Search
Search
About
Log in
Join
Experiences with
Drug or substance abuse
Posts
Communities
1,753 public posts
Filter results
Shingles vaccine
Hi, has anyone had the shingles vaccine, I have had shingles 5 times over the years and have been advised to have the vaccine, bit worried about possible reaction?Thanx
Hi, has anyone had the shingles vaccine, I have had shingles 5 times over the years and have been advised to have the vaccine, bit worried about possible reaction?Thanx
Den73
in
PMRGCAuk
10 months ago
Shingles vaccine?
I unknowingly (until after) had shingles in March 2023 which I believe, triggered first episode of Afib. Now thinking about having the vaccine, concerned that it will trigger Afib. What are people's experiences of having the vaccine? Do I need it yet. Maybe still have antibodies in my system? Will
I unknowingly (until after) had shingles in March 2023 which I believe, triggered first episode of Afib. Now thinking about having the vaccine, concerned that it will trigger Afib. What are people's experiences of having the vaccine? Do I need it yet. Maybe still have antibodies in my system? Will
sunlovah
in
Atrial Fibrillation Support
10 months ago
GCA flare
Diagnosed April 2018 with PMR. Three months later GCA. I am currently on 3mgs prednisolone. Over the last two days have scalp pain on right side only … no jaw pain. It feels a bit like I am getting a cold sore but no cold sore showing up. Could it be a GCA flare? Thank you to everyone who replies.
Diagnosed April 2018 with PMR. Three months later GCA. I am currently on 3mgs prednisolone. Over the last two days have scalp pain on right side only … no jaw pain. It feels a bit like I am getting a cold sore but no cold sore showing up. Could it be a GCA flare? Thank you to everyone who replies.
Reddev
in
PMRGCAuk
10 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
QUICK TAPER; CRP RISING STEADILY; FLARING
As suspected, the very quick taper rheumy thought up (2.5 mg per week til I get to 10, then reducing 1 mg per month), has caused a flare and I'm in pre-PMR pain - almost). Currently at 12 mg but should be down to 9 by now, if I was to go with her guidelines. GP refuses to let me up the pred saying "it's
As suspected, the very quick taper rheumy thought up (2.5 mg per week til I get to 10, then reducing 1 mg per month), has caused a flare and I'm in pre-PMR pain - almost). Currently at 12 mg but should be down to 9 by now, if I was to go with her guidelines. GP refuses to let me up the pred saying "it's
Missus835
in
PMRGCAuk
4 months ago
tetanus booster and Covid vaccine
Hello I had a tetanus booster yesterday and I asked my GP if it was ok to get Covid vaccine next Thursday. He said he didn’t know and to check with primary care. When I saw the nurse she said it’s fine as both are inactivated. Does anyone know about this ? I tried finding out but haven’t managed to
Hello I had a tetanus booster yesterday and I asked my GP if it was ok to get Covid vaccine next Thursday. He said he didn’t know and to check with primary care. When I saw the nurse she said it’s fine as both are inactivated. Does anyone know about this ? I tried finding out but haven’t managed to
Mozart150
in
NRAS
10 months ago
Rheumatology second opinion appointment
Hello everyone, so my husband had his second opinion with another NHS rheumatologist yesterday (same hospital), and I'd really appreciate people's thoughts on some of the things he said, as follows: 1) The pain, stiffness, heat and swelling across my husband's knuckles and proximal joints (both hands
Hello everyone, so my husband had his second opinion with another NHS rheumatologist yesterday (same hospital), and I'd really appreciate people's thoughts on some of the things he said, as follows: 1) The pain, stiffness, heat and swelling across my husband's knuckles and proximal joints (both hands
RosyrosyD
in
NRAS
4 months ago
Afib, inflammation and NSAIDs
I was awake in the early hours, brain active, and thinking about my inflammation issues. I have Afib, polymyalgia, giant cell arteritis, bursitis, arthritis, spondylitis, tendonitis, IBS etc. Is there a connection between Afib and inflammation? I am unable to take NSAIDs due to being on edoxaban.
I was awake in the early hours, brain active, and thinking about my inflammation issues. I have Afib, polymyalgia, giant cell arteritis, bursitis, arthritis, spondylitis, tendonitis, IBS etc. Is there a connection between Afib and inflammation? I am unable to take NSAIDs due to being on edoxaban.
Broseley
in
Atrial Fibrillation Support
4 months ago
Gummie relief for degarelix shots?
DH has so much pain with each monthly shot and can't take nsaids. Is there anything that won't make him loopy to use after shots for a few days? He is ready to go back to lupron, it hurts so much. Mail order preferred.Thanks!
DH has so much pain with each monthly shot and can't take nsaids. Is there anything that won't make him loopy to use after shots for a few days? He is ready to go back to lupron, it hurts so much. Mail order preferred.Thanks!
Chipnick
in
Advanced Prostate Cancer
5 months ago
anti anxiety with Eliquis
I started having a fibs in 2007 after having Lyme disease and also possibly too much thyroid medication. I’ve managed it all these years and after I turned 65 2 1/2 years ago, the doctor started pressuring me to go on blood thinner because of stroke risk. my score is only a two and it’s a gray area for
I started having a fibs in 2007 after having Lyme disease and also possibly too much thyroid medication. I’ve managed it all these years and after I turned 65 2 1/2 years ago, the doctor started pressuring me to go on blood thinner because of stroke risk. my score is only a two and it’s a gray area for
Fblue
in
Atrial Fibrillation Support
10 months ago
6 MONTH PMR UPDATE
My last update was 6 months ago. Since then, I have tapered 100% off of prednisone. My inflammation markers have normalized. I have been turned over to my primary care provider from Rheumatology. I have went back to work part-time without issue. Despite my theory it was my infected tooth that caused
My last update was 6 months ago. Since then, I have tapered 100% off of prednisone. My inflammation markers have normalized. I have been turned over to my primary care provider from Rheumatology. I have went back to work part-time without issue. Despite my theory it was my infected tooth that caused
SMH4CRNA
in
PMRGCAuk
5 months ago
Shingles vaccine
Has anyone on methotrexate and infliximab had the shingles vaccine ? Do you have to get it every year ?
Has anyone on methotrexate and infliximab had the shingles vaccine ? Do you have to get it every year ?
Grounsel
in
NRAS
10 months ago
Confused
After nine years I seem to have similar pains as at the start, shoulders arms back thighs, knees, and wrists Would this be usual after so long . Tried nsaid's for a week slight relief, then tried increasing pred to10mg on 5mg on account of stunted adrenals and that didn't seem to work Done bloods ESR
After nine years I seem to have similar pains as at the start, shoulders arms back thighs, knees, and wrists Would this be usual after so long . Tried nsaid's for a week slight relief, then tried increasing pred to10mg on 5mg on account of stunted adrenals and that didn't seem to work Done bloods ESR
daisylazy
in
PMRGCAuk
5 months ago
Immunocompromised people aged 50+ are now eligible for the shingles vaccine
Immunocompromised people aged 50 and over are now eligible for the shingles vaccine. The vaccine reduces your chances of getting shingles and reduces the risk of complications if you still develop it. Read more on our website, including answers to some commonly asked questions, here: https://www.lupusuk.org.uk
Immunocompromised people aged 50 and over are now eligible for the shingles vaccine. The vaccine reduces your chances of getting shingles and reduces the risk of complications if you still develop it. Read more on our website, including answers to some commonly asked questions, here: https://www.lupusuk.org.uk
Debbie_kinsey
Administrator
in
LUPUS UK
10 months ago
is this a sign my meds are struggling or just how it is now?
Sorry for the long message but would appreciate knowing if this is typical or if I am being a little dramatic and unrealistic. diagnosed with RA nearly 2 years ago. Took a while but pretty much back to normal after moving to injecting 20mg MTX, 200g hydroxy and folic acid 6 days a week. Took just over
Sorry for the long message but would appreciate knowing if this is typical or if I am being a little dramatic and unrealistic. diagnosed with RA nearly 2 years ago. Took a while but pretty much back to normal after moving to injecting 20mg MTX, 200g hydroxy and folic acid 6 days a week. Took just over
Newbie73
in
NRAS
6 months ago
PMR vs Fibromyalgia - getting my story straight for doc's appointment.
I need to ask you wise and lovely folks for some input before I go to see the doctor, as soon as I can get an appointment. Every time I have an appointment with a different doc, the discussion gets side tracked by the fibromyalgia talk. I want to be able to stop it in its tracks this time, so that
I need to ask you wise and lovely folks for some input before I go to see the doctor, as soon as I can get an appointment. Every time I have an appointment with a different doc, the discussion gets side tracked by the fibromyalgia talk. I want to be able to stop it in its tracks this time, so that
Gimme
in
PMRGCAuk
6 months ago
LATITUDE secondary analysis - Concurrent use of Abiraterone and NSAIDs - higher risk of Prostate Cancer Specific Mortality and inferior OS
https://doi.org/10.1200/JCO.2024.42.4_suppl.120 ”Conclusions: In this secondary analysis, concomitant exposure to 7 classes of medications was not associated with any statistically significant modification of abiraterone effect on OS in de novo high risk mHSPC. Men who received concurrent NSAIDs had
https://doi.org/10.1200/JCO.2024.42.4_suppl.120 ”Conclusions: In this secondary analysis, concomitant exposure to 7 classes of medications was not associated with any statistically significant modification of abiraterone effect on OS in de novo high risk mHSPC. Men who received concurrent NSAIDs had
Graham49
in
Advanced Prostate Cancer
6 months ago
PMR or Arthritis?
I have been reading your forum since I was diagnosed with PMR just over 2 years ago. I have found it incredibly informative, helpful and comforting, but this is my 1st post. I was diagnosed with PMR after a couple of months of extreme pain and stiffness in the neck, shoulders hips and knee, to the extent
I have been reading your forum since I was diagnosed with PMR just over 2 years ago. I have found it incredibly informative, helpful and comforting, but this is my 1st post. I was diagnosed with PMR after a couple of months of extreme pain and stiffness in the neck, shoulders hips and knee, to the extent
Reneestpierre
in
PMRGCAuk
6 months ago
Migratory inflammatory arthritis, Hydroxychloroquine and Prednisolone
Hi all, at last I have plucked up courage to post on here..... Sorry it is a long one.Back in Aug '22 I suddenly started getting weak hands, swollen ankles and other achey symptoms. After several months and my first visit to Rheumatology I was told I had a migratory type of inflammatory arthritis. By
Hi all, at last I have plucked up courage to post on here..... Sorry it is a long one.Back in Aug '22 I suddenly started getting weak hands, swollen ankles and other achey symptoms. After several months and my first visit to Rheumatology I was told I had a migratory type of inflammatory arthritis. By
Pianissimoso
in
NRAS
7 months ago
Out of Remission
Well, I got some not so good news today. I had my CLL check today and I'm out of remission. My WBC is now 14K. My platelets are 152. My doctor wants to start me on Zanabrutinib now. I know it seems silly when just getting out of remission and I'm not even close to a WBC of 30K yet, and I have no other
Well, I got some not so good news today. I had my CLL check today and I'm out of remission. My WBC is now 14K. My platelets are 152. My doctor wants to start me on Zanabrutinib now. I know it seems silly when just getting out of remission and I'm not even close to a WBC of 30K yet, and I have no other
MyCLLJourney
in
CLL Support
11 months ago
Total knee replacement, if and when?
I am looking for comments on my decision to delay my total knee replacement until I am either suffering too much pain or my mobility becomes to restricted. I am 71 and suffered from arthritis in both knees for over Forty years. The right one has been the worse, until 2020. RECENT HISTORY 29 Jan
I am looking for comments on my decision to delay my total knee replacement until I am either suffering too much pain or my mobility becomes to restricted. I am 71 and suffered from arthritis in both knees for over Forty years. The right one has been the worse, until 2020. RECENT HISTORY 29 Jan
hampsetwoden
in
Arthritis Action
7 months ago
1
...
4
5
6
...
88
Next page
10
20
30
40
50
60
70
80
Filter results
Clear filters
Posted in
All communities
Meningitis Now
258 results
NRAS
228 results
PMRGCAuk
165 results
View top 10 communities
Sort by
Most Relevant
Newest