP no reference ranges. Got print outs and have been checking every day for missing results. Just now found 2 more on my GP. , had been waiting on T3 vit D and IFA and TTG (coeliac). One says intrinsic factor ab screen test but no
Polo22
in
Pernicious Anaemia Society
2 years ago
Any Advice on PA & B12 plus iron & ferritin
Hi I have Hypothyroidism and they have advised me to ask for your help . I will try & cut a long story short!! . Since 2018 I have had low Ferritin results quite often and have taken Ferrous fummerate for 6 months each time and then promptly ignored as problem solved . In December I had a blood test
Hi I have Hypothyroidism and they have advised me to ask for your help . I will try & cut a long story short!! . Since 2018 I have had low Ferritin results quite often and have taken Ferrous fummerate for 6 months each time and then promptly ignored as problem solved . In December I had a blood test
Spoticus
in
Pernicious Anaemia Society
2 years ago
Deteriorating eyesight...........
Hi everyone, I had my first anti VEGF injection this morning, it was s anxious about it, but it was better than I expected. I have a medium to large static black blob ( lower left eye) and a feeling of a foreign body/grit in injection area, runny left nostriltoo, my eye is getting very sore.. It's the
Hi everyone, I had my first anti VEGF injection this morning, it was s anxious about it, but it was better than I expected. I have a medium to large static black blob ( lower left eye) and a feeling of a foreign body/grit in injection area, runny left nostriltoo, my eye is getting very sore.. It's the
Hidden
in
Macular Society
2 years ago
Statin - Side Effects
Actually I am happy to say I do not have any so you might wonder why I am posting? I only check in here every few days as it is all very repetitive particularly on statins. Yes a minute percentage get side effects yet despite numerous posts on the subject often replied to by stalwarts of the forum people
Actually I am happy to say I do not have any so you might wonder why I am posting? I only check in here every few days as it is all very repetitive particularly on statins. Yes a minute percentage get side effects yet despite numerous posts on the subject often replied to by stalwarts of the forum people
Heythrop51
in
British Heart Foundation
2 years ago
Advice please on blood results RE: changing Levo to NDT
Hi guys, Further to my last post on struggling with Levo to NDT I have been asked to post my blood resultsā¦done in January! No thyroid Just realised they didnāt test Vit D but was taking better for you Vit d spray with K2 at the timeā¦ just trying their Vit d without K2 as had bad experience when trying
Hi guys, Further to my last post on struggling with Levo to NDT I have been asked to post my blood resultsā¦done in January! No thyroid Just realised they didnāt test Vit D but was taking better for you Vit d spray with K2 at the timeā¦ just trying their Vit d without K2 as had bad experience when trying
Blanche1960
in
Thyroid UK
2 years ago
Medication
If I stop my medication will I die. Am on blood thinners, ACE inhibitors and statins.
If I stop my medication will I die. Am on blood thinners, ACE inhibitors and statins.
Batty55
in
British Heart Foundation
2 years ago
News that worried us and studies that gave us hope (04/2022).
This is the information that gave us hope while my father was alive and has given hope to many since then (March 2012). 1. News that worried us. In the coming decades the number of Parkinson's disease patients is feared to increase very worryingly, to double by 2030 (Dorsey 2007) and even to triple
This is the information that gave us hope while my father was alive and has given hope to many since then (March 2012). 1. News that worried us. In the coming decades the number of Parkinson's disease patients is feared to increase very worryingly, to double by 2030 (Dorsey 2007) and even to triple
parkinsonshereandnow
in
Cure Parkinson's
2 years ago
Dear Gambit62, Sleepybunny, Rexz, Wedgewood, and Nackapan
Thank you! Your responses to my query regarding specific tests that assist in determining pernicious anemia will be incredibly helpful. I looked on MyChart - my medical clinic's website that provides patients direct access to their test results. Here is what I found along with responses to some of
Thank you! Your responses to my query regarding specific tests that assist in determining pernicious anemia will be incredibly helpful. I looked on MyChart - my medical clinic's website that provides patients direct access to their test results. Here is what I found along with responses to some of
Hidden
in
Pernicious Anaemia Society
2 years ago
CSR and strabismus surgery. Plus benefits of CBD for CSR
Hi guys I was recommended for strabismus surgery.. they said it was I was a great candidate but itās for both eyes. Iāve never really had it as bad as others may have.. itās slight but as Iāve gotten older itās starting to get worse. Iām also a lucky enough to have CSR and Iām curious if anybody has
Hi guys I was recommended for strabismus surgery.. they said it was I was a great candidate but itās for both eyes. Iāve never really had it as bad as others may have.. itās slight but as Iāve gotten older itās starting to get worse. Iām also a lucky enough to have CSR and Iām curious if anybody has
T109
in
Macular Society
2 years ago
Steroid dependent membranous nephritis
Hlo everyone. This is my first post and i so eagerly want ur views about my condition. I am 37 years old south Asian male.i was first diagnosed with proteinuria in 2007 and biopsy result showed Minimal change disease.i was given occasional steroids in various forms till 2011.remission occured and went
Hlo everyone. This is my first post and i so eagerly want ur views about my condition. I am 37 years old south Asian male.i was first diagnosed with proteinuria in 2007 and biopsy result showed Minimal change disease.i was given occasional steroids in various forms till 2011.remission occured and went
Sajjadsadique
in
Kidney Disease
2 years ago
IFA & PCA blood tests
Hi, Iāve been booked for bloods for intrinsic factor and parietal cells antibodies, the GP said they are antibodies so no need to stop B12 before hand. Iām reading both 48 hours and/or 2 weeks clear of injections, I donāt want to mess these tests up but at the same time am desperate to get the B12.
Hi, Iāve been booked for bloods for intrinsic factor and parietal cells antibodies, the GP said they are antibodies so no need to stop B12 before hand. Iām reading both 48 hours and/or 2 weeks clear of injections, I donāt want to mess these tests up but at the same time am desperate to get the B12.
ATS1304
in
Pernicious Anaemia Society
2 years ago
Changing result for intrinsic factor antibody blood test
Why does Intrinsic factor test result change? Does anybody know what makes the abs come and go? I had negative then + result then negative again the day after B12 injection. I was expecting a + result after reading forum posts about high B12 causing false positive IFAB. I'm so confused, I have anti
Why does Intrinsic factor test result change? Does anybody know what makes the abs come and go? I had negative then + result then negative again the day after B12 injection. I was expecting a + result after reading forum posts about high B12 causing false positive IFAB. I'm so confused, I have anti
Aumshantii
in
Pernicious Anaemia Society
2 years ago
Active VitaminB12 test ( Ā£38.99) Active B12 test plus folate and Intrinsic Factor Antibodies Ā£69.99
Just noticed above tests available through www.onlinedoctor.superdrug.com.
Just noticed above tests available through www.onlinedoctor.superdrug.com.
wedgewood
in
Pernicious Anaemia Society
2 years ago
News letter
It seems The Pernicious Anaemua Society are doing a survey. Great I was keen to help. Only if you've got a diagnosis it seems I read on. I rang the helpline for the first tine in over 3 years of being a member to clarify this. I had an answerphone and was called back a few hours later. I explained
It seems The Pernicious Anaemua Society are doing a survey. Great I was keen to help. Only if you've got a diagnosis it seems I read on. I rang the helpline for the first tine in over 3 years of being a member to clarify this. I had an answerphone and was called back a few hours later. I explained
Nackapan
in
Pernicious Anaemia Society
2 years ago
NHS and 2nd potential anti vegf
Hello all even though I work for the NHS I still despair at the appointment system sometimes! I paid to go privately for my first anti vegf injection and the consultant said he would slot me into his nhs clinic for the second but due to probably the jubilee BH my second one will be 5 weeks 2 days after
Hello all even though I work for the NHS I still despair at the appointment system sometimes! I paid to go privately for my first anti vegf injection and the consultant said he would slot me into his nhs clinic for the second but due to probably the jubilee BH my second one will be 5 weeks 2 days after
Deepbluesea2022
in
Macular Society
2 years ago
Are my symptoms consistent with B12 deficiency especially burning sensation.
Hi Hoping people can tell me if some weird symptoms I'm having are consistent with B12 deficiency. I'm in the UK London. I have started getting burning skin sensations - feels like someone applied deep heat when I wasn't looking. I get these on my forearms, shoulders, patches on my upper back. They
Hi Hoping people can tell me if some weird symptoms I'm having are consistent with B12 deficiency. I'm in the UK London. I have started getting burning skin sensations - feels like someone applied deep heat when I wasn't looking. I get these on my forearms, shoulders, patches on my upper back. They
AlwaysTiredxxx
in
Pernicious Anaemia Society
2 years ago
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