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Coronary vasospastic disease
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ET Increase in Platelets Linear or Random?
I've had ET since my early 30s and my platelets seem to be increasing by a set amount each year, I'm now in my 40s and platelets are at 900. It seems like I should be able to plot that and figure out when its going to get to a worrying level. So I guess I'd like to know at what level will I need to
I've had ET since my early 30s and my platelets seem to be increasing by a set amount each year, I'm now in my 40s and platelets are at 900. It seems like I should be able to plot that and figure out when its going to get to a worrying level. So I guess I'd like to know at what level will I need to
Jpn4
in
MPN Voice
1 month ago
Today our fragmented NHS
I have been struggling with vibrating feet and balance issues my ESR is raised and MCV so emailed Rheumatoid nurse already had a routine telephone conversation this week. She rung me about 6pm today obviously at home I don't think she had access to my bloods didn't really listen told me to go to walk
I have been struggling with vibrating feet and balance issues my ESR is raised and MCV so emailed Rheumatoid nurse already had a routine telephone conversation this week. She rung me about 6pm today obviously at home I don't think she had access to my bloods didn't really listen told me to go to walk
welsh12
in
NRAS
3 months ago
occasional AF
My husband has recently had several bouts of AF lasting just a few minutes each. Heart rate only slightly raised. He is 72, pretty fit and not overweight. Had an ECG at the doctors which didn't detect AF. GP just said to leave it but call an ambulance if happens again and he is breathless. Is this how
My husband has recently had several bouts of AF lasting just a few minutes each. Heart rate only slightly raised. He is 72, pretty fit and not overweight. Had an ECG at the doctors which didn't detect AF. GP just said to leave it but call an ambulance if happens again and he is breathless. Is this how
Norfolk_spaniel
in
Atrial Fibrillation Support
1 month ago
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10 year PMR anniversary! A new drug for me called Etanercept being advised.
Originally 'diagnosed' with PMR in 2014, initially controlled with prednisolone and then Methotrexate introduced in 2018 after I queried my diagnosis and treatment plan. A PET scan in 2018 by my new Rheumatologist satisfied him that I had PMR. Leflunomide trialled but did not work for me. My aim is
Originally 'diagnosed' with PMR in 2014, initially controlled with prednisolone and then Methotrexate introduced in 2018 after I queried my diagnosis and treatment plan. A PET scan in 2018 by my new Rheumatologist satisfied him that I had PMR. Leflunomide trialled but did not work for me. My aim is
MC60
in
PMRGCAuk
3 months ago
Multaq Side Effects
Been on 400mg of Multaq bid for a month now and have had few issues with it so far but what I have noticed is that an hour or so after taking it I become extremely fatigued to the point I have to lie down for a nap. Is this something others have experienced? I was on Amiodarone for 6 months and had zero
Been on 400mg of Multaq bid for a month now and have had few issues with it so far but what I have noticed is that an hour or so after taking it I become extremely fatigued to the point I have to lie down for a nap. Is this something others have experienced? I was on Amiodarone for 6 months and had zero
Foreverfibber
in
Atrial Fibrillation Support
1 month ago
Lupus and Fibromyalgia with Sjogren syndrome
I have been dealing with Lupus for 11 years and it has been a day by day experience for me I have a lot of pain and anxiety but I am taking turmeric 3 times a day to get rid of the inflammation but I am still feeling better with a lot of pain but not as bad . My back hurts so bad and I found out I have
I have been dealing with Lupus for 11 years and it has been a day by day experience for me I have a lot of pain and anxiety but I am taking turmeric 3 times a day to get rid of the inflammation but I am still feeling better with a lot of pain but not as bad . My back hurts so bad and I found out I have
Denise1219
in
LUpus Patients Understanding and Support
3 months ago
Sufficient Investigation?
My brother is a bit of an ostrich, over his prostate problems. He ignored his poor urinary flow for years, and despite my repeated advice which he ignored, he subsequently had to be admitted to the emergency department due to significant obstruction. His GFR had fallen dangerously to 10. He was in
My brother is a bit of an ostrich, over his prostate problems. He ignored his poor urinary flow for years, and despite my repeated advice which he ignored, he subsequently had to be admitted to the emergency department due to significant obstruction. His GFR had fallen dangerously to 10. He was in
Nordman
in
Advanced Prostate Cancer
6 months ago
Mirena coil
My mirena coil came out anyone else this happened to? It only lasted two days and I had it under general anaesthesia. I'm annoyed now 😤 I didn't see it come out. I have endometrium hyperplasia anyone else with this?
My mirena coil came out anyone else this happened to? It only lasted two days and I had it under general anaesthesia. I'm annoyed now 😤 I didn't see it come out. I have endometrium hyperplasia anyone else with this?
Hidden
in
Endometriosis UK
6 months ago
Digoxin + Lopresspor
Is anyone on Digoxin plus Lopressor long term for chronic persistent afib and how do you feel? Thanks
Is anyone on Digoxin plus Lopressor long term for chronic persistent afib and how do you feel? Thanks
farewelltoarms
in
Atrial Fibrillation Support
1 month ago
Now what? Second go-around of docetaxel not responding.
I am 65 years old and was Diagnosed 8 years ago with stage 4 PC. Metastasis to hips, pelvis, ribs and many lymph nodes. Took 6 rounds of docetaxel followed by ongoing Lupron injections and then 3 years of Zytiga. PSA was driven down to 2.0 from 76 with 1st 6 rounds of docetaxel. Zytiga drove PSA down
I am 65 years old and was Diagnosed 8 years ago with stage 4 PC. Metastasis to hips, pelvis, ribs and many lymph nodes. Took 6 rounds of docetaxel followed by ongoing Lupron injections and then 3 years of Zytiga. PSA was driven down to 2.0 from 76 with 1st 6 rounds of docetaxel. Zytiga drove PSA down
westjl2
in
Advanced Prostate Cancer
6 months ago
3 years post successful PVI RF Ablation
Had my three year check up, ECG, Holter monitor, PM diagnostic, echo and full bloods.All good. No AFIB since ablation. BP good. PM has many years left. Only meds 15mg zarelto and 40mg micardis. Still have not got back to as much energy as I would like, maybe just getting old.
Had my three year check up, ECG, Holter monitor, PM diagnostic, echo and full bloods.All good. No AFIB since ablation. BP good. PM has many years left. Only meds 15mg zarelto and 40mg micardis. Still have not got back to as much energy as I would like, maybe just getting old.
Geoffa1
in
Atrial Fibrillation Support
2 months ago
Lupus participants needed for a study with The University of Edinburgh!
Do you have Systemic Lupus and currently experience disordered eating? If you're 18+ years old, we want to hear about your experience. For more information, please contact: l.bruha@sms.ed.ac.uk by email or via Instagram @thelupusexperience Thank you for your time.
Do you have Systemic Lupus and currently experience disordered eating? If you're 18+ years old, we want to hear about your experience. For more information, please contact: l.bruha@sms.ed.ac.uk by email or via Instagram @thelupusexperience Thank you for your time.
michaellasmith
Administrator
in
LUPUS UK
3 months ago
May is Vasculitis Awarenes Month
May - Day 6 #vasculitis awareness month. Granulomatosis of Polyangiitis or GPA (former Wegener's) is the most common of the ANCA associated vasculitisdes, but still a rare disease. Maddie is a vasculitis warrior, take a moment to read her story. To donate to #VasculitisUK ‘s campaign this month to
May - Day 6 #vasculitis awareness month. Granulomatosis of Polyangiitis or GPA (former Wegener's) is the most common of the ANCA associated vasculitisdes, but still a rare disease. Maddie is a vasculitis warrior, take a moment to read her story. To donate to #VasculitisUK ‘s campaign this month to
zoe69
Vasculitis UK
in
Vasculitis UK
2 months ago
Here We Go Again
Four days ago, I reported that after 4 ‘failed’ ablations, I had undergone a ‘successful’ cardioversion for what my EP said was atrial tachycardia. For four days, I enjoyed normal sinus rhythm and a heart rate of between 50 and 70bpm. However, my joy was short lived. This evening, whilst watching a
Four days ago, I reported that after 4 ‘failed’ ablations, I had undergone a ‘successful’ cardioversion for what my EP said was atrial tachycardia. For four days, I enjoyed normal sinus rhythm and a heart rate of between 50 and 70bpm. However, my joy was short lived. This evening, whilst watching a
frankiec5
in
Atrial Fibrillation Support
2 months ago
Lupron injection not working
Started one injection a month for lupron, October 2023. First psa test came back 26 in November, November got 2nd lupron injection, The second psa was 22 on December 11, 2023, Just got the third injection today, December 11, 2023. Lupron not reducing psa like the doc thought it would. doc said
Started one injection a month for lupron, October 2023. First psa test came back 26 in November, November got 2nd lupron injection, The second psa was 22 on December 11, 2023, Just got the third injection today, December 11, 2023. Lupron not reducing psa like the doc thought it would. doc said
woppaginny
in
Advanced Prostate Cancer
6 months ago
polycystic liver disease
I wanted to find out if anyone else had experienced severe Polycystic Liver Disease. I had resection 12 years ago which was successful but my cysts have grown back more aggressively. I have been advised by specialist that they cannot de-roof as would space simply be filled by other cysts, resection
I wanted to find out if anyone else had experienced severe Polycystic Liver Disease. I had resection 12 years ago which was successful but my cysts have grown back more aggressively. I have been advised by specialist that they cannot de-roof as would space simply be filled by other cysts, resection
Sing2011
in
British Liver Trust
6 months ago
Olaparib for Metastatic Castration-Resistant Prostate Cancer With BRCA1 and/or BRCA2 Alterations
I know these results have been known for a while but me being germline and somatic BRCA 2, I thought it would be important to post this for those warriors with this condition. TAKE-HOME MESSAGE The phase III PROfound trial showed that patients with metastatic castration-resistant prostate cancer
I know these results have been known for a while but me being germline and somatic BRCA 2, I thought it would be important to post this for those warriors with this condition. TAKE-HOME MESSAGE The phase III PROfound trial showed that patients with metastatic castration-resistant prostate cancer
Balsam01
in
Advanced Prostate Cancer
6 months ago
High Cholesterol
Any advice please on my lipid results taken from a finger prick sample when attending an appointment at Our Future Health research programme. They were elevated . Total cholesterol 7.6 mmol/L HDL 1.22 mmol/AL Triglycerides 4.72 mmol/L They did not record LDL unfortunately. It was non-fasting.
Any advice please on my lipid results taken from a finger prick sample when attending an appointment at Our Future Health research programme. They were elevated . Total cholesterol 7.6 mmol/L HDL 1.22 mmol/AL Triglycerides 4.72 mmol/L They did not record LDL unfortunately. It was non-fasting.
Maynan17
in
Thyroid UK
2 months ago
Digoxin
Can I start Digoxin while still weaning off of Lopressor? Doc said stop lopressor and start dig no weaning needed I am a little nervous after all I read Thanks for Comments
Can I start Digoxin while still weaning off of Lopressor? Doc said stop lopressor and start dig no weaning needed I am a little nervous after all I read Thanks for Comments
farewelltoarms
in
Atrial Fibrillation Support
2 months ago
Dizziness
sorry not been on for a while , moved house then had another scare with my cancer in remission. It’s 2 years since my ruptured brain aneurysm, spoke to rehab consultant ( different one ) at last he listened about my dizziness and falls he has now referred me to a ENT consultant to see if he can help
sorry not been on for a while , moved house then had another scare with my cancer in remission. It’s 2 years since my ruptured brain aneurysm, spoke to rehab consultant ( different one ) at last he listened about my dizziness and falls he has now referred me to a ENT consultant to see if he can help
Blu37
in
Brain Aneurysm Support
6 months ago
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