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The first step in the fight to ensure meningitis survivors are not suffering alone…
We have some good news to share with you today from the Trust - Young victims of meningitis have been recognised in a new quality standard for bacterial meningitis and meningococcal septicaemia, produced by the National Institute for Health and Clinical Excellence. The Meningitis Trust is committed
We have some good news to share with you today from the Trust - Young victims of meningitis have been recognised in a new quality standard for bacterial meningitis and meningococcal septicaemia, produced by the National Institute for Health and Clinical Excellence. The Meningitis Trust is committed
ThomasMN
in
Meningitis Now
12 years ago
Fibro connected to Lyme disease!!!
I have just read an article in July's Prima. I quote:"Lyme disease caught from tick bites in countryside...........................It can cause chronic health problems, such as fibromyalgia, which comes on years after the initial infection, so it(LD) must be taken seriously. This is the first time I
I have just read an article in July's Prima. I quote:"Lyme disease caught from tick bites in countryside...........................It can cause chronic health problems, such as fibromyalgia, which comes on years after the initial infection, so it(LD) must be taken seriously. This is the first time I
suejayjay
in
Fibromyalgia Action UK
12 years ago
Shingles And Meningitus!
My name is Ana and I am 50 year old English lass. I am currently working in Atlanta Georgia (USA). When I was back in England in march I had indigestion pains in my upper chest. They came and went. Then on April 13th I had a wee itch on my right shoulder blade. I thought it was a thread from my shirt
My name is Ana and I am 50 year old English lass. I am currently working in Atlanta Georgia (USA). When I was back in England in march I had indigestion pains in my upper chest. They came and went. Then on April 13th I had a wee itch on my right shoulder blade. I thought it was a thread from my shirt
Vespalover
in
Meningitis Now
12 years ago
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Interesting article “Towards a Meningitis-free world, can we eliminate meningococcal meningitis?”
An interesting read: “Towards a Meningitis-free world, can we eliminate meningococcal meningitis?” We have jointly written an article, now published in the influential medical journal 'Vaccine', exploring the critical role the patient groups play within the UK in the fight against meningitis. There
An interesting read: “Towards a Meningitis-free world, can we eliminate meningococcal meningitis?” We have jointly written an article, now published in the influential medical journal 'Vaccine', exploring the critical role the patient groups play within the UK in the fight against meningitis. There
ThomasMN
in
Meningitis Now
12 years ago
We're urgently trying to raise awareness to those who don't know of this terrible disease.
Hi everyone, At the Meningitis Trust we urgently need help to raise vital awareness of meningitis. Would you be willing to share your story? We are concerned to find in a recent study that 5.3m adults in the UK cannot name a symptom of meningitis. Your stories cannot only help others who have
Hi everyone, At the Meningitis Trust we urgently need help to raise vital awareness of meningitis. Would you be willing to share your story? We are concerned to find in a recent study that 5.3m adults in the UK cannot name a symptom of meningitis. Your stories cannot only help others who have
EmilyMN
in
Meningitis Now
12 years ago
Feel total rubbish
I feel absolutely awful today, not sure if it's the new Dmard Azathioprine, or returning to taking NSAIDs Naproxen, or both! In the last few days have been quite dizzy, and nearly fallen over a couple of times, disaster for my poor frail knees and hips, now having pins and needles permanently in my
I feel absolutely awful today, not sure if it's the new Dmard Azathioprine, or returning to taking NSAIDs Naproxen, or both! In the last few days have been quite dizzy, and nearly fallen over a couple of times, disaster for my poor frail knees and hips, now having pins and needles permanently in my
Hidden
in
NRAS
12 years ago
Another plea for abatacept experience
Hi, I have written on this subject before, but I am sending out one last request before making up my mind. I have very long term JCA ( 50years) and have had many replacement and revision ops on knees and and hips, in last 20 years. I had always maintained my RA with NSAIDs with the occasional cortisone
Hi, I have written on this subject before, but I am sending out one last request before making up my mind. I have very long term JCA ( 50years) and have had many replacement and revision ops on knees and and hips, in last 20 years. I had always maintained my RA with NSAIDs with the occasional cortisone
Hidden
in
NRAS
12 years ago
Do people successfully return to work following Bacterial Meningitis?
It is a tough world out there to find work. And I guess for us with residual damage from the meningitis to return to employment is also limited or not possible. I am wondering if many people post Bacterial Meningitis successfully return to work or find alternative employment and successfully manage to
It is a tough world out there to find work. And I guess for us with residual damage from the meningitis to return to employment is also limited or not possible. I am wondering if many people post Bacterial Meningitis successfully return to work or find alternative employment and successfully manage to
StrawberryCream
in
Meningitis Now
12 years ago
Have you had viral meningitis? Article on VM is on meningitis research foundation website today.
Thought this might interest folks.
Thought this might interest folks.
daffodil
in
Meningitis Now
12 years ago
cold sore like blisters
Well the sun came out and this morning i have blister on bottom lip swollen gland and sore at the side of my nose. i wasnt out much yesterday and had lip protection on. anyone else have this
Well the sun came out and this morning i have blister on bottom lip swollen gland and sore at the side of my nose. i wasnt out much yesterday and had lip protection on. anyone else have this
artyone
in
NRAS
12 years ago
Bog Off Viral Meningitis, I'm Back to Normal......
One of the common themes in questions about viral meningitis I see is 'when I'm going to be back to normal' or 'I just want to get back to normal'. For some people viral meningitis is a bit of an inconvenience for others, unfortunately like me, its a life changing experience full of compromises
One of the common themes in questions about viral meningitis I see is 'when I'm going to be back to normal' or 'I just want to get back to normal'. For some people viral meningitis is a bit of an inconvenience for others, unfortunately like me, its a life changing experience full of compromises
Jonad724
in
Meningitis Now
12 years ago
Diet and Pain
We all know that what we eat can affect our health. New research, however, shows that there may be a specific link between diet and pain. Pain specialist Dr Rae Bell tells us more, and outlines steps you can take to improve your diet as part of your pain management regime. It’s very important for
We all know that what we eat can affect our health. New research, however, shows that there may be a specific link between diet and pain. Pain specialist Dr Rae Bell tells us more, and outlines steps you can take to improve your diet as part of your pain management regime. It’s very important for
Hidden
in
Pain Concern
12 years ago
A staggering 68% of parents are unaware that meningitis vaccinations do not protect their children from all forms of meningitis...
Research released earlier this week shows that a staggering 68% of mums and dads are unaware of the limitations of current vaccinations against meningitis. Although great strides have been made to protect children from some types of meningitis, there is currently no vaccine to protect against
Research released earlier this week shows that a staggering 68% of mums and dads are unaware of the limitations of current vaccinations against meningitis. Although great strides have been made to protect children from some types of meningitis, there is currently no vaccine to protect against
ThomasMN
in
Meningitis Now
12 years ago
Has anyone had to be tested for Lyme Disease
Hi, I was just wondering if anyone had been tested for Lyme. My daughter has been diagnosed with Chronic Pain, she's had her knees injected (bad reaction to that) and has many Lyme symptoms which mimic other diseases apparantly. I don't recall her ever being bitten by a tick, however we do live in
Hi, I was just wondering if anyone had been tested for Lyme. My daughter has been diagnosed with Chronic Pain, she's had her knees injected (bad reaction to that) and has many Lyme symptoms which mimic other diseases apparantly. I don't recall her ever being bitten by a tick, however we do live in
Rustysaddle
in
NRAS
12 years ago
Is it just me or is all this completely frustrating!?
Sooo, this is my first blog...I suppose spurred on by feeling a bit sorry for myself. I'm 23 years old and had just started my first 'proper' job in Sep after graduating from my masters when in October I started getting all the symptoms of RA...I'm sure I don't need to list them to anyone reading this
Sooo, this is my first blog...I suppose spurred on by feeling a bit sorry for myself. I'm 23 years old and had just started my first 'proper' job in Sep after graduating from my masters when in October I started getting all the symptoms of RA...I'm sure I don't need to list them to anyone reading this
Hidden
in
NRAS
12 years ago
Has anyone been told they have internal Shingles? If so, what kind of treatment do you get to lower the pain?
punkin
in
Fibromyalgia Action UK
12 years ago
Shingles type rash!!!!
My friend thinks she has fibro and her doctors arent listening. She has a shingles type rash could this be down to fibro.
My friend thinks she has fibro and her doctors arent listening. She has a shingles type rash could this be down to fibro.
arl68
in
Fibromyalgia Action UK
12 years ago
Living with PMR with no prednisone
I'll start this blog with a little bit about when I acquired PMR and treatment. I was diagnosed 2 1/2 years ago when I was 56. I am a librarian, live alone and am my sole support. Like many, I had injured my shoulder and then within a few days, I had a huge flare up of PMR. Initially I went to my GP
I'll start this blog with a little bit about when I acquired PMR and treatment. I was diagnosed 2 1/2 years ago when I was 56. I am a librarian, live alone and am my sole support. Like many, I had injured my shoulder and then within a few days, I had a huge flare up of PMR. Initially I went to my GP
spotshouse
in
PMRGCAuk
12 years ago
Night blindness, anyone
I have had RA for 37 years, on Remicade, mtx, nsaids, all the rest. I have developed RETINITIS PIGMENTOSA. Has anybody else had any experience with this disease_
I have had RA for 37 years, on Remicade, mtx, nsaids, all the rest. I have developed RETINITIS PIGMENTOSA. Has anybody else had any experience with this disease_
NinaPWA
in
NRAS
12 years ago
The dreaded Chicken Pox
just had a call from my sister her boy has chicken pox spent all day yesterday with them i am sure i was told had to be very carefull when exposed to some one with Chicken Pox anyone know if this is true ?
just had a call from my sister her boy has chicken pox spent all day yesterday with them i am sure i was told had to be very carefull when exposed to some one with Chicken Pox anyone know if this is true ?
robert45
in
NRAS
12 years ago
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