Experiences with

Craniotomy

He is down to have a craniotomy asap just awaiting SALT/MRI and memory test. We have a young family (3 month old and 2 yr old). Has anyone been through anything similar? Have any advice?

Hello, I had a craniotomy in 2020 for Atypical meningioma grade 2. At present, the cyst of the tumour cavity is enlarged and now the size is 4.5 cm. Along with Post-surgical hemorrhagic collection and compression by an enlargement of the tumor cavity, there is bleeding in the brain.

Hi, I had a craniotomy and resection of petroclival meningioma in May 2022 but as attached to brain stem it can’t be fully removed. Due to minor growth and change of shape I am having radiotherapy starting on 22nd for 6 weeks, Monday - Friday, what has been other peoples experience?

Hey, I had a craniotomy on my left temporal lobe just over 8 weeks ago now. I always have headaches but for the past few days my headache has got worse and has changed slightly to more pressure and pounding. Has anyone else had this?

hello I joined this group to hear how others are recovering from their crainotomy. I had my surgery 3 weeks ago to remove a meningioma which I’ve known about and had annual MRIs for the last 12 years. I’m kicking goals with my recovery was sent home 24 hrs after surgery due to no space in hospital

It resulted in a craniotomy and I was in an induced coma for a couple of days. I'm slowly beginning to feel better but I just don't feel like myself. I'm tired all the time and I get angry over nothing. Any support or advice would be most appreciated

I had a Craniotomy procedure 10 months ago I still have the right side of my scull exposed awaiting reconstructive surgery My head seems to swell quite a bit at the moment again where it’s exposed does anyone else have this problem

Anyway after craniotomy/cranioplasty, alloplastic was used to replace skull and eye bone. First week I spoke like a toddler but having speech help and support I kind of in a way back to how I was, nearly 4 weeks the finally discharged. All BT removed however cells/remnant possibly remained.

The doctors decided a craniotomy was needed. Dan got through that okay and was talking and seemed to be okay but he started having seizures. The hospital put him in an induced coma on Friday.

She has a craniotomy on new years eve but tumour was partially removed. Biopsy confirmed GBM grade IV. She was transfered to be treated at a local hospital which the oncologists board decided she will have palliative care only.

The most recent surgery, which was a craniotomy, was just 1.5 years ago, and I suspect that there is still the occasional drop pf csf and therefore I'm at risk of meningitis... again.

My adult child was in a bad car accident and had to have craniotomy and craniectomy. They are doing better now it's been two months but the psch Dr keeps trying different meds that don't help or make them more tired. They have also been put in propranolol for headaches.

Watching and waiting feels like living with a ticking time bomb although really scared at the prospect of a craniotomy!! So hard to come to terms with just not knowing what lies ahead. Sorry just needed to sound off!

He received a bleed to the brain and had to have a craniotomy . Amazingly he recovered and even went back to work but in 2018 I noticed a change in his walking and a movement in his eye . We were waiting for an appointment with a neuro-opthamologist when covid struck -and so the nightmare began .

My son, following meningitis and a craniotomy last month, has informed me that he has started seeing a large black figure at the end of his bed whilst he is awake and it's making him fearful to sleep. He has been on anti seizure medication since the incident.

His injury is on the left side and he had a craniotomy. Am I to expect that his communication will remain this confused or is this to be expected after 5 weeks from coma. Any advice appreciated.

My partner (who frequents this forum) had a severe TBI with the following injuries: Left extradural bleed Subarachnoid bleed Subdural bleed Acute parenchymal contusion Temporal bone fracture Left zygomatic arch non displaced fracture She had an emergency craniotomy within a couple of hours

9/21, Craniotomy, removed tumor (PC). 6 months later, 3 lesions, brain, PC. 5/22, SAS of tumors, subscribed Lupron & Erleada. Since then, all's well. The lupron keeps the PC out of the lymph system in the body, the Erleada penetrates the brain.

He sustained a severe head injury and had a craniotomy. He can only open his right eye at the moment (his injury is on the left side) He now has a tracheotomy and they are weaning him off the ventilator which seems to be tiring him out. He is nodding when asked a question and muttering words.

When he had his accident in 2019 they said that they didn’t expect him to survive his TBI, but we were so blessed that after 3 moths in hospital and after craniotomy he fully recovered. For all intents and purposes he has returned to a normal life.