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The Black Hole
My husband needs me as well-hes on
dialysis
/type 1diabetic withany health issues & I will have to leave him to go take care of moms service...I worry all the time about him too. Now the weather is fixing to get crazy-i have to rent a car to go out of town too. Toooooo much. Suggestions?
My husband needs me as well-hes on
dialysis
/type 1diabetic withany health issues & I will have to leave him to go take care of moms service...I worry all the time about him too. Now the weather is fixing to get crazy-i have to rent a car to go out of town too. Toooooo much. Suggestions?
Hippiedeb5150
in
Anxiety and Depression Support
5 months ago
Have SCT and Just searching for answers
Doctors could not find the cause Age 46(2008): Suffered a pulmonary embolism (blood clot) in my right lung 2013: Diagnosed with CKD, stage 3 also HBP (off meds since May 2023 due to dietary changes) Not on
dialysis
2014: Diagnosed with venous insufficiency (pain with blood flow in my right leg)
Doctors could not find the cause Age 46(2008): Suffered a pulmonary embolism (blood clot) in my right lung 2013: Diagnosed with CKD, stage 3 also HBP (off meds since May 2023 due to dietary changes) Not on
dialysis
2014: Diagnosed with venous insufficiency (pain with blood flow in my right leg)
Beachluvr62
in
Sickle Cell Society
3 months ago
Nifedipine/blood pressure
I recently spoke with a lady at my Scleroderma check up clinic who had an operation and was very poorly post op. this led to her being diagnosed with Scleroderma and she’s now on
dialysis
3 times weekly with our hospital sending her to a London Hospital.
I recently spoke with a lady at my Scleroderma check up clinic who had an operation and was very poorly post op. this led to her being diagnosed with Scleroderma and she’s now on
dialysis
3 times weekly with our hospital sending her to a London Hospital.
creditcrunchie
in
Scleroderma & Raynaud's UK (SRUK)
2 months ago
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Switch diet to Vegetarian - save your kidneys
His doctor told him he had to go on
dialysis
. He had blood in his urine plus a very low GFR. A plant based diet saved him from
dialysis
. My hero is Ken Hull who has 2 books titled STOPPING KIDNEY DISEASE FOOD GUIDE available on Amazon.
His doctor told him he had to go on
dialysis
. He had blood in his urine plus a very low GFR. A plant based diet saved him from
dialysis
. My hero is Ken Hull who has 2 books titled STOPPING KIDNEY DISEASE FOOD GUIDE available on Amazon.
geewhiz
in
Kidney Disease
8 months ago
How high is high phosphorous??
A LOT I know that 5.5 is considered high phosphorous for
dialysis
. Is anyone else high and what do you do. Do you use a binder and how's that going?
A LOT I know that 5.5 is considered high phosphorous for
dialysis
. Is anyone else high and what do you do. Do you use a binder and how's that going?
Bassetmommer
in
Kidney Dialysis
5 months ago
New life how to adapt?
This year my mum was diagnosed with kidney failure.. so it has been a new journey dawn.. it has now been 7months on
dialysis
... Am worried how long can she live... I don't like always like facing the reality that one day she will be gone... How has been your experiences with sick loved ones?
This year my mum was diagnosed with kidney failure.. so it has been a new journey dawn.. it has now been 7months on
dialysis
... Am worried how long can she live... I don't like always like facing the reality that one day she will be gone... How has been your experiences with sick loved ones?
Graciemaks
in
CHADD's Adult ADHD Support
7 months ago
from PD to HD
I’ve got 3 kids and I would like to continue working, how do you manage your time with 3 visits to the hospital a week for
dialysis
4. How do you dualise when you travel?
I’ve got 3 kids and I would like to continue working, how do you manage your time with 3 visits to the hospital a week for
dialysis
4. How do you dualise when you travel?
Imaanforever
in
Kidney Dialysis
2 months ago
The truth about Home Dialysis
She is Ex-Army with I believe over 20 years of
dialysis
experience. She is no nonsense and that's just fine with me. And the other is my Med Tech. We just love her to pieces. She also has multiple years of experience. I train with my husband in a private room.
She is Ex-Army with I believe over 20 years of
dialysis
experience. She is no nonsense and that's just fine with me. And the other is my Med Tech. We just love her to pieces. She also has multiple years of experience. I train with my husband in a private room.
Bassetmommer
in
Kidney Dialysis
7 months ago
ureter strictures
The thought of
dialysis
is wearing on me. Thanx in advance for your thoughts.
The thought of
dialysis
is wearing on me. Thanx in advance for your thoughts.
Phillip46
in
Kidney Disease
6 months ago
Augmentation and how to move on.
Hi I have kidney failure and am on
dialysis
3 times a week. I have severe RLS. My specialist has prescribed me 100mg Pre Gablin together with 0.44mg of pramipexole daily. I have, over a period of 3 Months been increasing my dose of pramipexole from the minimum to where we are now.
Hi I have kidney failure and am on
dialysis
3 times a week. I have severe RLS. My specialist has prescribed me 100mg Pre Gablin together with 0.44mg of pramipexole daily. I have, over a period of 3 Months been increasing my dose of pramipexole from the minimum to where we are now.
TonyLewry
in
Restless Legs Syndrome
6 months ago
fell kt/v again going to do EXTRANEAL bags question about that
I actuality fell cause cramps were so bad my legs gave out hit m head on
dialysis
machine. He want me to try lasix to help with urine but he has to be careful my blood pressure bern low .
I actuality fell cause cramps were so bad my legs gave out hit m head on
dialysis
machine. He want me to try lasix to help with urine but he has to be careful my blood pressure bern low .
Beachgirl32
in
Kidney Dialysis
2 months ago
brand new diagnosis
What happens to the other 50% and those that do get there, does that mean
dialysis
air transplant? I start steroids and immunosuppressants tomorrow. Will I be on those forever? Any advice for any of this? I’m so new and I just don’t know what it all means. Severity, future, etc., etc., etc.
What happens to the other 50% and those that do get there, does that mean
dialysis
air transplant? I start steroids and immunosuppressants tomorrow. Will I be on those forever? Any advice for any of this? I’m so new and I just don’t know what it all means. Severity, future, etc., etc., etc.
ematthews81
in
C3 Glomerulopathy
6 months ago
The Seat of the Soul_Lili
Hello, my name is Arlene Hernandez and my 32 year old daughter has been on
dialysis
since she was in her early 20's. She received her first transplant in 2020 but it failed. We are now facing painful times because she is in dire need of a kidney transplant.
Hello, my name is Arlene Hernandez and my 32 year old daughter has been on
dialysis
since she was in her early 20's. She received her first transplant in 2020 but it failed. We are now facing painful times because she is in dire need of a kidney transplant.
lassirenas
in
Kidney Donation
6 months ago
Introduction
Started
dialysis
next day. Bro donated in May 87. Incredible run. Sister in law donated in August of 2007. Still working fine. Both donors still alive. Anyone have incredible ideas on saying thanks to my donors for the 50th time let me know.
Started
dialysis
next day. Bro donated in May 87. Incredible run. Sister in law donated in August of 2007. Still working fine. Both donors still alive. Anyone have incredible ideas on saying thanks to my donors for the 50th time let me know.
twicerecipient
in
Kidney Transplant
4 months ago
Terrified - just dropped to stage 4 CKD
Im terrified all this is going to get taken away and my life is going to turn into hospitals and
dialysis
and feeling like sh*t and that’s not a life I want.
Im terrified all this is going to get taken away and my life is going to turn into hospitals and
dialysis
and feeling like sh*t and that’s not a life I want.
SOct91
in
Kidney Transplant
3 months ago
Check out our Kidney Disease Education courses on the Kidney Learning Center!
Sign up for our NEW, self-paced education program to learn more ALL of your options, including kidney transplant, both kinds of
dialysis
(peritoneal
dialysis
and hemodialysis), and medical management, or no treatment. https://learningcenter.kidney.org/spa/courses/resource/r525-kidney-disease-education-part
Sign up for our NEW, self-paced education program to learn more ALL of your options, including kidney transplant, both kinds of
dialysis
(peritoneal
dialysis
and hemodialysis), and medical management, or no treatment. https://learningcenter.kidney.org/spa/courses/resource/r525-kidney-disease-education-part
KateyC_NKF
Partner
in
Parents of Children with Kidney Disease
7 months ago
Check out our Kidney Disease Education courses on the Kidney Learning Center!
Sign up for our NEW, self-paced education program to learn more ALL of your options, including kidney transplant, both kinds of
dialysis
(peritoneal
dialysis
and hemodialysis), and medical management, or no treatment. https://learningcenter.kidney.org/spa/courses/resource/r525-kidney-disease-education-part
Sign up for our NEW, self-paced education program to learn more ALL of your options, including kidney transplant, both kinds of
dialysis
(peritoneal
dialysis
and hemodialysis), and medical management, or no treatment. https://learningcenter.kidney.org/spa/courses/resource/r525-kidney-disease-education-part
KateyC_NKF
Partner
in
Kidney Disease
7 months ago
Just wanted to share a lovely moment
Her family had insisted she at least tried
dialysis
. Fast forward a few months, she began to improve. She would come striding in, dressed in colourful clothes and would drive herself in. She would chat to everyone.
Her family had insisted she at least tried
dialysis
. Fast forward a few months, she began to improve. She would come striding in, dressed in colourful clothes and would drive herself in. She would chat to everyone.
Ziggydoodah
in
Kidney Dialysis
7 months ago
Low Blood pressure
Just out of interest, how low does your blood pressure go during
dialysis
?I am in a session now, and it went down to 74/ 41 a couple of hours ago. I felt really quite unwell. Having been told off in the past for not calling a nurse, today I pressed my call button.
Just out of interest, how low does your blood pressure go during
dialysis
?I am in a session now, and it went down to 74/ 41 a couple of hours ago. I felt really quite unwell. Having been told off in the past for not calling a nurse, today I pressed my call button.
Mich1949
in
Kidney Dialysis
6 months ago
Cancer/AKI to low GFR
I started on
dialysis
for the next 3 weeks in the hospital with my eGFR going down to 6. When I finally got home after a month I started unrinating and slowly my GFR increased and I got off
dialysis
.
I started on
dialysis
for the next 3 weeks in the hospital with my eGFR going down to 6. When I finally got home after a month I started unrinating and slowly my GFR increased and I got off
dialysis
.
Jwbak
in
Kidney Disease
6 months ago
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