Was on Arava for 18 months but been off for 1 year due to hospitalisation for infection, also had bad gastrointestinal probs when on so was looking at coming off beforehand. My Rheumy thinks my symptoms don't 'match' my path results recently (been on pred for years)
I am in a lot of pain shoulders hands hips. See him again on Tuesday but feel like I'm going to get the same response. I was diagnosed PMR 16 years ago or so, was on Pred. high doses but tapered on and off but never been able to completely get off. Also diagnosed Rheum Arth. just after, and was on Methotrexate which relieved the RA but liver and other path after a year very bad and had to have fibroscan. Then the Leflunamide
I am wondering if anyone else has experienced the pain with Path results that seem to be out of context with the symptoms? I don't think I have a low pain threshold as had 2 knee replacements and 2 laminectomies and managed ok.
Last appointment he said the Leflunamide had been working well and go back on, but the gastro side effects were making it difficult for me to go out.
Just feel like a bit of a whinger when I see him, as I know so many others are so much worse and I don't think he wants to put me on biologics etc. as thinks I'm managing.
Feel better putting pen to paper, all the best to everyone xD