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Cutaneous T cell lymphoma (CTCL)
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Update after BMB
It's been awhile since my first BMB, but have been recovering & processing the results. I had a hard time with sedation & took me some time to reset myself from that ordeal (getting sick, having two veins blow out with blood draws & iv). I lost weight & only weighed at 104 lbs that day! I was diagnosed
It's been awhile since my first BMB, but have been recovering & processing the results. I had a hard time with sedation & took me some time to reset myself from that ordeal (getting sick, having two veins blow out with blood draws & iv). I lost weight & only weighed at 104 lbs that day! I was diagnosed
Androg
in
MPN Voice
3 years ago
Questions about stents and support
Update and questions I haven't posted on here for a while for many reasons (including the whole COVID thing) but as I'm still trying to get my head round stuff and had questions, I'm hoping there are some of you out there who can offer me some ideas/support. I'm currently seen at the Brompton, where
Update and questions I haven't posted on here for a while for many reasons (including the whole COVID thing) but as I'm still trying to get my head round stuff and had questions, I'm hoping there are some of you out there who can offer me some ideas/support. I'm currently seen at the Brompton, where
SomersetJo
in
British Heart Foundation
3 years ago
Britain is launching a study to examine whether patients with immunosuppressed conditions have a less effective immune response to Covid-19
Just read this and felt it might be of interest, especially to those in the UK (you could take part). "Study launched into Covid-19 vaccine response among cancer patients DPA, Mar 03, 2021, Britain is launching a study to examine whether patients with immunosuppressed conditions have a less effective
Just read this and felt it might be of interest, especially to those in the UK (you could take part). "Study launched into Covid-19 vaccine response among cancer patients DPA, Mar 03, 2021, Britain is launching a study to examine whether patients with immunosuppressed conditions have a less effective
Iupiter
in
CLL Support
3 years ago
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What are Tocilizumab and Sarilumab treatments for COVID?
The REMPA-CPAP Clinical trial results show that the drugs reduced the risk of death by 24% for critically ill patients and reduced the time spent in intensive care by up to 10 days. In light of these results, the UK government has said that supplies of tocilizumab are already available in hospitals
The REMPA-CPAP Clinical trial results show that the drugs reduced the risk of death by 24% for critically ill patients and reduced the time spent in intensive care by up to 10 days. In light of these results, the UK government has said that supplies of tocilizumab are already available in hospitals
Jm954
Administrator
in
CLL Support
3 years ago
How Can I Cure Leg Wasting ?
Pls , I Am 29 years old now and a Sickle Cell Patient too. When I was 19 years, my hip joint started to pain me and I attended to the hospital, they told me the hip is reducing so I have to wear crutches to walk and I did that for a year. However when I used the crutches for a year the pain reduced
Pls , I Am 29 years old now and a Sickle Cell Patient too. When I was 19 years, my hip joint started to pain me and I attended to the hospital, they told me the hip is reducing so I have to wear crutches to walk and I did that for a year. However when I used the crutches for a year the pain reduced
WarriorChild_
in
Sickle Cell Society
3 years ago
Re: WARWICK's ASCT Journey Begins Today...
Afternoon all... Warwick has managed to POST a reply on MATES, and if any of you can, I am sure that he would love to say hi... He's not feeling terribly himself Eight (8) days into his Stem Cell Transplant, but he did manage to
[i]POST[/i]
the message below on MATES, and so I Posted here again
Afternoon all... Warwick has managed to POST a reply on MATES, and if any of you can, I am sure that he would love to say hi... He's not feeling terribly himself Eight (8) days into his Stem Cell Transplant, but he did manage to
[i]POST[/i]
the message below on MATES, and so I Posted here again
socrates_8
in
MPN Voice
3 years ago
Friday 15th January, 2pm Webinar - COVID-19 vaccines – your questions answered
Two of our partner charities - Leukaemia Care and Lymphoma Action are to host this joint webinar for those living with lymphoma and leukaemia.
Date: Friday 15 January
Time: 2pm
The news of a coronavirus (COVID-19) vaccines being made available has been widely welcomed. However, those with
Two of our partner charities - Leukaemia Care and Lymphoma Action are to host this joint webinar for those living with lymphoma and leukaemia.
Date: Friday 15 January
Time: 2pm
The news of a coronavirus (COVID-19) vaccines being made available has been widely welcomed. However, those with
Jm954
Administrator
in
CLL Support
3 years ago
Tocilizumab extension
Hi I wrote a couple of weeks ago asking if anyone had been told that their tocilizumab was being extended. I’ve heard nothing from rheumatology or G.P but today I’ve had a txt from the company that deliver the injections to say they are delivering early March. Not sure if it’s the normal 8 weeks supply
Hi I wrote a couple of weeks ago asking if anyone had been told that their tocilizumab was being extended. I’ve heard nothing from rheumatology or G.P but today I’ve had a txt from the company that deliver the injections to say they are delivering early March. Not sure if it’s the normal 8 weeks supply
Devoid
in
PMRGCAuk
3 years ago
Webinar 9.30am, Wednesday 3rd March - Acute promyelocytic leukaemia (APL) treatment update
Please join us for the 1st in our series of free treatment updates in acute leukaemia. This webinar will update on how APL is treated today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement should patients expect in their care decisions. The
Please join us for the 1st in our series of free treatment updates in acute leukaemia. This webinar will update on how APL is treated today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement should patients expect in their care decisions. The
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
3 years ago
Good end to a bad year... My MRD Results are in!
As many of you know, I enrolled in a clinical trial for experimental treatment with the goal to reduce MRD to zero. (Minimal (or Measurable) residual disease Description:Minimal residual disease is the name given to small numbers of leukaemic cells that remain in the person during treatment, or after
As many of you know, I enrolled in a clinical trial for experimental treatment with the goal to reduce MRD to zero. (Minimal (or Measurable) residual disease Description:Minimal residual disease is the name given to small numbers of leukaemic cells that remain in the person during treatment, or after
MikeHoff
in
CLL Support
3 years ago
Nervous
Sorry I'm going a bit off piste but I feel very scared. My husband has had trouble with his mobility and memory for a couple of years and yesterday got a diagnosis of Normal postural Hydrocephalus. He has been advised to have a lumber puncture to drain some fluid to see if it temporarily improves with
Sorry I'm going a bit off piste but I feel very scared. My husband has had trouble with his mobility and memory for a couple of years and yesterday got a diagnosis of Normal postural Hydrocephalus. He has been advised to have a lumber puncture to drain some fluid to see if it temporarily improves with
Suet3942
in
PMRGCAuk
3 years ago
CAR-T! Laurie Adami tells the riveting tale of her diagnosis at the age of 46 ...
CAR-T! Laurie Adami tells the riveting tale of her diagnosis at the age of 46 with stage IV follicular non-Hodgkin lymphoma, an incurable blood cancer, after years of consulting doctors who were either baffled by, or just plain off-base in their assessment of her presenting symptoms. In March 2018, after
CAR-T! Laurie Adami tells the riveting tale of her diagnosis at the age of 46 with stage IV follicular non-Hodgkin lymphoma, an incurable blood cancer, after years of consulting doctors who were either baffled by, or just plain off-base in their assessment of her presenting symptoms. In March 2018, after
bkoffman
CLL CURE Hero
in
CLL Support
3 years ago
Mrs Cropley’s Christmas Creation: Ginger and Honey Latte!
Hello everyone - here’s a winter warmer to spread some cheer at this very tricky time. Not really an original recipe but I was inspired to make it after receiving a lovely Christmas gift of pantry goodies that included crystallised ginger and raw honeycomb! (Naughty me couldn’t wait until Christmas Day
Hello everyone - here’s a winter warmer to spread some cheer at this very tricky time. Not really an original recipe but I was inspired to make it after receiving a lovely Christmas gift of pantry goodies that included crystallised ginger and raw honeycomb! (Naughty me couldn’t wait until Christmas Day
Horsewhisper
in
LUPUS UK
3 years ago
WARWICK's ASCT Journey Begins Today...
Post by MPN-MATE Admin » Mon Feb 08, 2021 4:23 pm Hey everyone... :D As the subject of this Post is about Warwick's Allogenic Stem Cell Transplant journey, he will come back as he progresses through each stage of this journey to share the experience w/ ALL MPNers, who might have an interest... I met
Post by MPN-MATE Admin » Mon Feb 08, 2021 4:23 pm Hey everyone... :D As the subject of this Post is about Warwick's Allogenic Stem Cell Transplant journey, he will come back as he progresses through each stage of this journey to share the experience w/ ALL MPNers, who might have an interest... I met
socrates_8
in
MPN Voice
3 years ago
Has anyone had more than one FISH test?
I’ve been on IB for two years and 17p deleted and was wondering if the genetic mutations could change? I asked my oncologist and he said if I did the stem cell transplant he would request it but have any of you had a second test?
I’ve been on IB for two years and 17p deleted and was wondering if the genetic mutations could change? I asked my oncologist and he said if I did the stem cell transplant he would request it but have any of you had a second test?
steve_canada
in
CLL Support
3 years ago
Help with Non Hodkin’s Lymphoma
Hello I’m new here. I have just started a new regimen of treatment for Follicular Lymphoma. The first regimen R-CHOP got rid of the lump in my groin but unfortunately the lumps in my chest and neck resisted the treatment. My consultant told me this is not a good sign and he is concerned. They are communicating
Hello I’m new here. I have just started a new regimen of treatment for Follicular Lymphoma. The first regimen R-CHOP got rid of the lump in my groin but unfortunately the lumps in my chest and neck resisted the treatment. My consultant told me this is not a good sign and he is concerned. They are communicating
Charlie120920
in
Non Hodgkin's Lymphoma Friends
4 years ago
Short Update on Ibrutinib + Idelalisib + Venetoclax "N of 1" trial after lower dose.
A update on my very surprising results when combining Ibrutinib + Idelalisib + Venetoclax. Initial Post with more detail: https://healthunlocked.com/cllsupport/posts/145327977/my-n-of-1-trial-with-ibrutinib-idelalisib-venetoclax-that-lead-to-remission-of-richters-in-three-weeks. I just had a second [
A update on my very surprising results when combining Ibrutinib + Idelalisib + Venetoclax. Initial Post with more detail: https://healthunlocked.com/cllsupport/posts/145327977/my-n-of-1-trial-with-ibrutinib-idelalisib-venetoclax-that-lead-to-remission-of-richters-in-three-weeks. I just had a second [
UniversallyPersonal
in
CLL Support
3 years ago
Quick Question to anyone previously shielding, over 70 and in Scotland
Hi all, It’s been a while since I’ve posted on the site but I’ve been keeping up to date with all your posts. I hope you’re all keeping safe and as well as you can. I have a question to anyone in their 70s who was/is officially shielding and lives in Scotland. Have you received your letter inviting
Hi all, It’s been a while since I’ve posted on the site but I’ve been keeping up to date with all your posts. I hope you’re all keeping safe and as well as you can. I have a question to anyone in their 70s who was/is officially shielding and lives in Scotland. Have you received your letter inviting
Froggie70
in
LUPUS UK
3 years ago
Richter's in Remission - 11 months post transplant
I've been away from HealthUnlocked for some time following my allogenic bone marrow transplant for Richter's Transformation 11 months ago at MDA Houston. I'm happy to report my transplant has been a success and I'm in complete remission from Richter's and I'm feeling great. I tolerated the transplant
I've been away from HealthUnlocked for some time following my allogenic bone marrow transplant for Richter's Transformation 11 months ago at MDA Houston. I'm happy to report my transplant has been a success and I'm in complete remission from Richter's and I'm feeling great. I tolerated the transplant
SarasotaPaul
in
CLL Support
3 years ago
Living in the USA with CLL and want to know where to sign up for your COVID-19 Vaccination? A State-by-State List
From MedPage Today: [i]Every state has posted information on its plan; many (though not all) list ways to sign up. Here are links to each state's vaccination web page.[/i] https://www.medpagetoday.com/infectiousdisease/covid19/90791 CLL Society's Official Statement:
Should I get the vaccine? Which
From MedPage Today: [i]Every state has posted information on its plan; many (though not all) list ways to sign up. Here are links to each state's vaccination web page.[/i] https://www.medpagetoday.com/infectiousdisease/covid19/90791 CLL Society's Official Statement:
Should I get the vaccine? Which
AussieNeil
Partner
in
CLL Support
3 years ago
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