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What should I do about early onset cellulitis during Christmas when surgeries are closed?
I am a bit perplexed as to how to get my early onset cellulitis treated before it gets any worse. My left foot and ankle is very pink and I think something has got in below the surface of the skin from shaving my lower legs in the bath on Thursday but has taken until today to develop. The last time
I am a bit perplexed as to how to get my early onset cellulitis treated before it gets any worse. My left foot and ankle is very pink and I think something has got in below the surface of the skin from shaving my lower legs in the bath on Thursday but has taken until today to develop. The last time
DeadfootMo
in
LSN
6 years ago
EDS and cold weather
Hello! I’m new and wanted to ask about your experiences with EDS and cold weather, as well as sacroiliac joint dysfunction. I’m looking to chat about symptoms and discuss what has worked for you!
Hello! I’m new and wanted to ask about your experiences with EDS and cold weather, as well as sacroiliac joint dysfunction. I’m looking to chat about symptoms and discuss what has worked for you!
carleton
in
Ehlers-Danlos Support UK
6 years ago
Contraception? Endometriosis and hypermobility
Hiya, I wondered if anyone had any advice as to what contraception worked best for them if they suffer from both endometriosis and hypermobility. Endo is of course fuelled by estrogen but then hypermobility is fuelled by progresterone. While waiting for my surgery date I've been put on Cerelle, a
Hiya, I wondered if anyone had any advice as to what contraception worked best for them if they suffer from both endometriosis and hypermobility. Endo is of course fuelled by estrogen but then hypermobility is fuelled by progresterone. While waiting for my surgery date I've been put on Cerelle, a
jennt0506
in
Endometriosis UK
6 years ago
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EDS Dentist Recommendations (London..Herts..)
Hello, I have been having gum problems which could be EDS related or something else connected with Hypermobility disorders. Just wanted to ask if anyone could recommend a dentist or dental practice which has knowledge of EDS? Thanks!
Hello, I have been having gum problems which could be EDS related or something else connected with Hypermobility disorders. Just wanted to ask if anyone could recommend a dentist or dental practice which has knowledge of EDS? Thanks!
MontgomeryJ
in
Ehlers-Danlos Support UK
6 years ago
Seeking a Diagnosis (Cont...)
Hello, I have recently become aware that I might have EDS after seeing several consultants and connecting the dots. For example, no arthritis blood markers. I also have a comprehensive clinical features of Marfans/EDS but I am playing the normal waiting game to see a geneticist. I do have an appointment
Hello, I have recently become aware that I might have EDS after seeing several consultants and connecting the dots. For example, no arthritis blood markers. I also have a comprehensive clinical features of Marfans/EDS but I am playing the normal waiting game to see a geneticist. I do have an appointment
MontgomeryJ
in
Ehlers-Danlos Support UK
6 years ago
First Rheumatologist Appointment
Hi I am new to this. So I am 27 and have hyper mobility. Growing up I’ve had various ailments/ injuries etc but it hasn’t been till recent years that I’ve realised that they all could be linked to EDS. The list is long but to name a few: - full score on Beighton scale - unstable joints - joint
Hi I am new to this. So I am 27 and have hyper mobility. Growing up I’ve had various ailments/ injuries etc but it hasn’t been till recent years that I’ve realised that they all could be linked to EDS. The list is long but to name a few: - full score on Beighton scale - unstable joints - joint
Aqua9
in
Ehlers-Danlos Support UK
6 years ago
Answers at last
Just got back from seeing Dr Phillip Bull a private specialist in Hypermobility and EDS, he has diagnosed my son with Hypermobility EDS and POTS, given us both some great advice. For anyone who has been fobbed off by some Rheumatologists who have not got the skills in diagnosing EDS, it really is worth
Just got back from seeing Dr Phillip Bull a private specialist in Hypermobility and EDS, he has diagnosed my son with Hypermobility EDS and POTS, given us both some great advice. For anyone who has been fobbed off by some Rheumatologists who have not got the skills in diagnosing EDS, it really is worth
Anne2018
in
Ehlers-Danlos Support UK
6 years ago
Pregnancy and hip hyper mobility
Hi everyone Has anyone been pregnant and had this if there hip? X
Hi everyone Has anyone been pregnant and had this if there hip? X
Itsallinthehips
in
Ehlers-Danlos Support UK
6 years ago
Post Circumcision
Hi, Its been 8 days since ive had a circumcision and Ive noticed by the frenelum there is a little bit of bleeding, is this normal? Also would putting savlon on help with the healing process. What about salt baths? Thank you!
Hi, Its been 8 days since ive had a circumcision and Ive noticed by the frenelum there is a little bit of bleeding, is this normal? Also would putting savlon on help with the healing process. What about salt baths? Thank you!
dhyyxc
in
Men's Health Forum
6 years ago
Vascular EDS and Angina Bullosa Haemorrhagica
I have recently read that there is a connection between Angina bullosa haemorrhagica and vascular EDS. All I know so far is that I've been getting loads of ABH and I'm hypermobile in many joints, along with other EDS symptoms present. Does anyone have any information on this at all please? Thank you.
I have recently read that there is a connection between Angina bullosa haemorrhagica and vascular EDS. All I know so far is that I've been getting loads of ABH and I'm hypermobile in many joints, along with other EDS symptoms present. Does anyone have any information on this at all please? Thank you.
Saassii
in
Ehlers-Danlos Support UK
6 years ago
Diagnosis override and lack of awareness in NHS of EDS
I was diagnosed with hypermobility syndrome in 2014. I had an op on my knee in 2007. Broke my leg in 2010. Physio only look at my knee. Anyway I was doagnosed with fibro in May by another rheumatologist. The app went ok. When the letter came she dropped my diagnosis of hypermobility syndrome and
I was diagnosed with hypermobility syndrome in 2014. I had an op on my knee in 2007. Broke my leg in 2010. Physio only look at my knee. Anyway I was doagnosed with fibro in May by another rheumatologist. The app went ok. When the letter came she dropped my diagnosis of hypermobility syndrome and
angie610
in
Ehlers-Danlos Support UK
6 years ago
Cream for minor injection scars
I inject intramuscularly in my thigh and occasionally a puncture hole will develop a small scar which can take a week to heal. I inject once or twice day, so I want to stop any such scars building up. Is there a healing cream available? I use Savlon but it's really an antispetic and does not promote
I inject intramuscularly in my thigh and occasionally a puncture hole will develop a small scar which can take a week to heal. I inject once or twice day, so I want to stop any such scars building up. Is there a healing cream available? I use Savlon but it's really an antispetic and does not promote
Cetus
in
Pernicious Anaemia Society
6 years ago
Anyone else with other painful conditions?
I was diagnosed with EDS Hypermobility a few years ago. I have a partial subluxation in my neck, lordosis and generally wobbly joints. Only problem is, I've recently been told I likely have Rheumatic Fever. I'm waiting to see an infectious disease specialist and cardiologist. The thing is, I never
I was diagnosed with EDS Hypermobility a few years ago. I have a partial subluxation in my neck, lordosis and generally wobbly joints. Only problem is, I've recently been told I likely have Rheumatic Fever. I'm waiting to see an infectious disease specialist and cardiologist. The thing is, I never
lily82
in
Ehlers-Danlos Support UK
6 years ago
Help to find a nottingham rheumatologist with EDS interest
Hi there ,Im 24 and have been looking for a EDS specialist rheumatologist in Nottingham so that the type of my EDS can be fully determined . I was wondering if anyone has any advice on a specific Rheumatologist local to my area. I'm finding it hard to cope with daily life at this point in time my back
Hi there ,Im 24 and have been looking for a EDS specialist rheumatologist in Nottingham so that the type of my EDS can be fully determined . I was wondering if anyone has any advice on a specific Rheumatologist local to my area. I'm finding it hard to cope with daily life at this point in time my back
Daniellak
in
Ehlers-Danlos Support UK
6 years ago
Child with HEDS
My 13 year old daughter has EDS, very hypermobile, suffers from headaches, aches and pains, partial joint dislocations, food allergies, low blood pressure/dizzy spells (probably undiagnosed POTS). She also has long slender fingers (she is average height and and looks normal) bruises easily, stretchy
My 13 year old daughter has EDS, very hypermobile, suffers from headaches, aches and pains, partial joint dislocations, food allergies, low blood pressure/dizzy spells (probably undiagnosed POTS). She also has long slender fingers (she is average height and and looks normal) bruises easily, stretchy
bex68
in
Ehlers-Danlos Support UK
6 years ago
EDS now has lots of huge online communities, so why are drs and nurses still not spotting and understanding it?
I am on 3 Facebook forums for EDS sufferers (I like EDS UK best), plus Inspire.com and here. I am amazed at how it has grown in the last four years. But still, we are having to educate the doctors, nurses, midwives and physios we see every day. I just don't get it. I cannot post any of the really depressing
I am on 3 Facebook forums for EDS sufferers (I like EDS UK best), plus Inspire.com and here. I am amazed at how it has grown in the last four years. But still, we are having to educate the doctors, nurses, midwives and physios we see every day. I just don't get it. I cannot post any of the really depressing
Jay66
in
Ehlers-Danlos Support UK
6 years ago
Newly diagnosed with hypermobility
Hi im new to the group and was diagnosed with hypermobility this week. I am being tested for inflammation. I get horrible pain in my hips, knees, ankle, wrists and fingers. Abd my back often hurts. I also have IBS, POTS, sensitive to heat and cold, CFS and TMJ. My jaw dislocates and I subluxed my ankle
Hi im new to the group and was diagnosed with hypermobility this week. I am being tested for inflammation. I get horrible pain in my hips, knees, ankle, wrists and fingers. Abd my back often hurts. I also have IBS, POTS, sensitive to heat and cold, CFS and TMJ. My jaw dislocates and I subluxed my ankle
Kanmi
in
Ehlers-Danlos Support UK
6 years ago
Casualty Episode, Saturday night!
The conditions of fibromyalgia, EDS, POTS, hypermobility all featured on prime time TV!! 💥
The conditions of fibromyalgia, EDS, POTS, hypermobility all featured on prime time TV!! 💥
sing123sleep
in
Ehlers-Danlos Support UK
7 years ago
Hypermobility
I don't have any reflexes in my knees and ankles. I can't walk properly. Is that hypermobility?
I don't have any reflexes in my knees and ankles. I can't walk properly. Is that hypermobility?
Mistee71
in
Fibromyalgia Action UK
7 years ago
Daily routines
Take much longer now - morning, noon and night - to deal with all the ongoing issues related to chemo symptoms after 18 week taxol treatment finished a month ago... 🙄 I thought it might be helpful to post what they are. Many are from advice from
Take much longer now - morning, noon and night - to deal with all the ongoing issues related to chemo symptoms after 18 week taxol treatment finished a month ago... 🙄 I thought it might be helpful to post what they are. Many are from advice from
Janet235
in
My Ovacome
7 years ago
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