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Factor X deficiency
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Amgevita - low energy
Hi all, I've been on Amgevita for just over four weeks, and it's done a decent job of addressing my pain and inflammation. The only thing is, I feel really flat and lethargic. Has anyone found that there's a delay between getting relief from symptoms, and then getting your energy back? I know that
Hi all, I've been on Amgevita for just over four weeks, and it's done a decent job of addressing my pain and inflammation. The only thing is, I feel really flat and lethargic. Has anyone found that there's a delay between getting relief from symptoms, and then getting your energy back? I know that
cuppa69
in
NRAS
1 year ago
Vitamin levels
Hi, it's me again.Just got my vitamin levels back from Docs. Serum total 25-OH vit D level-(RAB)-Normal. 79. Vitamin B12 . 384ng/L Serum Folate 6.6 ug/l Serum Ferritin 73 ug/L. I am currently taking 1000iu of Vitamin D. 500ug of Vitamin B12. I am not taking any supplements for Folate or Ferritin.
Hi, it's me again.Just got my vitamin levels back from Docs. Serum total 25-OH vit D level-(RAB)-Normal. 79. Vitamin B12 . 384ng/L Serum Folate 6.6 ug/l Serum Ferritin 73 ug/L. I am currently taking 1000iu of Vitamin D. 500ug of Vitamin B12. I am not taking any supplements for Folate or Ferritin.
sylus_911
in
Thyroid UK
1 year ago
I believe you.
And I believe in you. I heard you when you wrote you suffered less when taking more B12 than some said was effective. I heard you when you wrote you suffered less when you 'topped' off'. Even though that is contrary to the concept of loading then maintenance. I heard you when you wrote it feels
And I believe in you. I heard you when you wrote you suffered less when taking more B12 than some said was effective. I heard you when you wrote you suffered less when you 'topped' off'. Even though that is contrary to the concept of loading then maintenance. I heard you when you wrote it feels
WIZARD6787
in
Pernicious Anaemia Society
1 year ago
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Tracking your B12 changes after injections? (Please share if so)
Hey everyone. In November 2022 I tested positive for parietal cell antibodies with a B12 deficiency. I started loading doses of B12 with weekly injections (of 1000 mcg/mL cyanocobalomine) over 1 month, then monthly injections since then. A friend had a similar situation. After she started injections
Hey everyone. In November 2022 I tested positive for parietal cell antibodies with a B12 deficiency. I started loading doses of B12 with weekly injections (of 1000 mcg/mL cyanocobalomine) over 1 month, then monthly injections since then. A friend had a similar situation. After she started injections
Pante
in
Pernicious Anaemia Society
1 year ago
Iron panel results - is this normal or something to be concerned about?
I'm confused by the results. I haven't been taking any iron supplementation for a while. I tested because I've been ill (chronic urticaria) and haven't been able to tolerate iron supplements. Fasted over 12 hours beforehand, didn't take anything with biotin for over 10 days. Doctor wanted to do full
I'm confused by the results. I haven't been taking any iron supplementation for a while. I tested because I've been ill (chronic urticaria) and haven't been able to tolerate iron supplements. Fasted over 12 hours beforehand, didn't take anything with biotin for over 10 days. Doctor wanted to do full
Alanna012
in
Thyroid UK
1 year ago
steroid withdrawal again!
hi again. I have been messaging on here about my steroid withdrawal and I have had some very helpful replies. I have since been down to my Health Centre at last ……long story! I had my chest sounded and told not too bad but I am having a chest X Ray still tomorrow. I have been poorly since February
hi again. I have been messaging on here about my steroid withdrawal and I have had some very helpful replies. I have since been down to my Health Centre at last ……long story! I had my chest sounded and told not too bad but I am having a chest X Ray still tomorrow. I have been poorly since February
Bronchiectasislady69
in
Lung Conditions Community Forum
1 year ago
How many days to stop iron supplement before iron blood test?
hello, Im currently taking iron supplements (50mg - Thorn) and I will need to get my blood iron tests done soon. Does anyone know how long is it best to stop taking supplements before the test? Thank you!
hello, Im currently taking iron supplements (50mg - Thorn) and I will need to get my blood iron tests done soon. Does anyone know how long is it best to stop taking supplements before the test? Thank you!
Dolansan
in
Thyroid UK
1 year ago
any advice please
I’m having the weirdest of times just now.. I redid all my anemia testing ,it had been a year since I did them so as I thought my iron was maybe too low and that’s why I felt tired all the time I thought I’d have it all checked and also Dr K at the infusion centre in Cambridge advised me to do them
I’m having the weirdest of times just now.. I redid all my anemia testing ,it had been a year since I did them so as I thought my iron was maybe too low and that’s why I felt tired all the time I thought I’d have it all checked and also Dr K at the infusion centre in Cambridge advised me to do them
Thrones12
in
Pernicious Anaemia Society
1 year ago
Suppressed TSH and new chest pain
Hello dear people, Here’s the short version: I’m having chest pain with a suppressed TSH, so I think the doctors will want to lower my meds when I’m actually feeling more hypo than hyper. Does anyone have any advice? I so appreciate the people here! The picture above is my last thyroid bloodwork
Hello dear people, Here’s the short version: I’m having chest pain with a suppressed TSH, so I think the doctors will want to lower my meds when I’m actually feeling more hypo than hyper. Does anyone have any advice? I so appreciate the people here! The picture above is my last thyroid bloodwork
LostinHeadSpace
in
Thyroid UK
1 year ago
Another ignorant GP - "is PA forever?" he asked
Firstly, I must say, I feel lucky and greatful that I have been able to get my b12 on prescription since being diagnosed with PA 7 years ago, I self inject twice per week. However, it has not been without challenges i.e. paying a private Neurologist (in 2020) to confirming to my GP that I need twice
Firstly, I must say, I feel lucky and greatful that I have been able to get my b12 on prescription since being diagnosed with PA 7 years ago, I self inject twice per week. However, it has not been without challenges i.e. paying a private Neurologist (in 2020) to confirming to my GP that I need twice
HKAnne
in
Pernicious Anaemia Society
1 year ago
I’m new to this forum
hi folks, new to this forum. basically was referred to consultant some 6 years ago and started on NSAID naproxen which I had been taking for a while prior and which seemed to be holding pain control quite well. Declined to start DMARDs at that point as a bit scared of side effects and have managed with
hi folks, new to this forum. basically was referred to consultant some 6 years ago and started on NSAID naproxen which I had been taking for a while prior and which seemed to be holding pain control quite well. Declined to start DMARDs at that point as a bit scared of side effects and have managed with
Isla-baby
in
NRAS
1 year ago
Bright yellow urine, Flank pain, Flakes in urine
Hello, I have not been diagnosed with kidney disease, and actually do not think that what I have is primarily kidney disease - although the kidneys seem to be involved. I am posting my story here (or, some of it - since it is quite long and involved) in case anyone may have some advice for me, or if
Hello, I have not been diagnosed with kidney disease, and actually do not think that what I have is primarily kidney disease - although the kidneys seem to be involved. I am posting my story here (or, some of it - since it is quite long and involved) in case anyone may have some advice for me, or if
Polaris_Ab
in
Kidney Disease
1 year ago
What is the difference between these two tests?
Parietal Cell Antibody, ELISA/ positive Parietal Cell Antibody with Relex to Titer/ Negative
Parietal Cell Antibody, ELISA/ positive Parietal Cell Antibody with Relex to Titer/ Negative
Tigerlilly81
in
Pernicious Anaemia Society
1 year ago
Mobitz 1 - scared
Hi everyone, I have been told my 24hr ECG has picked up second degree heart block mobitz 1 wenkebach. I have been referred to cardiology and have just now received a telephone appointment for 13th May. I began feeling palpatations around two months after having covid last March. I was diagnosed with
Hi everyone, I have been told my 24hr ECG has picked up second degree heart block mobitz 1 wenkebach. I have been referred to cardiology and have just now received a telephone appointment for 13th May. I began feeling palpatations around two months after having covid last March. I was diagnosed with
Butterfly280
in
Arrhythmia Alliance
1 year ago
Restless Legs Syndrome
I have had RLS for a long time I get very little sleep and I am fairly lucky I can survive for most days without a lot of sleep I tried pregabalin which hasn't helped I had major surgery in January 2023 Since then my RLS Symptoms have increased dramatically I have moved to sheltered accommodation to
I have had RLS for a long time I get very little sleep and I am fairly lucky I can survive for most days without a lot of sleep I tried pregabalin which hasn't helped I had major surgery in January 2023 Since then my RLS Symptoms have increased dramatically I have moved to sheltered accommodation to
williamghenry
in
Restless Legs Syndrome
1 year ago
Enlarged heart
I wonder if anyone has any advice please? I am new to this forum and this is my first post. I have congenital heart disease and have had open heart surgery twice. I now have a bi-ventricular pacemaker (I am 45 years old). My mum passed away from aortic dissection a short while ago and as a result
I wonder if anyone has any advice please? I am new to this forum and this is my first post. I have congenital heart disease and have had open heart surgery twice. I now have a bi-ventricular pacemaker (I am 45 years old). My mum passed away from aortic dissection a short while ago and as a result
Maple_cakes
in
British Heart Foundation
1 year ago
Care to care for a caregiver?
I feel pretty lost today, and could use a little TLC. Even if none of you can relate to this particular situation, me just making the time to ask for support feels good to me: like I'm doing what I deserve. My Joe has not bounced back after ending chemo in December. (His second assault with chemo:
I feel pretty lost today, and could use a little TLC. Even if none of you can relate to this particular situation, me just making the time to ask for support feels good to me: like I'm doing what I deserve. My Joe has not bounced back after ending chemo in December. (His second assault with chemo:
Cateydid
in
Prostate Cancer Caregivers
1 year ago
I could use a little support, please......
I'll head over to the Caregiver site directly, but I count on you warriors for SO much information. I always start here. I updated Joe's history here but would really appreciate any thoughts you survivors can share about where we are now, realizing no one really knows........ My Joe has not bounced
I'll head over to the Caregiver site directly, but I count on you warriors for SO much information. I always start here. I updated Joe's history here but would really appreciate any thoughts you survivors can share about where we are now, realizing no one really knows........ My Joe has not bounced
Cateydid
in
Advanced Prostate Cancer
1 year ago
Can I eat better to aid stomach acid?
Hello, I have Parietal Cell antibodies and I am concerned about Cancer, so I have been reading up about eating better to increase stomach acid. Can anyone let me know if you can influence the production of stomach acid by changing your diet even if you have Parietal Cell anitbodies? Perhaps stomach
Hello, I have Parietal Cell antibodies and I am concerned about Cancer, so I have been reading up about eating better to increase stomach acid. Can anyone let me know if you can influence the production of stomach acid by changing your diet even if you have Parietal Cell anitbodies? Perhaps stomach
Mocha23
in
Pernicious Anaemia Society
1 year ago
Unstable Angina - Male 53 years old
On Easter Sunday I attended church with my wife and about midway through mass I started to get a tight sensation in the middle of my chest. At first I thought it was just a bit of nasty heartburn and waited for it to pass, but the pain got worse and started to feel like something was being forced into
On Easter Sunday I attended church with my wife and about midway through mass I started to get a tight sensation in the middle of my chest. At first I thought it was just a bit of nasty heartburn and waited for it to pass, but the pain got worse and started to feel like something was being forced into
Daddio70
in
British Heart Foundation
1 year ago
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