Rytary update: I’m closer to finding a dose... - Cure Parkinson's

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Rytary update

rebtar profile image
6 Replies

I’m closer to finding a dose/schedule that works for me. Hopefully this will help others who are still trying to find their way,

Rytary was allowing me to eat three meals, a big plus since I’m no longer losing weight, gained a few pounds.

But I was having a horrible afternoon slump, and it was making my sleep even worse than it already was.

My schedule is 8am, 1pm, 6pm.

So at my neuro’s suggestion, I add 1/2 to 3/4 immediate release around 2:30pm, if I feel I need it. I’ve also replaced my evening dose with an immediate release and controlled release combo, what I used before Rytary.

My sleep has improved, and I have a way to avoid the afternoon slump.

Still working on evening dosing because I do get dyskinesia and a little too revved up. So I’m going to inch down that dose.

I know some say not to mix Rytary with regular C/L, but my neuro is ok with it.

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rebtar
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Ep0522 profile image
Ep0522

Glad you found help. I’m still struggling with Rytary. Only works on a completely empty stomach. Right now I am so hungry.

davidhmtk profile image
davidhmtk

Do you take extra before you exercise? I do and it avoidsa slump mid-exercise.

rebtar profile image
rebtar in reply todavidhmtk

I don’t need if I exercise in the AM, but yes if it’s late afternoon…

qazwsx11 profile image
qazwsx11

my schedule is similar 7:30/2/6 i don’t eat breakfast then for lunch I have a smoothie with protein powder and a normal dinner. The smoothie typically keeps me full and also doesn’t make me sleepy. Sometimes I’ll have can of lentils and broccoli/cauliflower for lunch, which also helps with the slump. I take a slightly larger dose in the morning because that's also when I go tot he gym.

rebtar profile image
rebtar in reply toqazwsx11

That’s an interesting schedule. 6.5 hrs, then 4 between doses. Are the doses different amounts?

qazwsx11 profile image
qazwsx11 in reply torebtar

oh yes, forgot that! I take a slightly larger dose in the morning because that's also when I go tot he gym.

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