Experiences with

Down's syndrome

Rheumatology Network Editorial Staff September 24, 2019 The bisphosphonate alendronate (Binosto and Fosamax) can effectively maintain the gains in bone mineral density achieved with a year-long course of denosumab treatment in 91 percent of 126 patients who participated in a randomized clinical trial

I apologise in advance for this doom and gloom story but I am sat here now feeling like everything is crumbling in on me and I need to get it out. My husband and I finally got pregnant on our second round of IVF after 3 years. IVF being our only option to get pregnant due to me having both my tubes

Hi UK here, I’ve had RLS for as long as I can remember, but it has been severe for about eight to ten years, I was an RN, but had to give up because of lack of sleep, I’m in my early sixties I’ve been on various medication including Ropinirole, Carbergoline, Pregabalin, Gabapentin, now on Pramipexole

My cousin gives me a discount on my .3% THC CBD oil at $80 an ounce that last about a week or so for me. I'd say 5% is a lot! By the time I used CBD oil I was so miserable with RLS that I would have made any sacrifice to get relief. I pray u find a cheaper solution. I tried gabapentin, Requip, pamelor

I’m experiencing really bad RLS augmentation from supplementing with L-Dopa for three months, but wondering if I switch to other dopamine boosters such as Chlonine, Uridine, L-theanine, will the effect be the same? For context, this is what they specifically do: https://www.mindlabpro.com/blogs/nootropics

Went to neurologist yesterday to have epilepsy ruled out. (It was.) Mentioned I had RLS. Told him I was taking .5 milligrams of Valium every third day or so to keep the monster at bay. Mentioned that hydrocodone really helps me (But prescriptions are getting harder to get in the US. Mention the word

Does anyone have any good experiences with a doctor that can look at the "whole picture" . I have issues with Thyroiditis and Extreme Fatigue .with accompanying memory difficulties and general weakness. . It has got to the stage where I am unable to work. I live in the North East of England but am willing

Welcome to the Down's Syndrome Support Community for support of Down's syndrome! We’re very glad you have chosen to be a part of our community. The Down's Syndrome Support community - offered by HealthUnlocked (HU) - supports individuals affected by Down's syndrome. Whether you are an individual who

I am 68 years old and have had RLS for at least 25 years. I have tried everything from gabapentin, the dopanine agonists (experienced augmentation and withdrawal from hell), tramadol (it became ineffective) a couple of other narcotics, cannabis, iron and magnesium. I have experienced symptoms in the

Long before requip became the go-to drug for RLS I started out with tramadol 50 mg every 4 hours until I reach 200 mg luckily for me I had a doctor who kept up with the new drugs coming out. As soon as requip came out on the market I was put on it and over the years I was able to withdrawal totally from

Hello ladies I'm brand new to this forum. After 10 unsuccessful rounds of clomid and letrozole, we have now been referred to start ivf. My nhs consultant said it would likely be a 'short protocol' due to my pcos. My question is about how the process starts if I don't have any normal cycles. From what

Hello I am new to this site and hope to hear from others with my condition. I have an Autoimmune disease that mimics scleroderma and was originally diagnosed with deep morphea. A biopsy has shown that I actually have a rare condition called Scleredema Buschke. *Note the missing r. There is not much data

Hi everyone, I’ve just joined today. It’s been the longest 10 months of my life. I’m 46 and was diagnosed in January this year. I am on ropinirole 1.5mg every night. I started on 0.5mg but it’s had to be increased every few months. I have got low iron and am currently on tablets for that also. I’m

Hi Restless Team Just wondering what the difference in care is between the 2 specialist Dr Winkleman and Dr Buchfuhrer. We are on route to NYC and hoping to get appointment with Dr Winkelman in Boston . I have sent all my paper work but still awaiting contact from liaison officer . If he cannot

Guys - I've previously been on pramipexole and hated the way it made me feel during the day, I had tiredness, brain fog and difficultly from it (2x0.088MG). I have since came off this and am trying gabapentin today is my first day on this. I also met another RLS suffer today who mentioned they were on

I have had Pramapixole Requip Xl Ropineral and the patch , Pregablin Gabapentin Tramodol and Amatriptyline

Doctor said i have suspected Fibromyalgia. Symtoms are general tiredness/fatigue/dizzyness/clumsiness/lack of concentration I don't have muscle aches/ pains/ feeling unable to move. Everyone with fibro seems to have these pain/muscle related symptoms. Can anyone shed any light on this. Is it more likely

Has everyone had experience of Knee Replacement surgery, while taking the drug Prolia ? My Doctor said I could have the knee replacement surgery six weeks after I started taking Prolia shot.

According to my last several imaging tests I have an expanded bile duct. Is this normal for the disease? I am scheduled for an endoscopic ultrasound in a few weeks to take a better look at it. Does anyone have any experience with this? Is there any thing they can do for it? Or are we just spending

Hi friends Last night I increased my slow release oxycodone codiene to 20 mg what a relief from 15 it made a massive difference from a pain and definitely calm legs My question is this afternoon I had to take 7.5 mg of Endone fast acting at 4 pm to go to the movies If I take 20mg oxy tonight and