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Cutaneous T cell lymphoma (CTCL)
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Starting 6 rounds of Rituxan Chemotherapy tomorrow
I am 40 yr old with CLL stage VI Lymphoma and stage II Leukemia. This is a very fast decision to start chemo as I had developed symptoms that the doctors can't get under control. Will I lose my hair, will I be able to continue to work???? Questions, questions! Please help!
I am 40 yr old with CLL stage VI Lymphoma and stage II Leukemia. This is a very fast decision to start chemo as I had developed symptoms that the doctors can't get under control. Will I lose my hair, will I be able to continue to work???? Questions, questions! Please help!
deanna2289
in
CLL Support
10 years ago
CT scan series part 10 - Clinical Trial CT scan Context
CT scan series part 10 - Clinical Trial CT scan Context There is solid rationale for CT-scanning in a Clinical Trial setting that cannot be avoided but is it adequate or overkill? Who decides? There are so many newer drugs that promise better efficacy with less toxicity that it is hard to keep up with
CT scan series part 10 - Clinical Trial CT scan Context There is solid rationale for CT-scanning in a Clinical Trial setting that cannot be avoided but is it adequate or overkill? Who decides? There are so many newer drugs that promise better efficacy with less toxicity that it is hard to keep up with
ThreeWs
in
CLL Support
10 years ago
Another Front Against Leukemia: Using Stem Cells to Make Bone Marrow Transplants Low-Risk
Another Israeli biotech firm (well, I guess that Karyopharm Therapeutics--the developer of KPT-330 being tested against Richter's--is only half-Israeli) is working on using stem cells to make bone marrow transplants extremely tolerable. It is an interesting technology. An article is here: http://israel21c.org
Another Israeli biotech firm (well, I guess that Karyopharm Therapeutics--the developer of KPT-330 being tested against Richter's--is only half-Israeli) is working on using stem cells to make bone marrow transplants extremely tolerable. It is an interesting technology. An article is here: http://israel21c.org
zevkalman
in
CLL Support
10 years ago
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CT scan series part 5 – A bit about CT scanners
Let's first define some terms. I don't want to lose you in the detail of sievert (Sv) vs gray (Gy) as units of radiation measurement because there is no meaningful way you can calculate your individual risk based on adding up sources of ionizing radiation. Any assessment of risk must be done by statistical
Let's first define some terms. I don't want to lose you in the detail of sievert (Sv) vs gray (Gy) as units of radiation measurement because there is no meaningful way you can calculate your individual risk based on adding up sources of ionizing radiation. Any assessment of risk must be done by statistical
ThreeWs
in
CLL Support
10 years ago
colonoscopy
has anyone had a colonoscopy whilst on prednisolone, I had one 3 years ago before I was diagnosed with PMR and subsequently put on steroids. The bowel screening people have contacted me again but I don't know what to do I can't stop taking steroids and the stuff they give you to clear out your bowels
has anyone had a colonoscopy whilst on prednisolone, I had one 3 years ago before I was diagnosed with PMR and subsequently put on steroids. The bowel screening people have contacted me again but I don't know what to do I can't stop taking steroids and the stuff they give you to clear out your bowels
kingharold11
in
PMRGCAuk
10 years ago
Has any one been told to prepare themselves for the possibility of a bone marrow transplant. I've had ET for 14years taking Hydrox in variou
Doses over the years. Told I had changed to MF only in November last year that was such a shock.Taken of Hydrox completely 4 weeks ago only take asprin at the moment. Due to anaemia sweats &fatigue & an enlarged spleen..its all happened so quickly. I feel they sew the seed to make you think talk to your
Doses over the years. Told I had changed to MF only in November last year that was such a shock.Taken of Hydrox completely 4 weeks ago only take asprin at the moment. Due to anaemia sweats &fatigue & an enlarged spleen..its all happened so quickly. I feel they sew the seed to make you think talk to your
softail
in
MPN Voice
10 years ago
CT scan series part 4 - Everything needs context
But aren't we living with ionizing radiation all the time so what's the big deal? Correct, the average yearly exposure of a US resident is 3 to 3.2 mSv (milli sievert). Brian Koffman who spends much of his time at 30 thousand feet flying all over the place to bring us great interviews is probably getting
But aren't we living with ionizing radiation all the time so what's the big deal? Correct, the average yearly exposure of a US resident is 3 to 3.2 mSv (milli sievert). Brian Koffman who spends much of his time at 30 thousand feet flying all over the place to bring us great interviews is probably getting
ThreeWs
in
CLL Support
10 years ago
Misleading headlines - "Breakthrough cure" for MS
New results from stem cell transplantation research in mice have been published today, leading to misleading articles in a number of newspapers about what this could mean for people with MS. "Could stem cells help people paralysed by MS? Scientists reveal they are 'astonished' by landmark study" -
New results from stem cell transplantation research in mice have been published today, leading to misleading articles in a number of newspapers about what this could mean for people with MS. "Could stem cells help people paralysed by MS? Scientists reveal they are 'astonished' by landmark study" -
Sorrel_MS_Society
MS Society
in
Healthy Evidence
10 years ago
Bone marrow transplant
Hi. So I saw Dr Lachmann this week and he announces that my MRI shows a growing lesion on my brain, and that this means I may start getting ALD on top of my AMN. The only way to stop this is to do a bone marrow transplant, which is very very scary. Anyone has experience of this situation? And has anyone
Hi. So I saw Dr Lachmann this week and he announces that my MRI shows a growing lesion on my brain, and that this means I may start getting ALD on top of my AMN. The only way to stop this is to do a bone marrow transplant, which is very very scary. Anyone has experience of this situation? And has anyone
Nicolas
in
AMN EASIER
10 years ago
Has anyone here successfully treated Diffuse Large B Cell lymphoma using CVP-R, minus the Vincristine?
My mother had one round of CHOP-R, but it affected her heart so adversely the doctor won't administer it anymore as he is afraid she might not survive through it. (So, she will continue with CVP-R, minus the Vincristine.) As a result he says we are no longer treating to cure, but to relieve symptoms
My mother had one round of CHOP-R, but it affected her heart so adversely the doctor won't administer it anymore as he is afraid she might not survive through it. (So, she will continue with CVP-R, minus the Vincristine.) As a result he says we are no longer treating to cure, but to relieve symptoms
Hidden
in
Lymphoma Canada
10 years ago
There's lots happening in Adoptive T-cell transfer technology cancer research - CAR-T being just one aspect
When Dr Carl June of the University of Pennsylvania, used chimeric antigen receptor (CAR) technology to provide an amazing cure in a CAR-T trial in 2011 for three CLL patients that had pretty well run out of options http://www.uphs.upenn.edu/news/News_Releases/2011/08/t-cells/ there were valid concerns
When Dr Carl June of the University of Pennsylvania, used chimeric antigen receptor (CAR) technology to provide an amazing cure in a CAR-T trial in 2011 for three CLL patients that had pretty well run out of options http://www.uphs.upenn.edu/news/News_Releases/2011/08/t-cells/ there were valid concerns
AussieNeil
Partner
in
CLL Support
10 years ago
SLL and prognostic indicators
I'm reading articles which suggest that the chromosomal abnormalities of SLL are different from CLL, most especially absence of 17p del and prevalence of Trisomy 12. Does anyone know anything about this?
I'm reading articles which suggest that the chromosomal abnormalities of SLL are different from CLL, most especially absence of 17p del and prevalence of Trisomy 12. Does anyone know anything about this?
Hidden
in
CLL Support
10 years ago
Treatment of My Father suffering from CLL with Endoxan (Cyclophosphamide) and Bendit--Bendamustine Hydrochloride.
My father was diagnosed CLL- Chronic Lymphocytic Leukemia on 03-Sep-2013 through a bone marrow. The values of %LYM = 80 % with WBC= 511,000. We have consulted an oncologist for the treatment. He has started Chemotherapy with Endoxan (Cyclophosphamide) and did 06 Cycles of chemo (Each after 21-Days)
My father was diagnosed CLL- Chronic Lymphocytic Leukemia on 03-Sep-2013 through a bone marrow. The values of %LYM = 80 % with WBC= 511,000. We have consulted an oncologist for the treatment. He has started Chemotherapy with Endoxan (Cyclophosphamide) and did 06 Cycles of chemo (Each after 21-Days)
nadeemnaz4190
in
CLL Support
10 years ago
I have Giant Cell Arteritis and am reducing Prednisolone. Does anyone have terrible 'hot flushes' and itchy patches on skin?
Can anyone provide any remedial therapies for the above and if I can get completely off Prednisolone, will the 'hot flushes' stop.
Can anyone provide any remedial therapies for the above and if I can get completely off Prednisolone, will the 'hot flushes' stop.
sookiesue
in
PMRGCAuk
10 years ago
Book is now available in print form
Hi everybody. Pleased to let you know that the book Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide, is now available in print form from PMRGCAuk. Unfortunately at the moment we don't have a way for you to pay for it online. Please write to BM PMRGCAuk, London, WC1N 3XX, enclosing a
Hi everybody. Pleased to let you know that the book Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide, is now available in print form from PMRGCAuk. Unfortunately at the moment we don't have a way for you to pay for it online. Please write to BM PMRGCAuk, London, WC1N 3XX, enclosing a
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
10 years ago
Explainer: What is Cancer Immunotherapy?
Nial Wheate, Senior Lecturer in Pharmaceutical Chemistry at the University of Sydney, Australia, provides an introductory overview of the sophisticated ways we now use immunotherapy including vaccinations, antibodies (proteins that bind to foreign objects to mark them for destruction), cytokines (molecules
Nial Wheate, Senior Lecturer in Pharmaceutical Chemistry at the University of Sydney, Australia, provides an introductory overview of the sophisticated ways we now use immunotherapy including vaccinations, antibodies (proteins that bind to foreign objects to mark them for destruction), cytokines (molecules
AussieNeil
Partner
in
CLL Support
10 years ago
Hypothyroidism - advice on levels
Hi I asked for my thyroid levels to be tested again and once again they came back normal. I asked the nurse what the actual levels are and she told me 0.74. I know that here in the UK they can come back 'normal' and still be regarded as low by the standards of other countries eg in the US they can
Hi I asked for my thyroid levels to be tested again and once again they came back normal. I asked the nurse what the actual levels are and she told me 0.74. I know that here in the UK they can come back 'normal' and still be regarded as low by the standards of other countries eg in the US they can
Kirby
in
Fibromyalgia Action UK
10 years ago
I contacted the Justice Department about Missing GP Notes.
I contacted the Justice department about missing GP notes. They say it's the Department for Health responsibility. Talk about passing the buck. There was a post about the Freedom of Information Act on thyroid UK a few days ago. GP's passing notes on to insurance companies. The NHS refusing to install
I contacted the Justice department about missing GP notes. They say it's the Department for Health responsibility. Talk about passing the buck. There was a post about the Freedom of Information Act on thyroid UK a few days ago. GP's passing notes on to insurance companies. The NHS refusing to install
carolr
in
Thyroid UK
10 years ago
Does anyone get meds for hair loss due to the meds like regaine I would think some ladies will but docs tend not to with blokes I think
Cos the cellcept seems to make it recede but the consultant is fobbing me off So would like some info to have a heated discuss with
Cos the cellcept seems to make it recede but the consultant is fobbing me off So would like some info to have a heated discuss with
glasgowguy
in
LUPUS UK
10 years ago
Is Chemotherapy necessary even when the tumor is small and not spread to Axillary lymph nodes?
My mother(53 years had lumptectomy and a tumor of about 3.5 x 3 cms was removed. The biopsy report says negative on the Axillary nodes.. so the cancer has not spread to other parts as I understand that Axillary lymph nodes are first which receive the drainage form the breast. The Onco surgeon has recommended
My mother(53 years had lumptectomy and a tumor of about 3.5 x 3 cms was removed. The biopsy report says negative on the Axillary nodes.. so the cancer has not spread to other parts as I understand that Axillary lymph nodes are first which receive the drainage form the breast. The Onco surgeon has recommended
fatehkhan
in
Breast Cancer India
10 years ago
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