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Experiences with
Deep brain stimulation (DBS)
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Update
Hi all, first off thanks to all that replied to my "gabapentin" post. Just wanted to update you all, seen gp this morning and she's happy for me to come off the gabapentin. No pain relief mentioned as she is referring me to a organisation called "wellbeing". As for the spinal pain she thinks it maybe
Hi all, first off thanks to all that replied to my "gabapentin" post. Just wanted to update you all, seen gp this morning and she's happy for me to come off the gabapentin. No pain relief mentioned as she is referring me to a organisation called "wellbeing". As for the spinal pain she thinks it maybe
Hidden
in
Fibromyalgia Action UK
7 years ago
Diarrhea not sure why
Hi ive got Diarrhea for over a week now. When ever i eat something i run to toilte.im taking colofac its helped but my stools are still not firm. im begining to worry now
Hi ive got Diarrhea for over a week now. When ever i eat something i run to toilte.im taking colofac its helped but my stools are still not firm. im begining to worry now
tony678
in
IBS Network
7 years ago
Its emotional...
Ever since I had
DBS
back in 2006 my emotions appear to have become much more polarised .
Ever since I had
DBS
back in 2006 my emotions appear to have become much more polarised .
Bionicmatt
in
Cure Parkinson's
7 years ago
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Neuros and movement specialist
person has anxiety and or depression then standard meds can be given. 4) They can monitor the complications from the symptoms, blood pressure, irregular heart beat, joint pains and so on, constipation, etc. 5) They can speak to us as a fellow human beings and try to put our minds at ease. 6) Recommend
dbs
person has anxiety and or depression then standard meds can be given. 4) They can monitor the complications from the symptoms, blood pressure, irregular heart beat, joint pains and so on, constipation, etc. 5) They can speak to us as a fellow human beings and try to put our minds at ease. 6) Recommend
dbs
Ozie
in
Cure Parkinson's
7 years ago
Gabapentin and Yasmin
Hello, Has anyone been on both pills above and experienced Constipation? It's been a struggle to even go once a day and my stomach hurts. I started taking both pills around the same time. I've been like this for about nearly 4 weeks.
Hello, Has anyone been on both pills above and experienced Constipation? It's been a struggle to even go once a day and my stomach hurts. I started taking both pills around the same time. I've been like this for about nearly 4 weeks.
carlysky
in
Endometriosis UK
7 years ago
Speculum agonizing
Hello. I went today for my Mirena string check and when the nurse started to open the speculum I suddenly encountered extremely agonizing pain and she had to stop. Tried twice and the same thing happened. So i had to go away book a separate go appointment who did manage a manual check. Has anyone experienced
Hello. I went today for my Mirena string check and when the nurse started to open the speculum I suddenly encountered extremely agonizing pain and she had to stop. Tried twice and the same thing happened. So i had to go away book a separate go appointment who did manage a manual check. Has anyone experienced
Starry
in
Endometriosis UK
7 years ago
Any ideas?
Hi, having seen 3 different Gastroenterology Consultants over the last 14months....they keep leaving the present one has now decided on me taking a 'new' tablet.Linaclotide /Constella capsules. 'It may work, it may not'? So with Christmas in the way I waited til after. I'm already taking Movicol X 1
Hi, having seen 3 different Gastroenterology Consultants over the last 14months....they keep leaving the present one has now decided on me taking a 'new' tablet.Linaclotide /Constella capsules. 'It may work, it may not'? So with Christmas in the way I waited til after. I'm already taking Movicol X 1
Hobbies
in
IBS Network
7 years ago
DBS followed by stroke. Dr. doesnt want to turn on DBS.
Friend had
DBS
. Suffered stroke and loss of left side In rehab now. She has severe dyskinesia from Parkinson's drugs which is why she had the surgery. Anyone experience this?
Friend had
DBS
. Suffered stroke and loss of left side In rehab now. She has severe dyskinesia from Parkinson's drugs which is why she had the surgery. Anyone experience this?
sankay
in
Cure Parkinson's
7 years ago
Stroke following DBS surgery.
Dr. does not want to activate her
DBS
until she is finished with therapy. Has anyone ever experienced this? It is a "catch 22" and extremely frustrating.
Dr. does not want to activate her
DBS
until she is finished with therapy. Has anyone ever experienced this? It is a "catch 22" and extremely frustrating.
sankay
in
Cure Parkinson's
8 years ago
Im back
I dont know how many of u have researched
DBS
for parkinsons well this is like that with out the surgery. Bev will sit in a chair they will hook those things like when they check your heart up to her and he will be able to see what nearves are not working on a tv screen and they shock them.
I dont know how many of u have researched
DBS
for parkinsons well this is like that with out the surgery. Bev will sit in a chair they will hook those things like when they check your heart up to her and he will be able to see what nearves are not working on a tv screen and they shock them.
kryste
in
PSP Association
7 years ago
Celevac
Does anyone have any experience of Celevac for constipation? I need a bulk laxative and fibogel is no good for me. Normacol gives me cramps and so does linseed. Magnesium is horrible! I have bought some Celevac but am wary of using it.
Does anyone have any experience of Celevac for constipation? I need a bulk laxative and fibogel is no good for me. Normacol gives me cramps and so does linseed. Magnesium is horrible! I have bought some Celevac but am wary of using it.
binks
in
IBS Network
7 years ago
An interesting read on Botox Therapy from CurePSP. For those of you not on Facebook.
Dr. Brent Bluett Talks About Botox and Therapy For PSP Patients November 29, 2016 | By Lucas Metherall Categories: Research News Ask a Doctor: Dr. Brent Bluett on PSP by Sylvia Rupani-Smith brent-bluett-do-suit-jacket-ju6_2109Very few patients with a rare brain disease such as Progressive Supranuclear
Dr. Brent Bluett Talks About Botox and Therapy For PSP Patients November 29, 2016 | By Lucas Metherall Categories: Research News Ask a Doctor: Dr. Brent Bluett on PSP by Sylvia Rupani-Smith brent-bluett-do-suit-jacket-ju6_2109Very few patients with a rare brain disease such as Progressive Supranuclear
am2015
in
PSP Association
7 years ago
Deep brain stimulation research
Hi all - I've just been browsing through Pubmed and came across this study http://www.clinph-journal.com/article/S1388-2457(16)30523-5/abstract. I can't access the full article, only the abstract that states 'ppn deep brain stimulation has emerged as a potential treatment for balance disorders'. It
Hi all - I've just been browsing through Pubmed and came across this study http://www.clinph-journal.com/article/S1388-2457(16)30523-5/abstract. I can't access the full article, only the abstract that states 'ppn deep brain stimulation has emerged as a potential treatment for balance disorders'. It
sasmock
in
PSP Association
7 years ago
Time off work whilst having IVF?
Starting a knew job in the next couple of weeks just waiting for my
dbs
check to come back. Thanks in advance xx 😘
Starting a knew job in the next couple of weeks just waiting for my
dbs
check to come back. Thanks in advance xx 😘
Kimross1
in
Fertility Network UK
8 years ago
Focused ultrasound
DBS
? My neuro doesn't think
DBS
will be so good for me because my symptoms are mostly nonmotor. But I cannot walk without sinenet. And diskenesia is so bad.
DBS
? My neuro doesn't think
DBS
will be so good for me because my symptoms are mostly nonmotor. But I cannot walk without sinenet. And diskenesia is so bad.
michaela13
in
Cure Parkinson's
8 years ago
My experiments with supplements
I experimented almost everything came to my knowledge and mind including supplements except
DBS
and spent a lot of money for that almost all my savings. I did stem cells, Ayurveda, herbal medicine, energy therapy, Chinese medicine, acupuncture, Nilotinib and ext.
I experimented almost everything came to my knowledge and mind including supplements except
DBS
and spent a lot of money for that almost all my savings. I did stem cells, Ayurveda, herbal medicine, energy therapy, Chinese medicine, acupuncture, Nilotinib and ext.
jaberalhd
in
Cure Parkinson's
8 years ago
PD and DBS Surgery
Hello everyone! I have been diagnosed with PD for thirteen years (at age 33) and have undergone deep brain stimulation surgery. I would happy to share experieneces Reza
Hello everyone! I have been diagnosed with PD for thirteen years (at age 33) and have undergone deep brain stimulation surgery. I would happy to share experieneces Reza
Rezaazad2050
in
Cure Parkinson's
8 years ago
More work progress
Got my
DBS
back . Gave over my bank details . Got some form to fill out and bring in tomorrow . Should get a contract soon now that I have given my bank details the lady said . She also told me as in working for the county council they automatically money out of my monthly wage for a pension .
Got my
DBS
back . Gave over my bank details . Got some form to fill out and bring in tomorrow . Should get a contract soon now that I have given my bank details the lady said . She also told me as in working for the county council they automatically money out of my monthly wage for a pension .
LouLamb
in
LUPUS UK
8 years ago
First Day Completed
They didn't ask for my bank details or my
DBS
. I asked the teachers classroom who I'm in and she said they will probably do it Monday . I hope so . I learn how to do resuscitation . I was bit worried because I haven't got a lot of strength in my hands .
They didn't ask for my bank details or my
DBS
. I asked the teachers classroom who I'm in and she said they will probably do it Monday . I hope so . I learn how to do resuscitation . I was bit worried because I haven't got a lot of strength in my hands .
LouLamb
in
LUPUS UK
8 years ago
Advanced Parkinsons treatment
My present Neuro has ruled out prescribing any dopamine agonists and even
dbs
because in large part to my previous reaction to the much written about Cabaser. Has anyone had any similar experiences or recommendation.
My present Neuro has ruled out prescribing any dopamine agonists and even
dbs
because in large part to my previous reaction to the much written about Cabaser. Has anyone had any similar experiences or recommendation.
batwing
in
Cure Parkinson's
8 years ago
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