Experiences with

Daflon

Hi all. Here I am again. Last week, I forgot to update on the day I hit 10 weeks, so this week I'm back on schedule. Today is 11 weeks healed and it feels mad to think I only had my operation less than 3 months ago - it feels like a lot longer. So, where am I? Well, I'm feeling really good, all considered

Today I wanted to walk, I didn't get going early, wanted to shop too so went to shop . Stopped by a park that leads up onto the Downs on way back, walked up the hill, blue sky, white clouds, birds singing in the trees, no headphones, this is nice. Passed several dogs, some of whom came over to say hello

We thought Mum had dementia and the EDS (diagnosed) means she lives with pain and is unsteady. It just transpired that she has had a long term kidney infection and really low Potassium and has been hospitalised and put on a drip for this twice this week, its possible that this and not just the EDS has

I have suffered with Vitamin D Deficiency and Anaemia many times in the last ten years. Gastric problems have always been part of my chronic health experience even before I got the answer about why they could be happening was likely to be EDS. I have been suffering with IBS Constipation , difficulty

hi had mine done 8 days ago my problem is i have a very sore gland or were your wee come out i have a blister like thing their been putting savlon on it and piss goes everywere

Dear All, I have many Skin Creams/ Lotions/ Emollient but have recently started to use Savlon..... Marvellous! I can't 'say' for How Long, of course, but YIPPEE for the time being. I have another 'newer cream' Adex Gel, which my 'Dermy'. gave me- quite effective too. I don't know about anyone else but

Hello Everyone! Is there a support group for the US? I’ve been diagnosed with hyper mobility spectrum disorder and in July I see a geneticist for EDS testing. Thank you!

I have primary lymphoedema of the left leg and have recently had a bout of cellulitis brought on, I suspect, by infection getting in by cracked skin under my little toe. Any suggestions please as to prevention? I have full-length hosiery for the leg supplied through the clinic in St George’s hospital

Hello everyone I am new here but I’m pretty sure that I have a form of EDS. I am not hyper mobile but never tolerated anesthesia, have blue sclera, and recently started to have joint unstableness and I started a bruising easily. I think my skin is thinner, I do not heal quickly and I’ve also noticed

I commented on a post here last week about a lady getting caught up with some dog walkers, told her to smile be friendly with everyone. Today I totally failed to do so! The pavement just wasn't wide enough for two fat ladies, two toddlers, pushchairs and moi (a very novice runner). I decided to jog

Hi everyone I hope you’re all well I suffer from fibro and hyper mobility and all my joints are hugely affected. I am really struggling with pain management especially with my new job. My employer is not supportive or understanding and I am not sure how long I can bare the pain and lack of support

I’m just wondering if anyone else is in the same situation as me and has EDS and severe, uncontrolled asthma? Now I know that the two aren’t linked but I’m just curious. I have many other health issues that aren’t related to EDS and are very rare so I rarely find anyone to talk to that has similar

My toe has been red since Monday there is no discharge and no wound other than a scratch I called my local doctor and he says it was just inflammation but I’m terrified it’s Covid toe or infection or something worse (the white stuff is savlon antiseptic)

So I started to take daflon and bought a faktu suppository from the nearby drugstore. Been taking this daflon for the past 4 days now and my doctor advised me to take it for atleast a week. The suppository seem to be working as well because I can’t see the same bleeding for the past days now.

I was diagnosed two years ago with Ehlers Danlos, and just learned I have NALD—I rarely drink and have a relatively good diet. I asked this question to my local support group and around 1/4 of 20 responded they have it. EDS can affect any systems in multiple ways because connective tissue is throughout

Hi, I have just received my diagnosis of Hypermobile EDS with Marfanoid phenotype via a private consultation with Dr Mittal. I had previously been diagnosed by an NHS Rheumatologist with Joint Hypermobility 3 years ago but the Rheumy point blank refused to consider EDS as I "wasn't in a wheelchair",

Does anyone here have endometriosis along with Ehlers Danlos Syndrome? What treatments have you had and have they been beneficial?

So several weeks ago, I would say probably late Feb early March I had an itchy spot on my arm which I scratched. It was nothing but a nuisance spot for a couple of days until it developed in to a perfect circular patch. At first it was the size of a 10p to 50p coin but slowly started growing and expanding

Hi,l came on this site in 2017, only used it once. I have sjogrens and lupus. I am struggling with sjogrens. I wonder if anyone else has the following symptoms: choking, can’t get breath from nose and throat, very frightening. On the 6th. December I was struggling when we were at a dance and the people

Please can you tell me if you can have brain lesions with eds xx