Search
Search
About
Log in
Join
Experiences with
Enzyme Replacement Therapy
Posts
Communities
19,369 public posts
Filter results
Shalom316
my story begins with my left hip replacement over two years ago and virtually started having symptoms afterwards primarily a very slight tremor in my left hand . I tried chiropractors, Acupuncture, and eventually went to a neurologist and received a Parkinson‘s diagnosis. I am on C/L and have been researching
my story begins with my left hip replacement over two years ago and virtually started having symptoms afterwards primarily a very slight tremor in my left hand . I tried chiropractors, Acupuncture, and eventually went to a neurologist and received a Parkinson‘s diagnosis. I am on C/L and have been researching
Shililly
in
Cure Parkinson's
10 months ago
Anyone else suffering arm pains in conjunction with ADT hot flashes?
Ever since commencing ADT (Decapeptyl 11.5mg) following recurrent PCa in 2022 I've been getting muscle pain in both arms. It always commences simultaneously with the onset of hot flashes. The pain courses down both arms from the shoulder to the backs of my hands. It's not too severe and each bout only
Ever since commencing ADT (Decapeptyl 11.5mg) following recurrent PCa in 2022 I've been getting muscle pain in both arms. It always commences simultaneously with the onset of hot flashes. The pain courses down both arms from the shoulder to the backs of my hands. It's not too severe and each bout only
LeakyLad
in
Advanced Prostate Cancer
6 days ago
Five years later
Good day to all fellow warriors, I used to post as Arnie1970, but that account stopped working. After the initial scare of a stage 4 cancer diagnosis, a lot has happened. Four grand children were born( two boys, two girls). I stopped working, and we traveled a lot. Even though I stopped writing.
Good day to all fellow warriors, I used to post as Arnie1970, but that account stopped working. After the initial scare of a stage 4 cancer diagnosis, a lot has happened. Four grand children were born( two boys, two girls). I stopped working, and we traveled a lot. Even though I stopped writing.
ArnieAfrica
in
Advanced Prostate Cancer
6 days ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
After Lupron I have been having seizures
Hi, In December 2023 I decided to finally undergo treatment for my prostate cancer, Gleason scale 6, with a high PSA of 63 (or 48 on another test) I had had this cancer for eight years WITHOUT it spreading. But doctors kept warning (I would almost say harassing) me, so... I underwent one shot of lupron
Hi, In December 2023 I decided to finally undergo treatment for my prostate cancer, Gleason scale 6, with a high PSA of 63 (or 48 on another test) I had had this cancer for eight years WITHOUT it spreading. But doctors kept warning (I would almost say harassing) me, so... I underwent one shot of lupron
darrylw
in
Advanced Prostate Cancer
7 days ago
How do I update my bio?
My bio on Health Unlocked website needs updating. How do I do that? I can't seem to update my bio from 2023. I'm interested in adding PSAs and testosterone quarterly blood tests from 2023 and 2024. My good new is that my PSA has been 0.01 "nearly undetectable" for more than a year. My MO said don't
My bio on Health Unlocked website needs updating. How do I do that? I can't seem to update my bio from 2023. I'm interested in adding PSAs and testosterone quarterly blood tests from 2023 and 2024. My good new is that my PSA has been 0.01 "nearly undetectable" for more than a year. My MO said don't
happycamperguy
in
Advanced Prostate Cancer
7 days ago
T never recovered after ADT and 44 EBRT sessions.
I had gleason 7 /3+4. Completed ADT and EBRT (44 sessions) November of 2020. Undetectable psa up until 6 months ago. Then went to 0.1. I had been taking Androgel ( 2 pumps daily) my MO declared that I was " out of remission" and I then stopped the TRT. Since then, I've had two psa tests at 3 month intervals
I had gleason 7 /3+4. Completed ADT and EBRT (44 sessions) November of 2020. Undetectable psa up until 6 months ago. Then went to 0.1. I had been taking Androgel ( 2 pumps daily) my MO declared that I was " out of remission" and I then stopped the TRT. Since then, I've had two psa tests at 3 month intervals
Chasu
in
Advanced Prostate Cancer
7 days ago
skin redness after 3 weeks of pelvic radiation
I am on a 6-month hormone therapy treatment plan. I’m also receiving radiation treatments. After 3 weeks of pelvic radiation treatments (proton therapy), I have noticed a redness around the left side of my foreskin along with some minimal slight white creamy substance. I am uncircumcised. I only have
I am on a 6-month hormone therapy treatment plan. I’m also receiving radiation treatments. After 3 weeks of pelvic radiation treatments (proton therapy), I have noticed a redness around the left side of my foreskin along with some minimal slight white creamy substance. I am uncircumcised. I only have
brilliant17
in
Advanced Prostate Cancer
7 days ago
Minor psa increase again
Just over 12 months since adt finished. All clear at <0.01 2 months ago when it started to rise to 0.03 then 4 weeks later 0.05 now 0.07. Have Dr's app in 3 weeks which will probably be a referral back to oncologist. Do we need to wait until 2.0 then a PET scan or can I be proactive now? My adt was
Just over 12 months since adt finished. All clear at <0.01 2 months ago when it started to rise to 0.03 then 4 weeks later 0.05 now 0.07. Have Dr's app in 3 weeks which will probably be a referral back to oncologist. Do we need to wait until 2.0 then a PET scan or can I be proactive now? My adt was
Runner1957
in
Prostate Cancer Network
8 days ago
Patient refuses abiraterone
From a very concerned daughter: My father was prescribed ADT, abiraterone, and prednisone. He started ADT earlier before the other two were added to the regimen, about one month ago. Since then, he has been experiencing a lot of side effects, including serious hot flashes, elevated blood pressure,
From a very concerned daughter: My father was prescribed ADT, abiraterone, and prednisone. He started ADT earlier before the other two were added to the regimen, about one month ago. Since then, he has been experiencing a lot of side effects, including serious hot flashes, elevated blood pressure,
Healing1826
in
Advanced Prostate Cancer
8 days ago
Estrogens and Castrate/Treatment Resistance?
Has anyone using estrogens (estradiol) as the primary agent of ADT (androgen deprivation therapy) had their prostate cancer become resistant (androgen independent) to the treatment? I also do not know of a single instance of any man using TDE as the primary agent of ADT (which I have been lobbying my
Has anyone using estrogens (estradiol) as the primary agent of ADT (androgen deprivation therapy) had their prostate cancer become resistant (androgen independent) to the treatment? I also do not know of a single instance of any man using TDE as the primary agent of ADT (which I have been lobbying my
Lost_Sheep
in
Advanced Prostate Cancer
9 days ago
Hashimotos
I have been diagnosed with Hashimotos quite recently, although I've been taking levothyroxine for over a year. I have been feeling exhausted, and have taken a lot of time off work this year as a result. These were my recent blood test results. My half sister also has Hashimotos, and she feels
I have been diagnosed with Hashimotos quite recently, although I've been taking levothyroxine for over a year. I have been feeling exhausted, and have taken a lot of time off work this year as a result. These were my recent blood test results. My half sister also has Hashimotos, and she feels
healthisimportant50
in
Women's Health
1 year ago
For anyone with endo or suspected endo
DR PETA WRIGHT (Taken from Instagram recently) Just a VERY interesting opinion for anyone interested in the bigger picture of endometriosis. Long read! Study hot off the press from Dr Karen Joseph. This study looked at women who underwent laparoscopy for pelvic pain over a twelve month period. Around
DR PETA WRIGHT (Taken from Instagram recently) Just a VERY interesting opinion for anyone interested in the bigger picture of endometriosis. Long read! Study hot off the press from Dr Karen Joseph. This study looked at women who underwent laparoscopy for pelvic pain over a twelve month period. Around
Brambledoggy
in
Endometriosis UK
11 days ago
Castrate Resistant
I know that patients who were started at beginning with combo of, say, Lupron plus abiraterone acetate are declared castrate resistant when PSA rises in certain ways and/or progression is shown on scans. However, for someone like me, who's been on Lupron only since diagnosis, am I not castrate resistant
I know that patients who were started at beginning with combo of, say, Lupron plus abiraterone acetate are declared castrate resistant when PSA rises in certain ways and/or progression is shown on scans. However, for someone like me, who's been on Lupron only since diagnosis, am I not castrate resistant
dhccpa
in
Advanced Prostate Cancer
11 days ago
TRUST IN HEALTHCARE : free registration at https://malecare.org/trust-in-healthcare
Malecare and Prostate Cancer Research (UK) Virtual Conference: TRUST AND HEALTHCARE WEDNESDAY, JUNE 26, 2024 on Youtube.com/Malecare 12 PM ET to 6:10 PM ET (New York time) Register with your email for free at https://malecare.org/trust-in-healthcare Prostate Cancer Research (PCR) is a patient-centric
Malecare and Prostate Cancer Research (UK) Virtual Conference: TRUST AND HEALTHCARE WEDNESDAY, JUNE 26, 2024 on Youtube.com/Malecare 12 PM ET to 6:10 PM ET (New York time) Register with your email for free at https://malecare.org/trust-in-healthcare Prostate Cancer Research (PCR) is a patient-centric
Darryl
Partner
in
Prostate Cancer Network
11 days ago
TRUST IN HEALTHCARE : free virtual conference for patients, friends and those you care about
Malecare and Prostate Cancer Research (UK) Virtual Conference: TRUST AND HEALTHCARE WEDNESDAY, JUNE 26, 2024 on Youtube.com/Malecare 12 PM ET to 6:10 PM ET (New York time) Register with your email for free at https://malecare.org/trust-in-healthcare Prostate Cancer Research (PCR) is a patient-centric
Malecare and Prostate Cancer Research (UK) Virtual Conference: TRUST AND HEALTHCARE WEDNESDAY, JUNE 26, 2024 on Youtube.com/Malecare 12 PM ET to 6:10 PM ET (New York time) Register with your email for free at https://malecare.org/trust-in-healthcare Prostate Cancer Research (PCR) is a patient-centric
Darryl
Partner
in
LGBT Cancer Community
11 days ago
DO YOU TRUST YOUR DOCTOR : Free registration at https://malecare.org/trust-in-healthcare
Malecare and Prostate Cancer Research (UK) Virtual Conference: TRUST AND HEALTHCARE WEDNESDAY, JUNE 26, 2024 on Youtube.com/Malecare 12 PM ET to 6:10 PM ET (New York time) Register with your email for free at https://malecare.org/trust-in-healthcare Prostate Cancer Research (PCR) is a patient-centric
Malecare and Prostate Cancer Research (UK) Virtual Conference: TRUST AND HEALTHCARE WEDNESDAY, JUNE 26, 2024 on Youtube.com/Malecare 12 PM ET to 6:10 PM ET (New York time) Register with your email for free at https://malecare.org/trust-in-healthcare Prostate Cancer Research (PCR) is a patient-centric
Darryl
Partner
in
Advanced Prostate Cancer
11 days ago
DO YOU TRUST YOUR DOCTOR? Free registration at malecare.org/trust-in-healthcare
Malecare and Prostate Cancer Research (UK) Virtual Conference: TRUST AND HEALTHCARE WEDNESDAY, JUNE 26, 2024 on Youtube.com/Malecare 12 PM ET to 6:10 PM ET (New York time) Register with your email for free at https://malecare.org/trust-in-healthcare Prostate Cancer Research (PCR) is a patient-centric
Malecare and Prostate Cancer Research (UK) Virtual Conference: TRUST AND HEALTHCARE WEDNESDAY, JUNE 26, 2024 on Youtube.com/Malecare 12 PM ET to 6:10 PM ET (New York time) Register with your email for free at https://malecare.org/trust-in-healthcare Prostate Cancer Research (PCR) is a patient-centric
Darryl
Partner
in
Active Surveillance - Prostate Cancer
11 days ago
Phase 2 trial: Evaluation of Treatment Interruption After Response in mHSPC
"Patients are allowed to enrolle if they have a stable or falling prostate-specific antigen (PSA) level below 0.2 ng/mL and a castrate testosterone level under 50 ng/dL at baseline after having a PSA level of at least 5 ng/mL and a testosterone level of at least 150 ng/dL prior to the start of ADT. "
"Patients are allowed to enrolle if they have a stable or falling prostate-specific antigen (PSA) level below 0.2 ng/mL and a castrate testosterone level under 50 ng/dL at baseline after having a PSA level of at least 5 ng/mL and a testosterone level of at least 150 ng/dL prior to the start of ADT. "
Maxone73
in
Advanced Prostate Cancer
11 days ago
Should I do chemotherapy?
New here. I am 81 and was diagnosed last month with PCa metastatic to a few bones. Gleason 9. PSA 21 at diagnosis. Have been put on orgovyx and xtandi. Chemo was not mentioned. Reading some posts here I wonder if chemo would be an important option for me ? I will turn 82 In a few
New here. I am 81 and was diagnosed last month with PCa metastatic to a few bones. Gleason 9. PSA 21 at diagnosis. Have been put on orgovyx and xtandi. Chemo was not mentioned. Reading some posts here I wonder if chemo would be an important option for me ? I will turn 82 In a few
Simpson80
in
Advanced Prostate Cancer
11 days ago
When to Commence ADT and/or Androgen Blocking Therapy?
Greetings All - New to this forum but have followed the Healing Well PC forum since beginning treatment in 2018 and later began to follow Prostate Cancer News, Reviews and Views which referenced this forum. The details are provided below but my question is: At what ultra-sensitive (LabCorp) PSA level
Greetings All - New to this forum but have followed the Healing Well PC forum since beginning treatment in 2018 and later began to follow Prostate Cancer News, Reviews and Views which referenced this forum. The details are provided below but my question is: At what ultra-sensitive (LabCorp) PSA level
Biochem
in
Advanced Prostate Cancer
12 days ago
1
...
57
58
59
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
4471 results
Thyroid UK
2465 results
Endometriosis UK
1867 results
View top 10 communities
Sort by
Most Relevant
Newest