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May - Vasculitis Awareness Month
May - Day 30 Vasculitis Awareness Month - Large Vessel Vasculitis is rare, can be complex and can be difficult to diagnose as symptoms may confuse the clinicians. Take a moment to read Maxine's story! To donate to VasculitisUK ‘s campaign this month to support patients and research - https://justgiving.com
May - Day 30 Vasculitis Awareness Month - Large Vessel Vasculitis is rare, can be complex and can be difficult to diagnose as symptoms may confuse the clinicians. Take a moment to read Maxine's story! To donate to VasculitisUK ‘s campaign this month to support patients and research - https://justgiving.com
zoe69
Vasculitis UK
in
Vasculitis UK
2 months ago
Low Dose Aspirin for Heart Disease
My cardiologist wants me to take a daily low dose aspirin, but I am hesitant as I have a history of proteinuria. I know the studies are inconclusive as to whether or not it helps (and even my cardiologist admits that), but I have a bad valve and my risk is moderately high for sudden death/stroke. I'm
My cardiologist wants me to take a daily low dose aspirin, but I am hesitant as I have a history of proteinuria. I know the studies are inconclusive as to whether or not it helps (and even my cardiologist admits that), but I have a bad valve and my risk is moderately high for sudden death/stroke. I'm
GoodHealthIsAJourney
in
Early CKD Support
2 months ago
unexplained chest pain and shortness of breath .
had a problem with chest pain and breathless ness did all the checks and could find out where it came from. Wondered if this was another by product of rheumatoid arthritis?
had a problem with chest pain and breathless ness did all the checks and could find out where it came from. Wondered if this was another by product of rheumatoid arthritis?
Susiequest
in
NRAS
3 months ago
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Ramadan Autoimmune Health Survey (including vasculitis)
https://www.vasculitis.org.uk/news/ramadan-autoimmune-health-survey Please follow the above link for more details 👆
https://www.vasculitis.org.uk/news/ramadan-autoimmune-health-survey Please follow the above link for more details 👆
Suzi70
Administrator
in
Vasculitis UK
3 months ago
Lupus centre of excellence
Morning all, can anyone advise if they have been referred to a Lupus centre of excellence outside their area? If so was the referral done by GP?Many thanks
Morning all, can anyone advise if they have been referred to a Lupus centre of excellence outside their area? If so was the referral done by GP?Many thanks
Jenfy34
in
LUPUS UK
3 months ago
How high is high phosphorous??
I just got labs back. I was happy to see the crazy good numbers. Even with 2 hours3 days a week. only. MY creatinine went down from almost 7 to 5.89. My bun, pth, potassium all went down and are in range. Calcium in range. Glucose in range. A1C 5.3. the only number that was bad was phosphorous which
I just got labs back. I was happy to see the crazy good numbers. Even with 2 hours3 days a week. only. MY creatinine went down from almost 7 to 5.89. My bun, pth, potassium all went down and are in range. Calcium in range. Glucose in range. A1C 5.3. the only number that was bad was phosphorous which
Bassetmommer
in
Kidney Dialysis
6 months ago
PSA Rising
Had surgery in November 2021. Gleason 4+3...Post surgery PSA was 0.01. Positive margin (1 millimetre). PSA has risen from 0.1 to 0.06 in 24 months. Doctor says I should do nothing. Until it hits 0.2. Next test is June 2024. Any advice will be appreciated.
Had surgery in November 2021. Gleason 4+3...Post surgery PSA was 0.01. Positive margin (1 millimetre). PSA has risen from 0.1 to 0.06 in 24 months. Doctor says I should do nothing. Until it hits 0.2. Next test is June 2024. Any advice will be appreciated.
Whatnext2019
in
Advanced Prostate Cancer
6 months ago
Paroxysmal atrial fribulation
Me again all taking 1.25 mg of bisoprolol and 120 mmg of digoxin afib seems to be better at the moment still getting a few ectopic s working on these some how as nothing left in the medication bucket of the nhs at the moment just a general question my sleeping bpm seems to be about 44 to 50 anyone
Me again all taking 1.25 mg of bisoprolol and 120 mmg of digoxin afib seems to be better at the moment still getting a few ectopic s working on these some how as nothing left in the medication bucket of the nhs at the moment just a general question my sleeping bpm seems to be about 44 to 50 anyone
Aprilla12345
in
Atrial Fibrillation Support
2 months ago
Advice Greatly Appreciated
Good Day, I would sooooo appreciate a response/advice/opinions.... I was recently advised by my GP (family doctor) that I have cirrhosis. This is of course terrifying...I apparently had sever fatty liver in July 2021 but I was sadly not informed of this. I would have turned it around immediately.
Good Day, I would sooooo appreciate a response/advice/opinions.... I was recently advised by my GP (family doctor) that I have cirrhosis. This is of course terrifying...I apparently had sever fatty liver in July 2021 but I was sadly not informed of this. I would have turned it around immediately.
Confused2024
in
British Liver Trust
6 months ago
Warfarin
Has anyone experienced Warfarin failing you more than once? I have had three different instances where I had large clots in my lungs while on it. I am still on it (after my coverage from work denied paying for Framing injections - the only anticoagulant that hasn't failed me). Just wondering if this
Has anyone experienced Warfarin failing you more than once? I have had three different instances where I had large clots in my lungs while on it. I am still on it (after my coverage from work denied paying for Framing injections - the only anticoagulant that hasn't failed me). Just wondering if this
Willow7733
in
Hughes Syndrome APS Forum
2 months ago
I NEVER LEARN
Hello everyone, It's 5:44 AM in California and the paramedics have just left. I called them as while lying in bed I felt nauseous, and stomach felt odd so I put my oximeter on my finger and watched it go down to 29 and then back up to baseline HR for me of 50 and it really freaked me out but I tried
Hello everyone, It's 5:44 AM in California and the paramedics have just left. I called them as while lying in bed I felt nauseous, and stomach felt odd so I put my oximeter on my finger and watched it go down to 29 and then back up to baseline HR for me of 50 and it really freaked me out but I tried
kocoach
in
Atrial Fibrillation Support
2 months ago
Mr Geoff Lloyd
Diagnosed in 2010 with advanced PC. Prostatectomy in 2011 followed by the "all clear". PSA refused to disappear and so RT followed. PSA still present and PC nodules found in my lung in 2021. I then had a 6 session course of chemotherapy and have been on Abiaterone and Demoxosone drugs ever since.Nodules
Diagnosed in 2010 with advanced PC. Prostatectomy in 2011 followed by the "all clear". PSA refused to disappear and so RT followed. PSA still present and PC nodules found in my lung in 2021. I then had a 6 session course of chemotherapy and have been on Abiaterone and Demoxosone drugs ever since.Nodules
Churchman123
in
Advanced Prostate Cancer
6 months ago
Hello everyone, question about gluten and globus (feeling of lump in throat) ?
Hello everyone, question about gluten and globus (feeling of lump in throat) I also have painful tongue, chronic constipation, bouts of diarrhoea, I've had rashes that look like little spots/patches over the years, burning mouth, tongue, oesophagus, sore stomach, and tingling/vibrating in stomach and
Hello everyone, question about gluten and globus (feeling of lump in throat) I also have painful tongue, chronic constipation, bouts of diarrhoea, I've had rashes that look like little spots/patches over the years, burning mouth, tongue, oesophagus, sore stomach, and tingling/vibrating in stomach and
Suffering_sunny
in
Gluten Free Guerrillas
3 months ago
update on switching to digoxin from lopressor
Stopped digoxin this am and starting back on lopressor. bad heartburn and nausea just kept getting worse. Lots of hydrating and will explore ablation. Really felt sick on digoxin. Although don't feel generally great this was really not a good experience.
Stopped digoxin this am and starting back on lopressor. bad heartburn and nausea just kept getting worse. Lots of hydrating and will explore ablation. Really felt sick on digoxin. Although don't feel generally great this was really not a good experience.
farewelltoarms
in
Atrial Fibrillation Support
2 months ago
PA COVID vaccine and atherosclerosis
hi sweet people. I had pa diagnosis 3 month ago and severe atherosclerosis in legs and abdominal vessels. Probably also cardiac vessels All of that started a year ago with 4th COVID vaccine. Had stent surgery in femoral arteries and mesenteric artery. But my abdominal pains don’t improve. Can all
hi sweet people. I had pa diagnosis 3 month ago and severe atherosclerosis in legs and abdominal vessels. Probably also cardiac vessels All of that started a year ago with 4th COVID vaccine. Had stent surgery in femoral arteries and mesenteric artery. But my abdominal pains don’t improve. Can all
Sissiotto
in
Pernicious Anaemia Society
8 months ago
Puzzling Tachycardia
Hi Everybody, I hope someone in this lovely community will be able to help me understand my puzzling tachycardia. Just to give you some background. I have been diagnosed with paroxysmal AFIB little over five years ago. I have been on Amiodarone (100 mg) for the past four years. Amiodarone helps, but
Hi Everybody, I hope someone in this lovely community will be able to help me understand my puzzling tachycardia. Just to give you some background. I have been diagnosed with paroxysmal AFIB little over five years ago. I have been on Amiodarone (100 mg) for the past four years. Amiodarone helps, but
Ruza2020
in
Atrial Fibrillation Support
2 months ago
💤 sleep
I've always been a good sleeper but following the stroke triggered by brain aneurysm surgery. I've been regularly finding myself waking at 1-2am thinking it's the morning and time to get up. I'm living in a rehab unit so there are always staff around to reorientate me to the time but it's an annoying
I've always been a good sleeper but following the stroke triggered by brain aneurysm surgery. I've been regularly finding myself waking at 1-2am thinking it's the morning and time to get up. I'm living in a rehab unit so there are always staff around to reorientate me to the time but it's an annoying
GardenElf
in
Brain Aneurysm Support
6 months ago
Slowly Reducing Antiarrhythmic medications
I had an abalation just on 3 months ago. After the first month my EP advised I can start reducing my medication which is Flecainide and Dilitiazem and he did not need to see me anymore. I am now taking 50mg Flec. and was initially taking 100mg. By July I should be medication free. I have had some
I had an abalation just on 3 months ago. After the first month my EP advised I can start reducing my medication which is Flecainide and Dilitiazem and he did not need to see me anymore. I am now taking 50mg Flec. and was initially taking 100mg. By July I should be medication free. I have had some
Murphy10
in
Atrial Fibrillation Support
2 months ago
May- Vasculitis Awareness Month
May - Day 28 Vasculitis Awareness Month HUV is a more severe type of vasculitis and almost always affects females. Vasculitis is a challenging illness to live with: ''Living with vasculitis is a hard task with a lot of ups and downs, and the future feels quite frightening. Now, six years on, I have
May - Day 28 Vasculitis Awareness Month HUV is a more severe type of vasculitis and almost always affects females. Vasculitis is a challenging illness to live with: ''Living with vasculitis is a hard task with a lot of ups and downs, and the future feels quite frightening. Now, six years on, I have
zoe69
Vasculitis UK
in
Vasculitis UK
2 months ago
Advice, please!
Over the past four months I’ve had a very painful knee. I have a doctor’s appointment next week. I suspect it is osteoarthritis (I’m 68). I’m also aware that other joints, particularly my shoulders, are also aching, especially when I get up in the mornings. I am taking 60 mg Lixiana, 1.25 mg Bisoprolol
Over the past four months I’ve had a very painful knee. I have a doctor’s appointment next week. I suspect it is osteoarthritis (I’m 68). I’m also aware that other joints, particularly my shoulders, are also aching, especially when I get up in the mornings. I am taking 60 mg Lixiana, 1.25 mg Bisoprolol
Rog65
in
Atrial Fibrillation Support
2 months ago
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