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Experiences with
Cyclophosphamide
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Bendamustine vs FCR
My consultant is discussing treatment options with me. Been in W and W for almost 6 years but now my ALC is over145 and my haemaglobin is drifting down below 120. He is suggesting that Bendamustine with Rituximab will be a better option for me than FCR because of some particular presentation of my condition
My consultant is discussing treatment options with me. Been in W and W for almost 6 years but now my ALC is over145 and my haemaglobin is drifting down below 120. He is suggesting that Bendamustine with Rituximab will be a better option for me than FCR because of some particular presentation of my condition
Clovelly
in
CLL Support
7 years ago
FCR Cycle 4 (For CLL) - Itchy Rash
Hello all CLL enthusiasts. I have just finished cycle 4 of my 6 cycle FCR treatment after being on 8-9 years W&W. I am on the FLAIR trial, but got randomly sorted into the current treatment. In hindsight I am not too disappointed as FCR is the current gold standard treatment, it hasn't been too bad to
Hello all CLL enthusiasts. I have just finished cycle 4 of my 6 cycle FCR treatment after being on 8-9 years W&W. I am on the FLAIR trial, but got randomly sorted into the current treatment. In hindsight I am not too disappointed as FCR is the current gold standard treatment, it hasn't been too bad to
Rich316
in
CLL Support
7 years ago
Feeling low -Is it the time of year??
Hello all After feeling quite smug that I had retained a positive outlook I am now in the doldrums...........I'm due to have 5th chemo in second line next Thursday (22nd) and I know that I will be feeling rubbish over the Christmas period - this chemo (Carbo/
Cyclophosphamide
+ Avastin) is knocking me
Hello all After feeling quite smug that I had retained a positive outlook I am now in the doldrums...........I'm due to have 5th chemo in second line next Thursday (22nd) and I know that I will be feeling rubbish over the Christmas period - this chemo (Carbo/
Cyclophosphamide
+ Avastin) is knocking me
Hidden
in
OvaCare
8 years ago
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IVIG Infusions
Hi, I am four years post FCR and have been suffering with lingering coughs following winter colds. At the end of last year i developed pneumonia following a cold in November. My hematologist has decided that I would benefit from IVIG infusions during the winter months, as he is worried I could damage
Hi, I am four years post FCR and have been suffering with lingering coughs following winter colds. At the end of last year i developed pneumonia following a cold in November. My hematologist has decided that I would benefit from IVIG infusions during the winter months, as he is worried I could damage
Colnegirl
in
CLL Support
7 years ago
Fitness during and after FCR treatment
Hi All, I hope you are 'well'. This is my first post. I was diagnosed with CLL in 2011 aged 44yrs. Have considered myself very fit enjoying long hikes and swimming. In June 2016 I did a 5k charity open water swim in 90minutes. I now find myself, next week, requiring a 6 x 1month treatment with FCR. Can
Hi All, I hope you are 'well'. This is my first post. I was diagnosed with CLL in 2011 aged 44yrs. Have considered myself very fit enjoying long hikes and swimming. In June 2016 I did a 5k charity open water swim in 90minutes. I now find myself, next week, requiring a 6 x 1month treatment with FCR. Can
rsw147
in
CLL Support
7 years ago
Daughter of Newly Diagnosed CLL Patient - 3 Weeks Until Chemotherapy - Any information greatly appreciated!
Brand new to this forum, not a patient myself. My father was diagnosed this month and is already scheduled for treatment to begin in 4 weeks. Seems that many of you had lengthy W&W periods, but 5 years passed during which my father went without even visiting his GP. This was discovered this month, with
Brand new to this forum, not a patient myself. My father was diagnosed this month and is already scheduled for treatment to begin in 4 weeks. Seems that many of you had lengthy W&W periods, but 5 years passed during which my father went without even visiting his GP. This was discovered this month, with
LaurenM427
in
CLL Support
8 years ago
Atrial fibrillation on Imbruvica
Just had surgery for a hernia, stopped Imbruvica for a week before, holding off for another week before re starting. Really feel that advice to do so was good, healing is impaired with this medication. During routine pre opereative evaluation i was found to have premature Atrial contractions(PAC). and
Just had surgery for a hernia, stopped Imbruvica for a week before, holding off for another week before re starting. Really feel that advice to do so was good, healing is impaired with this medication. During routine pre opereative evaluation i was found to have premature Atrial contractions(PAC). and
Lenny123
in
CLL Support
8 years ago
IBRUTINIB - for 21 months, now stopped
It's been a year or so since I last posted about my Ibrutinib progress. Here is my latest situation. After FCR failure, I was put on Ibrutinib. This did its work and I was on the miracle drug for 21 months. Then suddenly my kidney function deteriorated dramatically and my blood calcium level became
It's been a year or so since I last posted about my Ibrutinib progress. Here is my latest situation. After FCR failure, I was put on Ibrutinib. This did its work and I was on the miracle drug for 21 months. Then suddenly my kidney function deteriorated dramatically and my blood calcium level became
Haileybury
in
CLL Support
8 years ago
After Ibrutinib failure, lymphocytes up again. Maybe another trial with Idealisib
Now 8 months since I had to stop the FLAIR trial of Ibrutinib and Rituximab due to side effects (severe and debilitating muscle and joint pain) I have been pretty well with bloods within normal limits. Now, sigh, the lymphocyte count is up again and the concern is how quickly this will increase. It
Now 8 months since I had to stop the FLAIR trial of Ibrutinib and Rituximab due to side effects (severe and debilitating muscle and joint pain) I have been pretty well with bloods within normal limits. Now, sigh, the lymphocyte count is up again and the concern is how quickly this will increase. It
romarin
in
CLL Support
8 years ago
11q CLL FCR hope
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5111525/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5111525/
Hidden
in
CLL Support
8 years ago
11q hope
11q (16%) unmutated young and fit started FCR
11q (16%) unmutated young and fit started FCR
Hidden
in
CLL Support
8 years ago
Wegener's granulomatous (vasculitis.)
My first treatment was primarily
cyclophosphamide
. Sadly I had a bad reaction to it in that it seemed to stop my body producing blood. I nearly died and had to have emergency transfusion. They switched my medication to no avail to prednisolone and azathioprine. I was on that for 5 to 6 years.
My first treatment was primarily
cyclophosphamide
. Sadly I had a bad reaction to it in that it seemed to stop my body producing blood. I nearly died and had to have emergency transfusion. They switched my medication to no avail to prednisolone and azathioprine. I was on that for 5 to 6 years.
shennie
in
Vasculitis UK
8 years ago
Advice please
I was diagnosed with lupus nephritis in Jan 2015, I was treated with
cyclophosphamide
, mycrophenlate but stopped myclo due to side effects. I was taken off all meds in Dec 2015 but continued with steriods.
I was diagnosed with lupus nephritis in Jan 2015, I was treated with
cyclophosphamide
, mycrophenlate but stopped myclo due to side effects. I was taken off all meds in Dec 2015 but continued with steriods.
ajanjua
in
LUPUS UK
8 years ago
How remission is decided...
The nutcase in me is rearing her ugly head again! I saw my consultant last week, 2 weeks after completing 6 rounds of FCR. He is delighted with the scan results post round 4 and has said they are as near to normal as they could be. He is repeating the ct scan in Feb after I have recovered from the chrmo
The nutcase in me is rearing her ugly head again! I saw my consultant last week, 2 weeks after completing 6 rounds of FCR. He is delighted with the scan results post round 4 and has said they are as near to normal as they could be. He is repeating the ct scan in Feb after I have recovered from the chrmo
Bethan49
in
CLL Support
8 years ago
MRD Negative in the Bone Marrow - clinical trial update
Hi all just a quick update on me - I'm in europe starting cycle 13 of venetoclax on my ven plus obinutuzimab phase1b trial at Barts for relapsed and refractory patients. Still commuting every 3 months from Australja for my one day Appt and to collect my Venetoclax but just found out my bone marrow results
Hi all just a quick update on me - I'm in europe starting cycle 13 of venetoclax on my ven plus obinutuzimab phase1b trial at Barts for relapsed and refractory patients. Still commuting every 3 months from Australja for my one day Appt and to collect my Venetoclax but just found out my bone marrow results
Debinoz
in
CLL Support
8 years ago
Molecular remission after 6 rounds of FCR
Glad to report that after finishing 6 rounds of F C R and waiting 6 weeks to have bone marrow tested and CT scans done, I have been told I am in molecular remission for my CLL.. Happy days are here again. Keep a positive attitude and G d willing I live many more years
Glad to report that after finishing 6 rounds of F C R and waiting 6 weeks to have bone marrow tested and CT scans done, I have been told I am in molecular remission for my CLL.. Happy days are here again. Keep a positive attitude and G d willing I live many more years
ucallihaul
in
CLL Support
8 years ago
Coming off prednisilone
Cyclophosphamide
, just finished number 19. Have had to keep reverting back to
cyclophosphamide
as other meds didn't hold me. Have had a go with Ritixumab. Azathioprine upset my liver, had Mycophenalate but as steroids were reduced it failed too.
Cyclophosphamide
, just finished number 19. Have had to keep reverting back to
cyclophosphamide
as other meds didn't hold me. Have had a go with Ritixumab. Azathioprine upset my liver, had Mycophenalate but as steroids were reduced it failed too.
cambs13
in
Vasculitis UK
8 years ago
FCR/UNmutated IGVH
Any unmutated IGVH fellow CLLers out there ever do FCR as frontline? I ask please for responses to this direct question...not commentary on the topic in general. Thanks!
Any unmutated IGVH fellow CLLers out there ever do FCR as frontline? I ask please for responses to this direct question...not commentary on the topic in general. Thanks!
YjbCLL
in
CLL Support
8 years ago
Foods/Supplements-Vitamins: Medicinal Fungi - Turkey Tail (Coriolus versicolor)
It also counteracts the depressive effect of
cyclophosphamide
on white blood cell count, interleukin-2 production and delayed-type hypersensitivity reaction. Its antiproliferative activity against tumor cell lines and in vivo antitumor activity have been demonstrated." [7b] (2000 - U.S.)
It also counteracts the depressive effect of
cyclophosphamide
on white blood cell count, interleukin-2 production and delayed-type hypersensitivity reaction. Its antiproliferative activity against tumor cell lines and in vivo antitumor activity have been demonstrated." [7b] (2000 - U.S.)
pjoshea13
in
Advanced Prostate Cancer
8 years ago
Take what?
And I was councelled on possible use of
cyclophosphamide
. And a new journey began for me.
And I was councelled on possible use of
cyclophosphamide
. And a new journey began for me.
Hidden
in
PCOS UK (Verity)
8 years ago
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