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Dyskinesia
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DBS effectiveness.
Was DBS effective in treating your pain, stiffness, dyskinesias? Did it have any affect with freezing? I find myself taking more and more meds, and new treatments are taking to long to get here.
Was DBS effective in treating your pain, stiffness, dyskinesias? Did it have any affect with freezing? I find myself taking more and more meds, and new treatments are taking to long to get here.
cjCardio53
in
Cure Parkinson's
10 months ago
Any suggestions for managing this kind of dyskinesia?
I have recently started to experience a twitchy left leg which my neurologist says is
dyskinesia
. It happens about an hour after I’ve taken Madopar. I tried taking one 100/25 tablet in the morning and another about 8pm.
I have recently started to experience a twitchy left leg which my neurologist says is
dyskinesia
. It happens about an hour after I’ve taken Madopar. I tried taking one 100/25 tablet in the morning and another about 8pm.
bandmember
in
Cure Parkinson's
1 year ago
DBS should I or should I not??
Don't get me wrong I've been suffering a lot with on/off times,
dyskinesia
, fatigue,ridgety and im definitely tremor dominant. My balance is good, my walking is OK but I do shuffle when meds are wearing off,also my mobility is OK.
Don't get me wrong I've been suffering a lot with on/off times,
dyskinesia
, fatigue,ridgety and im definitely tremor dominant. My balance is good, my walking is OK but I do shuffle when meds are wearing off,also my mobility is OK.
MARC1
in
Cure Parkinson's
8 months ago
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Upcoming appointment with MDS questions
Too much
dyskinesia
in the facial muscles. Maybe another med? Also have soft speech and swallowing problems. Going to therapy for speech and swallow which is helping , but still have a lot of mucus buildup in the throat. I exercise vigorously 5 days a week which I am pretty sure is helping me out.
Too much
dyskinesia
in the facial muscles. Maybe another med? Also have soft speech and swallowing problems. Going to therapy for speech and swallow which is helping , but still have a lot of mucus buildup in the throat. I exercise vigorously 5 days a week which I am pretty sure is helping me out.
idahostate
in
Cure Parkinson's
8 months ago
Phase 3 Positive Topline Results for Tavapadon
https://investors.cerevel.com/news-releases/news-release-details/cerevel-therapeutics-announces-positive-topline-results-0
Tavapadon met the primary endpoint in the pivotal Phase 3 TEMPO-3 adjunctive trial, demonstrating a statistically significant increase in total “on” time without troublesome
https://investors.cerevel.com/news-releases/news-release-details/cerevel-therapeutics-announces-positive-topline-results-0
Tavapadon met the primary endpoint in the pivotal Phase 3 TEMPO-3 adjunctive trial, demonstrating a statistically significant increase in total “on” time without troublesome
nednedned
in
Cure Parkinson's
2 months ago
Anyone taking mucuna from British suppsupplements ?
Hi, My dad was taking 2 sinimets every 4 hours. It was working well until recently. He started developing on/offs. His off lasted him min 1 hr and sometimes he was off 2hours. Neurologist wanted to increase his dosages and bring them closer together. My father refused to take more sinimet. He was advised
Hi, My dad was taking 2 sinimets every 4 hours. It was working well until recently. He started developing on/offs. His off lasted him min 1 hr and sometimes he was off 2hours. Neurologist wanted to increase his dosages and bring them closer together. My father refused to take more sinimet. He was advised
lisa103
in
Cure Parkinson's
11 months ago
Looking for support for my wife
My wife suffers from severe depression caused by the severe pain brought on by tardive
dyskinesia
and dystonia that appeared as the consequence of doctor-prescribed benzodiazepine use.
My wife suffers from severe depression caused by the severe pain brought on by tardive
dyskinesia
and dystonia that appeared as the consequence of doctor-prescribed benzodiazepine use.
StephanIrle
in
Anxiety and Depression Support
1 year ago
What's in ER C/L vs. IR C/L?
We have tried using 25/100 ER in combo with 25/100 IR in an effort to increase time between doses and it consistently leads to negative symptoms that don't occur when I'm just taking the IR. Symtoms are mild headache, mild nausea, fatigue, my brain feels swollen and anxiety. It reminds me when I was
We have tried using 25/100 ER in combo with 25/100 IR in an effort to increase time between doses and it consistently leads to negative symptoms that don't occur when I'm just taking the IR. Symtoms are mild headache, mild nausea, fatigue, my brain feels swollen and anxiety. It reminds me when I was
Jockboy17
in
Cure Parkinson's
11 months ago
A cross in the sand
But when there is an abrupt end to the meds, the body goes into stress and manifests
dyskinesia
which is worsening the original problem. It's a vicious cycle unless you manage it wisely and with understanding. What are the factors that worsen
dyskinesia
?
But when there is an abrupt end to the meds, the body goes into stress and manifests
dyskinesia
which is worsening the original problem. It's a vicious cycle unless you manage it wisely and with understanding. What are the factors that worsen
dyskinesia
?
Meg024
in
Cure Parkinson's
1 year ago
Treatment of Dyskinesia in Patients with Parkinson’s Disease
Drs Rajesh Pahwa, Daniels Kremens and Fernando Pagan provide an overview of current treatment options for treatment of
dyskinesia
in patients with Parkinson’s Disease. https://www.neurologylive.com/view/treatment-of-
dyskinesia
-in-patients-with-parkinson-s-disease
Drs Rajesh Pahwa, Daniels Kremens and Fernando Pagan provide an overview of current treatment options for treatment of
dyskinesia
in patients with Parkinson’s Disease. https://www.neurologylive.com/view/treatment-of-
dyskinesia
-in-patients-with-parkinson-s-disease
Farooqji
in
Cure Parkinson's
1 year ago
Switch to Mucuna
Apologies if this has been asked and answered earlier. I am looking for a guide to switch from C/L to Green tea/Mucuna. Is there a method to calculate green tea against equivalent carbidopa doses? Is brewed green tea better or green tea extract capsule? Is there any interaction between green tea and
Apologies if this has been asked and answered earlier. I am looking for a guide to switch from C/L to Green tea/Mucuna. Is there a method to calculate green tea against equivalent carbidopa doses? Is brewed green tea better or green tea extract capsule? Is there any interaction between green tea and
JayPwP
in
Cure Parkinson's
1 year ago
Sleeping w/out THC for the first time in 5 years
Mischley's high-dose DHA protocol for
dyskinesia
, which decreased my
dyskinesia
by about 50%. I did 2 months on the high-dose oil (started Dec. 15), and then continued taking 1 serving of the same oil 1-2x/week.
Mischley's high-dose DHA protocol for
dyskinesia
, which decreased my
dyskinesia
by about 50%. I did 2 months on the high-dose oil (started Dec. 15), and then continued taking 1 serving of the same oil 1-2x/week.
1LittleWillow
in
Cure Parkinson's
2 months ago
My husband’s Ode to Dyskinesia.
My husbands latest poem, also on a website in the uk: There's nothing quite like
dyskinesia
It's like a movement amnesia. The waving of head, the twitching of arms It's really not one of my elegant charms The brain is a very wonderful thing.
My husbands latest poem, also on a website in the uk: There's nothing quite like
dyskinesia
It's like a movement amnesia. The waving of head, the twitching of arms It's really not one of my elegant charms The brain is a very wonderful thing.
Zella23
in
Cure Parkinson's
11 months ago
does dyskinesia go away when people stop taking levodopa?
If no, it indicates that levodopa somehow damages the brain
If no, it indicates that levodopa somehow damages the brain
Xauxatz
in
Cure Parkinson's
9 months ago
Active recruitment for stem cell trial
Hope biosciences is actively recruiting for PD04, a Randomized, Double-Blind, Single Center, Phase 2, Efficacy and Safety study of allogeneic HB-adMSCs vs Placebo, for the Treatment of Patients with Parkinson's disease.If you or someone you love suffers from #ParkinsonsDisease please follow the link
Hope biosciences is actively recruiting for PD04, a Randomized, Double-Blind, Single Center, Phase 2, Efficacy and Safety study of allogeneic HB-adMSCs vs Placebo, for the Treatment of Patients with Parkinson's disease.If you or someone you love suffers from #ParkinsonsDisease please follow the link
Farooqji
in
Cure Parkinson's
1 year ago
How can I be sure the renewal of my Rx is correct/
Last week I picked up my refill of C/L 25-100, and the difference in performance seems to be more than just the normal progression of the disease. Tremors more prevalent and pronounced, longer periods of dyskenesia,marked increase in lethargy, etc. I checked the manufacturer's recall website, and
Last week I picked up my refill of C/L 25-100, and the difference in performance seems to be more than just the normal progression of the disease. Tremors more prevalent and pronounced, longer periods of dyskenesia,marked increase in lethargy, etc. I checked the manufacturer's recall website, and
willowone123
in
Cure Parkinson's
1 year ago
Early phase Clinical trial results offer new hope for Levadopa induced dyskinesia.
Sounds a step in the right direction for the many who suffer from levadopa induced
dyskinesia
. My husband being one of them. https://www.parkinsons.org.uk/news/early-phase-clinical-trial-results-offer-new-hope-
dyskinesia
-treatment
Sounds a step in the right direction for the many who suffer from levadopa induced
dyskinesia
. My husband being one of them. https://www.parkinsons.org.uk/news/early-phase-clinical-trial-results-offer-new-hope-
dyskinesia
-treatment
Zella23
in
Cure Parkinson's
1 year ago
Levadopa (Rytary) should I keep trying to cut back?
Which seems like a lot but the higher is just awful in terms of
dyskinesia
and feeling bad. It just seems like too much. But recently my health insurance company made a mistake and I ended up with no insurance for two weeks.
Which seems like a lot but the higher is just awful in terms of
dyskinesia
and feeling bad. It just seems like too much. But recently my health insurance company made a mistake and I ended up with no insurance for two weeks.
Godiv
in
Cure Parkinson's
6 months ago
Phase 2b: Trial of Mesdopetam for Levodopa-induced Dyskinesia Nears End
https://parkinsonsnewstoday.com/news/trial-mesdopetam-levodopa-induced-
dyskinesia
-nears-end/ Mesdopetam is designed to block a dopamine receptor protein called D3 receptor, whose levels are increased in motor-related brain regions with prolonged levodopa treatment and associated
dyskinesia
.
https://parkinsonsnewstoday.com/news/trial-mesdopetam-levodopa-induced-
dyskinesia
-nears-end/ Mesdopetam is designed to block a dopamine receptor protein called D3 receptor, whose levels are increased in motor-related brain regions with prolonged levodopa treatment and associated
dyskinesia
.
Hidden
in
Cure Parkinson's
2 years ago
Medication Management
Which brings me to my point.....given the often-stated link between long term Levodopa use and
dyskinesia
, and the lack of impact these meds [u]may[/u] have had for me, I have been giving some serious thought to reducing C/L dose, then if no impact, considering eliminating.
Which brings me to my point.....given the often-stated link between long term Levodopa use and
dyskinesia
, and the lack of impact these meds [u]may[/u] have had for me, I have been giving some serious thought to reducing C/L dose, then if no impact, considering eliminating.
AndyMu72
in
Cure Parkinson's
1 year ago
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