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Dyskinesia
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Suddenly I have pain
Could any one please tell me if they have experienced sudden onset of severe lower back pain, was dx 12 years ago never had pain lots of other probs but no pain that changed 6weeks ago is it related to any meds ? I take Madapar,Comtan Amantadine and Azilect (which has proved very successful ) or is it
Could any one please tell me if they have experienced sudden onset of severe lower back pain, was dx 12 years ago never had pain lots of other probs but no pain that changed 6weeks ago is it related to any meds ? I take Madapar,Comtan Amantadine and Azilect (which has proved very successful ) or is it
Sunnysky
in
Cure Parkinson's
9 years ago
UCSF has provided excellent care for my PD for four years.
Dyskinesia
, dystopia, sleeping patterns, change in med times, etc.). I has found a useful phone app called HealthCare that helps record and share information about PD and logs the taking of meds. I still struggle with consistency in everything I do and that reflects in my exercise program.
Dyskinesia
, dystopia, sleeping patterns, change in med times, etc.). I has found a useful phone app called HealthCare that helps record and share information about PD and logs the taking of meds. I still struggle with consistency in everything I do and that reflects in my exercise program.
Joeda
in
Cure Parkinson's
9 years ago
What I don't get is...
The meds that are supposed to help have the opposite effect! When I try any of these meds -- sinemet, amantidine, even neurontin -- the tremor, which is in my right arm/hand, spreads to my right leg, head and voice and speeds up too. I feel like I've gone from the "wash" cycle to the "spin" cycle! Have
The meds that are supposed to help have the opposite effect! When I try any of these meds -- sinemet, amantidine, even neurontin -- the tremor, which is in my right arm/hand, spreads to my right leg, head and voice and speeds up too. I feel like I've gone from the "wash" cycle to the "spin" cycle! Have
Beckey
in
Cure Parkinson's
10 years ago
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amantadine
Hi all, Hope you are all hanging in there you wonderful people x My OH has been doing fine, well more than fine for the past 18months. He has been on Stavelo, and Azilect and Neuro patches but the Neuro wants to add amantadine. The reason is because he has started to throw out his arms mainly his right
Hi all, Hope you are all hanging in there you wonderful people x My OH has been doing fine, well more than fine for the past 18months. He has been on Stavelo, and Azilect and Neuro patches but the Neuro wants to add amantadine. The reason is because he has started to throw out his arms mainly his right
allofatremor
in
Cure Parkinson's
10 years ago
Azilect
Azilect I recommend you all try it within the first two days I had an amazing improvement in my symptoms "on"all day no "off" times at all tremor settled down cancelled my DBS surgery felt so good still having great results after using Azilect for 3 months little bit of Dyskenesia but manageable hope
Azilect I recommend you all try it within the first two days I had an amazing improvement in my symptoms "on"all day no "off" times at all tremor settled down cancelled my DBS surgery felt so good still having great results after using Azilect for 3 months little bit of Dyskenesia but manageable hope
Sunnysky
in
Cure Parkinson's
10 years ago
Azilect and Sinemet
I quit after a week because the
dyskinesia
was so bad. My neuro did not discuss with me how or when to reduce the sinemet. I would like to try it again. I felt better motor skills. The sinemet lasted much longer. Does anyone have experience with this?
I quit after a week because the
dyskinesia
was so bad. My neuro did not discuss with me how or when to reduce the sinemet. I would like to try it again. I felt better motor skills. The sinemet lasted much longer. Does anyone have experience with this?
michaela13
in
Cure Parkinson's
10 years ago
Azilect
I tried selegeline and had a lot of
dyskinesia
and trouble swallowing, but I think I needed to back off the sinimet. I would like to try again. I know a lot of people use this med. Also, anyone using LDN with good results?
I tried selegeline and had a lot of
dyskinesia
and trouble swallowing, but I think I needed to back off the sinimet. I would like to try again. I know a lot of people use this med. Also, anyone using LDN with good results?
michaela13
in
Cure Parkinson's
10 years ago
PLEASE can someone help me & advise a doc/specialist in UK who can help me
Then subsequent drops in bloodglucose with symptoms of high and low glucose Low blood pressure 90/40 Chronic drowsiness Sores on my tongue Eyes sensitive to light Gallbladder
dyskinesia
low ejection rate Slowed down Feeling cold severe pmt, extremely tearful for days at a time and very depressive severe
Then subsequent drops in bloodglucose with symptoms of high and low glucose Low blood pressure 90/40 Chronic drowsiness Sores on my tongue Eyes sensitive to light Gallbladder
dyskinesia
low ejection rate Slowed down Feeling cold severe pmt, extremely tearful for days at a time and very depressive severe
bettieboop1984
in
Thyroid UK
10 years ago
amantadine
anyone got any experience of taking amantadine good or bad,i.v just been prescribed them by consultant and since i started taking them a week ago i,v been getting heartburn.
anyone got any experience of taking amantadine good or bad,i.v just been prescribed them by consultant and since i started taking them a week ago i,v been getting heartburn.
alanrob
in
Cure Parkinson's
10 years ago
Hi , has anyone experienced dyskinesia's while on stalevo or levodopa in general ?:)been on levadopa for a year now .
Not sure if stalevo is really working for me but been told not too stop them because of neuroleptic malignant syndrome .can you have
dyskinesia
after a year on l dopa . thanks folks:)
Not sure if stalevo is really working for me but been told not too stop them because of neuroleptic malignant syndrome .can you have
dyskinesia
after a year on l dopa . thanks folks:)
CheekyChops1973
in
PSP Association
10 years ago
I'm very perplexed ?
I've had PD for 5+ yrs? recently went on a cruise didn't have PD meds everything went smooth long story short haven't resumed sinemet carbidopa or Azilect the only difference bedsides feeling better is my gait although I walk 18 holes of golf in 3.5 hrs 2-3 times a week , take tai chi yoga and Pilates
I've had PD for 5+ yrs? recently went on a cruise didn't have PD meds everything went smooth long story short haven't resumed sinemet carbidopa or Azilect the only difference bedsides feeling better is my gait although I walk 18 holes of golf in 3.5 hrs 2-3 times a week , take tai chi yoga and Pilates
Pappy214
in
Cure Parkinson's
10 years ago
i have pd and currently take 2 mg of xanax ,40 mg celexa, 4 norco 6 25mg carbidopa 6 25/100 sinemet 2 zyrtek-d my ? is are these compatible
Pappy214
in
Cure Parkinson's
10 years ago
Has anyone had problems with obsessive behaviors b/c of Parkinson's meds? Will counseling help at all?
My husband has a serious problem with porn and I can't live with it any more. Is there any hope with counseling or is it impossible to stop the behavior without eliminating the medication all together. I plan to go to counseling, but really need to know if there is hope.
My husband has a serious problem with porn and I can't live with it any more. Is there any hope with counseling or is it impossible to stop the behavior without eliminating the medication all together. I plan to go to counseling, but really need to know if there is hope.
sandiegogirl
in
Cure Parkinson's
10 years ago
My PD effects my right side with stiffness, tremors and toe curling. This seems to effect my driving but am also noticing reaction time
issues to traffic situations. Do others have this? Currently on azilect and mirapex only. Mirapex is 3x a day. How long can one expect to drive without having to give up license? Is there a different drug that may help with driving?
issues to traffic situations. Do others have this? Currently on azilect and mirapex only. Mirapex is 3x a day. How long can one expect to drive without having to give up license? Is there a different drug that may help with driving?
Park4me
in
Cure Parkinson's
10 years ago
Neck & midline "tremors" developed after DBS for Parkinson's disease.
For the first 3 months, I had absolutely no dystonia or
dyskinesia
. Then I started to develop a tremor in the back of neck and jaw associated with some dystonia of the back of my neck, middle back, and even abdominal muscles.
For the first 3 months, I had absolutely no dystonia or
dyskinesia
. Then I started to develop a tremor in the back of neck and jaw associated with some dystonia of the back of my neck, middle back, and even abdominal muscles.
AlabamaDoc
in
Cure Parkinson's
10 years ago
Anyone else heard of this causing problem from long term use?
I hope it is ok to post the link, as I joined the parkinsons news site too. http://parkinsonsnews.com/compound-formula-rehmannia-alleviates-
dyskinesia
-parkinsons-disease/
I hope it is ok to post the link, as I joined the parkinsons news site too. http://parkinsonsnews.com/compound-formula-rehmannia-alleviates-
dyskinesia
-parkinsons-disease/
Prayingforacure
in
Cure Parkinson's
10 years ago
How dangerous is sedation or general anesthetic?
My guy is set to have a procedure that it usually done under anesthesia, but can be done, with some discomfort of course, with local anesthetic only. I have heard many stories of psp patients - and others - who suffer irreversible loss of intellectual functioning after anesthesia, but am I overreacting
My guy is set to have a procedure that it usually done under anesthesia, but can be done, with some discomfort of course, with local anesthetic only. I have heard many stories of psp patients - and others - who suffer irreversible loss of intellectual functioning after anesthesia, but am I overreacting
easterncedar
in
PSP Association
10 years ago
Has anyone suffered hair loss whilst on madopar and amantadine
I take 250 mgs madopar 4 times a day and amantadine tablets twice a day. Also I take 4 adcal ( calcium tablets) a day for bone strength. I did take alendronic tablet once a week but stopped taking it 2 months ago as I thought that was causing my hair loss. As I'm still losing hair has anyone else had
I take 250 mgs madopar 4 times a day and amantadine tablets twice a day. Also I take 4 adcal ( calcium tablets) a day for bone strength. I did take alendronic tablet once a week but stopped taking it 2 months ago as I thought that was causing my hair loss. As I'm still losing hair has anyone else had
camper
in
Cure Parkinson's
10 years ago
Co emzyme Q10 , Lithium, alpha lipoic acid, L carnitine
anyone has been taking these and noted some improvements?
anyone has been taking these and noted some improvements?
clairev
in
PSP Association
10 years ago
Anyone having problems with Madopar? Or more specifically Levodopa in particular?
My neurologist has taken me off Madopar because the Levodopa that it contains is causing me extreme problems with impulsive behaviour. The problem is now my tremor has started to get worse again in the last week since stopped the Madopar and I am due a review in 3 months once the Madopar has left my
My neurologist has taken me off Madopar because the Levodopa that it contains is causing me extreme problems with impulsive behaviour. The problem is now my tremor has started to get worse again in the last week since stopped the Madopar and I am due a review in 3 months once the Madopar has left my
2Chrissie4
in
Cure Parkinson's
10 years ago
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