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Experiences with
Dyskinesia
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Communities
2 public communities
PCD Family Support Group (UK)
609 members
This volunteer-run group supports patients and families affected by Primary Ciliary Dyskinesia (PCD) in the UK. Any advice given is from a personal perspective. For medical advice please consult your clinicians.
Cure Parkinson's
25,514 members
This Cure Parkinson's HealthUnlocked community aims to seek the opinions of those with Parkinson's to help shape research and best clinical practice. Cure Parkinson's has one bold aim: to cure Parkinson's disease. We fund innovative projects and inspirational scientists with the aim of building momentum towards a cure. We improve communication and promote collaboration between researchers. We were founded by patients and involve patients in our work. We are working with the European Parkinson's Disease Association (EPDA) within HealthUnlocked to support members with topical information.