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Enzyme Replacement Therapy
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Things, regimens,etc that are probably RLS worthless.
THINGS THAT DO NOT WORK FOR RLS All of us with RLS/PLMD have slightly different symptoms. We have tried various 'remedies' to try to relieve our RLS symptoms. We have read articles, some interesting, some ridiculous (bar of soap) that make amazing promises. And there is an entire array of things to
THINGS THAT DO NOT WORK FOR RLS All of us with RLS/PLMD have slightly different symptoms. We have tried various 'remedies' to try to relieve our RLS symptoms. We have read articles, some interesting, some ridiculous (bar of soap) that make amazing promises. And there is an entire array of things to
fritz34
in
Restless Legs Syndrome
5 months ago
Min invasive Aortic valve replacement:- happy or disappointed?
I’m 67 yo, male, slightly overweight but otherwise good health but I have a severe Aortic Stenosis, that’s running at about 25% of full capacity. My only symptoms are slight breathlessness when climbing stairs. Saw a surgeon yesterday who wants to replace the valve with an animal valve, but he does not
I’m 67 yo, male, slightly overweight but otherwise good health but I have a severe Aortic Stenosis, that’s running at about 25% of full capacity. My only symptoms are slight breathlessness when climbing stairs. Saw a surgeon yesterday who wants to replace the valve with an animal valve, but he does not
7LTR
in
British Heart Foundation
7 months ago
Post total knee replacement
Anyone who has had a total knee replacement had more pain in the hip area than the knee. Having a job to keep my knee straight at night as keep waking up every hour with tremendous pain in the hip and end up getting up and having a walk round. It's inhibiting my physio as well. It didn't help that ended
Anyone who has had a total knee replacement had more pain in the hip area than the knee. Having a job to keep my knee straight at night as keep waking up every hour with tremendous pain in the hip and end up getting up and having a walk round. It's inhibiting my physio as well. It didn't help that ended
annpavitt250448
in
Arthritis Action
4 months ago
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hip replacement advice
Thank you all for your extremely helpful responses to my question on hip replacement! I am just starting research on ortho surgeons and would like to proceed. I cannot thank you enough for your input and yes, I will follow up on the tips offered for the stuff they don’t tell you at the doctor’s office
Thank you all for your extremely helpful responses to my question on hip replacement! I am just starting research on ortho surgeons and would like to proceed. I cannot thank you enough for your input and yes, I will follow up on the tips offered for the stuff they don’t tell you at the doctor’s office
ClarenceO
in
SHARE Metastatic Breast Cancer
7 months ago
knee replacement
hi had a meniscus op repair for torn cartlidge 2007 and have all sorts of problems since, with by right knee, swelling so much with walking and can’t stand in one position for long, and have a bakers cyst swelling pouch on the back crease of knee which is painful. my left leg has carried the right
hi had a meniscus op repair for torn cartlidge 2007 and have all sorts of problems since, with by right knee, swelling so much with walking and can’t stand in one position for long, and have a bakers cyst swelling pouch on the back crease of knee which is painful. my left leg has carried the right
Nat107
in
Arthritis Action
7 months ago
Progesterone: oestrogen ratio
Hi all I recently got my oestrogen and progesterone levels done by medichecks.I was hoping they worked out the actual ratio of oestrogen to progesterone but they don't so now I'm confused. The 2 results are calculated in different values (pmol/L Vs nmol/L) which makes it hard to interpret if one of
Hi all I recently got my oestrogen and progesterone levels done by medichecks.I was hoping they worked out the actual ratio of oestrogen to progesterone but they don't so now I'm confused. The 2 results are calculated in different values (pmol/L Vs nmol/L) which makes it hard to interpret if one of
Hollybushroad
in
Menopause and Perimenopause Support
10 months ago
-3" waist
I started to try and lose weight way back in May before a hip replacement operation. My diet was disrupted because over a period of 3 months I managed to dissociate my hip 4 times. my hip feels right now so I am able to start walking. So... I have lost just 1 stone in 7 months, nothing at all in the
I started to try and lose weight way back in May before a hip replacement operation. My diet was disrupted because over a period of 3 months I managed to dissociate my hip 4 times. my hip feels right now so I am able to start walking. So... I have lost just 1 stone in 7 months, nothing at all in the
PB30
Restart June 2023
in
Weight Loss Support
7 months ago
ONLINE SUPPORT GROUPS
Our support groups are such a good way to connect with other's in a similar situation, they have really helped so many people make friendships and gain valuable knowledge around their treatment and care. If you have any queries about anything please get in touch, we would love to hear from you and help
Our support groups are such a good way to connect with other's in a similar situation, they have really helped so many people make friendships and gain valuable knowledge around their treatment and care. If you have any queries about anything please get in touch, we would love to hear from you and help
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
5 months ago
Another update
This is just a reply (edited), not an original post but readers may find it of interest. As far as I know all replies are public and can be viewed by any Enc. member. "To know we are still useful despite our disability is a big bonus. I used to open the curtains on the ward and make my own bed and the
This is just a reply (edited), not an original post but readers may find it of interest. As far as I know all replies are public and can be viewed by any Enc. member. "To know we are still useful despite our disability is a big bonus. I used to open the curtains on the ward and make my own bed and the
Gandalf2
in
Encephalitis International
5 months ago
Abiraterone + Olaparib: ASCO GU 2024 Highlights: BRCAAway Trial
"Highlighting the trial's results, he notes the combination therapy significantly extended median radiographic progression-free survival to 39 months, far surpassing the outcomes with either treatment alone. " 39 months progression free is not bad at all... https://www.urotoday.com/video-lectures/asco-gu
"Highlighting the trial's results, he notes the combination therapy significantly extended median radiographic progression-free survival to 39 months, far surpassing the outcomes with either treatment alone. " 39 months progression free is not bad at all... https://www.urotoday.com/video-lectures/asco-gu
Maxone73
in
Advanced Prostate Cancer
5 months ago
Follow up to my last post re SDR
It's now almost 4 weeks since Mark's knee replacement. He's doing well after a small setback at the weekend. He saw our Dr a week ago to ask if he could drive. Dr told him to ask the physio. She tested him on a step, checking the force he could use on his knee and gave permission for him to drive
It's now almost 4 weeks since Mark's knee replacement. He's doing well after a small setback at the weekend. He saw our Dr a week ago to ask if he could drive. Dr told him to ask the physio. She tested him on a step, checking the force he could use on his knee and gave permission for him to drive
IdasMum
in
PMRGCAuk
7 months ago
hip replacement advice
Has anyone had joint replacement after being diagnosed with MBC? If so, do you have any advice? I was diagnosed with MBC to the bones and liver July 2020. After radiation and several lines of drug treatment, I was diagnosed with severe osteoarthritis in my right hip a year ago. I had existing painful
Has anyone had joint replacement after being diagnosed with MBC? If so, do you have any advice? I was diagnosed with MBC to the bones and liver July 2020. After radiation and several lines of drug treatment, I was diagnosed with severe osteoarthritis in my right hip a year ago. I had existing painful
ClarenceO
in
SHARE Metastatic Breast Cancer
7 months ago
T3-4-Hypo trial - Netherlands
Do view the original which includes a map and various links. 16 to 20 months is so much more sensible than the few weeks so many previous studies have been based on. [i]
T3-4-Hypo trial
[/i] [i]Updated on 25 January 2024[/i] [i]CALL – study T3 / T4 combination therapy[/i] [i]In most patients
Do view the original which includes a map and various links. 16 to 20 months is so much more sensible than the few weeks so many previous studies have been based on. [i]
T3-4-Hypo trial
[/i] [i]Updated on 25 January 2024[/i] [i]CALL – study T3 / T4 combination therapy[/i] [i]In most patients
helvella
Thyroid UK
in
Thyroid UK
5 months ago
Gene therapy
TOP TAKEAWAYSGene therapy has a potential place In the treatment • of Parkinson disease, but won't be the "be all end al as some may think. There are a lot of questions regarding drug development of PD gene therapies, Including which targets are the most promlslng/effectlve. Investlgatlonal right now
TOP TAKEAWAYSGene therapy has a potential place In the treatment • of Parkinson disease, but won't be the "be all end al as some may think. There are a lot of questions regarding drug development of PD gene therapies, Including which targets are the most promlslng/effectlve. Investlgatlonal right now
Farooqji
in
Cure Parkinson's
5 months ago
Lupron unjection not reducing PSA
I was first diagnosed with prostate cancer in 2016. It has been contained in the prostate ever since. For 3 years I treated myself with vitamins and nutrients. Kept my psa down until I had a kidney stone operation and for some odd ball reason loss control of the psa after the operation, it shot up to
I was first diagnosed with prostate cancer in 2016. It has been contained in the prostate ever since. For 3 years I treated myself with vitamins and nutrients. Kept my psa down until I had a kidney stone operation and for some odd ball reason loss control of the psa after the operation, it shot up to
woppaginny
in
Advanced Prostate Cancer
5 months ago
RLS - Q&A
Hi RLS survivors I am continuing my Pregabalin journey and wanted to check in with this community to ask out loud various questions circling around my head. The good news is that Pregabalin is making a difference. I get some relief from jumpy legs at night even on a low dose (75mg) What I am experiencing
Hi RLS survivors I am continuing my Pregabalin journey and wanted to check in with this community to ask out loud various questions circling around my head. The good news is that Pregabalin is making a difference. I get some relief from jumpy legs at night even on a low dose (75mg) What I am experiencing
careerSquirrel
in
Restless Legs Syndrome
10 months ago
testing protocol on T4 and T3
Hi all. Does anyone have any experience/wisdom re a good time to take T3 pre bloods? I currently take it when I wake up which is between 6.20 and 7.30 and in the afternoon between 3.30 and 4.30. I have a first test since starting combined therapy booked and am wondering when I should take what.
Hi all. Does anyone have any experience/wisdom re a good time to take T3 pre bloods? I currently take it when I wake up which is between 6.20 and 7.30 and in the afternoon between 3.30 and 4.30. I have a first test since starting combined therapy booked and am wondering when I should take what.
Topes009
in
Thyroid UK
5 months ago
Proton Beam Therapy
Has anyone had Proton Beam Therapy for their prostate cancer. I have read up on it but would like to know some personal experiences from anyone who has had this treatment. Preferably anyone who had proton beam therapy at Penn Medicine at Lancaster General in Lancaster, Pa. but anyone who has experienced
Has anyone had Proton Beam Therapy for their prostate cancer. I have read up on it but would like to know some personal experiences from anyone who has had this treatment. Preferably anyone who had proton beam therapy at Penn Medicine at Lancaster General in Lancaster, Pa. but anyone who has experienced
woppaginny
in
Advanced Prostate Cancer
5 months ago
Oxygen Therapy
Hi Everyone, A relative, who has MS, has suggested that I try oxygen therapy. It seems to really help them but I wondered if anyone here has had any experience of this and provide a suitable comment. Many thanks!
Hi Everyone, A relative, who has MS, has suggested that I try oxygen therapy. It seems to really help them but I wondered if anyone here has had any experience of this and provide a suitable comment. Many thanks!
RLSofManyYears
in
Restless Legs Syndrome
5 months ago
North of England Endo
Good evening I’m looking for private message replies please on your recommended Endo’s in the North of England. Yorkshire and North East. Not many seem to be listed on Thyroid U.K. list. Someone open to combined therapy. Thank you! Look forward to hearing from you :)
Good evening I’m looking for private message replies please on your recommended Endo’s in the North of England. Yorkshire and North East. Not many seem to be listed on Thyroid U.K. list. Someone open to combined therapy. Thank you! Look forward to hearing from you :)
Bollieforme
in
Thyroid UK
5 months ago
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