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Root cause of autoimmune B12 def
Hello- I was just diagnosed with PA and was prescribed injections (cyanocobalamin unfortunately). This was from a hematology referral for low white blood cells. That turned out to be ok, but the doc noticed my B12 was "low" at 310. I was already supplementing B12 so she just said keep doing that.
Hello- I was just diagnosed with PA and was prescribed injections (cyanocobalamin unfortunately). This was from a hematology referral for low white blood cells. That turned out to be ok, but the doc noticed my B12 was "low" at 310. I was already supplementing B12 so she just said keep doing that.
mchimes
in
Pernicious Anaemia Society
8 months ago
Generic Link?
I have historically been diagnosed with low B12 and now two of my children have been diagnosed with my son starting injections in new year. Is anyone aware of a genetic component to this condition? Thanks.
I have historically been diagnosed with low B12 and now two of my children have been diagnosed with my son starting injections in new year. Is anyone aware of a genetic component to this condition? Thanks.
EliTottie
in
Pernicious Anaemia Society
8 months ago
Does The Thyroid Affect Potassium Levels?
Hi! A bit of a random question but I’ve recently had some bloods taken by my GP surgery and my potassium levels have come back a little low (3.2 range 3.5-5.3) My TSH is 3.06 (range 0.27-4.20), which I think is a little too high although in range, so it got me thinking if there is a link at all between
Hi! A bit of a random question but I’ve recently had some bloods taken by my GP surgery and my potassium levels have come back a little low (3.2 range 3.5-5.3) My TSH is 3.06 (range 0.27-4.20), which I think is a little too high although in range, so it got me thinking if there is a link at all between
Hidden
in
Thyroid UK
8 months ago
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Vit E, B 12, CoQ10?
Hi there, has anyone got or knows someone that has ataxia caused by deficiencies of:Vitamin E Vitamin B12 Or CoQ10 I have often seen these mentioned on the Internet but have never actually known anyone whose cerebeller ataxia is caused by any of them. Or maybe another supplement essential to the body
Hi there, has anyone got or knows someone that has ataxia caused by deficiencies of:Vitamin E Vitamin B12 Or CoQ10 I have often seen these mentioned on the Internet but have never actually known anyone whose cerebeller ataxia is caused by any of them. Or maybe another supplement essential to the body
penelope2
in
Ataxia UK
8 months ago
Blood Test Results.
Just a quick question. I had my monthly B12 injection two days before having a blood test. Could this make my b12 levels abnormally high? TIA
Just a quick question. I had my monthly B12 injection two days before having a blood test. Could this make my b12 levels abnormally high? TIA
Clare_oxo
in
Pernicious Anaemia Society
8 months ago
How to wean off omeprazole
I’ve just had some blood tests done prior to some surgery and the results show there may be a problem with vitamin B12 levels. Hmm, I take 20mg omeprazole daily, in capsule form. Anyone any idea of the best way to come off this? I believe I’ll have to gradually wean off it?
I’ve just had some blood tests done prior to some surgery and the results show there may be a problem with vitamin B12 levels. Hmm, I take 20mg omeprazole daily, in capsule form. Anyone any idea of the best way to come off this? I believe I’ll have to gradually wean off it?
SuziElley
in
Atrial Fibrillation Support
8 months ago
Loading dose reactions
Hi all, so happy to have found this forum. I was diagnosed as B12 deficient just a couple of weeks ago after being unable to attribute my weird collection of symptoms to either a busy life (fatigue, brain fog) or spinal nerve inpingement (cramp, twitches, bone pain). It was the lip twitching that finally
Hi all, so happy to have found this forum. I was diagnosed as B12 deficient just a couple of weeks ago after being unable to attribute my weird collection of symptoms to either a busy life (fatigue, brain fog) or spinal nerve inpingement (cramp, twitches, bone pain). It was the lip twitching that finally
Myoldcat
in
Pernicious Anaemia Society
8 months ago
Results advice please
Good morning, I would really welcome some advice from this amazing community about my latest results. Due to advice from this group I have been increasing my Levothyroxine dose since July as I was under medicated for a long time (25mg daily). I increased to 50mg on 25th July and retested in Sept, I
Good morning, I would really welcome some advice from this amazing community about my latest results. Due to advice from this group I have been increasing my Levothyroxine dose since July as I was under medicated for a long time (25mg daily). I increased to 50mg on 25th July and retested in Sept, I
Flamingo60
in
Thyroid UK
8 months ago
Latest test results
Hello I have been taking 75mcg of Levothyroxine (50mcg Accord and 25mcg of Mercury Pharma) for 7 weeks. I had a blood test on Monday 18.12 following all the advised protocols. My GP (8.45am) result is TSH 1.01 (0.27 - 4.2) Monitor My Health (7.30am) results from the same day are TSH 1.19 (0.27
Hello I have been taking 75mcg of Levothyroxine (50mcg Accord and 25mcg of Mercury Pharma) for 7 weeks. I had a blood test on Monday 18.12 following all the advised protocols. My GP (8.45am) result is TSH 1.01 (0.27 - 4.2) Monitor My Health (7.30am) results from the same day are TSH 1.19 (0.27
Amtired
in
Thyroid UK
8 months ago
Serum T3 too low? (Combo therapy)
Hi, I have been stable on 150mcg T4 + 12.5mcg T3 for about 10 weeks (gradually dropped the levo and added the T3), I did this test the other week and was surprised to see such low serum T3. - I did the test fasted at 9.20am - The 12.5mcg T3 was taken the previous night at 9.20pm (12 hours before
Hi, I have been stable on 150mcg T4 + 12.5mcg T3 for about 10 weeks (gradually dropped the levo and added the T3), I did this test the other week and was surprised to see such low serum T3. - I did the test fasted at 9.20am - The 12.5mcg T3 was taken the previous night at 9.20pm (12 hours before
cody_lamonica
in
Thyroid UK
8 months ago
Best way of treatement?
Hi, all dear B12 def sufferers, After one year of sc injections EOD my bloods are still not excellent. Low Hb, low count of erytrocytes and MCV is high. My neurological spts are much improved comparing to my situation one year back. I still have some spts of subacute degeneration of spinal cord,
Hi, all dear B12 def sufferers, After one year of sc injections EOD my bloods are still not excellent. Low Hb, low count of erytrocytes and MCV is high. My neurological spts are much improved comparing to my situation one year back. I still have some spts of subacute degeneration of spinal cord,
Annaunge
in
Pernicious Anaemia Society
8 months ago
Winter Solstice
Today is the Winter Solstice in New Hampshire USA. I had set a goal to not be sun deprived on the winter solstice. I achieved that goal. It was a near thing and the weather was favorable. I did not set the goal of not being sun deprived on the winter solstice or at any time prior. I did get sun deprived
Today is the Winter Solstice in New Hampshire USA. I had set a goal to not be sun deprived on the winter solstice. I achieved that goal. It was a near thing and the weather was favorable. I did not set the goal of not being sun deprived on the winter solstice or at any time prior. I did get sun deprived
WIZARD6787
in
Pernicious Anaemia Society
8 months ago
Recently diagnosed under active thyroid - Hashimoto's, bit confusing!
So pleased to have found this forum! I had a routine blood test followed by a call from the GP asking me questions about how i was feeling. I get tired easily but put all symptoms like that down to getting older and haven't really any other symptoms. I had glandular fever age 18 and since then have
So pleased to have found this forum! I had a routine blood test followed by a call from the GP asking me questions about how i was feeling. I get tired easily but put all symptoms like that down to getting older and haven't really any other symptoms. I had glandular fever age 18 and since then have
CinnamonNutmeg
in
Thyroid UK
8 months ago
Armour thyroid
I have been on armour for several years and my endo is aware. 2 months ago I had a blood test which showed my levels were fairly low, TSH was 8 ish and t3 and t4 were low. So I increased my dose slightly whilst waiting for a further endo appointment. Within a couple of weeks I was hyper, no blood test
I have been on armour for several years and my endo is aware. 2 months ago I had a blood test which showed my levels were fairly low, TSH was 8 ish and t3 and t4 were low. So I increased my dose slightly whilst waiting for a further endo appointment. Within a couple of weeks I was hyper, no blood test
Anna0778
in
Thyroid UK
8 months ago
Covid sent me from managed hypo to hyper…
Hi all, I had been on 60mcg T3 & 25mcg levo, 6mg LDN for two years, managed hypothyroidism. Prior to this I presented with normal tsh, low T3, and normal T4. Vit d, B12, Ferratin, Folate all normal. I caught Covid in August and a week later started having severe symptoms of — insomnia, muscle
Hi all, I had been on 60mcg T3 & 25mcg levo, 6mg LDN for two years, managed hypothyroidism. Prior to this I presented with normal tsh, low T3, and normal T4. Vit d, B12, Ferratin, Folate all normal. I caught Covid in August and a week later started having severe symptoms of — insomnia, muscle
KettlebellQueen
in
Thyroid UK
8 months ago
Wasting NHS Resources
I sincerely apologise to those non-U.K. based, however those abroad, I would be interested to know of how your Health Care systems works. P.A./AMAG/B12D can cause neuropsychiatric symptoms and on a person’s health journey, a person can be misdiagnosed with a Mental Health illness or disorder. This can
I sincerely apologise to those non-U.K. based, however those abroad, I would be interested to know of how your Health Care systems works. P.A./AMAG/B12D can cause neuropsychiatric symptoms and on a person’s health journey, a person can be misdiagnosed with a Mental Health illness or disorder. This can
Narwhal10
in
Pernicious Anaemia Society
8 months ago
B12 order
Are these OK to order. Having difficulty sourcing b12 supplies.
Are these OK to order. Having difficulty sourcing b12 supplies.
3rdNettydoon
in
Pernicious Anaemia Society
8 months ago
Latest Results for Advice
December 2023
TSH
2.240
mIU/L - (Range: 0.27 - 4.2) Free T3 X
2.9
pmol/L - (Range: 3.1 - 6.8) Free Thyroxine
18.2
pmol/L - (Range: 12 - 22) CRP HS
0.974
mg/L - (Range: < 3) Ferritin
144.00
ug/L - (Range: 30 - 650) Folate - Serum
33.5
nmol/L - (
December 2023
TSH
2.240
mIU/L - (Range: 0.27 - 4.2) Free T3 X
2.9
pmol/L - (Range: 3.1 - 6.8) Free Thyroxine
18.2
pmol/L - (Range: 12 - 22) CRP HS
0.974
mg/L - (Range: < 3) Ferritin
144.00
ug/L - (Range: 30 - 650) Folate - Serum
33.5
nmol/L - (
Albaangel
in
Thyroid UK
8 months ago
New results. I'd be grateful for some input!
So, after 3 years of testing every 8 weeks or so, I still don't trust my interpretation. 😂 Latest results on 150mcg T4 and 30mcg T3 are: TSH: 0.01 T4: 18.5 (12 - 22) 65% T3: 5.4 (3.1 - 6.8) 62% Previous results on 125mcg levo and 30mcg T3 were: TSH: 0.01 T4: 17.8 (12 - 22) 58% T3: 5.1 (3.1 - 6.8)
So, after 3 years of testing every 8 weeks or so, I still don't trust my interpretation. 😂 Latest results on 150mcg T4 and 30mcg T3 are: TSH: 0.01 T4: 18.5 (12 - 22) 65% T3: 5.4 (3.1 - 6.8) 62% Previous results on 125mcg levo and 30mcg T3 were: TSH: 0.01 T4: 17.8 (12 - 22) 58% T3: 5.1 (3.1 - 6.8)
WitchingHour2point0
in
Thyroid UK
8 months ago
Functional B12 problem, advice wanted
Hi Over the last 20 odd years I got very sick with lots of the typical PA symptoms. I was virtually housebound and incapable of any physical activity, with lots of neurological problems, muscle wasting, anemia etc. These were so pronounced that I received a preliminary (incorrect) diagnosis of motor
Hi Over the last 20 odd years I got very sick with lots of the typical PA symptoms. I was virtually housebound and incapable of any physical activity, with lots of neurological problems, muscle wasting, anemia etc. These were so pronounced that I received a preliminary (incorrect) diagnosis of motor
Uluru72
in
Pernicious Anaemia Society
8 months ago
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