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Cutaneous T cell lymphoma (CTCL)
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Can anyone confirm if Ibrutinib is now available on prescription in the UK?
I just received an email from a friend to suggest it is available. I’m to start 6 months of BR treatment on Monday 12th January, and would be so relieved if I can try a non-chemotherapy drug instead. Dear Healthcare Professional I am pleased to inform you that Janssen UK has been granted European Medicines
I just received an email from a friend to suggest it is available. I’m to start 6 months of BR treatment on Monday 12th January, and would be so relieved if I can try a non-chemotherapy drug instead. Dear Healthcare Professional I am pleased to inform you that Janssen UK has been granted European Medicines
Ruhi9
in
CLL Support
10 years ago
Giant cell arteritis diagnosed 160115
Happy New Year. I've suffered with RA most of my life, and had cutaneous vasculitis. Now progressed to Giant Cell Arteritis in my temple area. Fisrt signs were tender scalp when hair drying and brushing. That night a sudden headache like no other. Nearest equivalent pain was a sudden bone fracture. Immediate
Happy New Year. I've suffered with RA most of my life, and had cutaneous vasculitis. Now progressed to Giant Cell Arteritis in my temple area. Fisrt signs were tender scalp when hair drying and brushing. That night a sudden headache like no other. Nearest equivalent pain was a sudden bone fracture. Immediate
daphne_retired
in
PMRGCAuk
10 years ago
New approach could lead cancer cells down path of destruction
Cancer research has discovered that when double-strand break DNA damage occurs, in which both strands of the DNA double helix are severed, the cell can either attempt to repair the damage, which has a poor chance of success and may create a cancerous cell (or a more aggressive clone of an existing cancerous
Cancer research has discovered that when double-strand break DNA damage occurs, in which both strands of the DNA double helix are severed, the cell can either attempt to repair the damage, which has a poor chance of success and may create a cancerous cell (or a more aggressive clone of an existing cancerous
AussieNeil
Partner
in
CLL Support
10 years ago
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Positive parietal cell antibody
After eventually seeing a neurologist with regard to my tingling limbs, I have today received a copy of a letter he sent to my GP. He says that the MRI scan was normal, so pleased about that. However, he then says, quote: "I note she as a positive parietal cell antibody and that some provisional blood
After eventually seeing a neurologist with regard to my tingling limbs, I have today received a copy of a letter he sent to my GP. He says that the MRI scan was normal, so pleased about that. However, he then says, quote: "I note she as a positive parietal cell antibody and that some provisional blood
Twitchen
in
Thyroid UK
10 years ago
Narrowed esophagus
My Rheumy has asked me if I have difficulty swallowing. So I wonder if this is a symptom of GCA. I recently had a colonoscopy and endoscopy with a stretching of the esophagus. The gastro doctor informed me that my esophagus was very narrowed and wondered if it had been bothering me. He wondered if it
My Rheumy has asked me if I have difficulty swallowing. So I wonder if this is a symptom of GCA. I recently had a colonoscopy and endoscopy with a stretching of the esophagus. The gastro doctor informed me that my esophagus was very narrowed and wondered if it had been bothering me. He wondered if it
Asbeck
in
PMRGCAuk
10 years ago
Blood counts very poor, soon to start BR, and unsure whether to have jabs? (See later post)
Hi everyone, Thanks for all your responses to my post 3 weeks ago. The blood test results on 10th December were confusing to say the least - WBC had increased from 81.6 to 123.5 since the previous tests at the end of November, while neutrophils, HB and platelets were all improved. My consultant was
Hi everyone, Thanks for all your responses to my post 3 weeks ago. The blood test results on 10th December were confusing to say the least - WBC had increased from 81.6 to 123.5 since the previous tests at the end of November, while neutrophils, HB and platelets were all improved. My consultant was
Ruhi9
in
CLL Support
10 years ago
Bone marrow Abnormalities and APS
Hi Just wondering if there is a link between bone marrow abnormalities and APS? I had a bone marrow biopsy at my local hospital and it has shown abnormalities in mast cells, chromasomes . . . I have been referred to Kings for another biopsy for specialised testing. Does anyone else have bone marrow abnormalities
Hi Just wondering if there is a link between bone marrow abnormalities and APS? I had a bone marrow biopsy at my local hospital and it has shown abnormalities in mast cells, chromasomes . . . I have been referred to Kings for another biopsy for specialised testing. Does anyone else have bone marrow abnormalities
beckyb
in
Hughes Syndrome APS Forum
10 years ago
Husband suffering from mantle cell lymphoma
I just wanted to find out what should one do to regain strength after the chemotherapy. My husband is completely drained out after his third chemotherapy. How should it be dealt with?
I just wanted to find out what should one do to regain strength after the chemotherapy. My husband is completely drained out after his third chemotherapy. How should it be dealt with?
kk055
in
Cancer Patients Aid Association India
10 years ago
Progress
I joined the PAS and this forum at the beginning of Sept this year having been diagnosed with PA in May 2013. I hadn't received any loading doses and was put immediately onto 3 monthly injections. My readings on each subsequent visit to the Doc were around the 200 mark. Thanks to the forum I realised
I joined the PAS and this forum at the beginning of Sept this year having been diagnosed with PA in May 2013. I hadn't received any loading doses and was put immediately onto 3 monthly injections. My readings on each subsequent visit to the Doc were around the 200 mark. Thanks to the forum I realised
Weewull
in
Pernicious Anaemia Society
10 years ago
TG Therapeutics announces Clinical Trial of TGR-1202 in combination with Ibrutinib
TG Therapeutics, Inc. announced today the initiation of a multi-center, Phase I trial to evaluate the safety and efficacy of the combination of TGR-1202 and ibrutinib for patients with relapsed and/or refractory chronic lymphocytic leukemia (CLL) and mantle cell lymphoma (MCL): http://money.cnn.com/news
TG Therapeutics, Inc. announced today the initiation of a multi-center, Phase I trial to evaluate the safety and efficacy of the combination of TGR-1202 and ibrutinib for patients with relapsed and/or refractory chronic lymphocytic leukemia (CLL) and mantle cell lymphoma (MCL): http://money.cnn.com/news
AussieNeil
Partner
in
CLL Support
10 years ago
Extended Rituximab Plus R-CHOP Best in Elderly, Poor-Prognosis DLBCL
[i]"Elderly patients with poor-prognosis diffuse large B-cell lymphoma (DLBCL) may derive the most benefit from treatment with extended rituximab plus 6 cycles of R-CHOP on a 14-day schedule, according to the results of the SMARTE-R study published in the Journal of Clinical Oncology."[/i] http://www.cancernetwork.com
[i]"Elderly patients with poor-prognosis diffuse large B-cell lymphoma (DLBCL) may derive the most benefit from treatment with extended rituximab plus 6 cycles of R-CHOP on a 14-day schedule, according to the results of the SMARTE-R study published in the Journal of Clinical Oncology."[/i] http://www.cancernetwork.com
AussieNeil
Partner
in
CLL Support
10 years ago
Global burden of cancer attributable to high body-mass index
High body-mass index (BMI; defined as 25 kg/m2 or greater) is associated with increased risk of cancer. To inform public health policy and future research, we estimated the global burden of cancer attributable to high BMI in 2012. http://www.thelancet.com/journals/lanonc/article/PIIS1470-2045(14)71123
High body-mass index (BMI; defined as 25 kg/m2 or greater) is associated with increased risk of cancer. To inform public health policy and future research, we estimated the global burden of cancer attributable to high BMI in 2012. http://www.thelancet.com/journals/lanonc/article/PIIS1470-2045(14)71123
shazie
in
CLL Support
10 years ago
MPDlife - the newsletter for people with MPNs
November 2014 issue now available, the newsletter is packed full of interesting articles: •Rapid changes in MPN research and treatment options – Professor Claire Harrison reports on the European School of Haematology MPN meeting held in Estoril, Portugal in October 2014, and tells us about the new scientific
November 2014 issue now available, the newsletter is packed full of interesting articles: •Rapid changes in MPN research and treatment options – Professor Claire Harrison reports on the European School of Haematology MPN meeting held in Estoril, Portugal in October 2014, and tells us about the new scientific
Mazcd
MPNVoice
in
MPN Voice
10 years ago
Tinzaparin
Hi everybody, haven't been on here for a while because I'm busy looking after my mother who lives 60 miles away.quite a journey two or three times per week. Anyway I've been on tinzaparin injections for two months now and wondered how long I can stay on this drug. I don't particularly fancy going onto
Hi everybody, haven't been on here for a while because I'm busy looking after my mother who lives 60 miles away.quite a journey two or three times per week. Anyway I've been on tinzaparin injections for two months now and wondered how long I can stay on this drug. I don't particularly fancy going onto
Elfie1
in
Hughes Syndrome APS Forum
10 years ago
Rituximab question
Hi everyone. Have the appointment for my first and second dose of rituximab come through today for 9th and 23rd of December. 2 days before my birthday and two days before Christmas. Just wanted to know if the medicine can wipe you out after infusion and if anyone has experienced this, worried I will
Hi everyone. Have the appointment for my first and second dose of rituximab come through today for 9th and 23rd of December. 2 days before my birthday and two days before Christmas. Just wanted to know if the medicine can wipe you out after infusion and if anyone has experienced this, worried I will
joannebond360
in
LUPUS UK
10 years ago
Is there a better test for F1 antibodies?
Hi, I've been (blood) tested for F1 antibodies and the results were negative, but I've heard the test is notoriously unreliable - does anyone know of a better test that I could request or is the standard blood test the only one out there? I'm going to ask for a parietal cell antibody test, and possibly
Hi, I've been (blood) tested for F1 antibodies and the results were negative, but I've heard the test is notoriously unreliable - does anyone know of a better test that I could request or is the standard blood test the only one out there? I'm going to ask for a parietal cell antibody test, and possibly
Chancery
in
Pernicious Anaemia Society
10 years ago
MPN Voice Patients’ Forums 2015
We are pleased to announce that we have 2 patients’ forums confirmed for 2015, Colchester and Cardiff. Colchester – Wednesday 4th February 2015, 4 pm – 6 pm, (registration from 3.45 pm) in Room 2, Post Graduate Medical Centre, Villa 8, Colchester General Hospital, Turner Road, Colchester, Essex, CO4
We are pleased to announce that we have 2 patients’ forums confirmed for 2015, Colchester and Cardiff. Colchester – Wednesday 4th February 2015, 4 pm – 6 pm, (registration from 3.45 pm) in Room 2, Post Graduate Medical Centre, Villa 8, Colchester General Hospital, Turner Road, Colchester, Essex, CO4
Mazcd
MPNVoice
in
MPN Voice
10 years ago
Fast Chemo (Bendamustine in 10 minutes)
Eagle Pharmaceuticals have just announced the success of a Phase 1 trial of 81 patients, which has shown that a 50ml admixture of Bendamustine HCl delivered in ten minutes (their rapidly infused product) was found to be bioequivalent to the Treanda 500mL admixture, which requires a 60-minute infusion
Eagle Pharmaceuticals have just announced the success of a Phase 1 trial of 81 patients, which has shown that a 50ml admixture of Bendamustine HCl delivered in ten minutes (their rapidly infused product) was found to be bioequivalent to the Treanda 500mL admixture, which requires a 60-minute infusion
AussieNeil
Partner
in
CLL Support
10 years ago
Chemotherapy and placebos to control nausea
[i]"It’s unthinkable to give a placebo to someone to treat their cancer, but could we use one to treat chemotherapy’s well-known side effects? Unfortunately, we may never be able to answer this question because the biggest obstacle to finding out whether it would work is emotional rather than scientific
[i]"It’s unthinkable to give a placebo to someone to treat their cancer, but could we use one to treat chemotherapy’s well-known side effects? Unfortunately, we may never be able to answer this question because the biggest obstacle to finding out whether it would work is emotional rather than scientific
AussieNeil
Partner
in
CLL Support
10 years ago
Zoom Zoom, CAR-T Cells to Treat Myeloma
An exciting approach to refractory myeloma is the development of CAR-T cells to recognize and kill the malignant plasma cells which mutate and are responsible for recurrence. Chimeric Antigen Receptor - T cell therapy has now been used in hundreds of patients with recurrent leukemia (89% success) and
An exciting approach to refractory myeloma is the development of CAR-T cells to recognize and kill the malignant plasma cells which mutate and are responsible for recurrence. Chimeric Antigen Receptor - T cell therapy has now been used in hundreds of patients with recurrent leukemia (89% success) and
Janstafl
in
Myeloma America Support
10 years ago
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