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Dyskinesia
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Medication Management
Which brings me to my point.....given the often-stated link between long term Levodopa use and
dyskinesia
, and the lack of impact these meds [u]may[/u] have had for me, I have been giving some serious thought to reducing C/L dose, then if no impact, considering eliminating.
Which brings me to my point.....given the often-stated link between long term Levodopa use and
dyskinesia
, and the lack of impact these meds [u]may[/u] have had for me, I have been giving some serious thought to reducing C/L dose, then if no impact, considering eliminating.
AndyMu72
in
Cure Parkinson's
1 year ago
If you're trying to follow Dr. Mischley's DHA for dyskinesia protocol, please read this REGARDING DOSING
EDITING TO ADD: Dr. M says (right at the beginning of the video) that fish oils are often contaminated with heavy metals, and that many supplements don't contain the levels of active components that they claim to contain. She recommends the (relatively expensive) Pharmax oil because she believes it's
EDITING TO ADD: Dr. M says (right at the beginning of the video) that fish oils are often contaminated with heavy metals, and that many supplements don't contain the levels of active components that they claim to contain. She recommends the (relatively expensive) Pharmax oil because she believes it's
1LittleWillow
in
Cure Parkinson's
5 months ago
The PSP & CBD Ice Cream Challenge 2023 Holdout
The PSP & CBD Ice Cream Challenge 2023 Holdout Okay admit it. How many of us have found ourselves in front of the refrigerator/freezer after we've gone to bed? Those midnight or later stomach grumblings won't let you sleep until they're satisfied. As so often depicted on TV commercials and television
The PSP & CBD Ice Cream Challenge 2023 Holdout Okay admit it. How many of us have found ourselves in front of the refrigerator/freezer after we've gone to bed? Those midnight or later stomach grumblings won't let you sleep until they're satisfied. As so often depicted on TV commercials and television
daddyt
in
PSP Association
1 year ago
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Rytary update
Still working on evening dosing because I do get
dyskinesia
and a little too revved up. So I’m going to inch down that dose. I know some say not to mix Rytary with regular C/L, but my neuro is ok with it.
Still working on evening dosing because I do get
dyskinesia
and a little too revved up. So I’m going to inch down that dose. I know some say not to mix Rytary with regular C/L, but my neuro is ok with it.
rebtar
in
Cure Parkinson's
10 months ago
Potential false alarm regarding thiamine improvement
It seems like here physical
dyskinesia
is less intense now than last month based on the videos, but that could be because the current chair she is sitting takes more effort to rotate back and forth, air pressure changes in our current location, etc.
It seems like here physical
dyskinesia
is less intense now than last month based on the videos, but that could be because the current chair she is sitting takes more effort to rotate back and forth, air pressure changes in our current location, etc.
philipmurray
in
Cure Parkinson's
10 months ago
When will we reconcile with the fact that there is no cure now? Possibly never?
For instance, I find that a 10 mg of propranolol taken together with carbidopa levodopa prevents the biphasic
dyskinesia
and dystonia which I suffer from predictably. But, the powers that be, insist on responding only to the onset of
dyskinesia
instead a preemptively.
For instance, I find that a 10 mg of propranolol taken together with carbidopa levodopa prevents the biphasic
dyskinesia
and dystonia which I suffer from predictably. But, the powers that be, insist on responding only to the onset of
dyskinesia
instead a preemptively.
pdpatient
in
Cure Parkinson's
10 months ago
Vyalev, steady levodopa/carbidopa infusion, now available in Canada
Data showed that Vyalev was better than oral levodopa/carbidopa at treating motor fluctuations, with patients on Vyalev experiencing good control of motor symptoms without troublesome
dyskinesia
for an average of 1.75 hours more each day.
Data showed that Vyalev was better than oral levodopa/carbidopa at treating motor fluctuations, with patients on Vyalev experiencing good control of motor symptoms without troublesome
dyskinesia
for an average of 1.75 hours more each day.
Thal
in
Cure Parkinson's
4 months ago
AAN 2023: Amneal’s IPX203 shows promise for Parkinson’s disease patients
Academy of Neurology (AAN) 2023 Annual Meeting, Amneal presented new data evaluating IPX203 (carbidopa + levodopa, CD/LD) in a nine-month open-label extension (OLE) study in Parkinson’s disease (PD) patients with motor fluctuations (NCT03877510). The OLE study involved 419 participants who completed
Academy of Neurology (AAN) 2023 Annual Meeting, Amneal presented new data evaluating IPX203 (carbidopa + levodopa, CD/LD) in a nine-month open-label extension (OLE) study in Parkinson’s disease (PD) patients with motor fluctuations (NCT03877510). The OLE study involved 419 participants who completed
Farooqji
in
Cure Parkinson's
1 year ago
PD and B1
I have had PD Symptoms for 7 years but only diagnosed three years ago. I am taking carbidopa/levodopa for three years now. I have read ”Parkinson’s and the B1 therapy“ on Amazon and am evaluating my next steps. At my last visit to the Neurologist, she mentioned something that could put the cabidopa
I have had PD Symptoms for 7 years but only diagnosed three years ago. I am taking carbidopa/levodopa for three years now. I have read ”Parkinson’s and the B1 therapy“ on Amazon and am evaluating my next steps. At my last visit to the Neurologist, she mentioned something that could put the cabidopa
Hidden
in
Cure Parkinson's
1 year ago
Daily pill could halt effects of Parkinson’s, scientists suggest
Samsara Therapeutics, a biopharmaceutical company whose labs are in Oxford, has created a treatment geared at boosting a process known as “autophagy”. This is the system for how cells clean themselves and stop toxic material from building up. Technology moguls including Amazon's Jeff Bezos, PayPal founder
Samsara Therapeutics, a biopharmaceutical company whose labs are in Oxford, has created a treatment geared at boosting a process known as “autophagy”. This is the system for how cells clean themselves and stop toxic material from building up. Technology moguls including Amazon's Jeff Bezos, PayPal founder
Farooqji
in
Cure Parkinson's
1 year ago
rytary
I know this is an unusual dosage, but to prevent
dyskinesia
I take one 195 every three hours until eight pm, after that very little sleep until my next dose at 5 am. Now that doesn’t appear to be workgroup as well as it did.
I know this is an unusual dosage, but to prevent
dyskinesia
I take one 195 every three hours until eight pm, after that very little sleep until my next dose at 5 am. Now that doesn’t appear to be workgroup as well as it did.
Ep0522
in
Cure Parkinson's
1 year ago
Gender Differences in Levodopa Pharmacokinetics in Levodopa-Naïve Patients With Parkinson’s Disease
[/i] [i]Conclusion[/i] [i]Taken together, our findings provide novel insights into gender differences in LD pharmacokinetics, possibly contributing to the later development of motor complications and
dyskinesia
in PD.
[/i] [i]Conclusion[/i] [i]Taken together, our findings provide novel insights into gender differences in LD pharmacokinetics, possibly contributing to the later development of motor complications and
dyskinesia
in PD.
Esperanto
in
Cure Parkinson's
1 year ago
Best approach to reducing Dyskinesia
Is there any other ways to reduce
Dyskinesia
? Thanks for any advice
Is there any other ways to reduce
Dyskinesia
? Thanks for any advice
gingerj
in
Cure Parkinson's
2 years ago
Opicapone helps prolong plasma levodopa levels in patients with Parkinson’s
- Once-daily opicapone 50 mg with carbidopa/levodopa helped achieve and maintain plasma concentrations of levodopa in patients with PD.- Maximum COMT inhibition was nearly 85% at day 14. - Adding once-daily opicapone 50 mg to carbidopa/levodopa therapy helped achieve and maintain plasma concentrations
- Once-daily opicapone 50 mg with carbidopa/levodopa helped achieve and maintain plasma concentrations of levodopa in patients with PD.- Maximum COMT inhibition was nearly 85% at day 14. - Adding once-daily opicapone 50 mg to carbidopa/levodopa therapy helped achieve and maintain plasma concentrations
Farooqji
in
Cure Parkinson's
1 year ago
The role of istradefylline in the Parkinson's disease armamentarium
https://pubmed.ncbi.nlm.nih.gov/37029952 Expert opinion: Istradefylline is safe and well tolerated. Its efficacy was pronounced, when patients were on a lower chronic oral levodopa regimen. Levodopa causes a homocysteine elevation, which reflects an impaired methylation potential. As a result, an up
https://pubmed.ncbi.nlm.nih.gov/37029952 Expert opinion: Istradefylline is safe and well tolerated. Its efficacy was pronounced, when patients were on a lower chronic oral levodopa regimen. Levodopa causes a homocysteine elevation, which reflects an impaired methylation potential. As a result, an up
Hidden
in
Cure Parkinson's
1 year ago
Patent: Levodopa fractionated dose composition and use
https://patents.google.com/patent/US11439613B2/en There is provided a convenient new treatment of Parkinson disease by a frequent administration of optimal levodopa doses mimicking a continuous intravenous or infusion treatment, thus mitigating motor complications; and a new carbidopa/levodopa pharmaceutical
https://patents.google.com/patent/US11439613B2/en There is provided a convenient new treatment of Parkinson disease by a frequent administration of optimal levodopa doses mimicking a continuous intravenous or infusion treatment, thus mitigating motor complications; and a new carbidopa/levodopa pharmaceutical
Hidden
in
Cure Parkinson's
1 year ago
dyskinesia
Does a pwp know when they are experiencing
dyskinesia
.?my neurologist told me I was but I didn’t notice a thing. Something about my neck moving. Just wondering if I should have felt something.
Does a pwp know when they are experiencing
dyskinesia
.?my neurologist told me I was but I didn’t notice a thing. Something about my neck moving. Just wondering if I should have felt something.
Miranda24
in
Cure Parkinson's
1 year ago
ketamine trial. Anyone heard an update?
https://parkinsonsnewstoday.com/news/fda-approves-new-drug-application-ketamine-treatment-levodopa-induced-
dyskinesia
/
https://parkinsonsnewstoday.com/news/fda-approves-new-drug-application-ketamine-treatment-levodopa-induced-
dyskinesia
/
gaga1958
in
Cure Parkinson's
1 year ago
Tardive dyskinesia. Been on the causative med quetiapine 400 mg for 20 years.Unable to get off it. Been creative. I am a registered nurse.
I am an inpatient acute mental health nurse actually - for the last 15 years. I also have Bipolar disorder on lithium. Very well controlled. But side effects of quetiapine were becoming impossible to live with. I tried aripiprazole and a reduction in quetiapine to a disastrous effect. I appeared severely
I am an inpatient acute mental health nurse actually - for the last 15 years. I also have Bipolar disorder on lithium. Very well controlled. But side effects of quetiapine were becoming impossible to live with. I tried aripiprazole and a reduction in quetiapine to a disastrous effect. I appeared severely
Equinedreams
in
Mental Health Support
5 months ago
Negative levodopa
Recently I heard the story of a women who controlled her
dyskinesia
by eating protein. Levodopa induced
dyskinesia
normally occurs when levodopa levels are at their highest (typically between 30 minutes and 90 minutes after taking a dose).
Recently I heard the story of a women who controlled her
dyskinesia
by eating protein. Levodopa induced
dyskinesia
normally occurs when levodopa levels are at their highest (typically between 30 minutes and 90 minutes after taking a dose).
johntPM
in
Cure Parkinson's
2 years ago
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