doc report

[nonna70]

My report came back metastatic breast to bone. I will have abot 2 weeks of radiation in the arm with hardware. I will take hormone therapy Letrozole and monthly injection Xgeva-no IV and no chemo. Watch thyroid nodules yearly. Doc V. is very aware of kidney function. Only colonoscopy tomorrow. Thanks for your prayers!

[Pisces101]

Thinking of you and wishing you all the best! ❤️

[Bassetmommer NKF Ambassador]

So sorry and thoughts and hopes for a good outcome.

[Jayhawker]

In my thoughts and prayers.

I see an hematology oncologist Fri to begin treatment for the T-LGL leukemia I’ve recently learned I have. I guess you and I will be traveling this cancer treatment road together albeit with different types of cancer.

One step at a time.

Jayhawker

[drmind in reply to Jayhawker]

Praying every day.

[Reese4 in reply to Jayhawker]

Praying for you.

[nonna70 in reply to Jayhawker]

How's it going, JJayhawker? Do you know what kind of treatment you will be getting? I was supposed to see the radiologist next Mon. but the weather will be atrocious; have to reschedule.

[Jayhawker in reply to nonna70]

Our weather is going to be horrid beginning this weekend. Extremely cold with wind chill that will be very dangerous…

My oncologist said that the treatments used for my type of cancer include prednisone, anti-rejection medications, and anemia treatments at my current stage.

I already take prednisone and the anti-rejection medication for my kidney transplant. My anemia isn’t yet severe ouch to require treatment. So he’s going to monitor the leukemia right now as well as do some additional testing.

The type of leukemia I’ve got is extremely rare. In addition, it’s nearly never seen in solid organs transplant recipients. He said that there has been little research studying this type of cancer in solid organ transplant recipients so my case is extremely rare.

My data is nit as severe as he typically sees at initial diagnosis. This was caught early with me specifically due to the transplant monitoring.

He would have pulled me off Myfortic if I was still taking it. The transplant center pulled me off it about 11 weeks ago. That has led to my CMV finally calming down. He said that my CMV is under control and stable now. He confirmed that it’s because I’m no longer taking Myfortic. He also talked with me a lot about what the leukemia us doing. It’s the reason my lymphocytes are high but that won’t cause increased risk of organ rejection. It’s also thd reason my body didn’t respond particularly well to Neupogen injections to increase my white blood cell count. They don’t use Neupogen injections with leukemia patients. Basically, my odd data and unusual reactions to some of the meds they’ve tried unsuccessfully with me now make sense.

I’m in for additional tests this coming Wednesday and will see him again in about 4 weeks.

Jayhawker

[ILMA54 in reply to Jayhawker]

You are in my thoughts and prayers, Jayhawker!

[CatOnACloud in reply to Jayhawker]

So sorry to hear this Jay! Soak up all the love and keep that great attitude up. My sister is beating breast cancer stage 3, and anything is possible. Really though, you have been thru the wringer!

[Jayhawker in reply to CatOnACloud]

I see my hematology oncologist again this Friday. Ironically Friday is the 15 month anniversary of my transplant which occurred Nov 16, 2022. I’ll be celebrating in thd oncologist’s office apparently…

Jayhawker

[CatOnACloud in reply to Jayhawker]

Coincidentally, my kidney removal nephrectomy was on November 16, 1989. I know…that just sucks!

[CuriousCKD]

I’m sorry to hear about the results of your testing. I hope the colonoscopy went well. Lifting you up in prayer to our Heavenly Father God, asking Him to cover you with courage and determination in fighting this obstacle. Also, asking for wisdom for the medical staff, and comfort to you, as you walk this path. You are in my thoughts! 🙏✝️🌹

[nonna70 in reply to CuriousCKD]

Thanks for all your replies.

[Need3]

praying for you!

[drmind]

Praying every day

[Green306]

Praying for you. 🙏🏼

[RhenDutchess123]

My thoughts are with you...stay strong !

[Badger2024]

wishing you all the best. Cancer treatments are getting better every year 🙏

[barbara55109]

Cancer sucks. My thoughts are with you.

[WYOAnne NKF Ambassador]

So sorry to hear about your news! Positive thoughts and prayers coming your way!!

[Reese4]

Praying for you.

[Miss-guineapig]

You’re obviously one strong lady Nonna, keep positive and focused, you’ve got your treatment plan and you’ll get through this. Always in our prayers too xx

[jodaer]

Thinking of you and sending tons of healing energy your way. Sorry this is happening to you.

[nonna70]

Thanks for all your prayers and good wishes. I believe the colonoscopy went well.

[Darlenia]

Wrapping my arms around you in a big hug. And sending up prayers that remission and healing come to you soon, Nonna. We care about you. We are truly fortunate to live in the 21st century with its medical advances. Please keep us posted.

[S_dillow]

hugs for you.i survived it twice.you got this.

[Jayhawker]

You remain in my prayers.

Jayhawker

[CatOnACloud]

My sister just completed 6 mos of chemo and Keytruda, single mastectomy and lymphectomy, and is finishing up with radiation. Ten months since she’s been to her job. Regardless, every journey and diagnosis is so incredibly different, that’s a huge lesson. God bless you, keep us posted - Adrienne