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Chronic fatigue/ long covid and fitness journey.
hi! Just asking if anyone who has had long covid with fatigue being the main symptom has started their journey back to health again? I was a casual runner before and regret pounding away on the treadmill whilst struggling to breathe when I had covid. My lungs have been damaged but I need to try
hi! Just asking if anyone who has had long covid with fatigue being the main symptom has started their journey back to health again? I was a casual runner before and regret pounding away on the treadmill whilst struggling to breathe when I had covid. My lungs have been damaged but I need to try
Esra82
in
Couch to 5K
1 year ago
New test detects COVID accurately, within hours of infection
https://www.simonsfoundation.org/2023/02/27/new-testing-approach-diagnoses-covid-19-with-near-perfect-accuracy/ SNIP, with my emphasis \\ [i]Most existing COVID-19 tests “rely on the same principle, which is that you have accumulated a detectable amount of viral material, for example, in your nose,
https://www.simonsfoundation.org/2023/02/27/new-testing-approach-diagnoses-covid-19-with-near-perfect-accuracy/ SNIP, with my emphasis \\ [i]Most existing COVID-19 tests “rely on the same principle, which is that you have accumulated a detectable amount of viral material, for example, in your nose,
bennevisplace
in
CLL Support
1 year ago
Off Treatment Thoughts
Wondering if anyone has experienced this or has thoughts: 13 q Muted. Was on ibrutinib followed by zanubrutinib for consecutive 24 months. Labs normalized and stayed that way within 6 weeks of initiating treatment. So was on BTKi therapy for two years Have been off zanubrutinib since July 2022
Wondering if anyone has experienced this or has thoughts: 13 q Muted. Was on ibrutinib followed by zanubrutinib for consecutive 24 months. Labs normalized and stayed that way within 6 weeks of initiating treatment. So was on BTKi therapy for two years Have been off zanubrutinib since July 2022
Davidcara
in
CLL Support
1 year ago
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CA27-29 numbers and Covid
Has anyone experienced their CA 27-29 numbers going up due to their having Covid or another of the nasty viruses going around these days? I’ve been sick the past two months. Home test was negative for Covid but we seem to have some viruses that are every bit as bad and my tumor markers crept up to 49
Has anyone experienced their CA 27-29 numbers going up due to their having Covid or another of the nasty viruses going around these days? I’ve been sick the past two months. Home test was negative for Covid but we seem to have some viruses that are every bit as bad and my tumor markers crept up to 49
Ilovehorses
in
SHARE Metastatic Breast Cancer
1 year ago
Activities during 2ww - how careful are you about attending social events etc?
Hello, I've got an FET coming up and am on steroids for this one. I've got a few planned activities which involves a gig which I'd loved to go to but I'm just not sure its worth the risk with COVID still about, especially if my immune system is slightly dampened with the drugs. Wondering what other people
Hello, I've got an FET coming up and am on steroids for this one. I've got a few planned activities which involves a gig which I'd loved to go to but I'm just not sure its worth the risk with COVID still about, especially if my immune system is slightly dampened with the drugs. Wondering what other people
Bookbroad
in
Fertility Network UK
1 year ago
Long covid and prosthetic issues
I have not been able to get the covid omicron booster because I am allergic to an ingredient in the Moderna and Phizer. But I have had 2 JandJs, and a mild case of covid a year ago. After a morning of sneezing 2weeks ago I tested and was surprised to see the dreaded pink line indicating I was positive
I have not been able to get the covid omicron booster because I am allergic to an ingredient in the Moderna and Phizer. But I have had 2 JandJs, and a mild case of covid a year ago. After a morning of sneezing 2weeks ago I tested and was surprised to see the dreaded pink line indicating I was positive
GinaD
in
Hughes Syndrome APS Forum
1 year ago
SLE patients may have reduced response to COVID-19 vaccination
Some immunosuppressive treatments also have an effect, study finds by Andrea Lobo, PhD | February 23, 2023 Patients with systemic lupus erythematosus (SLE) have a reduced response to COVID-19 vaccination, an effect made worse by specific immunosuppressive treatments, a recent study reports. A
Some immunosuppressive treatments also have an effect, study finds by Andrea Lobo, PhD | February 23, 2023 Patients with systemic lupus erythematosus (SLE) have a reduced response to COVID-19 vaccination, an effect made worse by specific immunosuppressive treatments, a recent study reports. A
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Gill Curwen poem called Collateral Damage
This is a poem by a lady called Gill Curwen, who suffers from Long Covid. She posted the poem up on Facebook and someone from Change.org who is campaigning for better compensation for primary carers who ended up with Long Covid, asked her if she could reproduce the poem on Change.org. When I read it
This is a poem by a lady called Gill Curwen, who suffers from Long Covid. She posted the poem up on Facebook and someone from Change.org who is campaigning for better compensation for primary carers who ended up with Long Covid, asked her if she could reproduce the poem on Change.org. When I read it
MiniSpec
in
PMRGCAuk
1 year ago
taking Niraparib whilst having covid
Hi I thought I read somewhere that if you are diagnosed with covid you should stop taking your PARP treatment? Anybody know if this is true? J x
Hi I thought I read somewhere that if you are diagnosed with covid you should stop taking your PARP treatment? Anybody know if this is true? J x
Jingles6
in
My Ovacome
1 year ago
Syringe
A recently change of my biologic arrived requiring syringe application where previous biologic was via pen applicator which was easy and fine to self administer.Administering the first dose of new biologic was awkward and unpleasant to do with its longer needle and pushing the plunger with a swollen
A recently change of my biologic arrived requiring syringe application where previous biologic was via pen applicator which was easy and fine to self administer.Administering the first dose of new biologic was awkward and unpleasant to do with its longer needle and pushing the plunger with a swollen
Wantplaytennis
in
NRAS
1 year ago
Acalabrutinib and covid vaccines
I have been on acalabrutinib for 2 months and doing very well. It has been about 6 months since I have had my last covid vaccine , and I am due for another. My question is will the covid vaccines work while taking acalabrutinib?
I have been on acalabrutinib for 2 months and doing very well. It has been about 6 months since I have had my last covid vaccine , and I am due for another. My question is will the covid vaccines work while taking acalabrutinib?
Rrriver
in
CLL Support
1 year ago
Paxlovid
After keeping the dreaded Covid at bay for almost three years I finally tested positive last week. I had assumed this would happen at some point but being immunocompromised it goes without saying that it’s a worrying time. Fortunately I was able to access antivirals very easily and started taking them
After keeping the dreaded Covid at bay for almost three years I finally tested positive last week. I had assumed this would happen at some point but being immunocompromised it goes without saying that it’s a worrying time. Fortunately I was able to access antivirals very easily and started taking them
Hightower62
in
NRAS
1 year ago
Severe Cold, to Bronchitis; PMR has not returned
Had gotten a cold that became tenacious, as after 1 week of a head cold it progressed to my chest. A week later I had Bronchitis for the first time in my life and starting with week 3 my GP put me on a Prednisone routine of 40 mg, 30, 20, 10 over a course of 10 days. As if that wasn’t enough, she
Had gotten a cold that became tenacious, as after 1 week of a head cold it progressed to my chest. A week later I had Bronchitis for the first time in my life and starting with week 3 my GP put me on a Prednisone routine of 40 mg, 30, 20, 10 over a course of 10 days. As if that wasn’t enough, she
Boss302Fan
in
PMRGCAuk
1 year ago
Have just tested positive for Covid. Currently on 7.5mg prednisolone. Is it OK to take Snip twice a day or should I increase my dosage?
What I thought were standard cold symptoms - sore throat, runny nose and congestion - have turned out to be Covid. This is Day 2 and I don't feel too bad. I took a Snip last night and again this afternoon. It certainly helps but I seem to remember reading that you had to be careful taking this type
What I thought were standard cold symptoms - sore throat, runny nose and congestion - have turned out to be Covid. This is Day 2 and I don't feel too bad. I took a Snip last night and again this afternoon. It certainly helps but I seem to remember reading that you had to be careful taking this type
Pr0jection
in
PMRGCAuk
1 year ago
Research project update: COVID-19 vaccine responses in lupus patients
We have an update from one of the research projects LUPUS UK funded, which was looking at the response of people with lupus to COVID-19 vaccines. You can read about what they found on our website here: https://www.lupusuk.org.uk/understanding-covid-19-vaccine-responses-in-lupus-patients/ Feel free
We have an update from one of the research projects LUPUS UK funded, which was looking at the response of people with lupus to COVID-19 vaccines. You can read about what they found on our website here: https://www.lupusuk.org.uk/understanding-covid-19-vaccine-responses-in-lupus-patients/ Feel free
Debbie_kinsey
Administrator
in
LUPUS UK
1 year ago
CLL and Covid experiences
Hi, I am 65, have relapsed CLL after FCR treatment, made no antibodies to 6 Covid vaccinations. Otherwise I am healthy and physically very active. I'm so tire of the mask everywhere and so is my wife. Can anyone tell me if they have had Covid and how it went for them? Or anyone that can
Hi, I am 65, have relapsed CLL after FCR treatment, made no antibodies to 6 Covid vaccinations. Otherwise I am healthy and physically very active. I'm so tire of the mask everywhere and so is my wife. Can anyone tell me if they have had Covid and how it went for them? Or anyone that can
skipro
in
CLL Support
1 year ago
6 months post Covid and running shoes back on!
Well, it’s 6 months since I had Covid and then long Covid and at last I managed a 5 minute ‘jog’. It was slow but felt good. I mustn’t push it as until a month ago, I couldn’t even walk round the block without getting out of breath. So, I will soon be back doing C25K but may do each week twice!
Well, it’s 6 months since I had Covid and then long Covid and at last I managed a 5 minute ‘jog’. It was slow but felt good. I mustn’t push it as until a month ago, I couldn’t even walk round the block without getting out of breath. So, I will soon be back doing C25K but may do each week twice!
Phdgranny
Graduate
in
Couch to 5K
1 year ago
Reaction between thyroid meds and antibiotics and increased sensitivity to prescription drugs
I have really been suffering with a sinus infection following Covid in December last year. My gp prescribed Doxycycline 100 mg capsules. This was at my request. I had suffered with a sinus infection for almost eighteen months following a previous bout of Covid. The side affects were not pleasant but
I have really been suffering with a sinus infection following Covid in December last year. My gp prescribed Doxycycline 100 mg capsules. This was at my request. I had suffered with a sinus infection for almost eighteen months following a previous bout of Covid. The side affects were not pleasant but
dizzy864
in
Thyroid UK
1 year ago
Making a Comeback from Covid ??? We Will but it may take a While ...
Despite some reports to the contrary, a lot of people are still getting the
coronavirus
.
Despite some reports to the contrary, a lot of people are still getting the
coronavirus
.
Oldfloss
Administrator
in
Bridge to 10K
1 year ago
ectopic beats
hi I’m 18 years old and I have always been in perfect health until around 2 years ago when I got covid for the first time, around 7-8 months after having covid i started experiencing rapid heart rate upon standing and suspect I have POTS but my beta blockers help massively in keeping my heart rate down
hi I’m 18 years old and I have always been in perfect health until around 2 years ago when I got covid for the first time, around 7-8 months after having covid i started experiencing rapid heart rate upon standing and suspect I have POTS but my beta blockers help massively in keeping my heart rate down
Maix
in
British Heart Foundation
1 year ago
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