Search
Search
About
Log in
Join
Experiences with
Fabry disease
Posts
Communities
42,923 public posts
Filter results
Thinking of taking an ADT vacation
Hi, just got my latest PSA result yesterday...it was 0.07 ug/l down from 0.14 ug/l one month ago. I'm almost at the 6 month mark of my ADT journey. Six months ago, my PSA was 14.9 ug/l. I'm thinking of taking a break from the ADT because of the side effects. Is it too risky? Would the PSA start
Hi, just got my latest PSA result yesterday...it was 0.07 ug/l down from 0.14 ug/l one month ago. I'm almost at the 6 month mark of my ADT journey. Six months ago, my PSA was 14.9 ug/l. I'm thinking of taking a break from the ADT because of the side effects. Is it too risky? Would the PSA start
John347
in
Advanced Prostate Cancer
8 months ago
Heart rate monitor results - another update
We had our second private consultation today for mum. Mum had the Zio XT monitor for a week. She has permanent AF and HF and the past couple of months have been so difficult as mum hasn’t felt good pretty much every day. The consultant said mum’s average heart rate is around 80 bpm, but the monitor
We had our second private consultation today for mum. Mum had the Zio XT monitor for a week. She has permanent AF and HF and the past couple of months have been so difficult as mum hasn’t felt good pretty much every day. The consultant said mum’s average heart rate is around 80 bpm, but the monitor
Nickybhf
in
AF Association
5 months ago
Good morning. Could anyone help? Thank you
Posting on behalf of 65_women has anyone had an operation for their elbow with rheumatoid arthritis. Did it help or not?
Posting on behalf of 65_women has anyone had an operation for their elbow with rheumatoid arthritis. Did it help or not?
Helen-NRAS
Moderator
in
NRAS
6 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Life Insurance
Hi, I have been diagnosed with cirrhosis of the liver. I'm 54 (f) and live with my 25 year old son (divorced). I've just realised I don't have life insurance (I know!), and wanted to ask if anyone has experience of decent companies who won't rip me off. I'm worried sick about leaving my son with extra
Hi, I have been diagnosed with cirrhosis of the liver. I'm 54 (f) and live with my 25 year old son (divorced). I've just realised I don't have life insurance (I know!), and wanted to ask if anyone has experience of decent companies who won't rip me off. I'm worried sick about leaving my son with extra
Corallykate47
in
British Liver Trust
8 months ago
Confused
Hi, I was diagnosed with compensated cirrhosis around 10 months ago. I have since done a resus trial/ study to reduce scarring. I had a biopsy at the end of the trial( sep) and it was showing roughly the same but just had 6 month appt with my liver consultant and she said...my bloods are about back to
Hi, I was diagnosed with compensated cirrhosis around 10 months ago. I have since done a resus trial/ study to reduce scarring. I had a biopsy at the end of the trial( sep) and it was showing roughly the same but just had 6 month appt with my liver consultant and she said...my bloods are about back to
Pete728
in
British Liver Trust
8 months ago
Cramps
I have been having a few problems with my hands lately, stiffness etc which my GP originally put down to old age and arthritis, but just lately I have been getting cramp in my left hand which can be painful, do you think this could be due to arthritis or possibly something else?
I have been having a few problems with my hands lately, stiffness etc which my GP originally put down to old age and arthritis, but just lately I have been getting cramp in my left hand which can be painful, do you think this could be due to arthritis or possibly something else?
Doggie123-UK
in
Arthritis Action
6 months ago
History of my cancer becoming castrate resistant
Thinking that some people might be interested to know how my metastatic cancer became castrate resistant I posting a brief history. When on Lupron break, my PSA reached 1.1 on June 1, 2022. I had a CT scan which found a new lymph node enlargement [Retrocaval lymph node measures 0.5 x 1.1 cm (series
Thinking that some people might be interested to know how my metastatic cancer became castrate resistant I posting a brief history. When on Lupron break, my PSA reached 1.1 on June 1, 2022. I had a CT scan which found a new lymph node enlargement [Retrocaval lymph node measures 0.5 x 1.1 cm (series
dac500
in
Advanced Prostate Cancer
8 months ago
8 hour flight
I was diagnosed with ET with jak2 about 5 years ago, my platelets aren’t bad at all only 790 at last count, so am only on mini aspirin at present. Going on 8 hour flight soon, should I take any extra precautions? A colleague told me I should be taking fragmin as such a long flight! Does anyone have any
I was diagnosed with ET with jak2 about 5 years ago, my platelets aren’t bad at all only 790 at last count, so am only on mini aspirin at present. Going on 8 hour flight soon, should I take any extra precautions? A colleague told me I should be taking fragmin as such a long flight! Does anyone have any
Footballwidow66
in
MPN Voice
5 months ago
Dr. Bianco: video from Thyroid Foundation of Canada
from 9 months ago. Somehow it ended up in my youtube feed this morning. He makes the point that L-thyroxine doesn't always manage to result in good fT3 levels and patients need Liothyronine. https://www.youtube.com/watch?v=PGlYO_H4Gdc&t=2682s
from 9 months ago. Somehow it ended up in my youtube feed this morning. He makes the point that L-thyroxine doesn't always manage to result in good fT3 levels and patients need Liothyronine. https://www.youtube.com/watch?v=PGlYO_H4Gdc&t=2682s
gabkad
in
Thyroid UK
5 months ago
Kellgren Centre in Manchester retains LUPUS UK Centre of Excellence award
In September 2023, LUPUS UK conducted an inspection of the Kellgren Centre at Manchester Royal Infirmary and are very pleased to conclude it should retain the LUPUS UK Centre of Excellence award. You can read the full inspection report, including how it met our criteria and what we recommended for improvements
In September 2023, LUPUS UK conducted an inspection of the Kellgren Centre at Manchester Royal Infirmary and are very pleased to conclude it should retain the LUPUS UK Centre of Excellence award. You can read the full inspection report, including how it met our criteria and what we recommended for improvements
Debbie_kinsey
Administrator
in
LUPUS UK
6 months ago
Confused and getting worse... Update
Hi I visited my GP today. I got a letter about my last visit and some results but I need to see my consultant for the rest. Most look OK to me just a couple outside of normal. The letter just confirmed that I have a strong family history of Rheumatoid arthritis and I exhibit organ specific autoimmune
Hi I visited my GP today. I got a letter about my last visit and some results but I need to see my consultant for the rest. Most look OK to me just a couple outside of normal. The letter just confirmed that I have a strong family history of Rheumatoid arthritis and I exhibit organ specific autoimmune
12stkeepgoing
in
Thyroid UK
6 months ago
Elbow
Has anyone had an operation on the elbow that has rheumatoid arthritis? If so has it helped or not?
Has anyone had an operation on the elbow that has rheumatoid arthritis? If so has it helped or not?
65_women
in
PMRGCAuk
6 months ago
stomach acid
happy new year everyone I was diagnosed with PA approx 9yrs ago with some atrophic gastritis and metaplasia (I think) I also have arthritis in my knees/hips I SI every 7 to 10 days Im 56 and I’m fairly fit and active so I know I’m lucky compared to some what I’m confused about is stomach acid.
happy new year everyone I was diagnosed with PA approx 9yrs ago with some atrophic gastritis and metaplasia (I think) I also have arthritis in my knees/hips I SI every 7 to 10 days Im 56 and I’m fairly fit and active so I know I’m lucky compared to some what I’m confused about is stomach acid.
lifegems
in
Pernicious Anaemia Society
6 months ago
Not impressed
Decided to go through my medical notes such as they are, and blood tests again now I'm more sensible again. All hospital consultations are missed off and consequently diagnoses. Oh, and there is a gp consultation noted that never took place. Basically my notes appear to be a mess. What really
Decided to go through my medical notes such as they are, and blood tests again now I'm more sensible again. All hospital consultations are missed off and consequently diagnoses. Oh, and there is a gp consultation noted that never took place. Basically my notes appear to be a mess. What really
Wheat
in
Pernicious Anaemia Society
8 months ago
Symptoms but blood tests Normal?
Hello, I have symptoms of underactive thyroid. - heavy periods - fatigue - pins and needles in hand - fatigue - cold - anxiety and depression. - struggle with weight loss My mum has underactive thyroid and maternal nan also. Contacted gp as have very heavy periods, on slimming world but can't
Hello, I have symptoms of underactive thyroid. - heavy periods - fatigue - pins and needles in hand - fatigue - cold - anxiety and depression. - struggle with weight loss My mum has underactive thyroid and maternal nan also. Contacted gp as have very heavy periods, on slimming world but can't
jennylouise91
in
Thyroid UK
6 months ago
24hr Holter
Hi, Recently started back on Bisoprolol for palpitations/PVCs after 7yrs off. I'm on low dose, 1.25mg but they've really calmed down what were pretty uncomfortable symptoms (3 A&E visits in one weekend!) Anyhow, have a holter monitor booked for next week and not sure whether to stop the Bisoprolol or
Hi, Recently started back on Bisoprolol for palpitations/PVCs after 7yrs off. I'm on low dose, 1.25mg but they've really calmed down what were pretty uncomfortable symptoms (3 A&E visits in one weekend!) Anyhow, have a holter monitor booked for next week and not sure whether to stop the Bisoprolol or
BillyBBalls
in
AF Association
5 months ago
Previous Heart attack/stent
2016 when my life changed. I look back now and see that my life in a wierd form changed for the better following my heart attack at the age of 55. Since having the stent placed I realised how restricted my body had been and the relief this procedure had given me. I attended rehabilitation classes for
2016 when my life changed. I look back now and see that my life in a wierd form changed for the better following my heart attack at the age of 55. Since having the stent placed I realised how restricted my body had been and the relief this procedure had given me. I attended rehabilitation classes for
Frazzelena
in
Sudden Cardiac Arrest & Heart Attack
5 months ago
serum lipids
Hello, I am waiting for my TSH, T4 + T3 results ordered by Endo but have received the serum lipid results today (test taken yesterday morning as per Thyroid UK’s protocol), which are as follows: 4.46 mmol/L Serum cholesterol 0.72 mmol/L Serum triglycerides 1.52 mmol/L Serum HDL cholesterol level
Hello, I am waiting for my TSH, T4 + T3 results ordered by Endo but have received the serum lipid results today (test taken yesterday morning as per Thyroid UK’s protocol), which are as follows: 4.46 mmol/L Serum cholesterol 0.72 mmol/L Serum triglycerides 1.52 mmol/L Serum HDL cholesterol level
Lottyplum
in
Thyroid UK
5 months ago
Chris Kamara and Things Thyroid
I found this interesting as he supported the thyroid care petition, and before that I didn’t even realise that he also had a thyroid problem. I remember also wondering myself about Alzheimers the other year as I didn’t know what was happening to me. https://amp.theguardian.com/football/2023/nov/04
I found this interesting as he supported the thyroid care petition, and before that I didn’t even realise that he also had a thyroid problem. I remember also wondering myself about Alzheimers the other year as I didn’t know what was happening to me. https://amp.theguardian.com/football/2023/nov/04
mrskiki
in
Thyroid UK
8 months ago
Reducing cholesterol
I’ve been told that because of the stricter diagnostic parameters the NHS now uses for assessing cholesterol levels in the blood, I have very slightly raised cholesterol. I’ve been told I can have statins, which I agreed to take, with much regret, because they are powerful drugs and I’m already taking
I’ve been told that because of the stricter diagnostic parameters the NHS now uses for assessing cholesterol levels in the blood, I have very slightly raised cholesterol. I’ve been told I can have statins, which I agreed to take, with much regret, because they are powerful drugs and I’m already taking
Tellingfibs
in
Atrial Fibrillation Support
5 months ago
1
...
86
87
88
...
100
Next page
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
5647 results
British Liver Trust
4480 results
Advanced Prostate Cancer
4395 results
View top 10 communities
Sort by
Most Relevant
Newest