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immuno stopped due to inflammation
morning everyone , I’m currently on immunotherapy ( only had two so far) but this month I’ve developed a cough , chest infection, the hospital checked and say there is inflammation and infection in my lungs , either as a result of immunotherapy or previous radiotherapy… they’ve stopped my immunotherapy
morning everyone , I’m currently on immunotherapy ( only had two so far) but this month I’ve developed a cough , chest infection, the hospital checked and say there is inflammation and infection in my lungs , either as a result of immunotherapy or previous radiotherapy… they’ve stopped my immunotherapy
mishamilo53
in
The Roy Castle Lung Cancer Foundation
1 year ago
Diagnosed with Adenosquamous lung cancer
hi all First of all just wanted to say a big thank you to all that have posted on here and those that have replied - it's been a great help and a great resource ... I've been diagnosed with T4 N3 M1b Adenosquamous lung cancer ("predominantly adenocarcinoma with some squamous features" according
hi all First of all just wanted to say a big thank you to all that have posted on here and those that have replied - it's been a great help and a great resource ... I've been diagnosed with T4 N3 M1b Adenosquamous lung cancer ("predominantly adenocarcinoma with some squamous features" according
beesgood
in
The Roy Castle Lung Cancer Foundation
1 year ago
Early Birth Due to Mother’s Heart Condition
Within 24 hours after she was born she nearly died when her
lung
collapsed
- I had felt uneasy before I went to bed that night, I woke to the phone ringing at the nurses desk and before they entered my room, I knew that the call was for me.
Within 24 hours after she was born she nearly died when her
lung
collapsed
- I had felt uneasy before I went to bed that night, I woke to the phone ringing at the nurses desk and before they entered my room, I knew that the call was for me.
MummaSoap
in
British Heart Foundation
11 months ago
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Never rains just pours….😡😡
Now being tested for rheumatoid arthritis due to extremely painful ankles, knee and wrists. Hopefully if positive this new addition to the family will get on well with my IPF but as long as the lung transplant can proceed I’m cool. 🤪🤪 Stay safe xx
Now being tested for rheumatoid arthritis due to extremely painful ankles, knee and wrists. Hopefully if positive this new addition to the family will get on well with my IPF but as long as the lung transplant can proceed I’m cool. 🤪🤪 Stay safe xx
Mrbojangles
in
Lung Conditions Community Forum
1 year ago
lungwort
I was recently diagnosed with lung cancer and I’m having radiotherapy at this time. My daughter saw a supplement called Lungwort which she thought might help me. I bought it but I’m now a bit worried about taking it in case it does me harm. My question is - has anyone with a lung condition tried it
I was recently diagnosed with lung cancer and I’m having radiotherapy at this time. My daughter saw a supplement called Lungwort which she thought might help me. I bought it but I’m now a bit worried about taking it in case it does me harm. My question is - has anyone with a lung condition tried it
deni-123red_
in
Lung Conditions Community Forum
1 year ago
Lung cancer concern
Please help following a chest infection that wouldn't clear I've had s CT scan the area has grown its 4cm biopsy will be in the following days. I'm terrified I can't eat, sleep I'm convinced its cancer and I won't survive. I already have copd. Im 48 I'm just in dispair. Any advice would be appreciated
Please help following a chest infection that wouldn't clear I've had s CT scan the area has grown its 4cm biopsy will be in the following days. I'm terrified I can't eat, sleep I'm convinced its cancer and I won't survive. I already have copd. Im 48 I'm just in dispair. Any advice would be appreciated
tracyball1
in
Lung Cancer Support
1 year ago
First timer. Anyone taking Mychophenolate
Hello all. Have been getting the benefit reading all the posts from all you lovely fellow sufferers but have been reluctant for no real reason to posts my own. So here goes. Is anyone taking or any experience of Mychophenolate as a steroid sparing medication for GCA. I've been prescribed it as I need
Hello all. Have been getting the benefit reading all the posts from all you lovely fellow sufferers but have been reluctant for no real reason to posts my own. So here goes. Is anyone taking or any experience of Mychophenolate as a steroid sparing medication for GCA. I've been prescribed it as I need
Puffin3
in
PMRGCAuk
1 year ago
Transplant delays and oxygen referrals
First things first, huge apologies for not getting back to those that left a comment on my last post which was now more than 2 months ago. It's safe to say that a lot has happened since then so hold on to your hats! After getting over the disappointment of a third transplant call not working out and
First things first, huge apologies for not getting back to those that left a comment on my last post which was now more than 2 months ago. It's safe to say that a lot has happened since then so hold on to your hats! After getting over the disappointment of a third transplant call not working out and
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
1 year ago
Kras g12c
i was diagnosed with stage IIIA nsclc Nov 2023. Im currently doing carboplatin/paclitaxel 7 rounds 1x weekly and 37 daily radiation treatment. I have been fortunate to not have any side effects other than severe acid reflux and fatigue. This past week found out i have BRCA2, and Kras g12c and STK11
i was diagnosed with stage IIIA nsclc Nov 2023. Im currently doing carboplatin/paclitaxel 7 rounds 1x weekly and 37 daily radiation treatment. I have been fortunate to not have any side effects other than severe acid reflux and fatigue. This past week found out i have BRCA2, and Kras g12c and STK11
DJL10
in
Lung Cancer Support
1 year ago
Vancouver liquid biopsy NGS for lung cancer?
Hi all, I first signed up to this support group when my Mum was diagnosed NSCLC in 2018, she sadly passed away in 2021 after trying Iressa (~1yr), chemo (~1yr), and Tagrisso (~10m). Unfortunately, my ~70yr old uncle who lives in Vancouver had a CT scan last week that showed a change (from one year
Hi all, I first signed up to this support group when my Mum was diagnosed NSCLC in 2018, she sadly passed away in 2021 after trying Iressa (~1yr), chemo (~1yr), and Tagrisso (~10m). Unfortunately, my ~70yr old uncle who lives in Vancouver had a CT scan last week that showed a change (from one year
waterchestnut
in
Lung Cancer Support
1 year ago
Back into the operating room, today.
In January, I had six lesions removed from my liver, The surgeon went through my
lung
, which
collapsed
and got air in it. It still hurts from where the nurse pulled the drain from my chest. That is not the big thing, though. Whilst doing pre-op scans, a metastasis was found in my skull.
In January, I had six lesions removed from my liver, The surgeon went through my
lung
, which
collapsed
and got air in it. It still hurts from where the nurse pulled the drain from my chest. That is not the big thing, though. Whilst doing pre-op scans, a metastasis was found in my skull.
jersey-jazz
in
SHARE Metastatic Breast Cancer
1 year ago
My our Journey so far.
I had Sepsis pneumonia/ Strep A /
Collapsed
left
lung
/ Acute Kidney Injury and Dialysis/ Multi Organ Failure / Heart Attack once or twice I’m not sure yet / which has left me with Atrial fibrillation., I was also inline to have ECMO apparently it was discussed with I think St Thomas’s London but I
I had Sepsis pneumonia/ Strep A /
Collapsed
left
lung
/ Acute Kidney Injury and Dialysis/ Multi Organ Failure / Heart Attack once or twice I’m not sure yet / which has left me with Atrial fibrillation., I was also inline to have ECMO apparently it was discussed with I think St Thomas’s London but I
BigH63
in
ICUsteps
10 months ago
length of time for biopsy results
Hi, had a partial lung lobectomy and lymph node removal, was told biopsy results would be back in 7-10 days. It’s now been 41 days and I’ve heard nothing. When I contact various people I’m just being told this length of timeframe is not uncommon.. this does not sound right to me… Anyone else had to wait
Hi, had a partial lung lobectomy and lymph node removal, was told biopsy results would be back in 7-10 days. It’s now been 41 days and I’ve heard nothing. When I contact various people I’m just being told this length of timeframe is not uncommon.. this does not sound right to me… Anyone else had to wait
Hidden
in
Lung Conditions Community Forum
1 year ago
Join Us! Tuesday, February 14th, Gathering HOPE, a Social
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted now on our ZOOM link this coming Tuesday, February 14th, at 5pm PT
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted now on our ZOOM link this coming Tuesday, February 14th, at 5pm PT
Michelezeh
Partner
in
Lung Cancer Support
1 year ago
Immunotherapy
Having had a lobectomy a few years ago on right lung, I now have 2 opacities on lower left lung. As there had only been one lesion seen on lower left lung I was offered radiotherapy. After last scan which showed another lesion adjacent to the first, I am told that 'radiotherapy is off the table'. At
Having had a lobectomy a few years ago on right lung, I now have 2 opacities on lower left lung. As there had only been one lesion seen on lower left lung I was offered radiotherapy. After last scan which showed another lesion adjacent to the first, I am told that 'radiotherapy is off the table'. At
ferntreegully
in
The Roy Castle Lung Cancer Foundation
1 year ago
So fed up, after CABG worse off.
I had a triple bypass on 16th September followed by internal bleeding, severe AF, a
collapsed
lung
and fluid on the lung. Two days after discharge I was rushed back in to my local hospital with a saddle PE, PEs in both lungs and a clot in my heart.
I had a triple bypass on 16th September followed by internal bleeding, severe AF, a
collapsed
lung
and fluid on the lung. Two days after discharge I was rushed back in to my local hospital with a saddle PE, PEs in both lungs and a clot in my heart.
Sljp0000
in
British Heart Foundation
2 years ago
Oesophageal cancer
Unfortunately I suffered a perferation and subsequently suffered a
collapsed
lung
. My cough got worse after this and more recently have been hospitalised with a chronic lung infection.
Unfortunately I suffered a perferation and subsequently suffered a
collapsed
lung
. My cough got worse after this and more recently have been hospitalised with a chronic lung infection.
xmasbabe59
in
Oesophageal & Gastric Cancer
2 years ago
An update on my father’s immunotherapy for his lung cancer.
Hello , an update on my father’s immunotherapy for lung cancer. Would really appreciate any thoughts , insight or experiences. Especially, but no only, those which can give my father some further hope. My father was disagnosed with Stage 4 lung cancer around 10 months ago. He started on chemo but
Hello , an update on my father’s immunotherapy for lung cancer. Would really appreciate any thoughts , insight or experiences. Especially, but no only, those which can give my father some further hope. My father was disagnosed with Stage 4 lung cancer around 10 months ago. He started on chemo but
Vip1
in
The Roy Castle Lung Cancer Foundation
1 year ago
Lung Surgery Cancelled Twice
After an incidental find of a 19mm lung nodule and a clear PET scan in late October my respiratory consultant was sure it was a slow growing cancer caught early and recommended, which was agreed by me, that rather than a biopsy I go straight to surgery for a lung wedge resection to remove the nodule
After an incidental find of a 19mm lung nodule and a clear PET scan in late October my respiratory consultant was sure it was a slow growing cancer caught early and recommended, which was agreed by me, that rather than a biopsy I go straight to surgery for a lung wedge resection to remove the nodule
Domino13
in
The Roy Castle Lung Cancer Foundation
1 year ago
Would you be interested in new support if you have a mutation driven lung cancer, or have surgery as a treatment?
Hello all, On 16th February we will be starting an eight week programme of hour long on line support sessions for people with genetic mutation driven lung cancer. The sessions will be run by our facilitator and share coping ideas, practical tips and experience of treatment. If you would like to participate
Hello all, On 16th February we will be starting an eight week programme of hour long on line support sessions for people with genetic mutation driven lung cancer. The sessions will be run by our facilitator and share coping ideas, practical tips and experience of treatment. If you would like to participate
LorraineD
Roy Castle
in
The Roy Castle Lung Cancer Foundation
1 year ago
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