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Enzyme Replacement Therapy
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Good news/bad news
hi all. The nurse rang last week to say that my liver results had improved somewhat but were still outside normal range. Because I have such active disease she didn’t want to leave me with no meds at all, so we decided to restart the leflunomide and see how the blood results go in two week, then make
hi all. The nurse rang last week to say that my liver results had improved somewhat but were still outside normal range. Because I have such active disease she didn’t want to leave me with no meds at all, so we decided to restart the leflunomide and see how the blood results go in two week, then make
HeadInASpin
in
NRAS
18 days ago
I’m back😁. Used to be Dtech.
Been a while since I was last on here. I didn’t go on a lot unless I could help with anything. So jock update. I’m now happily retired. Dog walking and playing golf. Going on occasional holidays. Had a week in Seville to celebrate my 70th birthday. January I had a bad hip. Thought it was just a strain
Been a while since I was last on here. I didn’t go on a lot unless I could help with anything. So jock update. I’m now happily retired. Dog walking and playing golf. Going on occasional holidays. Had a week in Seville to celebrate my 70th birthday. January I had a bad hip. Thought it was just a strain
Retiredtech28
in
NRAS
20 days ago
After Surgery
Hi I have had a uni knee replacement 6 weeks ago since this I have been suffering with pain in every part of my body, is it possible to get a PMR flare after the body has the shock of surgery? it 6 years since I was diagnosed my bloods say I have no problems my body says otherwise and it and myself are
Hi I have had a uni knee replacement 6 weeks ago since this I have been suffering with pain in every part of my body, is it possible to get a PMR flare after the body has the shock of surgery? it 6 years since I was diagnosed my bloods say I have no problems my body says otherwise and it and myself are
_multistrada
in
PMRGCAuk
25 days ago
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any thoughts???
hi, I’ve posted here a couple times already. FibroScan of 75kpa. Current meld score 14. All components of meld score are within normal range except bilirubin which is 3.8. Saw my pcp Friday, she was quite confident HCC ( liver cancer) could be ruled out per ct scan and ultrasound, still need a mri w/
hi, I’ve posted here a couple times already. FibroScan of 75kpa. Current meld score 14. All components of meld score are within normal range except bilirubin which is 3.8. Saw my pcp Friday, she was quite confident HCC ( liver cancer) could be ruled out per ct scan and ultrasound, still need a mri w/
Prestige42
in
British Liver Trust
27 days ago
Struggling coming off ropinerole
First thank you for all the replies to my earlier posts, before my second hip replacement. 4 weeks post surgery I am decreasing ropinerole slowly, just dropped from 0.75mg to 0.5mg after 2 weeks on 0.75mg. But struggling with symptoms starting early afternoon and getting worse as the evening progressed
First thank you for all the replies to my earlier posts, before my second hip replacement. 4 weeks post surgery I am decreasing ropinerole slowly, just dropped from 0.75mg to 0.5mg after 2 weeks on 0.75mg. But struggling with symptoms starting early afternoon and getting worse as the evening progressed
dulciemary
in
Restless Legs Syndrome
28 days ago
Date for surgery
Good Morning So I now have a date for surger for valve replacement and possible dilated aorta repair. Have decided on tissue valve. Anyone out there had similar op have any tips on how to stay calm and positive for the next two weeks? My biggest support is my daughter but she is now feeling the
Good Morning So I now have a date for surger for valve replacement and possible dilated aorta repair. Have decided on tissue valve. Anyone out there had similar op have any tips on how to stay calm and positive for the next two weeks? My biggest support is my daughter but she is now feeling the
Hythe123
in
British Heart Foundation
28 days ago
Adenomyosis, should I have hysterectomy?
The short version is that I have adenomyosis. I've always had heavy periods with period pains that make my thighs numb and require prescription painkillers. At the age of 44 I had some symptoms of perimenopause and tried HRT. After two years I came off and that seems to have triggered a strong reaction
The short version is that I have adenomyosis. I've always had heavy periods with period pains that make my thighs numb and require prescription painkillers. At the age of 44 I had some symptoms of perimenopause and tried HRT. After two years I came off and that seems to have triggered a strong reaction
mavenmi
in
Endometriosis UK
7 months ago
Pulmonary Regurgitation - Breathlessness?
Hi all, I had a pulmonary valve replacement when I was 21 in 2013. I am 32 now, as the years have passed, the valve has started to leak. I have been told the leak is now severe. I am unsure if I am experiencing symptoms as I have major health anxiety (I bet I'm not the only one!), so I can never really
Hi all, I had a pulmonary valve replacement when I was 21 in 2013. I am 32 now, as the years have passed, the valve has started to leak. I have been told the leak is now severe. I am unsure if I am experiencing symptoms as I have major health anxiety (I bet I'm not the only one!), so I can never really
MattZombie
in
British Heart Foundation
29 days ago
Hip replacement and prednisolone
I’m currently awaiting a hip replacement and am taking 5 mg a day prednisolone. Can I have the surgery on this level of steroids ?
I’m currently awaiting a hip replacement and am taking 5 mg a day prednisolone. Can I have the surgery on this level of steroids ?
Katsmam
in
NRAS
30 days ago
getting reading for HIP replacement #2
After the right in 2022, now it's time for the left. I'm not in horrible pain but I want to get it done so that I regain more ability to be active and workout, keep muscle mass (I'm 58), and continue to keep MS at bay. Just got the green light from the neuro. Ocrevus is delayed for 2 months to avoid
After the right in 2022, now it's time for the left. I'm not in horrible pain but I want to get it done so that I regain more ability to be active and workout, keep muscle mass (I'm 58), and continue to keep MS at bay. Just got the green light from the neuro. Ocrevus is delayed for 2 months to avoid
anaishunter
in
My MSAA Community
1 month ago
Fatigue
My challenge is that around the same time i was diagnosed with Pmr i was experiencing mobility issues which resulted in a hip replacement followed by a year later by a knee replacement on the opposite leg which I am now 6 month post op . I am not sure if my fatigue on effort is normal after the joint
My challenge is that around the same time i was diagnosed with Pmr i was experiencing mobility issues which resulted in a hip replacement followed by a year later by a knee replacement on the opposite leg which I am now 6 month post op . I am not sure if my fatigue on effort is normal after the joint
Ritz02
in
PMRGCAuk
1 month ago
Is It worth choosing a Doctor?
My neighbour has given me the name and contact information for a doctor he said is the best in my area for knee replacement surgery and said once I get a date for my surgery I can request that it is done by this doctor. I have looked at reviews and references online and they are indeed glowing, however
My neighbour has given me the name and contact information for a doctor he said is the best in my area for knee replacement surgery and said once I get a date for my surgery I can request that it is done by this doctor. I have looked at reviews and references online and they are indeed glowing, however
Wolf68
in
Arthritis Action
1 month ago
crp and esr lately only very slightly raise
Was on Arava for 18 months but been off for 1 year due to hospitalisation for infection, also had bad gastrointestinal probs when on so was looking at coming off beforehand. My Rheumy thinks my symptoms don't 'match' my path results recently (been on pred for years) I am in a lot of pain shoulders
Was on Arava for 18 months but been off for 1 year due to hospitalisation for infection, also had bad gastrointestinal probs when on so was looking at coming off beforehand. My Rheumy thinks my symptoms don't 'match' my path results recently (been on pred for years) I am in a lot of pain shoulders
AussiePolyDee
in
NRAS
1 month ago
Shoe and shoe insoles
Hi all I'm hoping that I can get some suggestions about footwear or shock absorbing insoles. I have a bad knee (waiting for knee replacement op) and now have lower back pain. I'm going away soon and expect to walk lot more than I do at home. Any advice appreciated.
Hi all I'm hoping that I can get some suggestions about footwear or shock absorbing insoles. I have a bad knee (waiting for knee replacement op) and now have lower back pain. I'm going away soon and expect to walk lot more than I do at home. Any advice appreciated.
Chrissycl
in
NRAS
1 month ago
heart valve re replacement
I had a mitral valve replacement 8years ago everything was fine and quick recovery but have just had a mitral valve and aortic valve replacement 11weeks ago and am really struggling with how hard everything is and how useless I feel I’m still in a fair bit of pain and my mood is very up and down anyone
I had a mitral valve replacement 8years ago everything was fine and quick recovery but have just had a mitral valve and aortic valve replacement 11weeks ago and am really struggling with how hard everything is and how useless I feel I’m still in a fair bit of pain and my mood is very up and down anyone
Saz2712
in
British Heart Foundation
1 month ago
taper from 2
how on earth do you taper from 2 and not exceed 10%??? I was going to go to 1.5 after few weeks but terrified!!! Having knee replacement in June. Hoped to be off it.
how on earth do you taper from 2 and not exceed 10%??? I was going to go to 1.5 after few weeks but terrified!!! Having knee replacement in June. Hoped to be off it.
Booch
in
PMRGCAuk
1 month ago
Should I defer MRI
Hi. I have hip replacement op booked for 17 June.I have received cardiac MRI appointment for 26 June. I tried the MRI dept to ask if I should defer. They passed the buck back to Cardiology. I asked at the pre op assessment yesterday but again no clear advice. I usually recover quickly from surgery -
Hi. I have hip replacement op booked for 17 June.I have received cardiac MRI appointment for 26 June. I tried the MRI dept to ask if I should defer. They passed the buck back to Cardiology. I asked at the pre op assessment yesterday but again no clear advice. I usually recover quickly from surgery -
Morges
in
British Heart Foundation
1 month ago
aortic valve stenosis
In 2022 I had a hip replacement following covid infection as it affected the synovial hip fluid and was then alerted to the fact that there was a problem with my aortic valve. I need to have aortic valve replacement and am currently on the waiting list. In my first consultation the cardiologist said
In 2022 I had a hip replacement following covid infection as it affected the synovial hip fluid and was then alerted to the fact that there was a problem with my aortic valve. I need to have aortic valve replacement and am currently on the waiting list. In my first consultation the cardiologist said
Greatoak1
in
British Heart Foundation
1 month ago
I got my date for my Op ! Excited 😊
I have a damaged mitral valve with stenosis and regurgitation ( caused by Rheumatic fever as a child) Started getting symptoms 8 years ago and gradually I have deteriorated. My last echo in March showed the stenosis had got worse. I was told they wanted to try a Valvuplasty repair before the OH valve
I have a damaged mitral valve with stenosis and regurgitation ( caused by Rheumatic fever as a child) Started getting symptoms 8 years ago and gradually I have deteriorated. My last echo in March showed the stenosis had got worse. I was told they wanted to try a Valvuplasty repair before the OH valve
Kiki54
in
British Heart Foundation
1 month ago
Changing from Bupromorphine sublingual tablets to patches
Hi I've been on bupromorphine 400 micrograms 2 mornin and 2 at nite although I used to only do 1 day and 1 nite. Since having a knee replacement 3 months ago it has got worse again . I know inflammation can make it worse but I also have pain in my outer thigh on same lef as knee replacement. So that
Hi I've been on bupromorphine 400 micrograms 2 mornin and 2 at nite although I used to only do 1 day and 1 nite. Since having a knee replacement 3 months ago it has got worse again . I know inflammation can make it worse but I also have pain in my outer thigh on same lef as knee replacement. So that
Palamino
in
Restless Legs Syndrome
1 month ago
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