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Please join INHERIT Study
Join the INHERIT Study to help us better understand the genetic risk for lung cancer, and what can be done for prevention and treatment. Our goals are to learn more about: -Inherited or genetic risk for developing lung cancer in certain people or families -Changes in lung cancer tumors in people with
Join the INHERIT Study to help us better understand the genetic risk for lung cancer, and what can be done for prevention and treatment. Our goals are to learn more about: -Inherited or genetic risk for developing lung cancer in certain people or families -Changes in lung cancer tumors in people with
Miranda_GO2
Partner
in
Lung Cancer Support
5 months ago
another pharma update
This is in regards to the pharma Ipsen... They are trialing a drug called Elafibranor. It is being used for treatment in PBC, biliary atresia (in children) , PSC, Alagille Syndrome, and Primary Familial Cholestasis. With patients taking Urso, often up to 40% do not see improvement. 3-5% of patients
This is in regards to the pharma Ipsen... They are trialing a drug called Elafibranor. It is being used for treatment in PBC, biliary atresia (in children) , PSC, Alagille Syndrome, and Primary Familial Cholestasis. With patients taking Urso, often up to 40% do not see improvement. 3-5% of patients
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Graves disease
Please I wonder if anyone could help? I am posting this on behalf of my cousin who was diagnosed with Graves in 2020! she was off carbimazole but last Feb put back on 5mg daily I believe as had a reoccurrence/flair up I will post her blood results as she is very hypo and sleeping +10 hrs at night and
Please I wonder if anyone could help? I am posting this on behalf of my cousin who was diagnosed with Graves in 2020! she was off carbimazole but last Feb put back on 5mg daily I believe as had a reoccurrence/flair up I will post her blood results as she is very hypo and sleeping +10 hrs at night and
Doris11
in
Thyroid UK
5 months ago
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Springfield pharmacy Richmond
Hello please can anyone tell me if they have had a postal service from Springfield Pharmacy in Richmond? London.I have an NHS prescription for Liothyronine and I'm finding it hard to find Morningside. I spoke to this pharmacy by telephone and they tell me it's a 14 £ charge for postal service is this
Hello please can anyone tell me if they have had a postal service from Springfield Pharmacy in Richmond? London.I have an NHS prescription for Liothyronine and I'm finding it hard to find Morningside. I spoke to this pharmacy by telephone and they tell me it's a 14 £ charge for postal service is this
Rigsby40
in
Thyroid UK
5 months ago
Accidentally took double thybon t3!
Hi all, I took my regular 10 mcg t3 dose this morning however I have taken a second dose of 20mcg by accident as I was distracted and I taught it was my other medication. Should I be worried? TIA
Hi all, I took my regular 10 mcg t3 dose this morning however I have taken a second dose of 20mcg by accident as I was distracted and I taught it was my other medication. Should I be worried? TIA
Nessynu
in
Thyroid UK
5 months ago
Intermittent fasting (daily 16:8) while taking Levothyroxine - to control weight. Your thoughts please, Is this ok or not advisable?
I’ve read that leaving 16 hours in between eating or drinking anything other than water is an effective way for the body to burn its fat stores. Then during the 8 hour window that you do have food, you make sure you are consuming all the beneficial vitamins, minerals, protein, etc. and sufficient calories
I’ve read that leaving 16 hours in between eating or drinking anything other than water is an effective way for the body to burn its fat stores. Then during the 8 hour window that you do have food, you make sure you are consuming all the beneficial vitamins, minerals, protein, etc. and sufficient calories
Alternatively
in
Thyroid UK
5 months ago
Weight Loss Advice
I know this is a topic that drives us all mad lol but any advice is welcome.I was a long distance runner before I had my 5th child and then 11 months later diagnosed with Hasimotos. I gained 3 stone after the pregnancy before diagnosis. I have lost 2 stone but this last stone does not shift no matter
I know this is a topic that drives us all mad lol but any advice is welcome.I was a long distance runner before I had my 5th child and then 11 months later diagnosed with Hasimotos. I gained 3 stone after the pregnancy before diagnosis. I have lost 2 stone but this last stone does not shift no matter
Jutokids
in
Thyroid UK
2 months ago
Phosphate binder, not so good
my boyfriend was diagnosed with kidney failure in August 2019 and since he got into Davita dialysis a month after, they prescribed him this pills 3X 3 times a day with every food to block the potassium since the kidneys supposedly weren’t working ok, he did so, and he never failed getting them, but,
my boyfriend was diagnosed with kidney failure in August 2019 and since he got into Davita dialysis a month after, they prescribed him this pills 3X 3 times a day with every food to block the potassium since the kidneys supposedly weren’t working ok, he did so, and he never failed getting them, but,
Justicelover
in
Kidney Disease
2 days ago
Changing time of meditation
Hi, is it possible that by changing the time of your dose of thyroxine from morning to night can affect the absorption giving you effectively a higher dose? I have taken 100mcg early morning 3-4 hours before food for a long long time. My T4 was slightly over range on last blood test in July but I changed
Hi, is it possible that by changing the time of your dose of thyroxine from morning to night can affect the absorption giving you effectively a higher dose? I have taken 100mcg early morning 3-4 hours before food for a long long time. My T4 was slightly over range on last blood test in July but I changed
jodary
in
Thyroid UK
3 days ago
NIH visit and Richters discussion
As some of you have posted about previously, today I also entered the NIH natural history study for CLL. The visit was good, efficient and pretty painless. Getting on the campus was straightforward only requiring a driver's license and a pre-registration with the CLL team that was seen by security.
As some of you have posted about previously, today I also entered the NIH natural history study for CLL. The visit was good, efficient and pretty painless. Getting on the campus was straightforward only requiring a driver's license and a pre-registration with the CLL team that was seen by security.
BigfootT
in
CLL Support
5 days ago
Wednesday's Word
[u][i]
"upper limits of normal"
[/i][/u] When we have any blood work done, there is always a 'normal' range given with our results. Hospitals or labs can somethings differ as to what their 'normal' is. Always look at what your results are according to that normal. According to Dr. Jones, in
[u][i]
"upper limits of normal"
[/i][/u] When we have any blood work done, there is always a 'normal' range given with our results. Hospitals or labs can somethings differ as to what their 'normal' is. Always look at what your results are according to that normal. According to Dr. Jones, in
DonnaBoll
Administrator
in
PBC Foundation
6 days ago
Possible early Kidney Disease?
My husband has secondary, treatment resistant, hypertension and I was looking into possible health conditions that may be causing the high blood pressure and came across polycystic kidney disease. His recent blood test/urine test showed a egfr of 69, creatinine over the high normal range and protein
My husband has secondary, treatment resistant, hypertension and I was looking into possible health conditions that may be causing the high blood pressure and came across polycystic kidney disease. His recent blood test/urine test showed a egfr of 69, creatinine over the high normal range and protein
Moye75
in
Kidney Disease
7 days ago
started on pramipexole
hello, I’m 36 year old male. Started experiencing RLS about 7 years ago. At first I didn’t know what it was and it was on and off. Good week, bad week etc etc. Few years later it started happening almost every night soon as I’m about to fall asleep and it gradually gotten worse. I went to see my doctor
hello, I’m 36 year old male. Started experiencing RLS about 7 years ago. At first I didn’t know what it was and it was on and off. Good week, bad week etc etc. Few years later it started happening almost every night soon as I’m about to fall asleep and it gradually gotten worse. I went to see my doctor
Kasp
in
Restless Legs Syndrome
8 days ago
latest bloods - graves/ptu
hi diagnosed with graves few months ago. Originally tried carbimazole but came out in a bad rash everywhere. Now on ptu 50mg twice per day but have halved to once a day since having pins and needles from knees down. Still experiencing anxiety, some hot flushes, irritability, palpitations. (Have lost
hi diagnosed with graves few months ago. Originally tried carbimazole but came out in a bad rash everywhere. Now on ptu 50mg twice per day but have halved to once a day since having pins and needles from knees down. Still experiencing anxiety, some hot flushes, irritability, palpitations. (Have lost
Kiki_76
in
Thyroid UK
2 months ago
milk thistle
has anyone taken milk thistle and alk phos or lft improve? are they any vitamins or supplements that have have been known to help PBC test results? thanks!
has anyone taken milk thistle and alk phos or lft improve? are they any vitamins or supplements that have have been known to help PBC test results? thanks!
Samanthaann
in
PBC Foundation
5 months ago
Blood work and scans
Hi everyone, I recently had my blood work carried out and the following were highlighted for being higher than they should. Could anyone kindly give me their opinion on them? AST - 42 ALT - 53 MCV - 99.3 Red cell folate - 255 Gamma GT - 100 Phosphate - 0.75 Ferritin - 643 25 OH Vitamin - 17
Hi everyone, I recently had my blood work carried out and the following were highlighted for being higher than they should. Could anyone kindly give me their opinion on them? AST - 42 ALT - 53 MCV - 99.3 Red cell folate - 255 Gamma GT - 100 Phosphate - 0.75 Ferritin - 643 25 OH Vitamin - 17
DJK78
in
British Liver Trust
5 months ago
medichecks results different from GP
I did a home test back in. March in order to get some information other than the GP test who wanted to reduce my Levo and put me on Statins. I take 100mcg daily and feel well on this dosage, when I was on 75mcg, I felt lethargic and not myself. The new results are CRP HS. 1.510 mg/L. (Range < 3
I did a home test back in. March in order to get some information other than the GP test who wanted to reduce my Levo and put me on Statins. I take 100mcg daily and feel well on this dosage, when I was on 75mcg, I felt lethargic and not myself. The new results are CRP HS. 1.510 mg/L. (Range < 3
Day-skipper
in
Thyroid UK
2 months ago
Help...early miscarriage and feeling neglected by our clinic
I'd be really grateful if someone could share their knowledge/experience on the following. We had a 5 day blastocyst (3ab) transfer a few weeks ago. 7 days after transfer we tested positive (at home pregnancy test). I began spotting on day 8 and bleeding heavily on day 9 post transfer. Our beta HCG (
I'd be really grateful if someone could share their knowledge/experience on the following. We had a 5 day blastocyst (3ab) transfer a few weeks ago. 7 days after transfer we tested positive (at home pregnancy test). I began spotting on day 8 and bleeding heavily on day 9 post transfer. Our beta HCG (
Kdev
in
Fertility Network UK
10 days ago
Diabetes concern
Hi all. Diagnosed in June with PMR started prednisolone 15mg usual taper plan but I am not feeling good at all, after three weeks tapered to 12.5 felt awful after a week told by gp to increase back to 15 still not improving then told by gp to increase to 20, no great improvement but stayed on 20 for
Hi all. Diagnosed in June with PMR started prednisolone 15mg usual taper plan but I am not feeling good at all, after three weeks tapered to 12.5 felt awful after a week told by gp to increase back to 15 still not improving then told by gp to increase to 20, no great improvement but stayed on 20 for
Blodders2
in
PMRGCAuk
12 days ago
Iron Infusion
Hi All Just wondering if anyone has ever experienced this. I’m on Methotrexate for RA, have been taking it for about 6 years, bloods are taken every few months as it can cause liver problems. My ALT has been low for years now, but since having an iron infusion in April, my ALT, GGT are getting higher
Hi All Just wondering if anyone has ever experienced this. I’m on Methotrexate for RA, have been taking it for about 6 years, bloods are taken every few months as it can cause liver problems. My ALT has been low for years now, but since having an iron infusion in April, my ALT, GGT are getting higher
Chockyuk
in
British Liver Trust
12 days ago
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