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Food Survivor
I've been on Budesonide for about 6 years on & off. After the first long taper I managed well for a long time. MicroscopicCollageonous Colitis was diagnosed. Mostly when taper finished there is only a week or 2 them cycle starts again. Another colonoscopy was in Jan this year conforming the diagnosis
I've been on Budesonide for about 6 years on & off. After the first long taper I managed well for a long time. MicroscopicCollageonous Colitis was diagnosed. Mostly when taper finished there is only a week or 2 them cycle starts again. Another colonoscopy was in Jan this year conforming the diagnosis
FoodSurvivor
in
Crohn's and Colitis Support
14 days ago
PBC, now cirrhosis
HiHad PBC diagnosed for 5 yrs but Alp up since 2012. Been on Urso for 5 yrs and great. In 2021 my ALT was slightly out of range but ignored by the specialist. GP flagged it up January 2023 and I had an ultrasound just showed enlarged spleen. Fibroscan in April jumped from stage one to bottom of stage
HiHad PBC diagnosed for 5 yrs but Alp up since 2012. Been on Urso for 5 yrs and great. In 2021 my ALT was slightly out of range but ignored by the specialist. GP flagged it up January 2023 and I had an ultrasound just showed enlarged spleen. Fibroscan in April jumped from stage one to bottom of stage
Beatrice110924
in
Sjogren's Support
2 months ago
Low cortisol/adrenal insufficiency
Hello, AI is a very new subject for me and looking to speak to people with similar issue. In May 23 I started to have bowel issues and in August 2023 I was diagnosed with Lymphatic colitis where I have been put on steroids for 12 weeks (budesonide 9mg to be exact) Since 2023 I have experience tiredness
Hello, AI is a very new subject for me and looking to speak to people with similar issue. In May 23 I started to have bowel issues and in August 2023 I was diagnosed with Lymphatic colitis where I have been put on steroids for 12 weeks (budesonide 9mg to be exact) Since 2023 I have experience tiredness
Kamsi86
in
Thyroid UK
3 months ago
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Side effects of Relvar Ellipta?
Hi, I have been on Relvar Ellipta for, I think, four years now. It works well to control my asthma, but I wonder if anybody has got any side effects from this medicine? Apart from asthma, I have problems with a heart valve (Mitral), and I am hormone treatment for prostate cancer, and also I take Budesonide
Hi, I have been on Relvar Ellipta for, I think, four years now. It works well to control my asthma, but I wonder if anybody has got any side effects from this medicine? Apart from asthma, I have problems with a heart valve (Mitral), and I am hormone treatment for prostate cancer, and also I take Budesonide
crille
in
Asthma Community Forum
3 months ago
Broncholidator Reversibility Test
Hi, I posted a few days ago about my team wanting to do a broncholidator reversibility test and FeNO before they put me forward for biologics. I wasn't going to do the test, then decided to do it, incase it did show reversibility to save time waiting for a referral to Wynthenshawe as my current hospital
Hi, I posted a few days ago about my team wanting to do a broncholidator reversibility test and FeNO before they put me forward for biologics. I wasn't going to do the test, then decided to do it, incase it did show reversibility to save time waiting for a referral to Wynthenshawe as my current hospital
LottieB36
in
Asthma Community Forum
3 months ago
Asthma and ADHD
My 10 year old daughter has both asthma and ADHD. Her asthma is brought on typically by respiratory infections; otherwise she is pretty well controlled. Winter is tough with all the colds milling around. It has been a real delicate balance managing her medications. She takes Vyvanse daily for ADHD and
My 10 year old daughter has both asthma and ADHD. Her asthma is brought on typically by respiratory infections; otherwise she is pretty well controlled. Winter is tough with all the colds milling around. It has been a real delicate balance managing her medications. She takes Vyvanse daily for ADHD and
Chicagomom
in
CHADD's ADHD Parents Together
4 months ago
The plexopathy continues
After speaking to the consultant again he is saying to maintain long term on a low dose of Prednisolone. I'm back I agony so I have to do something. The Gabapentin isn't helping in the slightest so I'm coming off it slowly. I asked if there was an alternative to the Prednisolone and he mentioned methotrexate
After speaking to the consultant again he is saying to maintain long term on a low dose of Prednisolone. I'm back I agony so I have to do something. The Gabapentin isn't helping in the slightest so I'm coming off it slowly. I asked if there was an alternative to the Prednisolone and he mentioned methotrexate
Viklou
in
Pain Concern
5 months ago
Tezepelumab/Spirometry with Reversibility
Hi, hope everyone is managing well. I’m just looking to hear others experiences if possible. I’m quite complex and don’t show a high FeNO and spirometry is normal and my asthma is driven by neutrophils for inflammation. Best peak flow is 440, hovering around 220-350 - 220 is pre meds in the morning
Hi, hope everyone is managing well. I’m just looking to hear others experiences if possible. I’m quite complex and don’t show a high FeNO and spirometry is normal and my asthma is driven by neutrophils for inflammation. Best peak flow is 440, hovering around 220-350 - 220 is pre meds in the morning
LottieB36
in
Asthma Community Forum
8 months ago
Moving to Symbicort from Budesonide and Salbutomol
Hi this is a simple question, I have had seasonal allergic Asthma for about 15 years, but in the last 5 years or so it was really under control and I was able to cut way down on medication, this year though the pollen has been off the scale her in the South West and I have been struggling, had a couple
Hi this is a simple question, I have had seasonal allergic Asthma for about 15 years, but in the last 5 years or so it was really under control and I was able to cut way down on medication, this year though the pollen has been off the scale her in the South West and I have been struggling, had a couple
shat1
in
Asthma Community Forum
10 months ago
Coming off Steroids
Since being told I have no active inflammation, I thought I would try and come off the steroids. I'm only on a couple of Budesonide as a maintenance treatment. Anyway things were going OK ish, till my last day of taking 1 tablet. During my taper, I've become very tired, even more so than I normally am
Since being told I have no active inflammation, I thought I would try and come off the steroids. I'm only on a couple of Budesonide as a maintenance treatment. Anyway things were going OK ish, till my last day of taking 1 tablet. During my taper, I've become very tired, even more so than I normally am
Viklou
in
Crohn's and Colitis Support
1 year ago
5 Year old with asthma
Hello all. My son is 5 years old (6 in February) and was diagnosed with asthma 3 years ago. He was a very normal healthy baby boy. When he was age 2 he started getting sick literally every single day after he ate any type of food. For a year they gave him steroids and he gained a lot of weight. At age
Hello all. My son is 5 years old (6 in February) and was diagnosed with asthma 3 years ago. He was a very normal healthy baby boy. When he was age 2 he started getting sick literally every single day after he ate any type of food. For a year they gave him steroids and he gained a lot of weight. At age
Timt17
in
Asthma Community Forum
1 year ago
Fostair finished and can't get any until tomorrow/Covid too
I have Covid and was taking my Fostair as prescribed by practitioner nurse. Today I noted it was empty. I have still got my old Budesonide and Salbutamol left from when I switched over in October. Can I use this until I get supply tomorrow?
I have Covid and was taking my Fostair as prescribed by practitioner nurse. Today I noted it was empty. I have still got my old Budesonide and Salbutamol left from when I switched over in October. Can I use this until I get supply tomorrow?
maidenheaven
in
Asthma Community Forum
1 year ago
Taking budesonide with diagnosis of osteoporosis
i have to take budesonide for an autoimmune disorder.i also have osteoporosis. I am worried how the budesonide will affect my bones. Can anyone give me any insight?thanks!
i have to take budesonide for an autoimmune disorder.i also have osteoporosis. I am worried how the budesonide will affect my bones. Can anyone give me any insight?thanks!
Geedle
in
Osteoporosis Support
2 years ago
Budesonide
Having been diagnosed with colitis my doctor has taken me off pred overnight and put me on budesonide. Have tapered pred down to 2mg. Does anyone know of any problems doing this
Having been diagnosed with colitis my doctor has taken me off pred overnight and put me on budesonide. Have tapered pred down to 2mg. Does anyone know of any problems doing this
Joanbill13
in
PMRGCAuk
2 years ago
how much budesonide is too much?
diagnosed a year ago. Been on 2 courses of budesonide only for symptoms to return. I have been off it 2 months now and there is no end in sight of diarrhoea even with cutting out gluten, lactose, sweetners, alcohol, spicy food etc. I don’t seem to have much left and still rushing to the loo. I can
diagnosed a year ago. Been on 2 courses of budesonide only for symptoms to return. I have been off it 2 months now and there is no end in sight of diarrhoea even with cutting out gluten, lactose, sweetners, alcohol, spicy food etc. I don’t seem to have much left and still rushing to the loo. I can
Hephzi
in
Crohn's and Colitis Support
2 years ago
How long to diagnosis?
It took 10 weeks from first symptoms to diagnosis and treatment of microscopic colitis via a colonoscopy. The Budesonide has been 100% successful although I understand that symptoms may recur. Talking to my GP l was asking him why it took so long but he told me that I was relatively lucky and the average
It took 10 weeks from first symptoms to diagnosis and treatment of microscopic colitis via a colonoscopy. The Budesonide has been 100% successful although I understand that symptoms may recur. Talking to my GP l was asking him why it took so long but he told me that I was relatively lucky and the average
Xzbv
in
Crohn's and Colitis Support
2 years ago
Any one else.
Hi, sorry I haven't posted for a while. Sometimes I think I'm completely on my own in this. I have a couple of questions if I may. Has anyone else been on mycophenolate mofitil and had a really bad acid upset stomach. This did not start at the beginning of treatment but has come on slowly. Does anyone
Hi, sorry I haven't posted for a while. Sometimes I think I'm completely on my own in this. I have a couple of questions if I may. Has anyone else been on mycophenolate mofitil and had a really bad acid upset stomach. This did not start at the beginning of treatment but has come on slowly. Does anyone
Alley27
in
PBC Foundation
2 years ago
Is fibrosis f2 reversible?
Had fibroscan today. Score of 9.2. Is this reversible? I was pleased it wasnt cirrhosis. I was told it was mild fibrosis but online charts indicate f2 as 'significant fibrosis with evidence of progressive liver disease' I have AIH & am taking budesonide 9mg daily. My LFTs have started to normalise so
Had fibroscan today. Score of 9.2. Is this reversible? I was pleased it wasnt cirrhosis. I was told it was mild fibrosis but online charts indicate f2 as 'significant fibrosis with evidence of progressive liver disease' I have AIH & am taking budesonide 9mg daily. My LFTs have started to normalise so
Bigbluemonkey
in
British Liver Trust
2 years ago
Anyone taking Budesonide?
I will need a second drug for the protein in the urine besides the Lisinopril. Any suggestions ?
I will need a second drug for the protein in the urine besides the Lisinopril. Any suggestions ?
RoxanneKidney
in
Kidney Disease
2 years ago
Crohn’s Diagnosis ?
I was wondering if anyone who has been diagnosed with Crohn’s disease could help me. I developed a fistula in July’s of 2021. I have no family history of IBD disease. When I realized most people who get fistulas also have IBD I started having severe stomach pain 24-7 I couldn’t eat for months. I did
I was wondering if anyone who has been diagnosed with Crohn’s disease could help me. I developed a fistula in July’s of 2021. I have no family history of IBD disease. When I realized most people who get fistulas also have IBD I started having severe stomach pain 24-7 I couldn’t eat for months. I did
RC723
in
Crohn's and Colitis Support
2 years ago
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