I'll start this blog with a little bit about when I acquired PMR and treatment. I was diagnosed 2 1/2 years ago when I was 56. I am a librarian, live alone and am my sole support. Like many, I had injured my shoulder and then within a few days, I had a huge flare up of PMR. Initially I went to my GP and he suggested that I go to a Rheumatologist. I did. He started me on 20 mg of prednisone and wanted me back in a month.There was instant relief but within about a week I was already having side effects from the pred. My hair was falling out in handsful. The doctor felt that as I reduced it would eliminate the side effects. I was reduced to 15 and he wanted me back in two months. By the end of the second month, I was getting very little relief and added to the hair loss, my skin became so fragile that even turning in my sleep caused crazy large bruises. I then developed a huge rash. I decided that I would wean myself off the prednisone and try to manage on my own. Even when I was down to 1 mg I still had the side effects. I hate to think of what would have happened if I had stayed on it long term! Once I was off the prednisone, my side effects went away. I hurt a lot but didn't go to the doctor again for almost a year. Finally, I went back to my GP, told him of my experience and he suggested that I have periodic (4 to 6 weeks) shots of solu-medrol. He said since I then would not be metabolizing the steroid there should not be side effects. He also said to just come back when I felt I needed another shot. He also went ahead and gave me hydrocodone pain pills (I cannot take NSAIDS at all due to side effects). I take very few, mostly when it's getting to almost be time for a shot. Right now, this is working for me and I can continue to work. Hope this is interesting to some of you who may not tolerate prednisone.
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