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Experiences with
Cyclophosphamide
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Carry on CLLERS go dating...With Bethan and Nic!
Hi everyone! This site has been an amazing resource for us this year; a place of expert information; a comforting hug when worried ; an agony aunt off load page as well as a chance to meet new friends! @Bellabee and I have had a little sisterhood on line relationship going on where we have kept
Hi everyone! This site has been an amazing resource for us this year; a place of expert information; a comforting hug when worried ; an agony aunt off load page as well as a chance to meet new friends! @Bellabee and I have had a little sisterhood on line relationship going on where we have kept
Bethan49
in
CLL Support
8 years ago
I rang that bell loud and clear ... Then breathed. FCR over!
A week ago today I dressed up in my lovely blue dress and new polka dress shoes and went for my final day trip to the Phoenix Unit Sunderland for a bit of Fcr. The chair was comfortable and the nurse warm and reassuring...I was on an unatural high! Very excitable ! I told everyone it was my last
A week ago today I dressed up in my lovely blue dress and new polka dress shoes and went for my final day trip to the Phoenix Unit Sunderland for a bit of Fcr. The chair was comfortable and the nurse warm and reassuring...I was on an unatural high! Very excitable ! I told everyone it was my last
Bethan49
in
CLL Support
8 years ago
Painful scalp during chemo
I have now had 4 cycles of FCR and although my hair is thinning a lot (fortunately I had very thick hair to start with) , I haven't actually lost it. However, I have very painful patches on my scalp & wondered if anyone has any remedies for this.
I have now had 4 cycles of FCR and although my hair is thinning a lot (fortunately I had very thick hair to start with) , I haven't actually lost it. However, I have very painful patches on my scalp & wondered if anyone has any remedies for this.
Grannajan
in
CLL Support
8 years ago
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"Reasonable" time off work
Hi guys its been a while since i popped in so i thought i would just say hi to everyone & because its now December - Merry Christmas! I had FCR a while back and other than normal fatigue i have a pretty healthy life and good remission. I work full time and my job is quite demanding as im in management
Hi guys its been a while since i popped in so i thought i would just say hi to everyone & because its now December - Merry Christmas! I had FCR a while back and other than normal fatigue i have a pretty healthy life and good remission. I work full time and my job is quite demanding as im in management
grizzlebear
in
CLL Support
8 years ago
Disappointing day...
As you may know, my husband went through 6 treatments FCR ending December 2015 after 4 1/2 years W&W. Came through it like a champ, had BMB late August this year. Got the news that the results couldn't look better from his CLL specialist and then about 6 weeks ago felt a lump in his neck again after
As you may know, my husband went through 6 treatments FCR ending December 2015 after 4 1/2 years W&W. Came through it like a champ, had BMB late August this year. Got the news that the results couldn't look better from his CLL specialist and then about 6 weeks ago felt a lump in his neck again after
jules_c
in
CLL Support
8 years ago
Cyclophosphamide
My consultant says it may take up to 6 Months to feel an improvement and if not then we can try
cyclophosphamide
treatment. Has anyone had any experience of this? I have systemic scleroderma and lung fibrosis and will try anything to feel better and back on track!
My consultant says it may take up to 6 Months to feel an improvement and if not then we can try
cyclophosphamide
treatment. Has anyone had any experience of this? I have systemic scleroderma and lung fibrosis and will try anything to feel better and back on track!
Jennifer1950
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
Hi everyone I'm new here I need your help
After asking for a blood test After several visits to my GP over a period of 3 months with varying symptoms blocked ears , cough , eye problems, fatigue finally asking for the blood test I was treated with prednisone ,Plasma exchange and
Cyclophosphamide
to say I was frightened is an under statement
After asking for a blood test After several visits to my GP over a period of 3 months with varying symptoms blocked ears , cough , eye problems, fatigue finally asking for the blood test I was treated with prednisone ,Plasma exchange and
Cyclophosphamide
to say I was frightened is an under statement
102637
in
Vasculitis UK
8 years ago
Cyclophosphamide The Good and Bad
I was on the
Cyclophosphamide
for 10yrs and the growth stopped in all areas and vessels have been rebuilt. He told me of the side effects of the
Cyclophosphamide
medication and they seem to have all happened.
I was on the
Cyclophosphamide
for 10yrs and the growth stopped in all areas and vessels have been rebuilt. He told me of the side effects of the
Cyclophosphamide
medication and they seem to have all happened.
phil60
in
American Cancer Survivors
8 years ago
Cyclophosphamide Side Effects Good and Bad
I was on the
Cyclophosphamide
for 10yrs and the growth stopped in all areas and vessels have been rebuilt. He told me of the side effects of the
Cyclophosphamide
medication and they seem to have all happened.
I was on the
Cyclophosphamide
for 10yrs and the growth stopped in all areas and vessels have been rebuilt. He told me of the side effects of the
Cyclophosphamide
medication and they seem to have all happened.
phil60
in
Vasculitis UK
8 years ago
Just had staging scan after cycle 3 of FCR
I was a little disappointed to be told yesterday, following a staging scan, that I would benefit from having the planned 6 FCR cycles event though my enlarged lymph nodes are more than 60% gone after 3 cycles. However, I do understand that this will hopefully put me into a longer remission. My husband
I was a little disappointed to be told yesterday, following a staging scan, that I would benefit from having the planned 6 FCR cycles event though my enlarged lymph nodes are more than 60% gone after 3 cycles. However, I do understand that this will hopefully put me into a longer remission. My husband
Grannajan
in
CLL Support
8 years ago
The end is in sight but I'm a blubbering wreck!
Hi guys! I am now a week away from round 6 FCR. It's been a journey and I have a great sense of wanting to be home now and in my own life again. However I keep breaking down and crying for no reason ... I think it's the relief that it's nearly done... That I've done it.. I've weathered the storm .
Hi guys! I am now a week away from round 6 FCR. It's been a journey and I have a great sense of wanting to be home now and in my own life again. However I keep breaking down and crying for no reason ... I think it's the relief that it's nearly done... That I've done it.. I've weathered the storm .
Bethan49
in
CLL Support
8 years ago
FCR and nausea
Hello fellow CLLERS, I have just finished round 2 of FCR. First round I had horrendous nausea so bad I couldn't sleep for days. This round they gave me Emend but the unfortunate side effect was severe constipation. I ended up extremely distressed and having to have two enemas and I was still nauseous
Hello fellow CLLERS, I have just finished round 2 of FCR. First round I had horrendous nausea so bad I couldn't sleep for days. This round they gave me Emend but the unfortunate side effect was severe constipation. I ended up extremely distressed and having to have two enemas and I was still nauseous
Kenn123
in
CLL Support
8 years ago
On husband's behalf
Will the
cyclophosphamide
bring the relief that he's desperate for? Sorry for rambling on but it's been very stressful for us both.
Will the
cyclophosphamide
bring the relief that he's desperate for? Sorry for rambling on but it's been very stressful for us both.
vee21
in
Vasculitis UK
8 years ago
Trying to make a difference
I was given
Cyclophosphamide
, a type of chemotherapy. It took me a further 4 weeks to get to the stage where I was now responding to some treatments, able to stay off of ventilation and to work on being somewhat mobile.
I was given
Cyclophosphamide
, a type of chemotherapy. It took me a further 4 weeks to get to the stage where I was now responding to some treatments, able to stay off of ventilation and to work on being somewhat mobile.
Neildougherty
in
Vasculitis UK
8 years ago
10 years post diagnosis, on a trial, it's working
Cyclophosphamide
and nintenib daily pills. The nintenib could be a placebo but given my symptoms(non itchy rash) think l may be on the real thing. And first results after 2 cycles, CA125 halved, which is good. So onwards eh ladies! Have a good day, Merylx
Cyclophosphamide
and nintenib daily pills. The nintenib could be a placebo but given my symptoms(non itchy rash) think l may be on the real thing. And first results after 2 cycles, CA125 halved, which is good. So onwards eh ladies! Have a good day, Merylx
Meryl1
in
My Ovacome
8 years ago
Dad Microscopic Polyangiitis
Hi Everyone Dad has just finished his sixth course of
Cyclophosphamide
and has been told he will now have to take Azathioprine for at least 2 years. He only has kidney involvement. I was wondering whether anyone can tell me whether the Azathioprine has an affect on quality of life.
Hi Everyone Dad has just finished his sixth course of
Cyclophosphamide
and has been told he will now have to take Azathioprine for at least 2 years. He only has kidney involvement. I was wondering whether anyone can tell me whether the Azathioprine has an affect on quality of life.
Hidden
in
Vasculitis UK
8 years ago
Question about needing bone marrow biopsy after treatment
I've just completed 5 chemo rounds of FCR. My hematologist, when I asked him about needing a biopsy to check the effectiveness of treatment, said basically that a) my counts all looked right where they'd hoped they would be, and b) how would having more specific information from a biopsy help? His point
I've just completed 5 chemo rounds of FCR. My hematologist, when I asked him about needing a biopsy to check the effectiveness of treatment, said basically that a) my counts all looked right where they'd hoped they would be, and b) how would having more specific information from a biopsy help? His point
brian_in_Seattle
in
CLL Support
8 years ago
FCR round 1
Just an update on my first treatment. I was extremely ill with nausea during round 1 but 14 days on I'm feeling better than I have in years. Nodes are down and I feel lighter and brighter. I don't want to frighten anyone waiting to start FCR so just want to let you know how well I'm doing now. I have
Just an update on my first treatment. I was extremely ill with nausea during round 1 but 14 days on I'm feeling better than I have in years. Nodes are down and I feel lighter and brighter. I don't want to frighten anyone waiting to start FCR so just want to let you know how well I'm doing now. I have
Kenn123
in
CLL Support
8 years ago
About me - as at September 2016
Apart from intial minor side-effects of the
cyclophosphamide
and azapriothine I have suffered no symptoms and the kidney damage has stabilised. As I am retired, attending clinic is not a problem and is only short journey away from my home in north London.
Apart from intial minor side-effects of the
cyclophosphamide
and azapriothine I have suffered no symptoms and the kidney damage has stabilised. As I am retired, attending clinic is not a problem and is only short journey away from my home in north London.
jgold
in
Vasculitis UK
8 years ago
FCR 6th Cycle and side effects ?
I have just had my 5th FCR treatment and immediately before this my consultant suggested this would be my last instead of going for a sixth. When I next see him in 3 weeks time he said I will then have another BMB and CT scan to determine if the treatment has been successful. I am 63 years old and have
I have just had my 5th FCR treatment and immediately before this my consultant suggested this would be my last instead of going for a sixth. When I next see him in 3 weeks time he said I will then have another BMB and CT scan to determine if the treatment has been successful. I am 63 years old and have
Penkman
in
CLL Support
8 years ago
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