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UPDATE: Dad's Surgery on Broken Ankle Bone and Resulting PSYCHOSIS. QUESTION: How do you deal with Episodes of Hallucinations & Delusions?
Update- ON OUR FATHER WHO RECENTLY BROKE HIS ANKLE WHILE GARDENING, AND THEN UNDERWENT A SUDDEN, UNPLANNED SURGERY ON THE ANKLE , ONLY TO BE FOLLOWED BY THE ONSET OF PSYCHOSIS ALMOST IMMEDIATELY AFTER: BRIEF HISTORY: My dad is 78yo and was diagnosed with Parkinson's in 2010 but likely has had PD close
Update- ON OUR FATHER WHO RECENTLY BROKE HIS ANKLE WHILE GARDENING, AND THEN UNDERWENT A SUDDEN, UNPLANNED SURGERY ON THE ANKLE , ONLY TO BE FOLLOWED BY THE ONSET OF PSYCHOSIS ALMOST IMMEDIATELY AFTER: BRIEF HISTORY: My dad is 78yo and was diagnosed with Parkinson's in 2010 but likely has had PD close
rsacdoolittle
in
Cure Parkinson's
11 months ago
To those newly diagnosed! There is hope!
I was diagnosed with Parkinson’s in Dec 2018. My form of Parkinson’s has a huge psychological element that many of you can relate to. It’s obvious because of how quickly I progressed while I was getting diagnosed . My Dad who was my best friend and business partner died unexpectedly in 2013, which destroyed
I was diagnosed with Parkinson’s in Dec 2018. My form of Parkinson’s has a huge psychological element that many of you can relate to. It’s obvious because of how quickly I progressed while I was getting diagnosed . My Dad who was my best friend and business partner died unexpectedly in 2013, which destroyed
38yroldmale
in
Cure Parkinson's
11 months ago
40 years of RLS
I started with RLS about 40 years ago. Over the past 15 years, it has been diagnosed as severe.I have tried all of the dopamine drugs, none worked except for pramipexol, I have augmented and spent the past year still trying to get off this. I am under a sleep specialist and on 50mg of oxycodone per
I started with RLS about 40 years ago. Over the past 15 years, it has been diagnosed as severe.I have tried all of the dopamine drugs, none worked except for pramipexol, I have augmented and spent the past year still trying to get off this. I am under a sleep specialist and on 50mg of oxycodone per
Trish8433
in
Restless Legs Syndrome
11 months ago
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Scientists Offer a New Explanation for Long Covid
https://www.nytimes.com/2023/10/16/health/long-covid-serotonin.html?campaign_id=7&emc=edit_mbae_20231016&instance_id=105359&nl=morning-briefing%3A-asia-pacific-edition®i_id=138732216&segment_id=147501&te=1&user_id=521e6fb33d8cd5099db772394e0d2157 “A team of scientists is proposing a new explanation
https://www.nytimes.com/2023/10/16/health/long-covid-serotonin.html?campaign_id=7&emc=edit_mbae_20231016&instance_id=105359&nl=morning-briefing%3A-asia-pacific-edition®i_id=138732216&segment_id=147501&te=1&user_id=521e6fb33d8cd5099db772394e0d2157 “A team of scientists is proposing a new explanation
LAJ12345
in
Cure Parkinson's
11 months ago
Reintroducing DA at a low dose?
What is the current thinking around taking a low dose of a dopamine agonist in conjunction with another RLS medication? I took pramipexole ten years ago and experienced augmentation after approximately 12 months. Fortunately I didn't experience DAWS when coming off it. I have been on pregabalin for
What is the current thinking around taking a low dose of a dopamine agonist in conjunction with another RLS medication? I took pramipexole ten years ago and experienced augmentation after approximately 12 months. Fortunately I didn't experience DAWS when coming off it. I have been on pregabalin for
Hidden
in
Restless Legs Syndrome
11 months ago
High Dose CL ?
I am often puzzled by the high dose her neurologist/ movement specialist has her taking. I have not found anyone taking this high of dose: 8am: 25/100 CL x 3 11am: 25/100 CL x3 2pm: 25/100 CL x3 5pm: 25/100 CL x3 8pm: 25/100 CL x3 11pm: 25/100 CL x 1 but then a Rytary along with 3mg Melatonin.
I am often puzzled by the high dose her neurologist/ movement specialist has her taking. I have not found anyone taking this high of dose: 8am: 25/100 CL x 3 11am: 25/100 CL x3 2pm: 25/100 CL x3 5pm: 25/100 CL x3 8pm: 25/100 CL x3 11pm: 25/100 CL x 1 but then a Rytary along with 3mg Melatonin.
Furch
in
Cure Parkinson's
11 months ago
How to escape Augmentation?
I only learnt about Health Unlocked and its efforts on RLS through RLS -UK and this is my first post. I have suffered from RLS for several years and various doctors have prescribed all the general medicines starting with antidepressants (amitriptyline, mirtazapine, imipramine, and citralopram), dopramine
I only learnt about Health Unlocked and its efforts on RLS through RLS -UK and this is my first post. I have suffered from RLS for several years and various doctors have prescribed all the general medicines starting with antidepressants (amitriptyline, mirtazapine, imipramine, and citralopram), dopramine
davchar23
in
Restless Legs Syndrome
11 months ago
The environment makes the cells says Bruce Lipton. The importance of isolating the supposedly sick person...
"There are cells that can come to know their true essence by going beyond their environment and their conditioning" Parkinson's is caused by intense fears whose original cause, being the "effect" itself at a multifactorial biochemical level, comes from tendencies in perception established by a process
"There are cells that can come to know their true essence by going beyond their environment and their conditioning" Parkinson's is caused by intense fears whose original cause, being the "effect" itself at a multifactorial biochemical level, comes from tendencies in perception established by a process
ManuCalma
in
Cure Parkinson's
11 months ago
Surrendering to Parkinson's is not "throwing in the towel" it is "changing it for a new one."
Probably if you are affected by PD it is because you have always lived trying to achieve something that did not reach you. You moved forward in fits and starts. Everything seemed to be going well until you observed an obstacle that stood in your way, plunging your body into a nest of pure stress, a constant
Probably if you are affected by PD it is because you have always lived trying to achieve something that did not reach you. You moved forward in fits and starts. Everything seemed to be going well until you observed an obstacle that stood in your way, plunging your body into a nest of pure stress, a constant
ManuCalma
in
Cure Parkinson's
11 months ago
On the Holistic origin of Parkinson's
The symptom is "the straw that broke the camel's back" not the beginning of the disease as such... Imagine two people reacting to the same traumatic event. One experiences it from an intense fear due to its configuration and the other experiences it in a less intense way. The body of each of them generates
The symptom is "the straw that broke the camel's back" not the beginning of the disease as such... Imagine two people reacting to the same traumatic event. One experiences it from an intense fear due to its configuration and the other experiences it in a less intense way. The body of each of them generates
ManuCalma
in
Cure Parkinson's
11 months ago
Sharing Info : Thorne Gut Test
Please note : This is not an endorsement. Wanted to share with everyone. Hope it helps you. ( Also, I am not a doctor and should not be considered and medical advice Given the recent news that there is high probability that PD starts in the gut and travels to the brain (Alpha Synuclein found
Please note : This is not an endorsement. Wanted to share with everyone. Hope it helps you. ( Also, I am not a doctor and should not be considered and medical advice Given the recent news that there is high probability that PD starts in the gut and travels to the brain (Alpha Synuclein found
John_morris71
in
Cure Parkinson's
11 months ago
Augmentation - Can Aripiprazole reduce symptoms
https://www.tandfonline.com/doi/full/10.2147/NSS.S421189 An interesting article on alleviating the symptoms of dopamine agonist augmentation with Aripiprazole. Aripiprazole is an atypical anti psychotic and there are a few reports from 2010 that showed it might help RLS. Sadly only 4 people took part
https://www.tandfonline.com/doi/full/10.2147/NSS.S421189 An interesting article on alleviating the symptoms of dopamine agonist augmentation with Aripiprazole. Aripiprazole is an atypical anti psychotic and there are a few reports from 2010 that showed it might help RLS. Sadly only 4 people took part
Joolsg
in
Restless Legs Syndrome
1 year ago
Pramipexole - Confused
Probably being a bear of little brain about this, but wanted to ask: I am currently taking 300mg of Pregabalin every night for RLS. It is kind of ok, but has not helped with weight gain or mental clarity, and doesn’t always work! I get RLS during the day too. I have MS too and so get up 3 or 4
Probably being a bear of little brain about this, but wanted to ask: I am currently taking 300mg of Pregabalin every night for RLS. It is kind of ok, but has not helped with weight gain or mental clarity, and doesn’t always work! I get RLS during the day too. I have MS too and so get up 3 or 4
Bowie4eva
in
Restless Legs Syndrome
1 year ago
An exhaustive study that offers hope that some types of activities can improve symptoms even as disease progresses
https://academic.oup.com/brain/advance-article/doi/10.1093/brain/awad325/7284004 ------- The article link above contains the entire pdf of the study results which is 44 pages. It might be hard to digest in a short time. I am providing here the analysis and summary of the study along with why the study
https://academic.oup.com/brain/advance-article/doi/10.1093/brain/awad325/7284004 ------- The article link above contains the entire pdf of the study results which is 44 pages. It might be hard to digest in a short time. I am providing here the analysis and summary of the study along with why the study
pdpatient
in
Cure Parkinson's
1 year ago
Autism and RLS
I work with autistic young people. One young man shows all the symptoms of RLS which appears sensory and autistic in nature but wondering if anyone knows of any links between autism and RLS and more importantly how to support this young man who is non verbal. Having read about the dopamine link, wondering
I work with autistic young people. One young man shows all the symptoms of RLS which appears sensory and autistic in nature but wondering if anyone knows of any links between autism and RLS and more importantly how to support this young man who is non verbal. Having read about the dopamine link, wondering
AddSchool
in
Restless Legs Syndrome
1 year ago
Clinical severity in PD is determined by decline in cortical compensation
In Parkinson's disease, the cerebral cortex can take over tasks from a deeper part of the brain that is damaged, and where cells that make dopamine have been lost. That degree of compensation by the cerebral cortex determines how many complaints people have. This is evident from a publication by the
In Parkinson's disease, the cerebral cortex can take over tasks from a deeper part of the brain that is damaged, and where cells that make dopamine have been lost. That degree of compensation by the cerebral cortex determines how many complaints people have. This is evident from a publication by the
Esperanto
in
Cure Parkinson's
1 year ago
repairing dopamine receptors
Off requip now for a couple of months after 20+ years and on gabapentin 700mg. Wondering now about "repairing dopamine receptors"? Can someone point me in the direction of info on this? What is the effect of "un-repaired dopamine receptors"? Thanks!!
Off requip now for a couple of months after 20+ years and on gabapentin 700mg. Wondering now about "repairing dopamine receptors"? Can someone point me in the direction of info on this? What is the effect of "un-repaired dopamine receptors"? Thanks!!
RLSNona
in
Restless Legs Syndrome
1 year ago
Update on rls
Hello everyone, just an update to let you know how I have been getting on since coming off the dopamine agonist. It's around 3 months now since I took my last tiny piece of pramipexole, after a pretty rough time of crawling legs, arms, shoulder shivers, I'm finally getting better!!! While coming off
Hello everyone, just an update to let you know how I have been getting on since coming off the dopamine agonist. It's around 3 months now since I took my last tiny piece of pramipexole, after a pretty rough time of crawling legs, arms, shoulder shivers, I'm finally getting better!!! While coming off
Loopylegs
in
Restless Legs Syndrome
1 year ago
Did you know Bach lost 11 children?
Read this Tweet recently, which resonated with my own positive mental health experience on increasing prayer as part of many Lifestyle changes. I have waxed lyrical here about many other changes but have always hesitated to mention prayer for those wary of the 'God Squad'. Please note I respect every
Read this Tweet recently, which resonated with my own positive mental health experience on increasing prayer as part of many Lifestyle changes. I have waxed lyrical here about many other changes but have always hesitated to mention prayer for those wary of the 'God Squad'. Please note I respect every
secondtry
in
AF Association
1 year ago
Switching from Ropinrole to eg Gabapentin
Hi everyone, I’m wondering if someone can advise about going from dopamine agonists - specifically Ropinrole - to the gabapentin type of medication ? My mum is suffering terrible drowsiness (as well as many other symptoms) and I think it’s time to try to do this. it’s not the first time I’ve asked
Hi everyone, I’m wondering if someone can advise about going from dopamine agonists - specifically Ropinrole - to the gabapentin type of medication ? My mum is suffering terrible drowsiness (as well as many other symptoms) and I think it’s time to try to do this. it’s not the first time I’ve asked
Boldgirl45
in
Restless Legs Syndrome
1 year ago
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