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3 month PSA post RT/ADT, low enough?
51, diagnosed at age 50 (Pirad 5 w/ ECE, 3+4 (20%), PSA 10.1, negative PSMA, Decipher high 0.84). I received SBRT treatment at UCLA in late October, 2023 (finished 10/25). I’ve been on ADT since October 16, 2023 and am scheduled to end ADT this March. I had my first follow up PSA test on 1/19 and it
51, diagnosed at age 50 (Pirad 5 w/ ECE, 3+4 (20%), PSA 10.1, negative PSMA, Decipher high 0.84). I received SBRT treatment at UCLA in late October, 2023 (finished 10/25). I’ve been on ADT since October 16, 2023 and am scheduled to end ADT this March. I had my first follow up PSA test on 1/19 and it
sptill72
in
Prostate Cancer Network
6 months ago
Post triple therapy options?
This past summer, I wrote because my husband's PSA numbers started doubling very quickly. (see quick recap below) By the time we got the PSMA PET scan a few weeks later, there were too many tumors in the bones to count. We jumped into triple therapy: Eligard, Nubeqa, and chemo. David's last chemo (6
This past summer, I wrote because my husband's PSA numbers started doubling very quickly. (see quick recap below) By the time we got the PSMA PET scan a few weeks later, there were too many tumors in the bones to count. We jumped into triple therapy: Eligard, Nubeqa, and chemo. David's last chemo (6
TK934
in
Advanced Prostate Cancer
6 months ago
Lupron Question.
I have been on Lupron since June 2022. September 2023 Abiraterone and 5mg of prednisone was added. Psa was 19 in Sept and dropped to 1.26 as of Jan. 11 2024. Since going on Abi when I get a monthly Lupron shot I have trouble sleeping that first night and mild flu like symptoms the next day. I have agreed
I have been on Lupron since June 2022. September 2023 Abiraterone and 5mg of prednisone was added. Psa was 19 in Sept and dropped to 1.26 as of Jan. 11 2024. Since going on Abi when I get a monthly Lupron shot I have trouble sleeping that first night and mild flu like symptoms the next day. I have agreed
Professorgary
in
Advanced Prostate Cancer
6 months ago
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Low Testosterone and value of continuing Hormone Therapy
83 year old male with a question: My understanding is that the role of hormone therapy is to lower one’s testosterone level. Does hormone therapy provide additional benefits in fighting prostate cancer beyond lowering testosterone levels? I was diagnosed with high grade prostate cancer (Gleason 10
83 year old male with a question: My understanding is that the role of hormone therapy is to lower one’s testosterone level. Does hormone therapy provide additional benefits in fighting prostate cancer beyond lowering testosterone levels? I was diagnosed with high grade prostate cancer (Gleason 10
saniku
in
Advanced Prostate Cancer
6 months ago
Experience going off testosterone
Hi, I have posted previously about being diagnosed with prostate cancer (Gleason 3+4) and had chosen radiation for treatment. I just finished radiation 3 weeks ago and had done well - just a lot of bladder irritation and some bowel irritation but hopefully starting to improve. I'm 53 and had been on
Hi, I have posted previously about being diagnosed with prostate cancer (Gleason 3+4) and had chosen radiation for treatment. I just finished radiation 3 weeks ago and had done well - just a lot of bladder irritation and some bowel irritation but hopefully starting to improve. I'm 53 and had been on
TonyTx
in
Prostate Cancer Network
6 months ago
Endocrinology and Hormones
I've had issues with hormones and aging and years ago went to see an old Endocrinologist. Unfortunately he's retired now and our area only has a couple of the Endocrinologists left but I wanted to say how much seeing one helped me understand hormones, supplements, and depression and how very helpful
I've had issues with hormones and aging and years ago went to see an old Endocrinologist. Unfortunately he's retired now and our area only has a couple of the Endocrinologists left but I wanted to say how much seeing one helped me understand hormones, supplements, and depression and how very helpful
62BlackBirds
in
Anxiety and Depression Support
6 months ago
Rise in Testosterone but not PSA?
My dad has stage 4 prostate cancer, diagnosed in August of 2022. Gleason 4+3 Stage 4 because it went to 1 lymph node in the abdomen. After 44 rounds of radiation, receiving Eligard injections every 3 months, and 10 months on Apalutamide, his scans show no evidence of disease. ( As of Oct 2023) His
My dad has stage 4 prostate cancer, diagnosed in August of 2022. Gleason 4+3 Stage 4 because it went to 1 lymph node in the abdomen. After 44 rounds of radiation, receiving Eligard injections every 3 months, and 10 months on Apalutamide, his scans show no evidence of disease. ( As of Oct 2023) His
ThisIsForMyMom
in
Advanced Prostate Cancer
6 months ago
PSA Response From Broccoli Sprout Extract (Sulforaphane) May Due To Just Being Moderate ADT
I forgot I ran across this a 2 years ago as many with PCa diagnosis are very interested in Sulforaphane due to a lot of excitement from a few studies a few years ago. (This fueled an explosion of supplements on Amazon.) This however is one of the more expensive supplements and my jury is still out
I forgot I ran across this a 2 years ago as many with PCa diagnosis are very interested in Sulforaphane due to a lot of excitement from a few studies a few years ago. (This fueled an explosion of supplements on Amazon.) This however is one of the more expensive supplements and my jury is still out
jazj
in
Advanced Prostate Cancer
6 months ago
Declining psa #9
Gm folks, hope all are having a wonderful New Year. I’m following up n giving results on using ivermectin, cbd oil, turmeric Vit b3,6,12 Vit c And zinc solely after eliminating ADT after 7 months, post Rp n rad… Psa dropped another .29 points to .66 down from .95 n psa was hovering 7 when I first got
Gm folks, hope all are having a wonderful New Year. I’m following up n giving results on using ivermectin, cbd oil, turmeric Vit b3,6,12 Vit c And zinc solely after eliminating ADT after 7 months, post Rp n rad… Psa dropped another .29 points to .66 down from .95 n psa was hovering 7 when I first got
Nfler
in
Advanced Prostate Cancer
6 months ago
Been on Firmagon with Zytiga and Prednisone PSA rising, what can I do next?
Information in Bio Hoping to try a PARP inhibitor or Provenge perhaps, I don’t know much about this, but my medical oncologist keeps mentioning pluvicto, I’m not interested in doing that yet. Information from Bio below: Diagnosed 07/01/2022 Diagnosed By PSA Score 942.40 06/24-2022-07/06/2022
Information in Bio Hoping to try a PARP inhibitor or Provenge perhaps, I don’t know much about this, but my medical oncologist keeps mentioning pluvicto, I’m not interested in doing that yet. Information from Bio below: Diagnosed 07/01/2022 Diagnosed By PSA Score 942.40 06/24-2022-07/06/2022
Shorehousejam
in
Advanced Prostate Cancer
6 months ago
Concern - At 4 mo on Lupron/Abi, Testosterone hits 40
While PSA was again <.1 yesterday, testosterone jumped to 40 ng/dl or 1.4 nmole/L, which is a big move toward the 1.7 danger zone for faster movement toward CRPC ( https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5472467/ ) , and I am interested
While PSA was again <.1 yesterday, testosterone jumped to 40 ng/dl or 1.4 nmole/L, which is a big move toward the 1.7 danger zone for faster movement toward CRPC ( https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5472467/ ) , and I am interested
jackwfrench
in
Advanced Prostate Cancer
6 months ago
Will T return?
As I near the end of my 2 years of ADT (Lupron + Abi), I am curious if I should expect a return of Testosterone. I would love to regain my libido and endurance. But after 2 years, I don't know what to expect. My MO has been pretty vague about what to expect. Another issue is that I didn't have a
As I near the end of my 2 years of ADT (Lupron + Abi), I am curious if I should expect a return of Testosterone. I would love to regain my libido and endurance. But after 2 years, I don't know what to expect. My MO has been pretty vague about what to expect. Another issue is that I didn't have a
jmarsh
in
Advanced Prostate Cancer
6 months ago
Testosterone was nearly back to normal, then dropped
I had a year of Lupron and Enzalutamide in 2022. Testosterone slowly came back to a high of about 240 in June and Sept 2023. Normal for me is around 350 - 375. Now this week T is down to 156. Is this sort of fluctuation normal? I had 6 months of ADT in connection with radiation for recurrent PCa
I had a year of Lupron and Enzalutamide in 2022. Testosterone slowly came back to a high of about 240 in June and Sept 2023. Normal for me is around 350 - 375. Now this week T is down to 156. Is this sort of fluctuation normal? I had 6 months of ADT in connection with radiation for recurrent PCa
Teddy28
in
Advanced Prostate Cancer
6 months ago
I've been failed
I got diagnosed with PCOS at age 15 and was referred to see a gynecologist but didn't get an appointment until a year later. Its safe to say that the doctor I was referred to did not help one bit. Her name was Dr Kamrun Hossain. All she talked about was how "girls with PCOS are smarter because they
I got diagnosed with PCOS at age 15 and was referred to see a gynecologist but didn't get an appointment until a year later. Its safe to say that the doctor I was referred to did not help one bit. Her name was Dr Kamrun Hossain. All she talked about was how "girls with PCOS are smarter because they
IveBeenFailed
in
PCOS UK (Verity)
7 months ago
BONE DENSITY TEST IS BAD
I am 68 with low volume metastatic to hip bones. Nothing elsewhere, at this time. Had PSA of 125 last April, and oncologist put me on Relogolix and Darolutemide. That along with going to plant based diet and adding weights and HITT exercise 3-4x per week, has brought me down to < .006. that’s the
I am 68 with low volume metastatic to hip bones. Nothing elsewhere, at this time. Had PSA of 125 last April, and oncologist put me on Relogolix and Darolutemide. That along with going to plant based diet and adding weights and HITT exercise 3-4x per week, has brought me down to < .006. that’s the
JL1955
in
Advanced Prostate Cancer
7 months ago
Androstenedione & Frailty
New study from Spain [1]. For many years, I used a product that probably contained DES (diethylstilbestrol) - perhaps 1 mg? My QoL was very good. When I eventually migrated to 3 mg DES - plus a shot of testosterone cypionate every 3 months - I began to feel frail. The new study associates high
New study from Spain [1]. For many years, I used a product that probably contained DES (diethylstilbestrol) - perhaps 1 mg? My QoL was very good. When I eventually migrated to 3 mg DES - plus a shot of testosterone cypionate every 3 months - I began to feel frail. The new study associates high
pca2004
in
Fight Prostate Cancer
8 months ago
What does this mean?
In preparation for my six month follow up to radiation and two months since the end of 6 months of Lupron on Thursday I got my blood work results via the portal. For the first time ever I went to the portal for the lab and pulled up my results. Maybe I should not have done that. So I would like your
In preparation for my six month follow up to radiation and two months since the end of 6 months of Lupron on Thursday I got my blood work results via the portal. For the first time ever I went to the portal for the lab and pulled up my results. Maybe I should not have done that. So I would like your
Mgtd
in
Advanced Prostate Cancer
7 months ago
Recovery of Testosterone
We all have heard about how long it takes to recover testosterone after you stop ADT. You probably also heard how age affects recovery time. The older you are the longer it takes and the T may never recover. The type of ADT you take can also affect recovery time - shot versus pill. I am 78 and I have
We all have heard about how long it takes to recover testosterone after you stop ADT. You probably also heard how age affects recovery time. The older you are the longer it takes and the T may never recover. The type of ADT you take can also affect recovery time - shot versus pill. I am 78 and I have
Mgtd
in
Prostate Cancer Network
7 months ago
Return of Armpit Odor - Yikes!!!
For almost two years, I (and others! 😃) have noticed the absence of male armpit odor. Attributable to full ADT (for metastatic PCa) and suppression of testosterone. (I'm on Triplet Therapy.) This morning I was surprised to notice odor for the first time since diagnosis. Due shortly for blood panel including
For almost two years, I (and others! 😃) have noticed the absence of male armpit odor. Attributable to full ADT (for metastatic PCa) and suppression of testosterone. (I'm on Triplet Therapy.) This morning I was surprised to notice odor for the first time since diagnosis. Due shortly for blood panel including
JohnInTheMiddle
in
Advanced Prostate Cancer
7 months ago
creatine
is there anyone who uses creatine to help them to put some weight on,I have severe osteoporosis and prostate cancer which is ok 0.04 dx2014 finished treatment 2016 ht/rt but my testosterone has never recovered and now I have severe osteoporosis, I am only 8st and was wandering if creatine monohydrate
is there anyone who uses creatine to help them to put some weight on,I have severe osteoporosis and prostate cancer which is ok 0.04 dx2014 finished treatment 2016 ht/rt but my testosterone has never recovered and now I have severe osteoporosis, I am only 8st and was wandering if creatine monohydrate
Radars
in
Bone Health and Osteoporosis UK
7 months ago
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