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Vasculitis in my Spine "Central nervous system Vasculitis"
Just about over a massive flare. It came on sudden. Had a terrible migraine for 3 days with pain in my lower back, discomfort in my spine and pain in my legs that felt like growing pains yet I'm an adult. It was there constantly and nagging. Just felt strange. Woke the Sunday morning with not being
Just about over a massive flare. It came on sudden. Had a terrible migraine for 3 days with pain in my lower back, discomfort in my spine and pain in my legs that felt like growing pains yet I'm an adult. It was there constantly and nagging. Just felt strange. Woke the Sunday morning with not being
Zuzu798
in
Behçet's UK
4 years ago
saying no to methotrexate
I havent been on any treatment yet apart from nurofen since march apart from a steroid injection
depo
medrol
whic h was inaffective after 1 week.
I havent been on any treatment yet apart from nurofen since march apart from a steroid injection
depo
medrol
whic h was inaffective after 1 week.
snoopy29
in
PMRGCAuk
4 years ago
Steroids and pbc
I was recently given a steroid injection for sinus by my gp. I am worried it will affect my liver.I am early stage pbc and take 1000 mg of urso a day. This is a one off injection and i wont be getting another one.its called depo medrone 40mg.any advice would be appreciated thanks
I was recently given a steroid injection for sinus by my gp. I am worried it will affect my liver.I am early stage pbc and take 1000 mg of urso a day. This is a one off injection and i wont be getting another one.its called depo medrone 40mg.any advice would be appreciated thanks
Ballymahon2
in
PBC Foundation
4 years ago
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Ocrevus
I started Solu Medrol 1000mg x 3 treatment on yesterday and will complete on 11/13. I’m getting ready to start Ocrevus after I was told Tecfidera is failing after 2 1/2mths, I developed 2 lesion one an active and other nonactive since Last MRI In Feb. As I was told the lesions possible developed during
I started Solu Medrol 1000mg x 3 treatment on yesterday and will complete on 11/13. I’m getting ready to start Ocrevus after I was told Tecfidera is failing after 2 1/2mths, I developed 2 lesion one an active and other nonactive since Last MRI In Feb. As I was told the lesions possible developed during
JSSimp
in
My MSAA Community
4 years ago
What was your Medrol protocol? Worried my doctor doesn't know what he is doing. Please help
Hi All, Sorry for the aggressive title but I am nervous because my doctor doesn't normally prescribe steroids and I have pressured him into allowing me to try them after 6 failed FET's with DONOR eggs. They were all perfect PGS tested embryos. Its been absolutely devastating and I will be trying with
Hi All, Sorry for the aggressive title but I am nervous because my doctor doesn't normally prescribe steroids and I have pressured him into allowing me to try them after 6 failed FET's with DONOR eggs. They were all perfect PGS tested embryos. Its been absolutely devastating and I will be trying with
Msze
in
Fertility Network UK
4 years ago
Medrol?
Hi Eveyone- Hoping to hear some success stories with FET while using Medrol? I have one embryo left. I had 2 failed transfers prior with perfect PGS tested embryos in July and September. I also have had a chemical pregnancy in the past with a FET that was not PGS tested. This is my last embryo and the
Hi Eveyone- Hoping to hear some success stories with FET while using Medrol? I have one embryo left. I had 2 failed transfers prior with perfect PGS tested embryos in July and September. I also have had a chemical pregnancy in the past with a FET that was not PGS tested. This is my last embryo and the
Msze
in
Fertility Network UK
4 years ago
Been to hormone specialist...not sure what to think?!
I am new here, but not new to thyroid problems. I was diagnosed with Hashimotos in 2001 after years of symptoms no doctor could explain: high blood pressure difficult to control even with medication, hair loss, high cholesterol, weight gain and fluid retention. Doctors suggested I was eating too much
I am new here, but not new to thyroid problems. I was diagnosed with Hashimotos in 2001 after years of symptoms no doctor could explain: high blood pressure difficult to control even with medication, hair loss, high cholesterol, weight gain and fluid retention. Doctors suggested I was eating too much
Annacat69
in
Thyroid UK
4 years ago
TPLL
I want to thank you all again for welcoming me into your community. Mike's cancer diagnosis has been very unique. As has his treatment. I don't recall what I have already shared, but his actual diagnosis ended up being TPLL (Tcell Prolymphocytic Leukemia). His WBC count went from 432,000 on 9/30 to 530,000
I want to thank you all again for welcoming me into your community. Mike's cancer diagnosis has been very unique. As has his treatment. I don't recall what I have already shared, but his actual diagnosis ended up being TPLL (Tcell Prolymphocytic Leukemia). His WBC count went from 432,000 on 9/30 to 530,000
Whatadayitwas
in
CLL Support
4 years ago
Not a question, more a sharing
Went to the Royal Free, Hampstead for scheduled appointment for PMR yesterday. I'm now nearly a year in from the initial diagnosis. Head of this department I originally saw privately. He gave me an injection of Depo-Medrone 120mg to see if my symptoms went away as a diagnostic tool. They did. Couldn't
Went to the Royal Free, Hampstead for scheduled appointment for PMR yesterday. I'm now nearly a year in from the initial diagnosis. Head of this department I originally saw privately. He gave me an injection of Depo-Medrone 120mg to see if my symptoms went away as a diagnostic tool. They did. Couldn't
Bennijax
in
PMRGCAuk
4 years ago
Trying to reduce Medrol
Diagnosed quickly in May in US. Pain control worked at 32 mg Medrol. Currently at 20 mg and feel pretty good! Shoulders are sore in the morning but mild compared to initial onset pain. Due to reduce again in a few days and wondering if I should go to 18 mg or down to 16? I keep reading 10% reduction
Diagnosed quickly in May in US. Pain control worked at 32 mg Medrol. Currently at 20 mg and feel pretty good! Shoulders are sore in the morning but mild compared to initial onset pain. Due to reduce again in a few days and wondering if I should go to 18 mg or down to 16? I keep reading 10% reduction
kimsaunsc
in
PMRGCAuk
4 years ago
Shortest Time Between Steroid Sets?
What is the shortest amount of time you've had between needing sets of steroids? Background: I only started showing symptoms in March 2019, and I've been lucky that they are still pretty mild (mostly just occasional tingling and altered sensation, with some swallowing difficulty and increased constipation
What is the shortest amount of time you've had between needing sets of steroids? Background: I only started showing symptoms in March 2019, and I've been lucky that they are still pretty mild (mostly just occasional tingling and altered sensation, with some swallowing difficulty and increased constipation
FuzzyBoots
in
My MSAA Community
4 years ago
Finally got home late last night!
And I don't even know what happened! Yikes! Except that I had 3days of prednisone, then saw my neurologist. Then the next day he wants me in the hospital.😐 He even got my daughter on a conference call to make me! Ugh! What's up with that? Anyway, another 2 days of Solu-Medrol, and an MRI. To show
And I don't even know what happened! Yikes! Except that I had 3days of prednisone, then saw my neurologist. Then the next day he wants me in the hospital.😐 He even got my daughter on a conference call to make me! Ugh! What's up with that? Anyway, another 2 days of Solu-Medrol, and an MRI. To show
Jesmcd2
CommunityAmbassador
in
My MSAA Community
4 years ago
Experimence with treatment of pulmonary fibrosis?
Hi I am new her. I was diagnosed with Allergic Alveolitis in February and I am now being treated with prednisolone tablets 25 mg. In October the dose will be reduced to 14.5 mg under the condition that my desease is not progressing. So far the illness has been stabilised due to the prednisolone treatment
Hi I am new her. I was diagnosed with Allergic Alveolitis in February and I am now being treated with prednisolone tablets 25 mg. In October the dose will be reduced to 14.5 mg under the condition that my desease is not progressing. So far the illness has been stabilised due to the prednisolone treatment
Anemone1905
in
Lung Conditions Community Forum
4 years ago
Are you all hurting badly NOW???
I have not posted in a long time. I am 70 and have RA. I have been in pain so much these last few weeks because of 100% humidity and the barometer going up and down! Have you been hurting a lot lately?? My doctor called in Medrol dose Pk beside my other medication. What about you???
I have not posted in a long time. I am 70 and have RA. I have been in pain so much these last few weeks because of 100% humidity and the barometer going up and down! Have you been hurting a lot lately?? My doctor called in Medrol dose Pk beside my other medication. What about you???
Debb721
in
Cure Arthritis Community
4 years ago
Depo Medrone 120mg IM and Mood
Hi All I had an injection of Depo Medrone almost 4 weeks ago and initially felt great but this week I’ve noticed my mood it all over the place! I’m anxious, sad, tearful, panicy, obsessive about little things. I haven’t felt this way prior to the treatment and I haven’t had any significant changes in
Hi All I had an injection of Depo Medrone almost 4 weeks ago and initially felt great but this week I’ve noticed my mood it all over the place! I’m anxious, sad, tearful, panicy, obsessive about little things. I haven’t felt this way prior to the treatment and I haven’t had any significant changes in
Aggie-UK
in
LUPUS UK
4 years ago
Depo Medrone 120mg IM and mood
Hi All I had an injection of Depo Medrone almost 4 weeks ago to manage a minor flare up and initially felt great but this week my mood is all over the place! I feel anxious, sad, tearful, panicy, obsessive about little things. I haven’t felt this way prior to the injection and I haven’t had any significant
Hi All I had an injection of Depo Medrone almost 4 weeks ago to manage a minor flare up and initially felt great but this week my mood is all over the place! I feel anxious, sad, tearful, panicy, obsessive about little things. I haven’t felt this way prior to the injection and I haven’t had any significant
Aggie-UK
in
Sjogren's Support
4 years ago
IM steroid injection - when will it start working?
I recently got the IM depo medrone steroid injection into my left thigh to help with inflammation and pain for my possible RA. I would love to hear other people's experiences of it and the effects. It's been six days since I've had the injection, I've definitely noticed less stiffness and a bit less
I recently got the IM depo medrone steroid injection into my left thigh to help with inflammation and pain for my possible RA. I would love to hear other people's experiences of it and the effects. It's been six days since I've had the injection, I've definitely noticed less stiffness and a bit less
Geb777
in
NRAS
4 years ago
Depo provera injection.
I had my first depo provera injection on 5th August 2020. It went well but since then I have had a lot of pain around the injection area and it’s very swollen. Is this normal? The pain hasn’t eased at all. I can’t get comfortable. It’s annoying as I have stomach pain anyway doctors believe I have endometriosis
I had my first depo provera injection on 5th August 2020. It went well but since then I have had a lot of pain around the injection area and it’s very swollen. Is this normal? The pain hasn’t eased at all. I can’t get comfortable. It’s annoying as I have stomach pain anyway doctors believe I have endometriosis
Immy2000
in
FPA Contraception
4 years ago
A little sigh of relief ....
First of all, I'm so thankful for every one of you...I go to the 'almost ready to cave point' but all of your input kept me from accepting what I knew in my heart was wrong and made it really scary to go to bed tonight. I just got an email from the rheumatologist "who felt so unsettled he contacted the
First of all, I'm so thankful for every one of you...I go to the 'almost ready to cave point' but all of your input kept me from accepting what I knew in my heart was wrong and made it really scary to go to bed tonight. I just got an email from the rheumatologist "who felt so unsettled he contacted the
Grammy80
in
PMRGCAuk
4 years ago
Confused and angry... and scared...
I received an email from my rheumatologist this morning telling me that he does not believe the blurry vision is the result of GCA and [i]not to take the 20 mg the ophthalmologist told me to take and to take only 6mg per day...starting tomorrow because my labs were normal.[/i] That sounds familiar.
I received an email from my rheumatologist this morning telling me that he does not believe the blurry vision is the result of GCA and [i]not to take the 20 mg the ophthalmologist told me to take and to take only 6mg per day...starting tomorrow because my labs were normal.[/i] That sounds familiar.
Grammy80
in
PMRGCAuk
4 years ago
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