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PSMA PET SCAN AND PSA
I had a disagreement with my RO today and wonder if he is right. My last PSMA PET Scan in Dec 2023 showed no progression. End January onwards I have an on off pain in the left ribcage area with an increasing frequency. To recap....PT3bN1Mx, RP in 2019, IMRT 2020 and on ADT for 30 months, currently completed
I had a disagreement with my RO today and wonder if he is right. My last PSMA PET Scan in Dec 2023 showed no progression. End January onwards I have an on off pain in the left ribcage area with an increasing frequency. To recap....PT3bN1Mx, RP in 2019, IMRT 2020 and on ADT for 30 months, currently completed
Tally111
in
Advanced Prostate Cancer
3 months ago
Acute kidney failure - creatinine is climbing
My hubby's treatment is venetoclax and acalabrutinib (he previously had obinutuzumab too). He is also taking sulfameth trimeth (for ammonia) and valacyclivor (for shingles) dropped from 1200 to 800 mg a day. We just saw a Renal Specialist Dr and she said that they really don't know the full extent
My hubby's treatment is venetoclax and acalabrutinib (he previously had obinutuzumab too). He is also taking sulfameth trimeth (for ammonia) and valacyclivor (for shingles) dropped from 1200 to 800 mg a day. We just saw a Renal Specialist Dr and she said that they really don't know the full extent
spi3
in
CLL Support
3 months ago
High serum creatinine
Hi im in a panic dr has worried me my serum creatinine is 97.....states on my result kidney trauma. Another test next week but now so stressed. Anyone else had this plz.
Hi im in a panic dr has worried me my serum creatinine is 97.....states on my result kidney trauma. Another test next week but now so stressed. Anyone else had this plz.
Ninnin67
in
NRAS
3 months ago
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Progress?
Good morning, not really after any advice just some thoughts from you lovely people. Basically in Oct ‘23 I had a massive variceal bleed, 6l blood transfusion and a 9% survival rate, very jaundice, lost over 3 stone bringing me to just under 6 stone, progonsees liver failure, put on a transplant list
Good morning, not really after any advice just some thoughts from you lovely people. Basically in Oct ‘23 I had a massive variceal bleed, 6l blood transfusion and a 9% survival rate, very jaundice, lost over 3 stone bringing me to just under 6 stone, progonsees liver failure, put on a transplant list
Starlight79
in
British Liver Trust
3 months ago
Feeling sick after HD (advice for my dad)
Hello! My dad (72) has been on HD for two years* now. Lately, he often finds that his blood pressure drops and he feels sick after he's returned home from dialysis, even if he feels okay during treatment. He says the clinic staff watches his BP closely as well as the amount of fluid they're removing
Hello! My dad (72) has been on HD for two years* now. Lately, he often finds that his blood pressure drops and he feels sick after he's returned home from dialysis, even if he feels okay during treatment. He says the clinic staff watches his BP closely as well as the amount of fluid they're removing
Agnes_Fleming
in
Kidney Dialysis
3 months ago
Addissons disease
Good afternoon. I was diagnosed with Adison's disease in 2022. Prescribed Prednisolone 5 mg. Now I take hydrocortisone tablets 20 mg per day. Fludrocortisone 0.1 mg. Once a year there is an Adrinal crisis, I end up in intensive care... Constant weakness, no vitality, I sleep a lot... I am only 43
Good afternoon. I was diagnosed with Adison's disease in 2022. Prescribed Prednisolone 5 mg. Now I take hydrocortisone tablets 20 mg per day. Fludrocortisone 0.1 mg. Once a year there is an Adrinal crisis, I end up in intensive care... Constant weakness, no vitality, I sleep a lot... I am only 43
Mariupol
in
PMRGCAuk
3 months ago
Addissons disease
Good afternoon. I was diagnosed with Adison's disease in 2022. Prescribed Prednisolone 5 mg. Now I take hydrocortisone tablets 20 mg per day. Fludrocortisone 0.1 mg. Once a year there is an Adrinal crisis, I end up in intensive care... Constant weakness, no vitality, I sleep a lot... I am only 43
Good afternoon. I was diagnosed with Adison's disease in 2022. Prescribed Prednisolone 5 mg. Now I take hydrocortisone tablets 20 mg per day. Fludrocortisone 0.1 mg. Once a year there is an Adrinal crisis, I end up in intensive care... Constant weakness, no vitality, I sleep a lot... I am only 43
Mariupol
in
PMRGCAuk
3 months ago
Final Pluvicto shot and things OK
I just had my 6th, and final, injection. Feeling well but everyone concerned with kidney function dropping -- hopefully transient and not an on-going trend, on the plus side this is the last time it has to deal with all that radioactive liquid. Chugging water and peeing like a champ! To review:
I just had my 6th, and final, injection. Feeling well but everyone concerned with kidney function dropping -- hopefully transient and not an on-going trend, on the plus side this is the last time it has to deal with all that radioactive liquid. Chugging water and peeing like a champ! To review:
Miccoman
in
Advanced Prostate Cancer
3 months ago
what is choline-avid prostate cancer
hi,I was dx in 2014 finished treatment in 2016 ht/rt psa is 0.04 so still ok except I now have severe osteoporosis for which I am having treatment, what I want to ask is does anyone take krill oil to help there joints, I have been reading on canceractive that krill oil is not good for prostate cancer
hi,I was dx in 2014 finished treatment in 2016 ht/rt psa is 0.04 so still ok except I now have severe osteoporosis for which I am having treatment, what I want to ask is does anyone take krill oil to help there joints, I have been reading on canceractive that krill oil is not good for prostate cancer
Radars
in
Advanced Prostate Cancer
3 months ago
Wednesday Word
[u][i]
ALT - Alanine Transaminase
[/i][/u] This is a blood test performed as part of your routine liver panel test. It is released more so by the [u][i]
hepatocytes -(liver cells)
[/i][/u] so it's associated more with hepatitis rather than PBC. ALT can be elevated in both non responders
[u][i]
ALT - Alanine Transaminase
[/i][/u] This is a blood test performed as part of your routine liver panel test. It is released more so by the [u][i]
hepatocytes -(liver cells)
[/i][/u] so it's associated more with hepatitis rather than PBC. ALT can be elevated in both non responders
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
How to control thirst to avoid Fluid overload
Hi Friends My mother is on Maintenance Haemodialysis thrice a week since 4 months. She is now adjusted to this process. As she lives in the tropical country, in the summer season it will be difficult for her to limit the fluid intake. Can any one advice how to control the thirst to limit fluid intake
Hi Friends My mother is on Maintenance Haemodialysis thrice a week since 4 months. She is now adjusted to this process. As she lives in the tropical country, in the summer season it will be difficult for her to limit the fluid intake. Can any one advice how to control the thirst to limit fluid intake
Mentoslfc
in
Dialysis Support
3 months ago
always question
Just this morning there was a post about questioning the legitimacy of a survey about itching - and receiving payment for completing it. Some of you reached out to The PBC Foundation (as did I) to just make sure it was 'for real'. I am just as hopeful that when any of you don't feel the care you receive
Just this morning there was a post about questioning the legitimacy of a survey about itching - and receiving payment for completing it. Some of you reached out to The PBC Foundation (as did I) to just make sure it was 'for real'. I am just as hopeful that when any of you don't feel the care you receive
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Time to PSA Nadir is related to progression-free-survival
This graph from Teoh (2014) plots the relationship between Time to PSA Nadir (months) versus Time to Progression (months) (i.e., Progression Free Survival). Cohort: ADT monotherapy (No RP or RT), all metastatic patients, median 74 y.o., GS = 8-10, N=419. A cubic spline curve fit matched the data points
This graph from Teoh (2014) plots the relationship between Time to PSA Nadir (months) versus Time to Progression (months) (i.e., Progression Free Survival). Cohort: ADT monotherapy (No RP or RT), all metastatic patients, median 74 y.o., GS = 8-10, N=419. A cubic spline curve fit matched the data points
janebob99
in
Advanced Prostate Cancer
3 months ago
Abiraterone seems to be working
An update on my situation. To review, I now appear to be castrate resistant after about 6 1/2 years of being castrate sensitive. My MO put me on Abiraterone, along the existing Lupron. I had my MO appt and my PSA has fallen from 4.5 to 2 after about 7 weeks on Abi. This is my second iteration with Abi
An update on my situation. To review, I now appear to be castrate resistant after about 6 1/2 years of being castrate sensitive. My MO put me on Abiraterone, along the existing Lupron. I had my MO appt and my PSA has fallen from 4.5 to 2 after about 7 weeks on Abi. This is my second iteration with Abi
fireandice123
in
Advanced Prostate Cancer
3 months ago
Some key differences found in lupus symptoms in men vs. women: Study
Men at higher risk of heart attack; women more likely to have arthritis Men with systemic lupus erythematosus (SLE) are more likely to experience kidney failure and heart attacks, while women with SLE are at higher risk of other symptoms, such as skin problems and arthritis, according to a new study
Men at higher risk of heart attack; women more likely to have arthritis Men with systemic lupus erythematosus (SLE) are more likely to experience kidney failure and heart attacks, while women with SLE are at higher risk of other symptoms, such as skin problems and arthritis, according to a new study
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 months ago
Cortisol test
Result of morning cortisal test was 131 which is rubbish (range 102-535) and explains why I feel exhausted some days. Have been on 3mg for several weeks. Looks like it’s a Synacthen test next. Thanks PMRpro for the info on that. Is the experience ok anyone out there who’s had one?
Result of morning cortisal test was 131 which is rubbish (range 102-535) and explains why I feel exhausted some days. Have been on 3mg for several weeks. Looks like it’s a Synacthen test next. Thanks PMRpro for the info on that. Is the experience ok anyone out there who’s had one?
Bluey-1
in
PMRGCAuk
3 months ago
Is it possible for me to get back to skateboard with autoimmune disease ever?Or do I need to give it up forever?
Hi everyone I have an autoimmune disease they say it might be lupus and myosis and Systemic Sclerosis. I don't even now which one it is or if it's all of them combined. I got diagnosed in 2022 and at this point all exercise and sports declined to none. I used to skate board, do boxing and play basketball
Hi everyone I have an autoimmune disease they say it might be lupus and myosis and Systemic Sclerosis. I don't even now which one it is or if it's all of them combined. I got diagnosed in 2022 and at this point all exercise and sports declined to none. I used to skate board, do boxing and play basketball
Crow9
in
LUPUS UK
6 months ago
PSA showing .014 - concerned?
I had RP 3/22, PSA went up to .095 3 months after. I started Orgovyx on 8/15/22 had radiation Jan & Feb 23 and started Abi 4/23. All my psa's have been 0 since 10/22. Now it is at .014. I see my oncologist next Tuesday but I don't want to wait for his answer. How bad of a sign is this? I'm guessing
I had RP 3/22, PSA went up to .095 3 months after. I started Orgovyx on 8/15/22 had radiation Jan & Feb 23 and started Abi 4/23. All my psa's have been 0 since 10/22. Now it is at .014. I see my oncologist next Tuesday but I don't want to wait for his answer. How bad of a sign is this? I'm guessing
VanHalen84
in
Advanced Prostate Cancer
3 months ago
Nicotine patches vs gum.
if you’re not aware, I’ve been experimenting with the nicotine patch. I found that it’s too much. I wonder if that why the trial failed. I found a couple pieces of gum, 3-4 a day as needed better. I will soon be off meds. They never really worked that good anyway. Nicotine works just as good if not
if you’re not aware, I’ve been experimenting with the nicotine patch. I found that it’s too much. I wonder if that why the trial failed. I found a couple pieces of gum, 3-4 a day as needed better. I will soon be off meds. They never really worked that good anyway. Nicotine works just as good if not
38yroldmale
in
Cure Parkinson's
3 months ago
my dad isn’t waking up
hi my dad is an 62 years old diabetic patient he had an left middle cerebral artery stroke He was normal at the beginning and had TPA and everything was absolutely normal he was about to have mechanical thrombectomy but then he felt dizzy and the doctors recommended a craniotomy decompression
hi my dad is an 62 years old diabetic patient he had an left middle cerebral artery stroke He was normal at the beginning and had TPA and everything was absolutely normal he was about to have mechanical thrombectomy but then he felt dizzy and the doctors recommended a craniotomy decompression
Jomanahj
in
ICUsteps
11 months ago
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