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Recent diagnosis questions & concerns, please respond to any that you can
Ten questions/concerns, not necessarily in priority order: Prostate Cancer was diagnosed in 57 year-old, April 2024. Currently following active surveillance recommended by MD. The patient’s mother died of cancer at age 45 and the patient’s sister (she was MD) died at 58 of cancer. The patient’s only
Ten questions/concerns, not necessarily in priority order: Prostate Cancer was diagnosed in 57 year-old, April 2024. Currently following active surveillance recommended by MD. The patient’s mother died of cancer at age 45 and the patient’s sister (she was MD) died at 58 of cancer. The patient’s only
G6AS
in
Prostate Cancer Network
1 month ago
Introduction
Hello everyone, I am new to this site so let me introduce myself I live with my husband on the outskirts of Llandudno on the North Wales coast. I am very fortunate that both my children & grandchildren live locally. We have a 2 year old cavapoo who together with our 2 year old grand-twins provide
Hello everyone, I am new to this site so let me introduce myself I live with my husband on the outskirts of Llandudno on the North Wales coast. I am very fortunate that both my children & grandchildren live locally. We have a 2 year old cavapoo who together with our 2 year old grand-twins provide
Ildivolover
in
Scleroderma & Raynaud's UK (SRUK)
2 months ago
Anyone have withdrawal symptoms when dropping a treatment?
ER/PR positive HER2- Diagnosed 2019 primary breast cancer. IIIB chemo/infection/mastectomy radiation. 2021 - MBC bone Ibrance /Faslodex 2023- primary Lung Cancer/RT upper lobectomy March 2024-progression Orserdu. May 2024- major POD bones & liver May 2024- to begin Tredolvy.
ER/PR positive HER2- Diagnosed 2019 primary breast cancer. IIIB chemo/infection/mastectomy radiation. 2021 - MBC bone Ibrance /Faslodex 2023- primary Lung Cancer/RT upper lobectomy March 2024-progression Orserdu. May 2024- major POD bones & liver May 2024- to begin Tredolvy.
Elle713
in
SHARE Metastatic Breast Cancer
2 months ago
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Major Progression on Orserdu. Went from one spine met to multiple Mets and now liver. Has anyone had Tredlovy infusions?
HR/PR+HER- Chemo/Radiation/Mastectomy Ibrance/Faslodex/Orserdu
HR/PR+HER- Chemo/Radiation/Mastectomy Ibrance/Faslodex/Orserdu
Elle713
in
SHARE Metastatic Breast Cancer
2 months ago
Metastatic breast cancer and lung cancer
I had breast cancer diagnosed in 2007 along with unrelated lung cancer. Bilateral mastectomies, chemo and radiation then upper left lung removed. Started oral chemo on Afinitor and exemestane shortly thereafter. Have had gamma radiation times three for liver mets and currently have three new tumors in
I had breast cancer diagnosed in 2007 along with unrelated lung cancer. Bilateral mastectomies, chemo and radiation then upper left lung removed. Started oral chemo on Afinitor and exemestane shortly thereafter. Have had gamma radiation times three for liver mets and currently have three new tumors in
Oberammergaux2
in
SHARE Metastatic Breast Cancer
2 months ago
Inhalers
Hi, Three years ago I developed severe asthma which lead to me being hospitalised 4 times in 18 months and having to have I'v steroids and antibiotics subsequently I've been diagnosed with brocho malaria and adrenal insufficiency. My consultant put me on spiriva respimant, symbicort and Alvesco inhalers
Hi, Three years ago I developed severe asthma which lead to me being hospitalised 4 times in 18 months and having to have I'v steroids and antibiotics subsequently I've been diagnosed with brocho malaria and adrenal insufficiency. My consultant put me on spiriva respimant, symbicort and Alvesco inhalers
McMD
in
Asthma Community Forum
2 months ago
Flummoxed and in a Pickle 🙃🙂
Hello from Australia 👋 I hope you're all coping and doing as well as you can. Sorry to barge in from the other side of the world but I have an English based query. I have triple negative Inflammatory beast cancer and nearing completion of about a year and a half of chemo with a mastectomy and
Hello from Australia 👋 I hope you're all coping and doing as well as you can. Sorry to barge in from the other side of the world but I have an English based query. I have triple negative Inflammatory beast cancer and nearing completion of about a year and a half of chemo with a mastectomy and
Freckle1000
in
My Breast Cancer Community
2 months ago
mastectomy now tamoxifen
I’m 48 and just had a double mastectomy almost 4 weeks ago. My bc tumor was 1.2 cm and ER/PR positive and HER 2 negative with an onco type score of 21 and nymph nodes were negative. I was hoping I was done with treatment, but was told I need to take tamoxifen. I read a lot of horrible stories about
I’m 48 and just had a double mastectomy almost 4 weeks ago. My bc tumor was 1.2 cm and ER/PR positive and HER 2 negative with an onco type score of 21 and nymph nodes were negative. I was hoping I was done with treatment, but was told I need to take tamoxifen. I read a lot of horrible stories about
Lulu427
in
SHARE Breast Cancer Support
2 months ago
week9run2
I’ve had some sort of low-level virus going on for about a week now. General lethargy, and then last Monday I woke with that bruised achey feeling in the edge of my ear (like I’d slept on it curled in) which is still with me. Then Tuesday morning I thought I’d cricked my neck but it turned out to be
I’ve had some sort of low-level virus going on for about a week now. General lethargy, and then last Monday I woke with that bruised achey feeling in the edge of my ear (like I’d slept on it curled in) which is still with me. Then Tuesday morning I thought I’d cricked my neck but it turned out to be
limberlou
Graduate
in
Couch to 5K
3 months ago
Thank you for all the support and bye for now
Warning this is very long and contains some sensitive information that might be triggering for some. Hello lovely people, hope you are all coping ok and having a comfortable day. I have been quite active on here for a few months telling my story of living with endo since I was very
Warning this is very long and contains some sensitive information that might be triggering for some. Hello lovely people, hope you are all coping ok and having a comfortable day. I have been quite active on here for a few months telling my story of living with endo since I was very
Poppyg16
in
Endometriosis UK
3 months ago
Wee a bit
seizure then Testical Cancer which is in remission then Bladder Cancer which was under control but had occasional check to ensure it hadn’t returned but the last check not only found Bladder Cancer has returned but they also found Prostate Cancer so I’ve recently had major surgery which is a Surgical
Cystectomy
seizure then Testical Cancer which is in remission then Bladder Cancer which was under control but had occasional check to ensure it hadn’t returned but the last check not only found Bladder Cancer has returned but they also found Prostate Cancer so I’ve recently had major surgery which is a Surgical
Cystectomy
Clarence2
in
Anxiety and Depression Support
1 year ago
Hi! I'm new and excited to meet others and learn about your journey
Good afternoon. I'm new to the group. I already posted an item, but thought I should introduce myself. I was diagnosed with Stage 1 breast cancer in 2010. Had a mastectomy. Went on tamoxifen for 2 years, then quit because it made me feel miserable. No chemo. In 2022, I was once again diagnosed
Good afternoon. I'm new to the group. I already posted an item, but thought I should introduce myself. I was diagnosed with Stage 1 breast cancer in 2010. Had a mastectomy. Went on tamoxifen for 2 years, then quit because it made me feel miserable. No chemo. In 2022, I was once again diagnosed
Sueforshare
in
SHARE Metastatic Breast Cancer
4 months ago
Running bra
So, this is a bit niche but does anyone have any advice/sources for post mastectomy bras for running. A bit of background... My surgery was over 10 years ago I have tried various sports bras since but the only ones I have had and been happy with are cheap decathlon ones which clip at the back to a racer
So, this is a bit niche but does anyone have any advice/sources for post mastectomy bras for running. A bit of background... My surgery was over 10 years ago I have tried various sports bras since but the only ones I have had and been happy with are cheap decathlon ones which clip at the back to a racer
Emm8
Graduate10
in
Bridge to 10K
4 months ago
My current struggle, anxiety
This isn’t strictly related to PP but in my lifelong saga with depression, anxiety, PD, and PP, I do still live with anxiety. It’s been bad lately. I’m also a 13 year breast cancer survivor and after mastectomy in 2010 I made the mistake of getting reconstruction with a breast implant. I won’t go
This isn’t strictly related to PP but in my lifelong saga with depression, anxiety, PD, and PP, I do still live with anxiety. It’s been bad lately. I’m also a 13 year breast cancer survivor and after mastectomy in 2010 I made the mistake of getting reconstruction with a breast implant. I won’t go
Survivedwithcolor
in
Action on Postpartum Psychosis
5 months ago
Prominent pathologist at Johns Hopkins on leave, facing bullying claims, WaPo, by Steve Thompson & Katie Shepherd, 10/22/23
Looks to be another case of professional success breeding professional arrogance and familial preference. Seems to be a lot of that going around these days - in all sectors of society. BTW, as a patient, my fav reader comment to the article is: "tell someone that they make a nice anecdote". * * *
Looks to be another case of professional success breeding professional arrogance and familial preference. Seems to be a lot of that going around these days - in all sectors of society. BTW, as a patient, my fav reader comment to the article is: "tell someone that they make a nice anecdote". * * *
CaptnMojoe
in
Fight Prostate Cancer
9 months ago
Had my lap today.
My bilateral
cystectomy
went really well. I had three rods put in and my ovarian cysts were pulled out through my belly button (lol ewww). Had endometrial ablation and mirena. Turns out I was absolutely riddled with endo but strangely my bowel lesions were minor.
My bilateral
cystectomy
went really well. I had three rods put in and my ovarian cysts were pulled out through my belly button (lol ewww). Had endometrial ablation and mirena. Turns out I was absolutely riddled with endo but strangely my bowel lesions were minor.
NikkiJR
in
Endometriosis UK
1 year ago
Verzenio Monotherapy
I'm wondering if anyone on here is on Verzenio monotherapy. That is just Verzenio,not in combo with anything. I take 200mg twice daily. I began this just over a month ago and wondering if anyone has been on this protocol and seen it help. To give a background. I was diagnosed first 27 years ago. Stage
I'm wondering if anyone on here is on Verzenio monotherapy. That is just Verzenio,not in combo with anything. I take 200mg twice daily. I began this just over a month ago and wondering if anyone has been on this protocol and seen it help. To give a background. I was diagnosed first 27 years ago. Stage
caw517
in
SHARE Metastatic Breast Cancer
6 months ago
Mini maze update.
Apologies I know I promised to post updates and haven't. I had my mini maze surgery back in September with the wonderful Mr Hunter on the NHS. I've been in NSR ever since which is amazing as I had moved to persistant Afib and I felt pretty awful all the time before surgery. I am soooo grateful to Mr
Apologies I know I promised to post updates and haven't. I had my mini maze surgery back in September with the wonderful Mr Hunter on the NHS. I've been in NSR ever since which is amazing as I had moved to persistant Afib and I felt pretty awful all the time before surgery. I am soooo grateful to Mr
waveylines
in
Atrial Fibrillation Support
6 months ago
Diep Flap Procedure Question
Hi, I'm a breast cancer survivor and I had a double mastectomy. It is planned that I'm going to have the Diep flap procedure and I was wondering if anyone could advise me on how weight gain and loss affect the body after this procedure? Thanks
Hi, I'm a breast cancer survivor and I had a double mastectomy. It is planned that I'm going to have the Diep flap procedure and I was wondering if anyone could advise me on how weight gain and loss affect the body after this procedure? Thanks
Kerryellen
in
SHARE Breast Cancer Support
6 months ago
Newly diagnosed Stage 4
hello I’m new here I’m very happy to be there. I read a lot of stories about people with Metastase breast cancer. Thank you so much you give me a lot of hope. Thanks again I’m 33, Diagnosed in 2022 stage 3 DIC, 5/19 axillary lymph node involved, ER+, HER -. I did 5months chemo, double mastectomy,
hello I’m new here I’m very happy to be there. I read a lot of stories about people with Metastase breast cancer. Thank you so much you give me a lot of hope. Thanks again I’m 33, Diagnosed in 2022 stage 3 DIC, 5/19 axillary lymph node involved, ER+, HER -. I did 5months chemo, double mastectomy,
life2990
in
SHARE Metastatic Breast Cancer
6 months ago
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