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ANY MALES WITH LUPUS/SLE, SJOGREN'S OR UNDIFFERENTIATED CONNECTIVE TISSUE DISEASE?
There was a great response to the invite for interviewees for zoom or email interviews for the Swansea University Medical School diagnostic journeys study; and the interviews have been incredibly helpful. We are not too far off the total number of interviewees we need at this stage. But have had very
There was a great response to the invite for interviewees for zoom or email interviews for the Swansea University Medical School diagnostic journeys study; and the interviews have been incredibly helpful. We are not too far off the total number of interviewees we need at this stage. But have had very
RupertW-SUMS
in
LUPUS UK
8 months ago
Answer to unknown question
Jan 2024 (after lots of research and nearly 3 years on from original diagnosis of Metastatic Prostate Cancer with extensive bone metastases) I have just worked out the answer to the question I didn't know I wanted to ask. Instead of worrying about PSA and other test results my real concern was "what
Jan 2024 (after lots of research and nearly 3 years on from original diagnosis of Metastatic Prostate Cancer with extensive bone metastases) I have just worked out the answer to the question I didn't know I wanted to ask. Instead of worrying about PSA and other test results my real concern was "what
Brendan1904
in
Advanced Prostate Cancer
5 months ago
Lupus information and stories
https://lupusnewstoday.com/category/news/ This link works I hope. If you are not aware of it, it could be helpful and real time stories of people with lupus.
https://lupusnewstoday.com/category/news/ This link works I hope. If you are not aware of it, it could be helpful and real time stories of people with lupus.
MrsMarigold
in
LUPUS UK
8 months ago
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What is the best app for lupus diet.
I’m struggling with my weight and what to avoid .
I’m struggling with my weight and what to avoid .
Gabriel8
in
LUPUS UK
8 months ago
Pain following fibroscan
Hi went for a fibroscan on friday .. the nurse struggled to get reading but kept trying.. diagnosed with liver cirrhosis.. since then i have very bad pain around right side ribs...diarrea .. is this normal.. is it sore ribs or my liver playing up..
Hi went for a fibroscan on friday .. the nurse struggled to get reading but kept trying.. diagnosed with liver cirrhosis.. since then i have very bad pain around right side ribs...diarrea .. is this normal.. is it sore ribs or my liver playing up..
Jender58
in
British Liver Trust
5 months ago
Any Data or MO Advice Regarding Dutasteride / Finasteride At Very Early Biochemical Recurrence?
Does anyone know of any studies or MO advice they've gotten regarding use of Dutasteride or Finasteride at very early signs of Biochemical Reccurrence (uPSA in the 0.03 - 0.1 range) prior to Salvage Radiotherapy? It's obviously going to slow PSA doubling time and thereby probably lengthen the time
Does anyone know of any studies or MO advice they've gotten regarding use of Dutasteride or Finasteride at very early signs of Biochemical Reccurrence (uPSA in the 0.03 - 0.1 range) prior to Salvage Radiotherapy? It's obviously going to slow PSA doubling time and thereby probably lengthen the time
jazj
in
Advanced Prostate Cancer
6 months ago
Do anyone have a movement disorder?
I haven't got lupus but have aps and from what I've been told you can have a movement disorder with lupus. I have involuntary movements from what looks like I'm being electrocuted (like whole body spasms that bring my whole body in) tics, left side facial spasms (also tongue) and hand movements. It's
I haven't got lupus but have aps and from what I've been told you can have a movement disorder with lupus. I have involuntary movements from what looks like I'm being electrocuted (like whole body spasms that bring my whole body in) tics, left side facial spasms (also tongue) and hand movements. It's
Charts
in
LUPUS UK
8 months ago
Declining psa #9
Gm folks, hope all are having a wonderful New Year. I’m following up n giving results on using ivermectin, cbd oil, turmeric Vit b3,6,12 Vit c And zinc solely after eliminating ADT after 7 months, post Rp n rad… Psa dropped another .29 points to .66 down from .95 n psa was hovering 7 when I first got
Gm folks, hope all are having a wonderful New Year. I’m following up n giving results on using ivermectin, cbd oil, turmeric Vit b3,6,12 Vit c And zinc solely after eliminating ADT after 7 months, post Rp n rad… Psa dropped another .29 points to .66 down from .95 n psa was hovering 7 when I first got
Nfler
in
Advanced Prostate Cancer
6 months ago
Permanent AF how do you manage?
Hi everyone , I had AF for about six years I was diagnosed after I was fond to have a leaky heart valve,I could manage my AF while I was only getting episodes say once a month but then once a week but for the last week I’m having them every day ,not sure how to cope ,perhaps some of you lovely people
Hi everyone , I had AF for about six years I was diagnosed after I was fond to have a leaky heart valve,I could manage my AF while I was only getting episodes say once a month but then once a week but for the last week I’m having them every day ,not sure how to cope ,perhaps some of you lovely people
Fattypatty
in
AF Association
5 months ago
Join "Your Morning Wake-Up Call," a FREE virtual communication and cognition exercise series designed for individuals with Parkinson's
"Your Morning Wake-Up Call" features a comprehensive approach to enhancing communication and cognition, including: • Breath Exercises to strengthen breath support to help you communicate more effectively. • Voice and Speech Drills to improve your voice and enhance speech clarity. • Stimulating Cognitive
"Your Morning Wake-Up Call" features a comprehensive approach to enhancing communication and cognition, including: • Breath Exercises to strengthen breath support to help you communicate more effectively. • Voice and Speech Drills to improve your voice and enhance speech clarity. • Stimulating Cognitive
JMDean
in
Cure Parkinson's
6 months ago
Mr Alan M
I have been missed diagnosed with liver disease for years I believe that I am still around because I do not drink and I am quite strict with my diet etc. I have also taken a lot of over the counter medication for liver disease. I believe that the disease has been caused by DILI / prescribed medication
I have been missed diagnosed with liver disease for years I believe that I am still around because I do not drink and I am quite strict with my diet etc. I have also taken a lot of over the counter medication for liver disease. I believe that the disease has been caused by DILI / prescribed medication
TillySyd
in
British Liver Trust
6 months ago
Advice please 😌
Hi everybody, It’s nice to meet you all! So I’m sure you have loads of people posting on here about their frustrations with the NHS/GPs etc. therefore I won’t bore you with all of the details. My journey began in Dec 22 with what I thought was a bout of viral infection-induced joint pain in my hands
Hi everybody, It’s nice to meet you all! So I’m sure you have loads of people posting on here about their frustrations with the NHS/GPs etc. therefore I won’t bore you with all of the details. My journey began in Dec 22 with what I thought was a bout of viral infection-induced joint pain in my hands
Rocinante_89
in
LUPUS UK
8 months ago
updated Sjögren’s leaflet
https://sjogrensresearch-ireland.eu/wp-content/uploads/2022/09/Sjogrens-information-leaflet_2023-1.pdf Might be of interest!
https://sjogrensresearch-ireland.eu/wp-content/uploads/2022/09/Sjogrens-information-leaflet_2023-1.pdf Might be of interest!
weathervane
in
LUPUS UK
8 months ago
Been on Firmagon with Zytiga and Prednisone PSA rising, what can I do next?
Information in Bio Hoping to try a PARP inhibitor or Provenge perhaps, I don’t know much about this, but my medical oncologist keeps mentioning pluvicto, I’m not interested in doing that yet. Information from Bio below: Diagnosed 07/01/2022 Diagnosed By PSA Score 942.40 06/24-2022-07/06/2022
Information in Bio Hoping to try a PARP inhibitor or Provenge perhaps, I don’t know much about this, but my medical oncologist keeps mentioning pluvicto, I’m not interested in doing that yet. Information from Bio below: Diagnosed 07/01/2022 Diagnosed By PSA Score 942.40 06/24-2022-07/06/2022
Shorehousejam
in
Advanced Prostate Cancer
6 months ago
potential DILI - advice?
hi everyone, I’m 29F, at the end of April I was hospitalised for e-coli, given anti biotics and PPI’s through my IV line for 3 days, then continued on oral anti biotics with PPI’s for 5 days My symptoms continued and my ALT/AST are at 952/370 and continuing to rise still today, I feel awful, nauseous
hi everyone, I’m 29F, at the end of April I was hospitalised for e-coli, given anti biotics and PPI’s through my IV line for 3 days, then continued on oral anti biotics with PPI’s for 5 days My symptoms continued and my ALT/AST are at 952/370 and continuing to rise still today, I feel awful, nauseous
eljd
in
British Liver Trust
2 days ago
High-Dose Vitamin B1 / Thiamine and Fat Soluble Benfotiamine Form
I am reposting a reply to the Vitamin B1 thread as I noticed a search on HealthUnlocked for Benfotiamine doesn't list the thread for Vitamin B1 and the information I posted doesn't fit in one reply. I'm not giving medical advice but I know a lot of people here are open to trying things and watch if
I am reposting a reply to the Vitamin B1 thread as I noticed a search on HealthUnlocked for Benfotiamine doesn't list the thread for Vitamin B1 and the information I posted doesn't fit in one reply. I'm not giving medical advice but I know a lot of people here are open to trying things and watch if
jazj
in
Advanced Prostate Cancer
6 months ago
Tuesday's 'Tip'
I've decided to incorporate some of Dr. Jones's wisdom into our Tuesday's 'Tips' These are all from his book [u][i]The Definitive Guide for Patients Who Have Primary Biliary Cholangitis.[/i][/u] This an amazing source of information on PBC from a world leading expert. I strongly encourage everyone
I've decided to incorporate some of Dr. Jones's wisdom into our Tuesday's 'Tips' These are all from his book [u][i]The Definitive Guide for Patients Who Have Primary Biliary Cholangitis.[/i][/u] This an amazing source of information on PBC from a world leading expert. I strongly encourage everyone
DonnaBoll
Administrator
in
PBC Foundation
3 days ago
when to test child for CD?
Those of you with CD diagnosed in adulthood but with children - is there any evidence to suggest it’s beneficial to limit gluten in the diet? A fellow coeliac recently told me age 4 is when to get tested but he couldn’t recall where he got that info from. My daughter has no obvious signs and we haven
Those of you with CD diagnosed in adulthood but with children - is there any evidence to suggest it’s beneficial to limit gluten in the diet? A fellow coeliac recently told me age 4 is when to get tested but he couldn’t recall where he got that info from. My daughter has no obvious signs and we haven
Anj1a
in
Gluten Free Guerrillas
8 months ago
Anti-Androgen Therapy and Bone Tumors in Prostate Cancer
Sorry guys, but I found this and all I can say is it scared the hell out of me. Now I don't know what to think. Maybe someone can sort it out. https://journals.lww.com/oncology-times/fulltext/2021/08050/anti_androgen_therapy_can_fuel_spread_of_bone.16.aspx Jeff Dunn AO, Professor and CEO of the Prostate
Sorry guys, but I found this and all I can say is it scared the hell out of me. Now I don't know what to think. Maybe someone can sort it out. https://journals.lww.com/oncology-times/fulltext/2021/08050/anti_androgen_therapy_can_fuel_spread_of_bone.16.aspx Jeff Dunn AO, Professor and CEO of the Prostate
85745
in
Advanced Prostate Cancer
6 months ago
1st consult questions to ask please
hi, please can someone guide me on which questions to ask? My brother has got his first appointment at Leeds liver Unit next week. He’s got Class C liver cirrhosis, was diagnosed in July as he was decompensated with ascites and hepatic encephalopathy and almost died. He’s seen gastro ONCE since being
hi, please can someone guide me on which questions to ask? My brother has got his first appointment at Leeds liver Unit next week. He’s got Class C liver cirrhosis, was diagnosed in July as he was decompensated with ascites and hepatic encephalopathy and almost died. He’s seen gastro ONCE since being
MrsAlien
in
British Liver Trust
6 months ago
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