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Intrinsic Factor
It occurred to me that it must be possible to synthesise Intrinsic Factor as a supplement to replace what PA people have lost. Does anyone of a scientific bent have any thoughts on this idea?
It occurred to me that it must be possible to synthesise Intrinsic Factor as a supplement to replace what PA people have lost. Does anyone of a scientific bent have any thoughts on this idea?
Orchard33
in
Pernicious Anaemia Society
1 year ago
A helpful video for me.
https://www.youtube.com/watch?v=q5cyMLt6N7Q This was posted by someone else on this site 6+- months ago and resonated with me. I do not know who the creator is or their credentials. I am more than fine that it is not blessed/authenticated and find it valuable. It differentiates between Intrinsic
https://www.youtube.com/watch?v=q5cyMLt6N7Q This was posted by someone else on this site 6+- months ago and resonated with me. I do not know who the creator is or their credentials. I am more than fine that it is not blessed/authenticated and find it valuable. It differentiates between Intrinsic
WIZARD6787
in
Pernicious Anaemia Society
1 year ago
Intrinsic factor antibody
I've just been back to my GP because
I
had a blood
test
done the other week for intrinsic
factor
antibody.
I
had a result of 3.66 which I thought was positive but my GP just said it's negative ? I had the test done because my vitamins b12 is 211.
I've just been back to my GP because
I
had a blood
test
done the other week for intrinsic
factor
antibody.
I
had a result of 3.66 which I thought was positive but my GP just said it's negative ? I had the test done because my vitamins b12 is 211.
suzybear
in
Pernicious Anaemia Society
11 months ago
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Advice moving forward?
So I recently had blood tests that showed low b12, iron and vit D. Was prescribed tablets for the iron and vit D. And put on a course of B12 loading doses. 6 injections over 2 weeks. it's now been 2 weeks after the last b12 injection and none of my symptoms have improved. When I talked to the gp,
So I recently had blood tests that showed low b12, iron and vit D. Was prescribed tablets for the iron and vit D. And put on a course of B12 loading doses. 6 injections over 2 weeks. it's now been 2 weeks after the last b12 injection and none of my symptoms have improved. When I talked to the gp,
Dan444
in
Pernicious Anaemia Society
7 months ago
Dry eye syndrome - and castor oil!
Some weeks ago someone posted they were using castor oil for dry eyes. I was rather sceptical that that was a good idea - it sounded as if they were putting it IN their eyes. Anyway - today I got a notification of this study of castor oil as a potential natural remedy for dry eyes: https://www.medicalnewstoday.com
Some weeks ago someone posted they were using castor oil for dry eyes. I was rather sceptical that that was a good idea - it sounded as if they were putting it IN their eyes. Anyway - today I got a notification of this study of castor oil as a potential natural remedy for dry eyes: https://www.medicalnewstoday.com
PMRpro
Ambassador
in
PMRGCAuk
7 months ago
Confused again 😕
How do you know if your intrinsic factor antibody blood test is good or bad?
How do you know if your intrinsic factor antibody blood test is good or bad?
Popcorn12345
in
Pernicious Anaemia Society
7 months ago
My Tumour is shrinking
I am at the end of chemo cycle. In August my tumour was 1cm after I had the MRI. So 80% removed from right side of my brain. I have gone to 1cm to 1.5cm. In the three MRI's. My latest one has shunk so much I think it is now a 1/4 in size, comparing August mri to this mri. I am so pleased. I have
I am at the end of chemo cycle. In August my tumour was 1cm after I had the MRI. So 80% removed from right side of my brain. I have gone to 1cm to 1.5cm. In the three MRI's. My latest one has shunk so much I think it is now a 1/4 in size, comparing August mri to this mri. I am so pleased. I have
Denni60
in
Glioblastoma Support
7 months ago
need advice
Hello, Having B12 defiency my GP has been prescribing me oral B12 which got my levels to normal but hasn’t changed my symptoms. She then prescribed blood tests for parietal cell antibodies and intrinsic factor antibodies. Both were negative. She says therefore I only need B12 orally and not injections
Hello, Having B12 defiency my GP has been prescribing me oral B12 which got my levels to normal but hasn’t changed my symptoms. She then prescribed blood tests for parietal cell antibodies and intrinsic factor antibodies. Both were negative. She says therefore I only need B12 orally and not injections
Tiredycake
in
Pernicious Anaemia Society
7 months ago
symptoms with treated PA
Hello forum Autoimmune Metaplastic Atrophic Gastritis (AMAG) results in the loss of parietal cells which causes a loss of production of stomach acid and intrinsic factor (IF). The loss of IF results in low B12. My general query is; are there consequences and symptoms connected to a lack of stomach
Hello forum Autoimmune Metaplastic Atrophic Gastritis (AMAG) results in the loss of parietal cells which causes a loss of production of stomach acid and intrinsic factor (IF). The loss of IF results in low B12. My general query is; are there consequences and symptoms connected to a lack of stomach
Laundretta
in
Pernicious Anaemia Society
1 year ago
Fundraising
I am very fortunate that I can pop down to P.A. Society Head Quarters to lend a hand. I did this morning. There are 4 volunteers helping the small amount of staff run the organisation . The person there today was inundated when I rocked up. As they are everyday. We could talk for weeks but I said, ‘No
I am very fortunate that I can pop down to P.A. Society Head Quarters to lend a hand. I did this morning. There are 4 volunteers helping the small amount of staff run the organisation . The person there today was inundated when I rocked up. As they are everyday. We could talk for weeks but I said, ‘No
Narwhal10
in
Pernicious Anaemia Society
1 year ago
Found a new way to screw up.
So I am transitioning from swimming due to water temperature to hiking up the side of a mountain at the same time I stopped injecting and went with sublingual. (Only a mile up the mountain.) My body did adjust which is not using up my B12 or reversing out. The only symptom that seemed to get worse and
So I am transitioning from swimming due to water temperature to hiking up the side of a mountain at the same time I stopped injecting and went with sublingual. (Only a mile up the mountain.) My body did adjust which is not using up my B12 or reversing out. The only symptom that seemed to get worse and
WIZARD6787
in
Pernicious Anaemia Society
1 year ago
New papers on PA
There are often new interesting papers on pernicious anemia. I will add them to this thread to keep them all in one place. I'll try to the pick the ones I think are most novel & relevant, but plenty are published every month. To see more, check Google Scholar https://scholar.google.com/scholar?start=
There are often new interesting papers on pernicious anemia. I will add them to this thread to keep them all in one place. I'll try to the pick the ones I think are most novel & relevant, but plenty are published every month. To see more, check Google Scholar https://scholar.google.com/scholar?start=
jade_s
in
Pernicious Anaemia Society
1 year ago
Please help in tracing the Post, effective control RLS by using Casrol oil pads
I have extensive RLS of all body parts, which is making my life hell. I saw within the past 3 months, a post by an RLS patient that he has been able to control effectively RLS by using Castor oil pads. But, I have not been able to locate the post due to my limitations, I would appreciate it if any
I have extensive RLS of all body parts, which is making my life hell. I saw within the past 3 months, a post by an RLS patient that he has been able to control effectively RLS by using Castor oil pads. But, I have not been able to locate the post due to my limitations, I would appreciate it if any
Ramuu
in
Restless Legs Syndrome
8 months ago
Please help me trace the post on the effective control of RLS by using Castor Oil Pads
I have extensive RLS of all body parts, which is making my life hell. I saw within the past 3 months, a post by an RLS patient that he has been able to control effectively RLS by using Castor oil pads. But, I have not been able to locate the post due to my limitations, I would appreciate it if any
I have extensive RLS of all body parts, which is making my life hell. I saw within the past 3 months, a post by an RLS patient that he has been able to control effectively RLS by using Castor oil pads. But, I have not been able to locate the post due to my limitations, I would appreciate it if any
Ramuu
in
Cure Parkinson's
8 months ago
GP appointment and blood tests - will recent steroid injection skew results?
Afternoon everyone, I had a GP appointment yesterday to discuss my symptoms. Went through everything that has happened since the summer. She sent me for blood tests today which included CRP, ESR, Rheumatoid factor and various other tests relating to autoimmune conditions. She insisted I call back for
Afternoon everyone, I had a GP appointment yesterday to discuss my symptoms. Went through everything that has happened since the summer. She sent me for blood tests today which included CRP, ESR, Rheumatoid factor and various other tests relating to autoimmune conditions. She insisted I call back for
MsWhistledown
in
PMRGCAuk
9 months ago
My B12 System
I still go with my neurological system in evaluating success. I am morphing into deciding on treatment for my B12 system which started when I abandoned the concept of adding one supplement at a time without taking into account they all work together and how and why they work together is unknown. A
I still go with my neurological system in evaluating success. I am morphing into deciding on treatment for my B12 system which started when I abandoned the concept of adding one supplement at a time without taking into account they all work together and how and why they work together is unknown. A
WIZARD6787
in
Pernicious Anaemia Society
1 year ago
Loading doses
I will try and keep this as short as possible. 21 years ago GP diagnosed PA and up until 3 years ago I had B12 injections every 12 weeks. 3 years ago the CCG instructed GP's to cut down giving injections to anyone unless they had PA. My jobsworth GP decided to give me a blood test, which was in range
I will try and keep this as short as possible. 21 years ago GP diagnosed PA and up until 3 years ago I had B12 injections every 12 weeks. 3 years ago the CCG instructed GP's to cut down giving injections to anyone unless they had PA. My jobsworth GP decided to give me a blood test, which was in range
Lilian15
in
Pernicious Anaemia Society
9 months ago
Loading doses of B12
I will try and keep this as short as possible. 21 years ago GP diagnosed PA and up until 3 years ago I had B12 injections every 12 weeks. 3 years ago the CCG instructed GP's to cut down giving injections to anyone unless they had PA. My jobsworth GP decided to give me a blood test, which was in
I will try and keep this as short as possible. 21 years ago GP diagnosed PA and up until 3 years ago I had B12 injections every 12 weeks. 3 years ago the CCG instructed GP's to cut down giving injections to anyone unless they had PA. My jobsworth GP decided to give me a blood test, which was in
Lilian15
in
Diabetes & Hypertension Help Society
9 months ago
The saga continues Daughters Bloods
So previously https://healthunlocked.com/pasoc/posts/150272370/daughters-blood-results-advice-please?responses=150276420 had discussion today with the GP who is dealing with daughter, was actually in there with youngest. After youngest was dealt with we discussed where we were up to with older girl
So previously https://healthunlocked.com/pasoc/posts/150272370/daughters-blood-results-advice-please?responses=150276420 had discussion today with the GP who is dealing with daughter, was actually in there with youngest. After youngest was dealt with we discussed where we were up to with older girl
Polo22
in
Pernicious Anaemia Society
10 months ago
Haematologists consultant
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Windyway
in
Pernicious Anaemia Society
6 months ago
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