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Haematologists consultant
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Windyway
in
Pernicious Anaemia Society
6 months ago
Latest Results for Advice
I thought I would have seen and felt a slight difference starting or Armour. What would be you advice regarding my results? I am under private endo and was started 7 weeks ago on 1/2 grains of Armour only, I was previously on 50 Levo. I had bloods drawn 2 days running one private by BH at 9am and the
I thought I would have seen and felt a slight difference starting or Armour. What would be you advice regarding my results? I am under private endo and was started 7 weeks ago on 1/2 grains of Armour only, I was previously on 50 Levo. I had bloods drawn 2 days running one private by BH at 9am and the
Albaangel
in
Thyroid UK
6 months ago
Latest blood results
Advice appreciated on latest results. Hi im on 100mg levothyroxine per day. Range T.S.H 1.21. 0.27-4.2 T3 2.5. 3.1-6.8 T4. 22.2. 12-22 THYROGLOBIN. 15.6. 0-115 THYROID ANTIBODIES <9 0-34 CRP
Advice appreciated on latest results. Hi im on 100mg levothyroxine per day. Range T.S.H 1.21. 0.27-4.2 T3 2.5. 3.1-6.8 T4. 22.2. 12-22 THYROGLOBIN. 15.6. 0-115 THYROID ANTIBODIES <9 0-34 CRP
Ganggywaller
in
Thyroid UK
6 months ago
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Goats milk kefir
Hi, Does anyone drink Chuckling Goat kefir? I have had some on and off over the last few weeks, but not consistently so not sure if it helps. It is a very strong kefir that is full of B12. I am not sure yet if I have pernicious anaemia, or whether it is a gut dysbiosis problem as I do not appear to be
Hi, Does anyone drink Chuckling Goat kefir? I have had some on and off over the last few weeks, but not consistently so not sure if it helps. It is a very strong kefir that is full of B12. I am not sure yet if I have pernicious anaemia, or whether it is a gut dysbiosis problem as I do not appear to be
Chickens44
in
Pernicious Anaemia Society
6 months ago
Hypothyroidism and Pernicious Anaemia assistance please
Hello there, I am new to this site and am usually on the Pernicious Anaemia page but hope someone can give me advice please. I have been taking Levothyroxine since the late 1990's and have kept on 125mcg per day and been fine until the last few months. I have always struggled to convert T4 to T3 and
Hello there, I am new to this site and am usually on the Pernicious Anaemia page but hope someone can give me advice please. I have been taking Levothyroxine since the late 1990's and have kept on 125mcg per day and been fine until the last few months. I have always struggled to convert T4 to T3 and
yorkshiregirl4
in
Thyroid UK
6 months ago
High doses of B12
Can one overdose on B12? Can it be given in mega doses like B1? Is it advisable for PWP to take extra high doses of B12? My WWP recently had a blood test and her B12 levels were only slightly higher by about 10% of the recommended levels.
Can one overdose on B12? Can it be given in mega doses like B1? Is it advisable for PWP to take extra high doses of B12? My WWP recently had a blood test and her B12 levels were only slightly higher by about 10% of the recommended levels.
Rafiki2
in
Cure Parkinson's
6 months ago
Chlorella
I have been told that chlorella is a good source of b12 but I am doubtful that in a daily dose of 10 chlorella tablets you would get sufficient b12? I would be grateful for any info/advice. Thanks Vonni
I have been told that chlorella is a good source of b12 but I am doubtful that in a daily dose of 10 chlorella tablets you would get sufficient b12? I would be grateful for any info/advice. Thanks Vonni
Vonni7
in
Pernicious Anaemia Society
6 months ago
Help please
So I had radioactive iodine treatment about 20 months ago and have since been on 125mcg levothyroxine whoch has now got my levels in normal range. However, the joint pains especially in left hand and both legs are horrendous as is the brain fog and weight. I was started on 50mcg hrt patch at the same
So I had radioactive iodine treatment about 20 months ago and have since been on 125mcg levothyroxine whoch has now got my levels in normal range. However, the joint pains especially in left hand and both legs are horrendous as is the brain fog and weight. I was started on 50mcg hrt patch at the same
Zolap
in
Thyroid UK
6 months ago
Folate supplements with B12 injections
I am currently receiving loading doses (3 so far). I was low on B12 at 170 and low on folate (about 2) as well as macrocytic but not anaemic. Incidentally, I have low WBC but they are not sure if this is due to a bad infection a couple of months ago.I have been prescribed folate supplements but I didn't
I am currently receiving loading doses (3 so far). I was low on B12 at 170 and low on folate (about 2) as well as macrocytic but not anaemic. Incidentally, I have low WBC but they are not sure if this is due to a bad infection a couple of months ago.I have been prescribed folate supplements but I didn't
La2016
in
Pernicious Anaemia Society
6 months ago
Is it needed and safe for my mom to supplement with folate or B12?
Hi all! I haven't posted before but I've been reading for a few months and find everything really helpful. My mom has had both chemotherapy and radiation this last year, and now has many overlapping symptoms with b12 and folate deficiencies (fatigue, mild neuropathy for years, mild memory loss/confusion
Hi all! I haven't posted before but I've been reading for a few months and find everything really helpful. My mom has had both chemotherapy and radiation this last year, and now has many overlapping symptoms with b12 and folate deficiencies (fatigue, mild neuropathy for years, mild memory loss/confusion
Jr499
in
Pernicious Anaemia Society
6 months ago
low levels despite frequent injections?
My b12 levels are still low despite 8 months of frequent injections. My doctor doesn’t know why and I have to see a hematologist. has this happened to anyone else? Any thoughts as to what it might be?
My b12 levels are still low despite 8 months of frequent injections. My doctor doesn’t know why and I have to see a hematologist. has this happened to anyone else? Any thoughts as to what it might be?
Merlotponty
in
Pernicious Anaemia Society
6 months ago
High TSH (which keeps rising over the years) and consistently high T4 for 7 years with no major symptoms.
Hi, Over the last 7 years, my TSH has kept rising from around 5.88 and now it is at 11.9. My T4 has stayed consistently high at between 19 and 20 throughout this time. My antibodies test are normal with nearly non-existent antibodies and my T3 was normal in the middle of the range. All my other blood
Hi, Over the last 7 years, my TSH has kept rising from around 5.88 and now it is at 11.9. My T4 has stayed consistently high at between 19 and 20 throughout this time. My antibodies test are normal with nearly non-existent antibodies and my T3 was normal in the middle of the range. All my other blood
kev269
in
Thyroid UK
6 months ago
Latest blood results
Hi everyone, sorry have not been here for some time , have had a lot of unresolved health issues, am fighting with NHS and have been for a long time now , am still battling Sarcoidosis and am not being listened to by doctors and gp , but as its autoimmune and not thyroid related , can't go into it here
Hi everyone, sorry have not been here for some time , have had a lot of unresolved health issues, am fighting with NHS and have been for a long time now , am still battling Sarcoidosis and am not being listened to by doctors and gp , but as its autoimmune and not thyroid related , can't go into it here
Sweetpea1157
in
Thyroid UK
6 months ago
Advice plesse t3 trial
Can anyone add any advice please. I have been on a trial of T3 thybon henning for seven weeks 5mcg twice daily 7am and 3pm. Plus 75mcg of T4 Accord at 7am.Ive been doing ok but still struggling with sleep, constipation and lack of energy. Bloods taken as advised by private endo morning before taking
Can anyone add any advice please. I have been on a trial of T3 thybon henning for seven weeks 5mcg twice daily 7am and 3pm. Plus 75mcg of T4 Accord at 7am.Ive been doing ok but still struggling with sleep, constipation and lack of energy. Bloods taken as advised by private endo morning before taking
Soaping
in
Thyroid UK
6 months ago
Do Drs get a bonus for prescribing certain drugs ?
Does anybody know if Gps get a hand out for prescribing statins ? There has been a lot of controversy in regard to this topic. Late yesterday afternoon I had a call from my surgery. It was a Dr I had never heard of or had I spoken to her before. She was suggesting I were put on statins! I asked for
Does anybody know if Gps get a hand out for prescribing statins ? There has been a lot of controversy in regard to this topic. Late yesterday afternoon I had a call from my surgery. It was a Dr I had never heard of or had I spoken to her before. She was suggesting I were put on statins! I asked for
Jillymo
in
Pernicious Anaemia Society
6 months ago
Blood Results
Hi, Following my last post, I have visited my GP due to ongoing palpitations. She was very sympathetic and did me a full run of blood tests. All came back ‘normal’ my TSH even slightly down to my last test. Bloods were taken at 9.15am as advised. I am not prescribed any thyroid medication and take 3000
Hi, Following my last post, I have visited my GP due to ongoing palpitations. She was very sympathetic and did me a full run of blood tests. All came back ‘normal’ my TSH even slightly down to my last test. Bloods were taken at 9.15am as advised. I am not prescribed any thyroid medication and take 3000
Johannab89
in
Thyroid UK
6 months ago
T3 only blood results
Hello, I moved from a combination of ERFA/T3 last November to exclusively on T3. Initially, I was splitting my doses three times a day and gradually building up from a starting dose of only 10mcg at 4am/ 5mcg at 11am and 5 mcg at 3pm.. I worked up to 30mg at 4am/5mcg at 11am and 10mcg at 3pm. I
Hello, I moved from a combination of ERFA/T3 last November to exclusively on T3. Initially, I was splitting my doses three times a day and gradually building up from a starting dose of only 10mcg at 4am/ 5mcg at 11am and 5 mcg at 3pm.. I worked up to 30mg at 4am/5mcg at 11am and 10mcg at 3pm. I
RydeBeach
in
Thyroid UK
6 months ago
Help pls! Feeling very ill !
Hi all, my previous post about liquid thyrox was failed at the first try, split doses..it hit me even harder..so scared had to stop right away!! This test was on 16 Jan 24 was on 5 days 100mg + 2 days 75mg TSH too low 0.07.. as Im losing too much weight (~10 kg) after foods poison then seen nutritionist
Hi all, my previous post about liquid thyrox was failed at the first try, split doses..it hit me even harder..so scared had to stop right away!! This test was on 16 Jan 24 was on 5 days 100mg + 2 days 75mg TSH too low 0.07.. as Im losing too much weight (~10 kg) after foods poison then seen nutritionist
Snqanq
in
Thyroid UK
6 months ago
Stopping Injections After 3 Loading Doses
Hi! I’m new here and learning so much from reading all of the posts here. I was diagnosed with low B12 levels earlier on this year, although my PA antibodies came back negative. I was put on injections, and was meant to have 6 over 2 weeks followed by 1 every 3 months, however my GP had to stop them
Hi! I’m new here and learning so much from reading all of the posts here. I was diagnosed with low B12 levels earlier on this year, although my PA antibodies came back negative. I was put on injections, and was meant to have 6 over 2 weeks followed by 1 every 3 months, however my GP had to stop them
Hidden
in
Pernicious Anaemia Society
6 months ago
NAFLD and Fatigue
Hello! I’m new here and learning so much reading through all of the posts on this forum. I was recently diagnosed with non-alcoholic fatty liver disease (steatosis of the liver I believe is my diagnosis) after blood tests showing elevated liver enzymes and an ultrasound scan. From what my GP says, my
Hello! I’m new here and learning so much reading through all of the posts on this forum. I was recently diagnosed with non-alcoholic fatty liver disease (steatosis of the liver I believe is my diagnosis) after blood tests showing elevated liver enzymes and an ultrasound scan. From what my GP says, my
Hidden
in
British Liver Trust
6 months ago
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