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Sad Times 😞
We lost our beautiful Brodie Bear two weeks ago. I haven’t posted about it because we have been trying to keep busy but we are truly heartbroken. He was only off his food for a few days then violently sick over the Easter weekend and we took him to the emergency vets. To our horror he was in kidney failure
We lost our beautiful Brodie Bear two weeks ago. I haven’t posted about it because we have been trying to keep busy but we are truly heartbroken. He was only off his food for a few days then violently sick over the Easter weekend and we took him to the emergency vets. To our horror he was in kidney failure
CecilyParsley
in
LUPUS UK
2 years ago
Bloodshot eye from a scratch now seems to be more bloodshot.
Hello all, A week ago I scratched the lower part of the white of my eye. The blood seemed to be diminishing, but several days ago when waking up the eye was painful, like very bad dry eye. Cool eye drops helped, but it is still sore and veins around the eye are more red. My vision doesn’t
Hello all, A week ago I scratched the lower part of the white of my eye. The blood seemed to be diminishing, but several days ago when waking up the eye was painful, like very bad dry eye. Cool eye drops helped, but it is still sore and veins around the eye are more red. My vision doesn’t
Mstiles
in
PMRGCAuk
2 years ago
NHS and 2nd potential anti vegf
Hello all even though I work for the NHS I still despair at the appointment system sometimes! I paid to go privately for my first anti vegf injection and the consultant said he would slot me into his nhs clinic for the second but due to probably the jubilee BH my second one will be 5 weeks 2 days after
Hello all even though I work for the NHS I still despair at the appointment system sometimes! I paid to go privately for my first anti vegf injection and the consultant said he would slot me into his nhs clinic for the second but due to probably the jubilee BH my second one will be 5 weeks 2 days after
Deepbluesea2022
in
Macular Society
2 years ago
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6 top tips for controlling seasonal allergies
As temperatures start to rise on the build-up to summer, so does the pollen count. However, the warmer weather also typically lessens joint pain for those with RA which puts many in a predicament! Here's our top 6 tips to take advantage of the Great British summer, without the bloodshot eyes. Read our
As temperatures start to rise on the build-up to summer, so does the pollen count. However, the warmer weather also typically lessens joint pain for those with RA which puts many in a predicament! Here's our top 6 tips to take advantage of the Great British summer, without the bloodshot eyes. Read our
Aribah-NRAS
NRAS
in
NRAS
2 years ago
Thiamine Tetrahydrofurfuryl Disulfide (TTFD) requires methylation
*** I ended up with High Blood Pressure taking TTFD. I no longer take TTFD. Based on my experience, I would not recommend TTFD. *** Excellent write up on Thiamine Tetrahydrofurfuryl Disulfide (TTFD) but I am unsure if it is a Methyl Donor or requires a Methyl Donor. https://www.eonutrition.co.uk/post
*** I ended up with High Blood Pressure taking TTFD. I no longer take TTFD. Based on my experience, I would not recommend TTFD. *** Excellent write up on Thiamine Tetrahydrofurfuryl Disulfide (TTFD) but I am unsure if it is a Methyl Donor or requires a Methyl Donor. https://www.eonutrition.co.uk/post
Gcf51
in
Cure Parkinson's
2 years ago
Traveling with Pegasys on airplane.
Any suggestions on traveling with Pegasys prefilled syringe? I know it needs to be stored at 36-46 degrees Fahrenheit.
Any suggestions on traveling with Pegasys prefilled syringe? I know it needs to be stored at 36-46 degrees Fahrenheit.
JeanieRN
in
MPN Voice
2 years ago
Any eye problems?
Hi My husband who has PV has had sore, itchy eyes for a couple of weeks, with painful spots appearing on the edges of his eye lids. He went to the GP 2 weeks ago and was given a couple of different eye ointments (an antibiotic and a lubricant). However, the problems haven’t gone away so I’ve persuaded
Hi My husband who has PV has had sore, itchy eyes for a couple of weeks, with painful spots appearing on the edges of his eye lids. He went to the GP 2 weeks ago and was given a couple of different eye ointments (an antibiotic and a lubricant). However, the problems haven’t gone away so I’ve persuaded
MarybellM
in
MPN Voice
2 years ago
Sjögren’s syndrome
I am suffering with bad Sjogren’s syndrome because of lupus which means I have dry eyes, dry nostrils, dry mouth, dry skin. Basically dry mucosa anywhere in my body. Does any one have this experience and what have you used to get rid of it. I have used preservative free eye drops as advised by the doctor
I am suffering with bad Sjogren’s syndrome because of lupus which means I have dry eyes, dry nostrils, dry mouth, dry skin. Basically dry mucosa anywhere in my body. Does any one have this experience and what have you used to get rid of it. I have used preservative free eye drops as advised by the doctor
favour6
in
LUPUS UK
2 years ago
Cancelled surgery
I've just found out they have cancelled my planned surgery for the second time. This time not even bothering to give me an alternative date I have angle closure glaucoma. Because of COVID, it was already advanced in my right eye when diagnosed. I was on max drop (x3) and oral diamox, it having been
I've just found out they have cancelled my planned surgery for the second time. This time not even bothering to give me an alternative date I have angle closure glaucoma. Because of COVID, it was already advanced in my right eye when diagnosed. I was on max drop (x3) and oral diamox, it having been
Efabear
in
Glaucoma UK
2 years ago
16 and been diagnosed with lupus
My son was diagnosed with lupus last year December. I feel so sorry for him he’s suffering with a lot of pain in fingers. I never knew that at the age of 16 you could get lupus. I was 38 when I was diagnosed.
My son was diagnosed with lupus last year December. I feel so sorry for him he’s suffering with a lot of pain in fingers. I never knew that at the age of 16 you could get lupus. I was 38 when I was diagnosed.
djsema
in
LUPUS UK
2 years ago
What else is available?
I have done Carbo/Taxol, Avastin, Carbo/Caelyx, Rubrac a and now Anastrazole. I have a scan coming up, but lately can feel the cancer spreading and am resorting to pain killers. Can anyone who has had this many lines of chemo tell me what else was available for them to try, and also how successful it
I have done Carbo/Taxol, Avastin, Carbo/Caelyx, Rubrac a and now Anastrazole. I have a scan coming up, but lately can feel the cancer spreading and am resorting to pain killers. Can anyone who has had this many lines of chemo tell me what else was available for them to try, and also how successful it
27-359
in
My Ovacome
2 years ago
Drooling/Botox/dry mouth
Drooling: I had Botox injections in my salivary glands to reduce drooling. I now have extreme dry mouth (cotton mouth). Supposedly takes months to wear off. The cotton mouth is more bothersome than the drooling. Has anyone experience this?
Drooling: I had Botox injections in my salivary glands to reduce drooling. I now have extreme dry mouth (cotton mouth). Supposedly takes months to wear off. The cotton mouth is more bothersome than the drooling. Has anyone experience this?
Gcf51
in
Cure Parkinson's
2 years ago
Happy World Lupus Day
Hello everyone I hope you all haven't got too much 'cuteness overload' with all the lovely Spring Births!. I couldn't resist these dancing lambs at Bleinham Palace probably getting excited at the Queen's forthcoming Platinum Jubilee!. I do hope you enjoy them too. Hope your all as well as possible and
Hello everyone I hope you all haven't got too much 'cuteness overload' with all the lovely Spring Births!. I couldn't resist these dancing lambs at Bleinham Palace probably getting excited at the Queen's forthcoming Platinum Jubilee!. I do hope you enjoy them too. Hope your all as well as possible and
misty14
in
LUPUS UK
2 years ago
Bupropion and RLS
Hi! Can I just ask if anyone has been on zyban (bupropion) and it’s helped with their RLS symptoms? And also can you take ropinirol while taking zyban?
Hi! Can I just ask if anyone has been on zyban (bupropion) and it’s helped with their RLS symptoms? And also can you take ropinirol while taking zyban?
jaime77
in
Restless Legs Syndrome
2 years ago
Fatigue after cataract surgery.
I had my first cataract operated on on 14th April. On 5mgs pred for PMR. (Diagnosed September 2020.) Since then I've been very tired, with "heavy" legs, but no other PMR symptoms. As my sight is now very "imbalanced" until I get my new specs, is it likely that the fatigue is caused by my brain
I had my first cataract operated on on 14th April. On 5mgs pred for PMR. (Diagnosed September 2020.) Since then I've been very tired, with "heavy" legs, but no other PMR symptoms. As my sight is now very "imbalanced" until I get my new specs, is it likely that the fatigue is caused by my brain
Grannymiaow
in
PMRGCAuk
2 years ago
First taper
New PMR diagnosis here, learning so much from this group. Thank you all. I’ve been taking Prednisone at 25mg for almost 4 weeks now and will be starting a taper soon. I started on 15, with welcomed but only partial symptom relief (? maybe 50%, lasting 1/2 the time to next dose). Dose was then increased
New PMR diagnosis here, learning so much from this group. Thank you all. I’ve been taking Prednisone at 25mg for almost 4 weeks now and will be starting a taper soon. I started on 15, with welcomed but only partial symptom relief (? maybe 50%, lasting 1/2 the time to next dose). Dose was then increased
Egunon
in
PMRGCAuk
2 years ago
Emergency eye problems - urgent local services
https://primaryeyecare.co.uk/services/urgent-eyecare-service/ While looking stuff up for a post about eye problems to day I found this urgent care service for eye problems. "What is the Urgent Eyecare Service? The Urgent Eyecare Service (UES) provides urgent assessment, treatment or referral for sudden
https://primaryeyecare.co.uk/services/urgent-eyecare-service/ While looking stuff up for a post about eye problems to day I found this urgent care service for eye problems. "What is the Urgent Eyecare Service? The Urgent Eyecare Service (UES) provides urgent assessment, treatment or referral for sudden
PMRpro
Ambassador
in
PMRGCAuk
2 years ago
EMDR
Has anyone tried EMDR Therapy for PTSD? Would like to hear your experiences and how it was in the beginning, did you get better?
Has anyone tried EMDR Therapy for PTSD? Would like to hear your experiences and how it was in the beginning, did you get better?
Ali500
in
Anxiety and Depression Support
2 years ago
Nicotinamide Treatment
A month ago some of you (and me) started to take nicotinamide mononucleotide to halt glaucoma progression and maybe improve vision, as was reported in a trial in Australia. Has anyone as yet seen any difference or improvement? I am not sure if my situation is better but it does feel different with some
A month ago some of you (and me) started to take nicotinamide mononucleotide to halt glaucoma progression and maybe improve vision, as was reported in a trial in Australia. Has anyone as yet seen any difference or improvement? I am not sure if my situation is better but it does feel different with some
blackdog76
in
Glaucoma UK
2 years ago
The PSP-CBD Ice Cream Challenge Day 6
The PSP-CBD Ice Cream Challenge 2022 Day 6 - Sugar Shack - BANG BANG BABY Base - softened French Vanilla ice cream Log Shack - Chocolate Finger biscuits (licked clean) Maple Creme Maple Trees Graham Wafer roof with marshmallow snow Milk chocolate poles, fire pot and chocolate finger biscuits logs
The PSP-CBD Ice Cream Challenge 2022 Day 6 - Sugar Shack - BANG BANG BABY Base - softened French Vanilla ice cream Log Shack - Chocolate Finger biscuits (licked clean) Maple Creme Maple Trees Graham Wafer roof with marshmallow snow Milk chocolate poles, fire pot and chocolate finger biscuits logs
daddyt
in
PSP Association
2 years ago
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